No so alone

SamsWife
SamsWife Member Posts: 50
edited March 2014 in Caregivers #1
Hello everyone, it's been a long time since I've posted. My husband was diagnosed in July of 2007 and he is currently losing his battle with colon cancer. I hope it's okay to post this - it seems that everyone is so positive and I don't want to be a downer.

I want to start by saying that the reason for this post is that I hope it will be helpful for someone else going through what I am going through. My husband and I have been married for many years and it has been a long and lonely time for me. For many, many years he ignored me and the kids and just went on with his life - I suspect and am pretty certain that he had a girlfriend or two along the way. After many years of sucking it all up and "staying married for the kids", I finally had enough pain and loneliness and decided that when the kids were old enough for me to go to work, I would seek a divorce. The kids never really knew how distant we were but they have certainly noticed that we didn't interact much. We played the game socially and for extended family and we really never openly fought in front of the kids. Well, he became ill and needed to be cared for. After a while, he did start to spend more time with the kids but the marriage just deteriorated even more throughout his illness. He truly has been a very difficult person to live with for a very, very long time - self centered and arrogant and was never really interested in how we felt about things. He has deteriorated rapidly in the last week, but even as much as a few weeks ago, he wanted to separate so he could die in the company of another woman, which confirmed all of my earlier suspicions. This was very confusing to me because, even though the marriage was over, I thought we had worked through a lot and agreed that we would stay a "whole" family through this and I would care for him and he would be with his children and then he dropped that bomb - it was hard for me to be understaning about him wanting to distance himself from his children to be with someone else. I truly thought we had reached a nice friendship which really was progress for us and caring for him was a gift I wanted to give him and the kids. I really had no problem with him spending time with someone else - I had mourned the end of the marriage a long time ago and I truly wanted him to have good times before he passes. I just really had a hard time with him wanting to be away from the kids. Right about that time, he had another health crisis and like I said has deteriorated rapidly so any plans to separate are not possible. Anyway, having said all of that, I have come to a place where I have so much compassion for him right now - I truly have never seen someone suffer more than he has and it truly breaks my heart. Given what we're dealing with now, and as hard as it was, I really am grateful that we didn't divorce and he is here with people who care about him. I can't really forget about all of the hard times in the marriage, but on a human level, I'm truly grateful that I can show him gentleness and kindness through this, oh so lonely transition from this world - it's hard work, sad and exhausting but I am committed to his care. I have to say that I would not recommend to anyone to stay in a bad marriage - it just about ruined my emotional health, but given what we've been through with this terrible, terrible cancer journey - I'm grateful to have found a place of peace and compassion and friendship and, in some ways, beauty (I hope that doesn't offend anyone) at this time.

Thanks so much for listening - I've been reading the posts and I haven't felt so alone through this trial.

God bless to you all!

Comments

  • mr steve
    mr steve Member Posts: 285
    thank you
    I hope some day I could be as strong in friendship as you.

    Hugs and Prayers
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    Sam is a very fortunate man.
    Sam is a very fortunate man. You are also a very special person to go through what you've been through and with such grace, it seems. Your reward is to enjoy the beauty that you have created. Bless you!!
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    Post Away
    Please feel free to post here whenever you feel you need it. I received a great deal of support from many here as my husband was receiving Hospice care. Sometimes we can't be totally positive. Sometimes we need to vent or just share our sorrows. I am sorry your family is dealing with this, but it sounds like you are doing it with grace. It also sounds like you have found some peace through this challenging time. remember, though, to take care of yourself. Caregivers often forget this. To care for someone else you must also take care of yourself. Your family will be in my thoughts. Fay
  • AnnaLeigh
    AnnaLeigh Member Posts: 187 Member
    Courage
    Thank you so much for sharing your story with us. It gives me the strength to know that whatever comes our way can be endured.

    I have noticed the one thing in common that people touched by cancer can say - It caused me to look deep into my heart and it caused me to face my fears.

    When you looked deep into your heart I know you saw courage and love in abundance !!!!!!!!!

    Many blessings to you and your family.

    AnnaLeigh
  • AnnaLeigh
    AnnaLeigh Member Posts: 187 Member
    Courage
    double post
  • SamsWife
    SamsWife Member Posts: 50
    mr steve said:

    thank you
    I hope some day I could be as strong in friendship as you.

    Hugs and Prayers

    Thank you


    Mr. Steve,

    Thank you for the kind thouhts - getting to the friendship was a long time coming - I realized it was easier for all of us to have a positive environment and much harder work to harbor all of the bad feelings! Experiencing cancer has certainly made me a kinder person - I didn't like who I had become.
  • SamsWife
    SamsWife Member Posts: 50

    Post Away
    Please feel free to post here whenever you feel you need it. I received a great deal of support from many here as my husband was receiving Hospice care. Sometimes we can't be totally positive. Sometimes we need to vent or just share our sorrows. I am sorry your family is dealing with this, but it sounds like you are doing it with grace. It also sounds like you have found some peace through this challenging time. remember, though, to take care of yourself. Caregivers often forget this. To care for someone else you must also take care of yourself. Your family will be in my thoughts. Fay

    Post Away
    Grandmafay,

    Thanks for you comments - I've read a lot of your posts and you are a great treasure on this site! I'm sorry for your loss. My husband (I should say we) are receiving hospice care and they are amazing! They are a huge support. We are taking this day by day but I am scared. I'm afraid of the things that could happen to Sam but I try not to think about all of that and just take this day by day. I just pray it's a peaceful transition for all of us. My kids are amazing - they are handling this all so well.
  • SamsWife
    SamsWife Member Posts: 50
    MyTurnNow said:

    Sam is a very fortunate man.
    Sam is a very fortunate man. You are also a very special person to go through what you've been through and with such grace, it seems. Your reward is to enjoy the beauty that you have created. Bless you!!

    Dear MyTurnNow,
    Thank you

    Dear MyTurnNow,

    Thank you for you comments - my kids have been and are a driving force for me - it's always in the back of my mind to try and teach them a positive, loving way to deal with all of this. There are times when I truly want to quit - I want "normal" life so badly sometimes - it's been a tough three years (as you all know!) but we have grown tremendously and grown closer. In a strange way this cancer is bringing out the best in us.
  • SamsWife
    SamsWife Member Posts: 50
    AnnaLeigh said:

    Courage
    Thank you so much for sharing your story with us. It gives me the strength to know that whatever comes our way can be endured.

    I have noticed the one thing in common that people touched by cancer can say - It caused me to look deep into my heart and it caused me to face my fears.

    When you looked deep into your heart I know you saw courage and love in abundance !!!!!!!!!

    Many blessings to you and your family.

    AnnaLeigh

    Thank you, AnnaLeigh -
    It

    Thank you, AnnaLeigh -

    It does take courage doesn't it! I get so scared sometimes - I read a post from someone and they likened bad feelings to waves and that was such a good analogy. I truly feel that God definitely gives me strength and courage. Life can be so hard sometimes. I truly do find happiness and joy in such small things - I am grateful for every day and try to find happiness and gratitude in most things - it is a mental game - the hard things can consume us huh?!