open surgery... what to expect???

mark440
mark440 Member Posts: 63
edited March 2014 in Colorectal Cancer #1
just got back from cleveland clinic.. i am having open surgery...not lapro...they said 7 days in hospital and chemo depends on the pathology reports..... tumor is in rectum and lymphnodes are in the pelvic area.... we are vey impressed with the cleveland clinic, but Im very nervous about surgery!!!! what can I expect???

Comments

  • kapper48
    kapper48 Member Posts: 85
    Mark,Hi my name is Pat, I
    Mark,Hi my name is Pat, I have had 2 open surgerys since 2008 the first time they said I would be in the hospital for 4 to 8 days. I was out in 5. The second time was a much bigger surgery and they said I would be in for 5 to 10 days and was out in 7. Just remember when they tell you to get up and walk no matter how much you don't want to do it anyway,that will help you get to healing faster than you think and you will be out of there before you know and on your way back to your life. Good luck and you have my thoughts and prayers.
    Pat
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Sorry
    Sorry you have cancer and have to go through the surgery. Not sure what you mean about "open surgery." If that means that you will have a large incision from above belly button to pelvic area then that is common and hospital stay doesn't seem unrealistic. My tumor was in rectum too, but no lymph nodes involved. Not sure what kind of surgery you are having, is an ostomy involved, removal of rectum, or just resection. You will be sore, but the more you get up and walk around after surgery, the better and faster you will heal. My pathology report came back great with clear margins, but still did "mop up chemo" in case any cells got loose. Sure glad of that because that is a good "insurance" for the future. Good luck!

    Kim
  • thready
    thready Member Posts: 474
    Well Wishes
    Mark,
    I had colon not rectal cancer, but had big surgery and was in the hospital for 7 days. That is not unrealistic for surgery. Please take the pain meds and meds for nausea as you need them, now is not the time to be a hero. And as other have said get up and walk, but also just get up and do thinks like brushing your teeth, sitting in a chair. Those little trips also realy help wake things up! Also make sure that you do your deep breathing exercises and move those legs while you are in bed-very important.

    Take care,
    Jan
  • HollyID
    HollyID Member Posts: 946 Member
    Hi Mark
    I had my open abdominal surgery the first part of December. My very talented surgeon took out the lower part of my sigmoid colon and part of my rectum for clear margins. He then reconnected the healthy parts of my colon back together.

    I'm a nurse and for years took care of these kinds of patients. It's been years since I have taken care of them, but it's amazing how it all comes back to you. :o) You're however, facing the unknown. I totally can empathize with your curiosity. Sometimes the best way to alleviate would be through knowledge. Ask tons of questions of what you can expect and what they expect of you.

    The best advice I can offer to you, after surgery and for quicker recovery, is to get up and walk. I was up and out of bed the morning after surgery. I'm not a back sleeper, so it was more a matter of comfort, plus, as much as it hurt, I knew my lungs, veins, and kidneys would love me for it. :o) Unfortunately, some people have a tube that goes in their nose and down into their stomachs. It's mainly for decompression and nausea. I didn't have one. They are uncomfortable and they suck. I was VERY grateful that I got away without having to have one.

    I also started using my incentive spirometer, which is a device that helps you breathe deeper to keep pneumonia at bay. By that evening, I was up and out of bed again and walking as far as I could go. I think I might have only gone 20 feet, one way. Remember though, you have to walk that far back to bed as well, so don't go too far. By the second day post-op, I was walking the halls around the nurses station. I had to use a pillow to brace my abdomen, but it helps with the pain. My daughter or husband usually pushed my IV pole. Everyday, I made up my mind that I would get up two more time than I did the day before -- even if it was to sit in a chair. Also, a flat harder type of pillow is great to brace your abdomen for when you need to cough. I had my husband push down on it to help with the pain. It did help.

    Don't be afraid to ask for pain medication. It's there for a reason. I had a walking epidural that automatically gave me medication and I could push a button if I needed more. By the fourth day, I was passing gas, eating a regular diet and passing stool. The epidural was out as was my urinary catheter. My pain level was nil by that time and it was very easy to walk. I was in my own clothes from home, but wasn't cleared to go home until the next day. I believe I took only two pain pills before I went home for a pain level of 3/10. They will ask you to rate your pain all the time. On a level of 0-10. Zero being no pain whatsoever and 10 being the worst pain you can imagine. Since I had all my kids naturally, I used that as my "10". This surgery didn't even come close to that number.

    I can't say I was scared of surgery, mostly because I knew what to expect, and what was expected of me. I did everything that I would have told my patients. It really does help to know what you're in for. If you have any questions, let us know...
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    HI Mark, I was colon and lap
    HI Mark, I was colon and lap surgery so no help there but did want to ask...

    You'd had some spots on your lungs. Were those ruled out as mets? Hope so!

    The lymph nodes will be sent off to be biopsied (frozen sections) and that will determine your staging, unless you've already had a biopsy. Sounds like you'll be facing chemo after surgery. I'm way older than you and went through all 12 chemo treatments just fine. Oh, I have neuropathy in my hands and feet, but no big deal!

    Even a Stage II should seriously consider chemo. Rectal cancer tends to recur at a much higher rate. One thought is because of the vast blood supply and numerous lymph nodes in that area. Please read our replies to other posters who considered NOT having chemo with Stage II and fight this with all they offer!

    You'll do fine!
    Diane
  • lcarper2
    lcarper2 Member Posts: 635 Member
    open surgery
    I had colon surgery cut from the breast to the pelvic area 75 staples ( fun to remove ) in the hopsital 8 days soft ball size tumor on my colon both removed 34 lymphnodes removed 19 were cancerous everyone is right when they say they are going to get you out of bed GET OUT that is the best thing you can do get up and walk. It will hurt like you know what for the 1st 2 days or so but it gets better. Will be praying for you.
  • P_I_T_A
    P_I_T_A Member Posts: 133
    Hey Mark
    I had an open lower anterior resection back in September. The surgery was one of the easiest parts of this whole ordeal so far. The incision wasn't too terrible (straight down, top of my belly botton down to my pelvic bone. Surgery took about 1hr - 1 1/2hrs. I had IV pain meds after, so that was never an issue. I went in the afternoon and was out the morning of day #5. They make you walk around alot and make sure you're passing gas. Try to eat as much as possible because they wouldn't let me go until I had a bm to make sure everything was connected up good. No lifting anything over 10 lbs. for 8 weeks. Only thing is, I wish they had glued my incision instead of staples, that a personal preference of the surgeon I guess. My wife was glued when she had her kidney transplant and had no issues. When I had my staples removed, the very top and very bottom of my incision didn't want to cooperate and took an extra couple of weeks to heal. Sorry you got the cancer, really sucks! But it's nothing you can't handle. Don't sweat the surgery, just do what you gotta do!

    -DJ