Thymoma Survivors/Caregivers?

Peanuts55
Peanuts55 Member Posts: 1
edited February 17 in Rare and Other Cancers #1
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!

Comments

  • slpacheco
    slpacheco Member Posts: 1
    #2
    Thymoma
    Wow!!! Finally, someone else who may know a little bit about my journey.... I am a Thymoma with Myasthenia Gravis Survivor as of September 2007. My battle took 18 months of my life. If you have any questions, please let me know and I will try my best to answer them. If your fiance has completed their journey, I would like to know how they are doing.

    Also, how old is your fiance? And what part of the body were the tumors at? Please respond as soon as possible as I am very excited to communicate with someone else that may understand this illness.

    My personal email is [email protected]

    I look forward to hearing from anyone who may have survived this cancer, or who is going through it now. As I feel I may have a lot of useful information to help others.

    God Bless You!!

    Sandy
  • Redneck Mom
    Redneck Mom Member Posts: 2
    #3
    slpacheco said:

    Thymoma
    Wow!!! Finally, someone else who may know a little bit about my journey.... I am a Thymoma with Myasthenia Gravis Survivor as of September 2007. My battle took 18 months of my life. If you have any questions, please let me know and I will try my best to answer them. If your fiance has completed their journey, I would like to know how they are doing.

    Also, how old is your fiance? And what part of the body were the tumors at? Please respond as soon as possible as I am very excited to communicate with someone else that may understand this illness.

    My personal email is [email protected]

    I look forward to hearing from anyone who may have survived this cancer, or who is going through it now. As I feel I may have a lot of useful information to help others.

    God Bless You!!

    Sandy

    Thymoma
    I was diagnosed with Stage 4 Thymoma in 2007. When the tumor was discovered it was the size of a softball connected to my lung, aorta, heart and even my voice box. I was given a 50/50 chance of survival. I was devistated. I feel that I have been to hell and back. I lost a job that I loved for 12 years because of the Cancer. I almost died on Christmas, 2007, but now I am cancer FREE. I still have checkups every 3 months. I would love to hear from survivors of Thymoma. My cancer was treated at Deaconess Hospital in Evansville, Indiana.
  • kunhadi
    kunhadi Member Posts: 1
    #4
    Redneck Mom said:

    Thymoma
    I was diagnosed with Stage 4 Thymoma in 2007. When the tumor was discovered it was the size of a softball connected to my lung, aorta, heart and even my voice box. I was given a 50/50 chance of survival. I was devistated. I feel that I have been to hell and back. I lost a job that I loved for 12 years because of the Cancer. I almost died on Christmas, 2007, but now I am cancer FREE. I still have checkups every 3 months. I would love to hear from survivors of Thymoma. My cancer was treated at Deaconess Hospital in Evansville, Indiana.

    Thymoma IV

    Hello, Redneck Mom

    What are the treatments for your cancer that you received and how long?

    Many Thanks

    KH

  • Vstrippoli
    Vstrippoli Member Posts: 1
    #5
    slpacheco said:

    Thymoma
    Wow!!! Finally, someone else who may know a little bit about my journey.... I am a Thymoma with Myasthenia Gravis Survivor as of September 2007. My battle took 18 months of my life. If you have any questions, please let me know and I will try my best to answer them. If your fiance has completed their journey, I would like to know how they are doing.

    Also, how old is your fiance? And what part of the body were the tumors at? Please respond as soon as possible as I am very excited to communicate with someone else that may understand this illness.

    My personal email is [email protected]

    I look forward to hearing from anyone who may have survived this cancer, or who is going through it now. As I feel I may have a lot of useful information to help others.

    God Bless You!!

    Sandy

    Good Afternoon!

    Good Afternoon!

     

    My mom is going through this now.  I am desprerately searching for guidance or support!

  • theaton
    theaton Member Posts: 1 *
    edited February 17 #6

    Hi everyone,

    My mom is recently diagnosed with thymoma with myasthenia gravis. I’m here to ask for support and guidance as well. She’s at Stage 4 and the oncologist is recommending chemo with Doxorubicin, cytoxan, and cisplatin. Has anyone been through it with the same or similar combo? [Content removed by CSN Team]

    I appreciate any insights.

    Thea

  • shaomingming
    shaomingming Member Posts: 1 Member
    #7

    Hi I am a new member of CSN. I just joined today. I share my experience with other patients here...

    I diagnosed Stage II A thymona in Sept. 2022 and I had my tumor removed. The size of my tumor is 2.5 cm. After the surgery, I had proton therapy, totally 28 sessions. All my surgery and proton therapy were done in University Hospital of Pennsylvania. The hospital has doctors specialized in thymoma. I am very fortunate that my girlfriend works in the hospital and helped to arrange all these tests. This made my procedures fast.

    I have to have my CT Scan every 6 months in the first 2 years and then CT Scan every year. I hope my information would be helpful for patients with the same disease.

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