Newbie need colon stage 1 opinions

esay
esay Member Posts: 2
edited March 2014 in Colorectal Cancer #1
Hi, I am seeking information, opinions, etc for a friend who's 50 year old son was diagnosed with stage 1 colon cancer. He underwent chemotherapy and then had surgery. He has a temporary colostomy. They are at the point of reversing the colostomy. The doctor wants him to have 6 months of chemotherapy following this reversal.. Everything I read indictes normal treatment for stage 1 chemo and surgery. Some sites say just the surgery. But I find nowhere that indicates chemo, temp colostomy, and then more chemo. This is an important decision and because of the infor we have gleemed, he is hesitant to go through this next chemo treatment. Colon cancer is what killed his father. Could it be the family history that would have the doctor wanting to do the additional treatment?

Thank you so much,

Esay

Comments

  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #2
    YES
    Since this man's father died of colon cancer, there's a very good chance he has the genetic marker that would suggest he is prone to colon and other cancers. Search HPNCC (also called HNPCC) and FAP
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #3
    dianetavegia said:

    YES
    Since this man's father died of colon cancer, there's a very good chance he has the genetic marker that would suggest he is prone to colon and other cancers. Search HPNCC (also called HNPCC) and FAP

    Stage 1 Colon Cancer.....
    an excellent chance at a full recovery and long life...Normal is Chemo/Rad treatment then surgery then post op mop up chemo , usually oxaliplatin, Leucouvorin, and 5fu every 2 weeks for 6 months...then you have done everything possible to rid the system of any lingering cells. Colon cancer has a very high risk involving mestastasis to other organs but if caught early enough (as you seem to be) and with proper treatment, the expected full recoup is expected...without the post op chemo about 65% non re occurrence...with the post op chemo about 80-85% chance of non re occurrence...They give it a 5% increase, I give it another 15-20....I like my odds better. and by the way, this is the place (except for his Dr and sometimes that too) for all your questions to be answered. Most websites are 2-5 years behind in research and we are up to date as it gets...Its scary out there, come in here and be protected...

    and his Dr is right on with the protocol he is asking for him to do, it will help him save his own life.
    ....Love and Hope, Buzzard
  • Joy1216
    Joy1216 Member Posts: 290 Member
    #4
    ACS Treatment Decision Tool
    Have you been on the American Cancer Society's web site? They have a treatment decision tool that I used when I was diagnosed with stage 1 colon cancer in March of '06. I had a colon resection, but no chemo or radiation. Here's the link to the ACS treatment decision tool https://www.cancer.nexcura.com/Secure/InterfaceSecure.asp?CB=267. Hope this helps.
    Joy
  • esay
    esay Member Posts: 2
    #5
    Buzzard said:

    Stage 1 Colon Cancer.....
    an excellent chance at a full recovery and long life...Normal is Chemo/Rad treatment then surgery then post op mop up chemo , usually oxaliplatin, Leucouvorin, and 5fu every 2 weeks for 6 months...then you have done everything possible to rid the system of any lingering cells. Colon cancer has a very high risk involving mestastasis to other organs but if caught early enough (as you seem to be) and with proper treatment, the expected full recoup is expected...without the post op chemo about 65% non re occurrence...with the post op chemo about 80-85% chance of non re occurrence...They give it a 5% increase, I give it another 15-20....I like my odds better. and by the way, this is the place (except for his Dr and sometimes that too) for all your questions to be answered. Most websites are 2-5 years behind in research and we are up to date as it gets...Its scary out there, come in here and be protected...

    and his Dr is right on with the protocol he is asking for him to do, it will help him save his own life.
    ....Love and Hope, Buzzard

    colon cancer stage 1
    Hi and thank you for the information. This evening on the phone, I have been trying to understand my friend and her son's doc visit today. I got out of her that this is a T3 cancer. She was crying so I am not sure she understands because she thought the doc gave him a 10% chance. What are your thoughts before I talk to her again.
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #6
    Very wrong info.
    I was
    Very wrong info.

    I was dx'd at age 58 with Stage III colon cancer and with surgery ALONE I had a 50% chance of never getting cc again. It jumped to 75-80% with chemo.

    Stage I has about a 90% CURE rate. That would be a 10% chance of it coming back and spreading.
  • Unknown
    Unknown
    #7
    dianetavegia said:

    Very wrong info.
    I was
    Very wrong info.

    I was dx'd at age 58 with Stage III colon cancer and with surgery ALONE I had a 50% chance of never getting cc again. It jumped to 75-80% with chemo.

    Stage I has about a 90% CURE rate. That would be a 10% chance of it coming back and spreading.

    This comment has been removed by the Moderator
  • Patteee
    Patteee Member Posts: 945
    #8
    unknown said:

    This comment has been removed by the Moderator

    Oh Gracie, you are not alone
    Oh Gracie, you are not alone in the fatigue area. I am 52, and 20 months NED. For me it was the oxi- man that is one vile chemo drug. I was hospitalized 3 times while on it, once for a blood infection, once due to mouth sores that were so bad my mouth was swollen shut (I couldn't talk and they were afraid my throat would close, it didn't thank God) and the last time was for severe dehydration. At that point, they cut the oxi to zero, but it was easily 6 months before I started to feel any degree of being normal. Not only fatigue, but very dizzy, easily winded and it seemed any level of activity (walking into the living room) and the sweat would just run down my face. I basically felt like crap for a long, long time. Many, many, many days it was all I could do to shower and clean up- then I was down in bed the rest of the day. It has been a year since the last of my chemo- and I do feel tons better. I have lingering issues from the chemo- but am happy to report that for the most part it has become a distant memory. So no, you are not alone with the severity of your symptoms.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #9
    Patteee said:

    Oh Gracie, you are not alone
    Oh Gracie, you are not alone in the fatigue area. I am 52, and 20 months NED. For me it was the oxi- man that is one vile chemo drug. I was hospitalized 3 times while on it, once for a blood infection, once due to mouth sores that were so bad my mouth was swollen shut (I couldn't talk and they were afraid my throat would close, it didn't thank God) and the last time was for severe dehydration. At that point, they cut the oxi to zero, but it was easily 6 months before I started to feel any degree of being normal. Not only fatigue, but very dizzy, easily winded and it seemed any level of activity (walking into the living room) and the sweat would just run down my face. I basically felt like crap for a long, long time. Many, many, many days it was all I could do to shower and clean up- then I was down in bed the rest of the day. It has been a year since the last of my chemo- and I do feel tons better. I have lingering issues from the chemo- but am happy to report that for the most part it has become a distant memory. So no, you are not alone with the severity of your symptoms.

    Mrs R..........
    I am about10 months out of post op chemo and I still have no energy at all. I am sure that it is my diet but I am also sure that chemo kicked my butt....Let me tell you a sad story about myself. I am very very perky, and stay busy all the time. I was always very alert and presumed to be in pretty good shape, After my surgery and treatment and post op chemo I had a trip with our youth at church and played dodge ball with them. When they blew the whistle to run out at the line and get the balls to throw I ran part of the way out to a line not 30 feet from me and fell, simply fell, my legs plain ole quit on me. I have never felt so embarrassed and old in my life. Me, this active 55 year old teenager feeling man, now feels as if he has aged 20 years through this journey. Fatigue has certainly made a huge showing on me. I am getting in better shape with a small amount more stamina but nothing compared to as before....but there again, I am alive and kicking, not very high but kicking nonetheless.....I have simply decided that its time to slow down some, that I am not 16 again, and ya know, its really not so bad. It allows me to get rid of the stress easier. It also allows me to take in more, instead of being in so big of a hurry. Im not gonna run a marathon, I never wanted to anyway, but my life and its new normal isn't so bad when ya really think about it, with the fatigue from the chemo came another aspect of life I would have never known had I not slowed down...So, its all in how you look at it.....its time for my nap now...:).....Love to you Maam.......Buzz
  • Unknown
    Unknown
    #10
    Buzzard said:

    Mrs R..........
    I am about10 months out of post op chemo and I still have no energy at all. I am sure that it is my diet but I am also sure that chemo kicked my butt....Let me tell you a sad story about myself. I am very very perky, and stay busy all the time. I was always very alert and presumed to be in pretty good shape, After my surgery and treatment and post op chemo I had a trip with our youth at church and played dodge ball with them. When they blew the whistle to run out at the line and get the balls to throw I ran part of the way out to a line not 30 feet from me and fell, simply fell, my legs plain ole quit on me. I have never felt so embarrassed and old in my life. Me, this active 55 year old teenager feeling man, now feels as if he has aged 20 years through this journey. Fatigue has certainly made a huge showing on me. I am getting in better shape with a small amount more stamina but nothing compared to as before....but there again, I am alive and kicking, not very high but kicking nonetheless.....I have simply decided that its time to slow down some, that I am not 16 again, and ya know, its really not so bad. It allows me to get rid of the stress easier. It also allows me to take in more, instead of being in so big of a hurry. Im not gonna run a marathon, I never wanted to anyway, but my life and its new normal isn't so bad when ya really think about it, with the fatigue from the chemo came another aspect of life I would have never known had I not slowed down...So, its all in how you look at it.....its time for my nap now...:).....Love to you Maam.......Buzz

    This comment has been removed by the Moderator
  • lcarper2
    lcarper2 Member Posts: 635 Member
    #11
    unknown said:

    This comment has been removed by the Moderator

    Fall all the time
    You mean falling is not normal!!!! I fall getting my mail, I fall getting to the bathroom I bounce off every wall in my house just getting out of bed...I just figured it came with the cancer I am 62 and feel 162 I am so tired I have to take a nap before I take a nap. Remember those little webble wobbles that were toys years ago back in the stone age LOL well my husband calls me his webble wobble lady...Not to try to be funny but it just happens to some and not to others and I am one that got struck with the tired stick but I am alive and cancer free...so let me fall, let fall, let me fall....

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