Chef Trek

Chefdaddy said:

Update
Hi everyone,

I finally have internet!!!!!

Here's an update.

This morning I awoke to the worst pain I've felt in my mouth and throat so far, it put me in tears before I could get out of bed. The Magic mouthwash didn't work and then I went to the straight Lidocaine, but that didn't phase it either. The Fentynal patch did nothing as it was a lower dosage.

Later, when I arrived for my radiation treatment I told the technician of the pain and when the procedure was over I was told to wait as the nurse wanted to see me. She examined my mouth and then had the doctor come see me. After he did his inspection of my mouth he told me that I was very cooked and if I couldn't get the pain under control he would have to stop the radiation treatments. He then told me to wear two patches and then he called several pharmacies looking for Fentynal lolly-pops on a stick. It turned out that the pharmacy there at the hospital had them in stock. They are extremely fast acting and strong.
He told me to suck on one for about 10 minutes to see how it was affecting me, it took me about three minutes and I felt it kicking in so I stopped. Amazing stuff!

As far as the PEG food problems, the nutritionist for the company that supplies the canned
PEG food called me to inform me that they could not find any that didn't have Iodine, but they were still researching it. I bought several jars of baby food and I'm trying it watered down a little bit so it will flow through the tube. They are also hydrating me everyday now, 2 liters, I think I'm going to grow gills! LOL

My gums are very swollen now from the cooking, as well as from the bone chips trying to work their way out, I can no longer close my mouth. A new radiation technician was putting my mask on me and it wasn't going down smoothly, so she started hitting the mask to force it down, which was also hitting my swollen bleeding lips and gums. I became rather rude at that point.

I'm hoping that the baby food will work until they can find a pre-made canned food for the PEG.

Take care everyone, and have a great weekend.

Your friend
Mike

Chefdaddy said:

To all!
Hi Debbiejeane, Scambuster, Glenna, Sweetblood22 and Hondo:

Hi Debbie,

No court yet and I'm a little ticked with the kid's attorney for not telling the judge early on what the ex had done. I'm assuming we are going to court on the originally set date of the 22nd of this month.

Debbie did you have chemo as well? I ask because of the neuropathy it can cause. They chose to give me Erbitux instead of the regular chemo due to the severe neuropathy in both my legs, feet and hands. I have no feeling in them and now that I am on Fentynal walking has become more challenging. The dizziness I have from the nerves that were affected when the removed my right lymph node. It messed up the band of nerves that goes from the jaw up to the ear and now the radiation has made it worse. I lost hearing in that ear and gained piercing pain.

I would suggest to have one of your doctors refer you to a neurologist, as most of your symptoms appear to be somewhat nerve related.

My prayers are with you my dear.


Scambuster,

I looked up Vita-shake and finally found the ingredients and it has iodine as well.

Thanks anyway.


Hi Glenna,

Thank you for your continued prayers and encouragement.


Hi Sweetblood,

I get "overdosed" really easy so I have to be very careful. The top halves of both my lungs were burned in a chemical exposure 30 years ago and all pain medications drop my o2 intake fast to dangerous levels.


Hi Hondo,

How are you doing? I am so very very very tired of this.

Did I mention I'm so very tired of this? lol

I truly am so very tired of all this as it makes tending to my son's emotional, physical and psychological needs extremely difficult.

Please continue keeping him in your prayers.

PS. The "lolly-pops" are giving me Po-Boy dreams! LOL

Your friend

Mike

Chefdaddy said:

To all!
Hi Debbiejeane, Scambuster, Glenna, Sweetblood22 and Hondo:

Hi Debbie,

No court yet and I'm a little ticked with the kid's attorney for not telling the judge early on what the ex had done. I'm assuming we are going to court on the originally set date of the 22nd of this month.

Debbie did you have chemo as well? I ask because of the neuropathy it can cause. They chose to give me Erbitux instead of the regular chemo due to the severe neuropathy in both my legs, feet and hands. I have no feeling in them and now that I am on Fentynal walking has become more challenging. The dizziness I have from the nerves that were affected when the removed my right lymph node. It messed up the band of nerves that goes from the jaw up to the ear and now the radiation has made it worse. I lost hearing in that ear and gained piercing pain.

I would suggest to have one of your doctors refer you to a neurologist, as most of your symptoms appear to be somewhat nerve related.

My prayers are with you my dear.


Scambuster,

I looked up Vita-shake and finally found the ingredients and it has iodine as well.

Thanks anyway.


Hi Glenna,

Thank you for your continued prayers and encouragement.


Hi Sweetblood,

I get "overdosed" really easy so I have to be very careful. The top halves of both my lungs were burned in a chemical exposure 30 years ago and all pain medications drop my o2 intake fast to dangerous levels.


Hi Hondo,

How are you doing? I am so very very very tired of this.

Did I mention I'm so very tired of this? lol

I truly am so very tired of all this as it makes tending to my son's emotional, physical and psychological needs extremely difficult.

Please continue keeping him in your prayers.

PS. The "lolly-pops" are giving me Po-Boy dreams! LOL

Your friend

Mike

Chefdaddy said:

Hi everyone
Debbie,

There is a way you can help me physically....PULL THE TRIGGER NOW! LOL

I truly appreciate your concern and prayers, you are a very caring person.

Your friend
Mike

Dazey,

I need something like that, my blender is dying and the food processor is old and worn out like me. It's funny though, the last few stores I went to that usually carry those appliances didn't have any on their shelves. I'm going to have to look harder to get food blended down enough to get through a small orifice.

Thank you


Hi John,

Yeah finally huh?

I'm really happy for you to get such great news.

Take care my friend

Mike

Chefdaddy said:

On my mind
Hi Sweets,

How are you doing? You were on my mind a lot today while I was at the hospital all day.
I was thinking about several of your posts that I have read and what you have gone through between family loss, divorce, treatment pain and the blood issue. My heart goes out to you my dear.

I was also thinking about you today while on the way home because the top of my mouth began screaming in pain and I realized it was now covered in sores. I remembered what you said about what happened to the top of your mouth while driving home. Gives me goose bumps just thinking about what you went through. I think you are one tough gal!

I know I need to find one of those emulsifiers, as you said, anything else just doesn't do the job. My mom used to make incredible apple butter. The store bought stuff in a jar doesn't come close.


I appreciate your friendship and I am praying for you.

Your friend

Mike

Chefdaddy said:

On my mind
Hi Sweets,

How are you doing? You were on my mind a lot today while I was at the hospital all day.
I was thinking about several of your posts that I have read and what you have gone through between family loss, divorce, treatment pain and the blood issue. My heart goes out to you my dear.

I was also thinking about you today while on the way home because the top of my mouth began screaming in pain and I realized it was now covered in sores. I remembered what you said about what happened to the top of your mouth while driving home. Gives me goose bumps just thinking about what you went through. I think you are one tough gal!

I know I need to find one of those emulsifiers, as you said, anything else just doesn't do the job. My mom used to make incredible apple butter. The store bought stuff in a jar doesn't come close.


I appreciate your friendship and I am praying for you.

Your friend

Mike

Chefdaddy said:

What's wrong with those Dutch lol
Hey kiddo,

Sicilian? Molto buono! I hope you have some good recipes I can borrow. lol

Alright, you have me on some of those items, like whoopie pies, shoo-fly pie, scrapple, rivels??(what the heck is that?) and pot pie with noodles?? I have no idea what that is. lol


Your very hungry friend

Mike

sweetblood22 said:

pa dutch food 101
I would share any recipe with you, LOL. I had almost 300 cookbooks at one point in time. Had to leave most at the farm when I left. I really wish I could eat. grrr. I make a mean hand made chicken tortelini, awesome bolognese, and many other italian dishes. Maybe one day, I will be able to eat, swallow and taste.

Whoopie pies are like Devil Dogs. Chocolate cake with creme filling. Shoo-fly is a molasses and brown sugar pie with crumbs on the top. Usually 'wet bottom' is made here. Very goopy on the bottom. Scrapple is all the nasty parts on a pig, like the head, after slaughter, boiled and mixed up with cornmeal and spices, and pressed into a mold like a bread pan, like a terrine or pate. It sets up, and then they slice it and fry it. Some people put maple syrup on it. gag. Rivels go into soup. They are sort of like spaetzele in a way. They are made with eggs and flour, and look like little cut up bits in the soup. And the pot pie with noodles is actually really good, but should not be called 'pie' if there is no crust. It is sort of like a chicken and dumpling dish. But they make the noodles instead of dumplings, like a thicker, square, big piece of pasta. Or you can buy them in the store as 'pot pie bows', but they are not anywhere near as good as home made.

Here endeth the cooking lesson for today.

d

Chefdaddy said:

On my mind
Hi Sweets,

How are you doing? You were on my mind a lot today while I was at the hospital all day.
I was thinking about several of your posts that I have read and what you have gone through between family loss, divorce, treatment pain and the blood issue. My heart goes out to you my dear.

I was also thinking about you today while on the way home because the top of my mouth began screaming in pain and I realized it was now covered in sores. I remembered what you said about what happened to the top of your mouth while driving home. Gives me goose bumps just thinking about what you went through. I think you are one tough gal!

I know I need to find one of those emulsifiers, as you said, anything else just doesn't do the job. My mom used to make incredible apple butter. The store bought stuff in a jar doesn't come close.


I appreciate your friendship and I am praying for you.

Your friend

Mike