Chef Trek
Comments
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Hi Dave,Fire34 said:Mouth Sores
Mike
What kind of chemo are you on. I was given 5FU and that gave me the mouth sores. I was given diflucan daily and it did help the sores. I was also on Erbitux that just gave me the really bad acne. The magic mouthwash only helped a little for me, but seemd to work better the worse things got. Stay strong Mike
Dave
I'm getting Erbitux
Hi Dave,
I'm getting Erbitux and with a few side affects. One annoying side affect is that all my finger tips have open splits that are very painful and bleed a lot. Due to a different condition, I have no feeling in my hands and feet in the surface nerves, but if I get cut deep enough I feel pain.
Another is the sores that are all over my scalp, face and chest.
I also have blurred vision, mostly in one eye though, so the doctor is having my eyes looked at to see if they cooked my retina.
I was using the Magic mouthwash but I would feel ill after swallowing it and then I learned it has Benadryl in it, which I can't have so I use straight Lidocaine now. It numbs the mouth pretty well but it doesn't stop the throat pain. The doc said I'm cooked pretty bad though. He said he might stop the radiation so my throat can heal up a little bit.
Take care my friend
Mike0 -
Italian eatery!Chefdaddy said:Hi Dave,
I'm getting Erbitux
Hi Dave,
I'm getting Erbitux and with a few side affects. One annoying side affect is that all my finger tips have open splits that are very painful and bleed a lot. Due to a different condition, I have no feeling in my hands and feet in the surface nerves, but if I get cut deep enough I feel pain.
Another is the sores that are all over my scalp, face and chest.
I also have blurred vision, mostly in one eye though, so the doctor is having my eyes looked at to see if they cooked my retina.
I was using the Magic mouthwash but I would feel ill after swallowing it and then I learned it has Benadryl in it, which I can't have so I use straight Lidocaine now. It numbs the mouth pretty well but it doesn't stop the throat pain. The doc said I'm cooked pretty bad though. He said he might stop the radiation so my throat can heal up a little bit.
Take care my friend
Mike
Hi Sweets,
Well, it's obvious we need to open an Italian eatery! No Scrapple though! lol
I too had hundreds of cookbooks that were lost between divorce and moving. One that I especially miss was from the early 1800's and was written by a President's White House Chef.
I know what you mean about not being able to eat, but I cook meals for my kids and they are rather spoiled with my cooking. My brother, their uncle, cooks gourmet as well and has been doing it for nice eateries for many years.
Before becoming ill, I installed cooking and baking equipment for restaurants and bakeries. We would have to open one on the West coast though, I hate the cold! lol
Or, we could open one in Florida so we could cook up all that fish that John and Hondo are going to catch.
Thanks for the cooking lesson, I need more for those "foreign" foods. lol
Scrapple, what were they thinking? Some things just need to be tossed and not cooked.
Your friend
Mike0 -
ScrappleChefdaddy said:Italian eatery!
Hi Sweets,
Well, it's obvious we need to open an Italian eatery! No Scrapple though! lol
I too had hundreds of cookbooks that were lost between divorce and moving. One that I especially miss was from the early 1800's and was written by a President's White House Chef.
I know what you mean about not being able to eat, but I cook meals for my kids and they are rather spoiled with my cooking. My brother, their uncle, cooks gourmet as well and has been doing it for nice eateries for many years.
Before becoming ill, I installed cooking and baking equipment for restaurants and bakeries. We would have to open one on the West coast though, I hate the cold! lol
Or, we could open one in Florida so we could cook up all that fish that John and Hondo are going to catch.
Thanks for the cooking lesson, I need more for those "foreign" foods. lol
Scrapple, what were they thinking? Some things just need to be tossed and not cooked.
Your friend
Mike
"Some things need to be tossed and not cooked", Mike? What, and waste a perfectly good snout?
Teasing - here, we don't have scrapple, we have goetta (pork shoulder and pinhead oats).0 -
lol, you guys are funnyPam M said:Scrapple
"Some things need to be tossed and not cooked", Mike? What, and waste a perfectly good snout?
Teasing - here, we don't have scrapple, we have goetta (pork shoulder and pinhead oats).
i hear you, glenna. the first time my ex cooked scrapple for breakfast, i woke up gagging out of a dead sleep from the smell. no thanks.0 -
Oh my aching nosesweetblood22 said:lol, you guys are funny
i hear you, glenna. the first time my ex cooked scrapple for breakfast, i woke up gagging out of a dead sleep from the smell. no thanks.
LOL, that had to be an indicator that something was dreadfully wrong with him. Ugghhhhhh, just the thought of the smell....
Ralph signing off0 -
daddy MikeChefdaddy said:Oh my aching nose
LOL, that had to be an indicator that something was dreadfully wrong with him. Ugghhhhhh, just the thought of the smell....
Ralph signing off
I agree on the scrapples, we need Pam and Sweet to join us all in Tampa for a toast of eating Fish and kicking Cancer in the butt.0 -
Hi my friend,Hondo said:daddy Mike
I agree on the scrapples, we need Pam and Sweet to join us all in Tampa for a toast of eating Fish and kicking Cancer in the butt.
What a great
Hi my friend,
What a great "get together" that would be huh!
We were contacted by the Make-A-Wish foundation and they are going to send my son, my daughter and myself to either Disneyland California or Florida. My son has a fear of heights so I'm not sure if flying is a possibility yet. If he thinks he can fly it would be great to go to Florida and maybe hook up together. I understand Disney in Florida is pretty awesome. I've been to Disney in Ca. several times since I was a little kid, but the last time was back in the late 80's.
I was using a small hand mirror with the bathroom big mirror today trying to see what was hurting the back of my neck so bad. I could tell I had big sores just above the hairline on my neck, but when I looked I saw that I no longer had any hair there, it was bald from where it had started on my neck, up to about three inches towards the top of my head. The rad. doc said I would lose a little hair back there, but this is a lot more than a little.
The sores are obviously radiation burns and I've noticed that the muscles in my neck are sore and achy. Did you experience this as well? It looks like one of those 1920's bowl haircuts. lol
Well my friend it's late and I have to take my son to his oncology doc early tomorrow morning before my appointment to get cooked some more.
Your friend
Well done Mike0 -
Disney OrlandoChefdaddy said:Hi my friend,
What a great
Hi my friend,
What a great "get together" that would be huh!
We were contacted by the Make-A-Wish foundation and they are going to send my son, my daughter and myself to either Disneyland California or Florida. My son has a fear of heights so I'm not sure if flying is a possibility yet. If he thinks he can fly it would be great to go to Florida and maybe hook up together. I understand Disney in Florida is pretty awesome. I've been to Disney in Ca. several times since I was a little kid, but the last time was back in the late 80's.
I was using a small hand mirror with the bathroom big mirror today trying to see what was hurting the back of my neck so bad. I could tell I had big sores just above the hairline on my neck, but when I looked I saw that I no longer had any hair there, it was bald from where it had started on my neck, up to about three inches towards the top of my head. The rad. doc said I would lose a little hair back there, but this is a lot more than a little.
The sores are obviously radiation burns and I've noticed that the muscles in my neck are sore and achy. Did you experience this as well? It looks like one of those 1920's bowl haircuts. lol
Well my friend it's late and I have to take my son to his oncology doc early tomorrow morning before my appointment to get cooked some more.
Your friend
Well done Mike
That would be awesome Mike....
Disney Orlando is only about 40 miles from me... Plus there are tons of other places right there. I think there are three separate Disney Parks, then also Universal and Sea World. Also over in Tampa (about 75 miles or so) you have Busch Gardens Tampa....
As for the hairline. I have a lot less facial hair than I used to, but it's mostly under my chin so shaving is less frequesnt and easier, LOL. The neckline in the back has moved up a few inches, but not that bad or noticeable really. I keep my hair fairly short and tapered, so it just blends in.
You sound great and hopefully you are finally on your way to some relief and recovery.....
Kick Butt, and God Bless,
John0 -
Busch Gardens in beautifulSkiffin16 said:Disney Orlando
That would be awesome Mike....
Disney Orlando is only about 40 miles from me... Plus there are tons of other places right there. I think there are three separate Disney Parks, then also Universal and Sea World. Also over in Tampa (about 75 miles or so) you have Busch Gardens Tampa....
As for the hairline. I have a lot less facial hair than I used to, but it's mostly under my chin so shaving is less frequesnt and easier, LOL. The neckline in the back has moved up a few inches, but not that bad or noticeable really. I keep my hair fairly short and tapered, so it just blends in.
You sound great and hopefully you are finally on your way to some relief and recovery.....
Kick Butt, and God Bless,
John
John, I lived in the Tampa/St Pete area for 4 years and went to Busch Gardens everytime my grandchildren came down to visit. I absolutely loved it, you can spend an entire day there enjoying the rides, shows and animals. I definitely recommend it if Mike gets a chance to see it with his kids, he will love it as much as the kids do.
I miss Florida but it was too far away from all of my family so I moved back to NH ten years ago.
Mike, I hope you are finally starting to improve and the pain is under control. I lost some of the hair on the back of my head also from the radiation. I wear my hair shoulder length so it really doesn't show but the back of my neck gets cold a lot easier now ;-)
Take care and stay strong,
Glenna0 -
Why are y'all dissing scrapple?Pam M said:Eating Fish
Fish tacos? Maybe Hondo can make guacamole, since he's got the avocado connections.
Scrapple is pretty popular here in Delaware, too. One town where they make scrapple actually has the Apple Scrapple Festival every year -- they grow apples there, too -- and thousands of people turn out. Believe it or not, they even have a scrapple sculpting competition.
I grew up eating the stuff, but hadn't had any in many years. As I was recovering from treatment, it was the first "meat" I ate, and tasted pretty darned good.
And, for those of you who don't like the idea of eating "everything but the squeal," they even make turkey scrapple now. It's not bad.
--Jim in Delaware0 -
Italysweetblood22 said:pa dutch food 101
I would share any recipe with you, LOL. I had almost 300 cookbooks at one point in time. Had to leave most at the farm when I left. I really wish I could eat. grrr. I make a mean hand made chicken tortelini, awesome bolognese, and many other italian dishes.
Maybe one day, I will be able to eat, swallow and taste.
Whoopie pies are like Devil Dogs. Chocolate cake with creme filling. Shoo-fly is a molasses and brown sugar pie with crumbs on the top. Usually 'wet bottom' is made here. Very goopy on the bottom. Scrapple is all the nasty parts on a pig, like the head, after slaughter, boiled and mixed up with cornmeal and spices, and pressed into a mold like a bread pan, like a terrine or pate. It sets up, and then they slice it and fry it. Some people put maple syrup on it. gag. Rivels go into soup. They are sort of like spaetzele in a way. They are made with eggs and flour, and look like little cut up bits in the soup. And the pot pie with noodles is actually really good, but should not be called 'pie' if there is no crust. It is sort of like a chicken and dumpling dish. But they make the noodles instead of dumplings, like a thicker, square, big piece of pasta. Or you can buy them in the store as 'pot pie bows', but they are not anywhere near as good as home made.
Here endeth the cooking lesson for today.
d
I spent three years on the heel of the boot - Brindisi - and you brought back great memories. The tortelini was winderful.
Denny0 -
Hair and rad burnsChefdaddy said:Hi my friend,
What a great
Hi my friend,
What a great "get together" that would be huh!
We were contacted by the Make-A-Wish foundation and they are going to send my son, my daughter and myself to either Disneyland California or Florida. My son has a fear of heights so I'm not sure if flying is a possibility yet. If he thinks he can fly it would be great to go to Florida and maybe hook up together. I understand Disney in Florida is pretty awesome. I've been to Disney in Ca. several times since I was a little kid, but the last time was back in the late 80's.
I was using a small hand mirror with the bathroom big mirror today trying to see what was hurting the back of my neck so bad. I could tell I had big sores just above the hairline on my neck, but when I looked I saw that I no longer had any hair there, it was bald from where it had started on my neck, up to about three inches towards the top of my head. The rad. doc said I would lose a little hair back there, but this is a lot more than a little.
The sores are obviously radiation burns and I've noticed that the muscles in my neck are sore and achy. Did you experience this as well? It looks like one of those 1920's bowl haircuts. lol
Well my friend it's late and I have to take my son to his oncology doc early tomorrow morning before my appointment to get cooked some more.
Your friend
Well done Mike
Chef
I had the exact same thing plus one morning I woke up and every hair on my face (I had a beard) left me overnight. That was a shock plus I never found them on the pillow.
Disney World is a blast for all.0 -
daddy MikeChefdaddy said:Hi my friend,
What a great
Hi my friend,
What a great "get together" that would be huh!
We were contacted by the Make-A-Wish foundation and they are going to send my son, my daughter and myself to either Disneyland California or Florida. My son has a fear of heights so I'm not sure if flying is a possibility yet. If he thinks he can fly it would be great to go to Florida and maybe hook up together. I understand Disney in Florida is pretty awesome. I've been to Disney in Ca. several times since I was a little kid, but the last time was back in the late 80's.
I was using a small hand mirror with the bathroom big mirror today trying to see what was hurting the back of my neck so bad. I could tell I had big sores just above the hairline on my neck, but when I looked I saw that I no longer had any hair there, it was bald from where it had started on my neck, up to about three inches towards the top of my head. The rad. doc said I would lose a little hair back there, but this is a lot more than a little.
The sores are obviously radiation burns and I've noticed that the muscles in my neck are sore and achy. Did you experience this as well? It looks like one of those 1920's bowl haircuts. lol
Well my friend it's late and I have to take my son to his oncology doc early tomorrow morning before my appointment to get cooked some more.
Your friend
Well done Mike
That is great news for the kids, Disneyland California or Florida, I am just so glad to see things starting to work for the better now, and when you are talking Disneyland there is a kid in every one of us.
Yep the hair up the right side of the back of my neck about even with the ears was all missing one morning; remind me of the hair cut my uncle would give me when I was a kid. We could not complain because it was for free, one size fit all, just lucky he was there for us.
I have no idea how you can do so much for your kids and keep going with all the problems you are having. God bless and be with you and the kids0 -
my favorite placeHondo said:Pam
Fish tacos with avocado, now you are talking, I may not have any saliva but somehow I am drooling at the very thought of something so good.
i love walt disney world. there are 3 parks, plus downtown disney.
no one warned me about the exit burns on my back, and the hairloss. my picture is from the night before i started radiation. i just got my hair the way i wanted it. i lost 4 inches in the back and had burns too. i tried to keep my hair long, but it was a mess. i cut it all really short to start again. the 4 inches i lost grew back super curley. half the back is wavy, the rest super curls. looks weird.0 -
Hair Loss & Regrowthsweetblood22 said:my favorite place
i love walt disney world. there are 3 parks, plus downtown disney.
no one warned me about the exit burns on my back, and the hairloss. my picture is from the night before i started radiation. i just got my hair the way i wanted it. i lost 4 inches in the back and had burns too. i tried to keep my hair long, but it was a mess. i cut it all really short to start again. the 4 inches i lost grew back super curley. half the back is wavy, the rest super curls. looks weird.
The hair loss and new growth is rather amusing I guess. Not to be crude, but I lost most of my body hair. When I started getting it back for several months it was almost like going through puberty. Everything came back really fine and super straight. But eventually what body hair that you are going to get back seems to return to the normal adult variety.
Of course it also goes without saying unfortunately. You still end up with hair in places that you wish you didn't and nothing in the areas that you want hair, LOL....
John0 -
Beard no moreSkiffin16 said:Hair Loss & Regrowth
The hair loss and new growth is rather amusing I guess. Not to be crude, but I lost most of my body hair. When I started getting it back for several months it was almost like going through puberty. Everything came back really fine and super straight. But eventually what body hair that you are going to get back seems to return to the normal adult variety.
Of course it also goes without saying unfortunately. You still end up with hair in places that you wish you didn't and nothing in the areas that you want hair, LOL....
John
In a positive way of thinking the treatments burned my neck so completely that I now only have a beard above my jaw line. The heavy coarse hair on my neck is completely gone. Here is the positive thought. Prior to treatment I needed to use a fresh blade each time I shaved. Now a razor can last up to seven months. That is a considerable saving in my razor blade budget and I do not miss the neck hair one bit.
The neck is the only place that I suffered any hair loss. I didn't have much on my head to begin with since God only made so many good heads and the rest he put hair on them. LOL!0 -
Hi Debbie,my boyfriendsdebbiejeanne said:back
hi, Chef. I"m sorry you're in so much pain and I will pray for you as I always do. How did court go? I hope everything went the way you wanted it to. You have enuf on your plate w/o worrying about your mean X...lol. I pray you are feeling much better very soon.
All, I am 21 weeks post rad trmnts. My tastebuds had come back for a while but are messed up again now. My hands shake really bad sometimes, I feel hair on my cheek when it isn't there, my pupils are very big and stay that way all day, i become very dizzy several times and day and ofter stumble (like a drunk) when I walk. Have any of you experienced these things? I am not sure what to think but it is becoming a real hassel. It is bringing me down and making me wondering if I'll ever get to the point where I feel half way normal. It seems like each new day brings a new side effect. It is honestly dishartening.
Thank you in advance and God Bless!
Debbie
Hi Debbie,
my boyfriends issues are similiar. He still doesnt have his taste back or saliva, but he notices that his hands shake alot more than before. im wondering if its because of all the muscle mass that he lost. i didnt notice his pupils bigger at all. he has very bright blue eyes so i think i would have seen that easily. I live 500 miles away from him so i dont see him everyday. this has made it much harder for me to know all the facts of his cancer and treatment and after effects. He has gotten dizzy several times when getting up too fast from a sitting position usually. But at least those things arent like the pain that can be felt.
Not sure what else I can offer, but you arent the only one with those added side effects.
he is 18 1/2 weeks post treatment for SCC in his jaw I think is where it was. only 1 tumor was found and its totally obliterated with no evidence of any more cancer. Just trying to recover from his treatment.
Kathy0 -
so sorry to hear you lostHondo said:daddy Mike
I hope things are going a little better for you today then they have the last few days. I lost one of my best friends yesterday that I have worked with for many many years, somehow while driving to work his SUV flipped over and through him out killing him on the spot, he was only 55. I get so tired of this life of sickness and suffering and having to see people I care about go through trials that sometimes seam so unnecessary. Please take care Mike I want nothing more then to someday be able to meet you and your children, I hope and pray everyday for you my friend.
so sorry to hear you lost someone important to you....0
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