Newbie's Wife - just diagnosed 3 days ago

randy_in_indy said:

Mrshisname - Oncologist
GO SEE HIM - Do NOT cancel - educate yourself and husband. It's an Option. My oncologist for second opinion here in Indy was DR. Dougan - He told me "I'd do surgery and come back to me if there are any positive margins or further cancer to kill." He was trained at one of the primer radiation hospitals in US General Mass. Your urologist is doing you right by recommending to get a second, third opinion. Noting your biopsy results it would suggest you do have time...however know this also. My biopsy only showed cancer in the right lobe 3 of 8 samples taken 4 from both sides. POST OP - I had cancer in both sides and tumors in both sides less than 1mm from breaking through the capsle and becoming a positive margin...scary...I was positively detected on OCT 27th and had surgery on 12/29. My first biopsy results would have suggested I had plenty of time...PSA's 7.25 and 6.17....soooooo... not everyone is the same nor is their cancer nor is it exactly what the biopsy results would indicate...again though looking back at my stats...Dr. Koch's lab used for second opinion was closer than the original lab to the actual post op path report.... more severe grading and perhaps a tad less volume. Here is what I do reco for your husband. Get and MRI with Coil - spectroscopy if you can..just another test and I like recomending that to everyone because whY? 1. can tell if the capsle has been broken through which would most likely alter your choices of method and 2. Armed with yet more information to make a better treatment decision. YOu may have heard this in one of my other posts...that the orginal surgeon signed up with in the same group I ended with...said no need for MRI with coil...would not change the surgery plan...he point blank told me I will swing wide and take the right side nerve...hey the nodgle was on that side...but hey wait a minute after the surgery...post op path...it was on both sides....If he knew that he would have taken both sides....now I have no nerves ...no erections...I"M 52..and far from dead especially in that area..hey one of the best reasons to fight to stay alive as far as I am concerned...that, a good beer and good food...I am happy for life. Ok as I slap myself to stay back on point here... so...the surgeon I chose...Says "Randy you get an MRI coil so I can see if its escaped...then when I am in there doing the surgery if the nerve peels off easily..nothing holding on to it...I'm saving it...both sides....Not only did he save both nerves 100%...he found what he said he has only seen in 3 or 4 other men...two extra pudental arteries running on the topside of the penis feeding blood....he smiled you and Annette will thank me for finding and saving them....Yeap...in my book...He's my type of ROCK STAR SURGEON...I love the guy! And wha-la...on day 56 post da vinci..usable erection...no leak on orgasm...it just doesn't get any better than that!!!!!!!!!!!!!!!!

Crazy... Randy in indy - yeah...that's "good crazy" not "bad crazy"

We need smiles & some laughter here...I try to provide that from time to time...even though I am a rambling horrible writer.

tr008 said:

just diagnosed
I wish that I'd had numbers like your husbands. My plan would have been to watch carefully and wait but taking a very proactive plan on diet. As I wrote in another letter, there is much info stating that fat is what feeds cancer (particularly prostate cancer). I would read everything that you can get your hands on regarding a very low fat diet. Then have a psa test every three months and watch it very carefully. Until it went up consistently I wouldn't do a thing. And then before surgery I would have another biopsy if some time passes and the psa does go up. I am not a Dr. but this is what I would do.

Read the "China Study", "Eat to Beat Prostate Cancer Cookbook" and start finding other low fat cookbooks, such as "Eating your way to better Health". There's a lot out there.

Prostate cancer is so slow growing anyway and with your numbers I don't think that you would put yourself in any danger taking this approach as long as you're watching your psa closely.

My Opinion!

Tom