Has any one tried or researched HIFU or CyberKnife for treating Prostate Cancer?

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Comments

  • bdhilton
    bdhilton Member Posts: 866 Member
    #42
    randy_in_indy said:

    I just talked to my brother - about his climbing
    He has done about 30 climbs on fourteeniers...said he has done several twice so probably 25 different 14teeners and said there is 50 or more. He indicated that he would not do the top ten to twelve because it would probably end in death - too technically and some are far away - lives in Parker CO. You'll be fine, your in the best hands you be in.

    I will anticipate and await your posts...post surgery.

    Randy in Indy

    Lots of people head to Colorado
    Sorry I meant California as “out west”. Lots of people head to Colorado (about 54) to bag 14eers but you do not often hear about the ones in the Sierra Nevada (about 12-15 depends who you are arguing with and I say 14). Any hoot… your brother is right many are dangerous but then again 14k the air starts to get a little thin and if you take trail or climb it is all a challenge and rewarding…. A challenge I hope to meet for a few years after my post PC surgery and waning mid years…

    I am not bringing my computer so I hope to post something back here in about a week…

    My best to all in their journey
  • bdhilton
    bdhilton Member Posts: 866 Member
    #43
    mrshisname said:

    Fda approvals
    Erisian, I am not naive enough to fully trust the FDA - believe me - but honestly, the sparse data I've found on HIFU is just not very thorough or very convincing. There DO need to be more studies, at least to fully convince me and many others. The data is just not there nor is it complete.

    Might just be the next best thing since sliced bread
    But the International HIFU folks that bring us most of the fact of this treatment (from my research) are run by the same folks that manufacture one of the most used piece of equipment for this procedure (Sonablate® 500 )…Humm…Just a thought… :-)
  • mrshisname
    mrshisname Member Posts: 186
    #44
    bdhilton said:

    Might just be the next best thing since sliced bread
    But the International HIFU folks that bring us most of the fact of this treatment (from my research) are run by the same folks that manufacture one of the most used piece of equipment for this procedure (Sonablate® 500 )…Humm…Just a thought… :-)

    might just be the next best thing since sliced bread
    yep, BD. I noticed that too. Wishing you all the best...
  • HIFUgal
    HIFUgal Member Posts: 58
    #45
    mrshisname said:

    might just be the next best thing since sliced bread
    yep, BD. I noticed that too. Wishing you all the best...

    No, International HIFU isn't
    No, International HIFU isn't the company that sells the ultrasound machine, it is placing them at clinics though, maybe they are distributors. Misonix is the machine maker, it was invented in 1941.
  • luckyman2
    luckyman2 Member Posts: 54
    #46
    HIFUgal said:

    No, International HIFU isn't
    No, International HIFU isn't the company that sells the ultrasound machine, it is placing them at clinics though, maybe they are distributors. Misonix is the machine maker, it was invented in 1941.

    Your comment regarding bullies in the room
    HIFUgal, you stated, "... they just keep quiet, you and bd are the bullies in the room". They simply don't share your view and they have certainly not tried to "bully" anyone into walking away from HIFU as a viable treatment option.

    It has become very obvious that you are indeed pushing HIFU for your own personal financial gain. The manner and frequency in which you promote HIFU clearly demonstrates that you are in a conflict of interest. You also keep changing the story and about your husband's status right after HIFU. Isn't it convenient that he never speaks for himself?

    In addition you:
    1. twist the facts regarding the FDA, surgeons and radiologists
    2. ignore everyone's input regarding HIFU
    3. are evasive when someone questions you about your intentions.

    You also mentioned, "If HIFU were to hire someone surely they could do better than me". One does not have to be "hired" to be in a conlflict of interest... (just a legal point here).

    Again, very important: I am neither for nor against HIFU, but you are doing everyone a great disservice through your ranting and misleading statements about the FDA, surgeons and radiologists and about HIFU.

    I also believe that if you continue to recklessly disregard everyone's input (including that of the other people who are doing something truly worthwhile about HIFU), you will land up in an emergency room... because they will have to surgically remove someone's foot from your butt.
  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,346 Member
    #47
    luckyman2 said:

    Your comment regarding bullies in the room
    HIFUgal, you stated, "... they just keep quiet, you and bd are the bullies in the room". They simply don't share your view and they have certainly not tried to "bully" anyone into walking away from HIFU as a viable treatment option.

    It has become very obvious that you are indeed pushing HIFU for your own personal financial gain. The manner and frequency in which you promote HIFU clearly demonstrates that you are in a conflict of interest. You also keep changing the story and about your husband's status right after HIFU. Isn't it convenient that he never speaks for himself?

    In addition you:
    1. twist the facts regarding the FDA, surgeons and radiologists
    2. ignore everyone's input regarding HIFU
    3. are evasive when someone questions you about your intentions.

    You also mentioned, "If HIFU were to hire someone surely they could do better than me". One does not have to be "hired" to be in a conlflict of interest... (just a legal point here).

    Again, very important: I am neither for nor against HIFU, but you are doing everyone a great disservice through your ranting and misleading statements about the FDA, surgeons and radiologists and about HIFU.

    I also believe that if you continue to recklessly disregard everyone's input (including that of the other people who are doing something truly worthwhile about HIFU), you will land up in an emergency room... because they will have to surgically remove someone's foot from your butt.

    Well said
    One correction,

    "I also believe that if you continue to recklessly disregard everyone's input (including that of the other people who are doing something truly worthwhile about HIFU), you will land up in an emergency room... because they will have to surgically remove someone's foot from your butt."

    HIFU gal will not need surgical removal ............HIFU will do a better job.
  • dakotarunner
    dakotarunner Member Posts: 102 Member
    #48
    hopeful and optimistic said:

    Well said
    One correction,

    "I also believe that if you continue to recklessly disregard everyone's input (including that of the other people who are doing something truly worthwhile about HIFU), you will land up in an emergency room... because they will have to surgically remove someone's foot from your butt."

    HIFU gal will not need surgical removal ............HIFU will do a better job.

    Truce
    Seems like there has been enough said regarding HIFUgal's comments. Let's all call a truce on this.
    HIFUgal, you have made numerous posts regarding your thoughts on HIFU. It would seem that you have put your all your information out at least once, if not many more times. People accessing this site can read and reason for themselves, and do not need a never ending dialog on the same thing. If thye have further questions, they can ask you.
    To those who do not agree with HIFUgal. I see clearly see your point. My name got brought into one of her posts and I posted a note to her to basiclally keep me out of her comments. We all have our feelings on PC, and how to best handle it in our own particular situation. Although I wear a size 13, I do not think it is in anyones best interest to keep slamming a poster.
    I strongly feel that we have bigger fish to fry on this site - so lets call a truce to this, meaning both sides call it good enough and drop it here and now.
    If I have offended anyone, well maybe I meant to. Like I said, we have more important things to do.

    Dakotarunner
    PC Class of '04
    POPCc
  • mrshisname
    mrshisname Member Posts: 186
    #49
    dakotarunner said:

    Truce
    Seems like there has been enough said regarding HIFUgal's comments. Let's all call a truce on this.
    HIFUgal, you have made numerous posts regarding your thoughts on HIFU. It would seem that you have put your all your information out at least once, if not many more times. People accessing this site can read and reason for themselves, and do not need a never ending dialog on the same thing. If thye have further questions, they can ask you.
    To those who do not agree with HIFUgal. I see clearly see your point. My name got brought into one of her posts and I posted a note to her to basiclally keep me out of her comments. We all have our feelings on PC, and how to best handle it in our own particular situation. Although I wear a size 13, I do not think it is in anyones best interest to keep slamming a poster.
    I strongly feel that we have bigger fish to fry on this site - so lets call a truce to this, meaning both sides call it good enough and drop it here and now.
    If I have offended anyone, well maybe I meant to. Like I said, we have more important things to do.

    Dakotarunner
    PC Class of '04
    POPCc

    Amen Dakotarunner
    Well put, and here's to a truce.
  • dakotarunner
    dakotarunner Member Posts: 102 Member
    #50
    mrshisname said:

    Amen Dakotarunner
    Well put, and here's to a truce.

    Good deal Lucille!
    Thanks mrs - your comment was appreciated.

    Best to you and mrhisname.
  • randy_in_indy
    randy_in_indy Member Posts: 496 Member
    #51
    dakotarunner said:

    Good deal Lucille!
    Thanks mrs - your comment was appreciated.

    Best to you and mrhisname.

    I will truce.....
    as long as the other half agrees to cease and desist in promoting. I stand up for what I believe in...always have...and always will....period.

    Randy In Indy
  • dakotarunner
    dakotarunner Member Posts: 102 Member
    #52
    randy_in_indy said:

    I will truce.....
    as long as the other half agrees to cease and desist in promoting. I stand up for what I believe in...always have...and always will....period.

    Randy In Indy

    Fair enough
    Sounds logical to me. Time will tell. Thanks for the reply.

    Best wishes. Keep up the good fight

    Dakotarunner
    POPC
  • HIFUgal
    HIFUgal Member Posts: 58
    #53
    dakotarunner said:

    Fair enough
    Sounds logical to me. Time will tell. Thanks for the reply.

    Best wishes. Keep up the good fight

    Dakotarunner
    POPC

    I'd love to see this
    I'd love to see this closed....
  • dakotarunner
    dakotarunner Member Posts: 102 Member
    #54
    HIFUgal said:

    I'd love to see this
    I'd love to see this closed....

    Headed toward closure
    Looks like the "madness" is winding down. Time will tell.

    Thank you for the reply. Best to you and your husband.

    Dakotarunner
    POPC
  • active surveillance
    active surveillance Member Posts: 16
    #55
    dakotarunner said:

    Headed toward closure
    Looks like the "madness" is winding down. Time will tell.

    Thank you for the reply. Best to you and your husband.

    Dakotarunner
    POPC

    Christ you know it aint easy
    Can we decorate all of this scowling verbage with ad nausem frosting ?!
  • mrshisname
    mrshisname Member Posts: 186
    #56
    randy_in_indy said:

    I will truce.....
    as long as the other half agrees to cease and desist in promoting. I stand up for what I believe in...always have...and always will....period.

    Randy In Indy

    HIFU gal
    HIFUgal is posting on a site called "Dailystrength.org" as "HIFUisKing". She said she's been banned here on this site.
    Just wanted to let you all know. I am on daily strength for other issues,(they have support groups for virtually anything, it's a great site), and I joined the prostate cancer group recently, and lo and behold she was posting about HIFU. She seems to have toned it down some, though. We've been communicating cordially thus far. I still maintain that no one can tell a man what to do, it is a highly individualized decision and you need to explore all avenues before deciding.
    I'm more in favor of my husband waiting a few months to decide. But he wants the cancer GONE now and wants to have reports of the pathology from the tissue obtained.
    I'm behind whatever he wants 110% !
  • the.wife
    the.wife Member Posts: 20
    #57
    pawpaw3 said:

    HIFU
    I am extremely interested in any more information that HIFUgal can send. I would very much like to talk to her. I have talked to Dr. Scionti and would appreciate you sharing any knowledge that you have acquired in this area. It looks as though you have done your research. Thanks

    Dear Cagey
    Dear Cagey,

    How much did HIFU cost in India? How did it go? How are you?

    I have a friend who went to India and had both his hips replaced, he raves about the level of care he received and the facilities he was treated in and the state of the art equipment you have over there.

    I figure we could see the Taj Mahal and really make a wonderful adventure out of this curse called cancer.!

    Thank you for any input, hope you are still reading here.

    PawPaw3,
    I see others appreciated HIFUgal here, hope you are doing well too!
  • the.wife
    the.wife Member Posts: 20
    #58
    mrshisname said:

    HIFU gal
    HIFUgal is posting on a site called "Dailystrength.org" as "HIFUisKing". She said she's been banned here on this site.
    Just wanted to let you all know. I am on daily strength for other issues,(they have support groups for virtually anything, it's a great site), and I joined the prostate cancer group recently, and lo and behold she was posting about HIFU. She seems to have toned it down some, though. We've been communicating cordially thus far. I still maintain that no one can tell a man what to do, it is a highly individualized decision and you need to explore all avenues before deciding.
    I'm more in favor of my husband waiting a few months to decide. But he wants the cancer GONE now and wants to have reports of the pathology from the tissue obtained.
    I'm behind whatever he wants 110% !

    Dear Cagey,How much did
    Dear Cagey,

    How much did HIFU cost in India? How did it go? How are you?

    I have a friend who went to India and had both his hips replaced, he raves about the level of care he received and the facilities he was treated in and the state of the art equipment you have over there.

    I figure we could see the Taj Mahal and really make a wonderful adventure out of this curse called cancer.!

    Thank you for any input, hope you are still reading here.

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