low white blood cell count 3mos after chemo finished

bleedpink
bleedpink Member Posts: 11
edited March 2014 in Breast Cancer #1
I'm a little concern I finished my chemo November 2 I'm half way through my RAD therapy and instead of my wbc coming back up it keeps dropping my red blood cells have recovered and are in a normal range now. Should I be concern that my bone marrow won't recover? Should I really be concern about infection.

Comments

  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    You are more susceptible to
    You are more susceptible to colds, infections, etc. with a low white blood count. Are you having your blood drawn and checked by your onco? If so I would think if you were too low they would be doing something. If not, I would make sure they are aware of this. Good luck and keep us posted.
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Bleedpink, my wbc stayed low
    Bleedpink, my wbc stayed low through and beyond rads. Just had to remain extra-careful. My rad. onc. was not concerned as my low number is typical for post-chemo.

    At my last check in December, 4 months post-rads, my wbc is still not back to normal. It's climbing, just slowly. Again, med. onc not concerned as number still typical. I am hoping my wbc will be up at my next check in February.

    Re concern about infection, I think we have to remain vigilant about protecting ourselves as much as possible from germs, at home and out in public. As far as serious issues, I have heard of oncologists calling patients and telling them to stay home due to their low wbc test results. But that never happened to me.
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    Moopy23 said:

    Bleedpink, my wbc stayed low
    Bleedpink, my wbc stayed low through and beyond rads. Just had to remain extra-careful. My rad. onc. was not concerned as my low number is typical for post-chemo.

    At my last check in December, 4 months post-rads, my wbc is still not back to normal. It's climbing, just slowly. Again, med. onc not concerned as number still typical. I am hoping my wbc will be up at my next check in February.

    Re concern about infection, I think we have to remain vigilant about protecting ourselves as much as possible from germs, at home and out in public. As far as serious issues, I have heard of oncologists calling patients and telling them to stay home due to their low wbc test results. But that never happened to me.

    Same thing here
    I finished chemo (4 rounds of Cytoxan/Taxotere) in early October. At my 1-month checkup, my WBC count was 7.5 -- I thought, yay, back up to normal. However, at my 2-month checkup, it was down to 2.5 -- I almost fell off the exam table when the nurse handed the report to me, and was a panicked wreck by the time my doctor came into the room.

    He told me very firmly and confidently that he was not concerned, and I shouldn't be, either. First, because he said it's very common for WBC counts to seesaw up and down for months after chemo (I think he said it could be as long as a year), that it's not the smooth linear increase that I expected. Second, because he said my neutrophils are fine. I know that neutrophils are a specific type of WBC, and they were what my oncologist was always most concerned about during chemo. If my neutrophils were nice and high, he almost didn't care what my overall WBC count was.

    Hope that helps,

    Traci
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    TraciInLA said:

    Same thing here
    I finished chemo (4 rounds of Cytoxan/Taxotere) in early October. At my 1-month checkup, my WBC count was 7.5 -- I thought, yay, back up to normal. However, at my 2-month checkup, it was down to 2.5 -- I almost fell off the exam table when the nurse handed the report to me, and was a panicked wreck by the time my doctor came into the room.

    He told me very firmly and confidently that he was not concerned, and I shouldn't be, either. First, because he said it's very common for WBC counts to seesaw up and down for months after chemo (I think he said it could be as long as a year), that it's not the smooth linear increase that I expected. Second, because he said my neutrophils are fine. I know that neutrophils are a specific type of WBC, and they were what my oncologist was always most concerned about during chemo. If my neutrophils were nice and high, he almost didn't care what my overall WBC count was.

    Hope that helps,

    Traci

    Thanks, Traci ... My WBC counts are all over the charts
    Scared to say the least ! Thanks for the insight, and I'll keep this email at hand so that when I freak out about my low WBC counts, I know that it is normal for some of us sisters in PINK.

    VickiSam
  • e_hope
    e_hope Member Posts: 370
    same thing happened to me
    I had posted the exact same thing a few months ago while I was in treatment. This can be totally normal, but if you are concerned just talk with your oncologist. I am now back in the normal range. Just hang in there, I know how every little thing causes concern in our heads once you hear the big C. neutrophils are more important than the WBC alone, they are more concern if they drop, so as long as they are normal your okay
  • cats_toy
    cats_toy Member Posts: 1,462 Member
    mine was just the opposite
    my white and red counts were always good throughout chemo and rads. Finished all treatment in December of 2007. My last blood work was in August and both are low. Go figure.
    You just never know how you are going to respond to this stuff, but stay strong and keep away from sick people!
    Cat
  • Eil4186
    Eil4186 Member Posts: 949
    I think this is pretty
    I think this is pretty common. My WBC took about 9 months to get back up to 4 which is just at the normal point and has never gone up from there. Now 3 years after chemo my platelets are low. My onc. said this is due to the chemo. He said that for some, thier bone marrow will never be the same as it was before treatment. I am going to try not to worry too much as long as the levels don't fall dangerously low. Talk with your oncologist, hopefully he can look at your individual situation and put your mind at ease.
  • Skeezie
    Skeezie Member Posts: 586 Member
    Eil4186 said:

    I think this is pretty
    I think this is pretty common. My WBC took about 9 months to get back up to 4 which is just at the normal point and has never gone up from there. Now 3 years after chemo my platelets are low. My onc. said this is due to the chemo. He said that for some, thier bone marrow will never be the same as it was before treatment. I am going to try not to worry too much as long as the levels don't fall dangerously low. Talk with your oncologist, hopefully he can look at your individual situation and put your mind at ease.

    Hi All,
    I've been out of treatment for 6 weeks and my WBC has been normal. Did you all get Neulasta shots? And it still is up and down? Mine was normal for all 4 cycles. My protein and potassium took a dive tho. Now I'm anxious for my next blood test.

    Judy :-)
  • padee6339
    padee6339 Member Posts: 763
    Opposite
    My red blood cell count is low, it has been ever since chemo. Where it should be about 36, I hover around 29-32. My oncologist gives me a shot of Aranesp every month, you'd think it would help??? I am anemic and guess I have to get used to that. I try to eat more red meat, and take my B12 tablets every day, but doesn't help. Its funny, the rest of my family has too much iron in their system and I am anemic.
    Pat
  • Mason
    Mason Member Posts: 7
    edited August 2020 #11
    Low WBC 8 months out of chemo

    I am 8 months out of chemo for DLBCL with brentuxamab - my past WBC from February until August are 6.0 4.0 and now 3.0.  My platelets have fallen from 450 to 225.  RBC ok.  Onc doesn't seem overly concerned and states "mildly depressed WBC" but no good answer as to why 8 months out my counts are trending downward and are as low as WBC has ever been.  Port out in May and recent LE US shows small new lymph node Undecided.  Has anyone had this same WBC/platelet concern? 

  • Miles' mom
    Miles' mom Member Posts: 46 Member
    edited September 2020 #12
    YOU ARE STRONG AND BEAUTIFUL.

    YOU ARE STRONG AND BEAUTIFUL. YOU ARE A SURVIVIOR!