My brave brave husband

aunti_m
aunti_m Member Posts: 41
edited March 2014 in Esophageal Cancer #1
My husband has not been doing well the past few months. His cancer is growing very rapidly and taking over his body. We called in Hospice last week to help keep him more comfortable but on Thursday the doctors told him the chemo Taxol and Carboplatin he had the week prior had a positive response. We asked the doctors if he thought he'd be around for our daughter's birthday on the 18th, he said probably not without the chemo. So of course he said he had to try to be here even after the first round of Taxol and Carbo almost killed him last weekend. He's so brave to do this and this weekend was very rough, Monday I thought he was doing a little better but yesturday he started having severe reflux. I've tried almost everything to help keep him comfortable but nothing seems to help and his throat is causing excrutiating pain. I gave him his maximum limit of Morphine through the night but only helped a bit. It's so hard to watch him in so much pain. My son told me last night he hopes dad will be here for his birthday too which is in April, I couldn't help but break down. I told him that I hoped so to, but that maybe we could celebrate it this weekend just in case God needs him sooner. God bless everyone on this site, I hope everyone can find strength and comfort in Him, I know that's the only thing that's kept me going.

Comments

  • chrisk06
    chrisk06 Member Posts: 110
    I am so sorry! I just lost
    I am so sorry! I just lost my husband on December 23, 2009. I know how hard it is. Do not hesitate to call hsopice and have them get the dosage upped. My husband was on Dauladid (not sure if I spelled it right) but it is stronger than morphine from what I understand. I don't have alot of words of wisdom, all I can say is enjoy every moment you can. Even if you have to have those parties earlier do it! Those are the moemories you want! I will keep you and your family in my prayers.

    {{{BIG HUGE HUGS}}}
    Chris
  • MAE66
    MAE66 Member Posts: 66
    I am sorry you husband
    I am sorry you husband dealing with the pain on top of the chemo. There should be something else they can do, maybe a pump? I know how hard it is to stay on top of pain, not to mention the rest of family life.
    We are in the last stage of this illness. I think it is a great idea to move birthdays up. Our youngst was scheduled to receive her First Communion in May and we celebrated it last weekend. This is so hard, and having young children makes everything harder. My husband is aslo fighting so hard and I know it is because he does not want to leave the kids. Stay strong and take care. I keep telling the kids that this is one of the hardest things they will have to go thru in life.

    Susan
  • unclaw2002
    unclaw2002 Member Posts: 599
    chrisk06 said:

    I am so sorry! I just lost
    I am so sorry! I just lost my husband on December 23, 2009. I know how hard it is. Do not hesitate to call hsopice and have them get the dosage upped. My husband was on Dauladid (not sure if I spelled it right) but it is stronger than morphine from what I understand. I don't have alot of words of wisdom, all I can say is enjoy every moment you can. Even if you have to have those parties earlier do it! Those are the moemories you want! I will keep you and your family in my prayers.

    {{{BIG HUGE HUGS}}}
    Chris

    Chris has a great idea.
    Chris has a great idea. Perhaps you could do a Dad is special party or a celebrate your family day - or if the kids are younger how about a 3/4 birthday party or something like that --- I remember when my kids were younger they were always more than happy to say they were 5 and 3/4. These are days to cherish, take lots of pictures and if possible take videos so the kids can hear his voice as they get older. Maybe even do a special video or book for the kids if you haven't already. I will keep eyou in my prayers.

    All my best,
    Cindy
  • unclaw2002
    unclaw2002 Member Posts: 599
    chrisk06 said:

    I am so sorry! I just lost
    I am so sorry! I just lost my husband on December 23, 2009. I know how hard it is. Do not hesitate to call hsopice and have them get the dosage upped. My husband was on Dauladid (not sure if I spelled it right) but it is stronger than morphine from what I understand. I don't have alot of words of wisdom, all I can say is enjoy every moment you can. Even if you have to have those parties earlier do it! Those are the moemories you want! I will keep you and your family in my prayers.

    {{{BIG HUGE HUGS}}}
    Chris

    Chris has a great idea.
    Chris has a great idea. Perhaps you could do a Dad is special party or a celebrate your family day - or if the kids are younger how about a 3/4 birthday party or something like that --- I remember when my kids were younger they were always more than happy to say they were 5 and 3/4. These are days to cherish, take lots of pictures and if possible take videos so the kids can hear his voice as they get older. Maybe even do a special video or book for the kids if you haven't already. I will keep you in my prayers.

    All my best,
    Cindy
  • oriontj
    oriontj Member Posts: 375
    I'm so sorry to hear your
    I'm so sorry to hear your news...I really hate this cancer...right now things are better but that can change in a heartbeat.

    Do all the birthdays at once...my heart breaks for you.

    orion
  • Donna70
    Donna70 Member Posts: 852 Member
    oriontj said:

    I'm so sorry to hear your
    I'm so sorry to hear your news...I really hate this cancer...right now things are better but that can change in a heartbeat.

    Do all the birthdays at once...my heart breaks for you.

    orion

    your husband
    Hi,
    I think Susan has a good idea with the pump for pain, also how about Fentanyl patches? I would definitely let the hospice people know the pain is breaking thru and you want him not to suffer like this. I will be praying and think all the suggestions about making this weekend special are very good and the videos etc would be something your children can have forever. Sorry that you all have to endure this. Prayers always,
    Donna70
  • This comment has been removed by the Moderator
  • mumphy
    mumphy Member Posts: 440
    unknown said:

    This comment has been removed by the Moderator

    Hospice Yes!!!
    Hi M,

    I would make sure you get a hospice referral right away.. For his comfort and for you piece of mind. You know your huband is in pain and there is nothing you can do about it.

    The party is also a good idea keep it small. One the greatest comforts that I have is knowing that had his children and grandchildren with him on the last day of his life.

    I know in my heart that was one of the happiest days of his life. Just being able to hear the girls laugh and telling him that he has to drink his tea everytime one of those girls asked him to drink it he did.

    Well I got alittle off track but get referral to hospice.

    My prayers are with you,
    God Bless,
    Kath