Chemo again

Sundanceh said:

Hi Julie
I'm sending you
Hi Julie

I'm sending you hope and positive thoughts as you once again engage in the fight for your life - I'm saddened that you have to gear up for this again. I am hoping that the chemo will shrink the new mets.

I had asked one time when it was in my liver about transplants - and the irony in our situations is that if you have Cancer in the liver - then you are not eligible to be on the transplant list - this is what my oncologist told me, so it may not be the absolute truth, but that is just what he told me.

I'd check into it anyway, maybe this guy was wrong - wouldn't be the first time for him. I'd like to hear back on this if you decide to check it out.

Still here with you - Craig

Julie
We're here for you with your chemo rounds again You did it once, you can do it again. I've been on chemo since last Feb, 2009 with no breaks except between surgeries. I'm so used to it now, it's like changing my colostomy bag, becoming "so routine". My liver has multiple mets, and I'm inoperable, but that's ok now, as long as they can keep this disease stabilized with the chemo, I'm fine. I wish you well, and am here whenever you need to talk!

Hugsss!
~Donna

Julie 44 said:

Meds
Hey Donna and Craig have you guys (or anybody else) been on the same meds as I will be on??Did you tolerate it well???? What were the side effects that you had??? I know what they tell me but I want to get first hand knowledge..Thanks everyone..JULIE

I'M
on Folfiri with Avastin, and have been since Feb 2009, and I tolerate it pretty well, the side effects I had was hair thinning, which I did lose alot of hair, but cut it up to my shoulders, and it's been growing back now

I had alot of nausea at first also, which I got really good anti-nausea meds for, I would suggest some Emend and Dexamethasone, and abit of good ole maryjane for it! it does help, they tried just compazine and Zofran for me, but just those didn't work, they had to get me something better

Leaks from my nose and eyes at first, but I haven't had those in awhile, it seems the more I have, the less the side effects came, it wasn't as accumulative as I thought it would be, it just stayed the same for me now, which I know what to do for what, I just take the anti-nausea meds, keep my hands cleaned, constantly washing them, I had several blockages this year as well, which the doctors said was mainly from the scar tissue from the surgeries, and not the chemo though.

I also had alot of fatigue with it. Are you going to be on the pump?? the day after I was disconnected, I would be knocked out for about 3-4 days after, just really tired, and then you will eventually bounce back to yourself, you'll start feeling good again, and once that happens, then it's time to go for another treatment! You keep feeling like, Just when you're getting yourself up, you get knocked down again, but keep it going, you will feel better. I think I've had so much chemo now that I barely even feel the fatigue anymore like I used too. Sure, I get tired, but not as bad as it was.

Whatever you need to know, just ask! I'm here for ya, and will answer whatever! you'll be fine Julie, if I can do it, so can you

Hugsss!
~Donna