This may be my last Christmas, or so I'm told.

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  • GOOFYLADIE
    GOOFYLADIE Member Posts: 232 Member
    #22
    butterfly23 said:

    Hi
    I think I wrote about what the nurse had said, Yes the dr. told her to say it to me. When we were leaving she said how she hates to give bad news out and how some dr. gave her brother-in-law only a few months to live and years later he's fine. She was very sympathetic towards me. He, however is NOT MY dr. and should have sent the reports to my onc. first before telling me this! Thank you all for writing me back.

    p.s. my sister and husband were in the room at one point together yesterday and out of the blue she started to sing a part of the song "you've got a friend" she had no idea of OUR little semi-colon story behind it! STRANGE, but such a good feeling!
    Karyn

    With your head held high
    Karyn, with all that is in me I wish you a very Merry Christmas. Please do not let the unknowing get to you. Use it as your ammo to fight this hideous disease. I was once told the same thing. 11 years later I am still here cancer Free. People say things out of uncertainty, out of upset, out of fear, out of what a piece of 2x2 =4 and we have proof on this site 2x2 does not always = 4. Be optomistic, move forward keep smiling and try to never let them see you sweat. They work much harder, when they think you don't have a clue, but question and question everything and they will work diligently. They just do. It shows you are on there side and working as a team. Hugs to you and your family, I am so sorry you had to deal with medical professionals being so unprofessional. this group can start changing the way the medical field works if everyone stays on the same plate and expects respect, gives respect and shares everything equally. God bless you, I will waiting to hear good news from your new treatment.. Make it a Great Day!! goofyladie (Cass)
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #23
    Thinking of Karyn
    Dearest Karyn

    I saw the title of your post and I began to cry as I was thinking of you - I just got your card in the mail and it was so sweet to get a card from you - my Dad came to the door and I had to dry the tears quick and get myself together - he just left now and I can come back and read this and talk to you.

    Your post about this being your last Christmas strikes a familiar chord with me - only 2 years ago the doctors told me that 2007 would be my last one too! 2 years later I'm still around and now doing well, but I remember how sobering it was to hera 3 different doctors tell me the same thing - and then I got mad and decided to show them! So, this was a tear jerker to hear you it - but I believe somehow in my heart that it will be different for you - I have to believe that even if things don't look like that - and I want you too.

    And from your post this parargraph also touched a chord with me:

    p.s. my sister and husband were in the room at one point together yesterday and out of the blue she started to sing a part of the song "you've got a friend" she had no idea of OUR little semi-colon story behind it! STRANGE, but such a good feeling!

    Yes! OUR little semi;colon story about it - our family anthem voted on this year - and how true it is - you will always have a friend in me and a friend in the heart of Texas!

    Don't let it wreck your holidays - try and calm your family down if you can so you can enjoy each other!

    Thanks for writing, thanks for sending such a nice card this year, I've got it up in the house.

    Blue for you, but not giving in :)

    -Craig
  • KATE58
    KATE58 Member Posts: 299
    #24
    Sundanceh said:

    Thinking of Karyn
    Dearest Karyn

    I saw the title of your post and I began to cry as I was thinking of you - I just got your card in the mail and it was so sweet to get a card from you - my Dad came to the door and I had to dry the tears quick and get myself together - he just left now and I can come back and read this and talk to you.

    Your post about this being your last Christmas strikes a familiar chord with me - only 2 years ago the doctors told me that 2007 would be my last one too! 2 years later I'm still around and now doing well, but I remember how sobering it was to hera 3 different doctors tell me the same thing - and then I got mad and decided to show them! So, this was a tear jerker to hear you it - but I believe somehow in my heart that it will be different for you - I have to believe that even if things don't look like that - and I want you too.

    And from your post this parargraph also touched a chord with me:

    p.s. my sister and husband were in the room at one point together yesterday and out of the blue she started to sing a part of the song "you've got a friend" she had no idea of OUR little semi-colon story behind it! STRANGE, but such a good feeling!

    Yes! OUR little semi;colon story about it - our family anthem voted on this year - and how true it is - you will always have a friend in me and a friend in the heart of Texas!

    Don't let it wreck your holidays - try and calm your family down if you can so you can enjoy each other!

    Thanks for writing, thanks for sending such a nice card this year, I've got it up in the house.

    Blue for you, but not giving in :)

    -Craig

    Christmas of 2005 was
    Christmas of 2005 was supposed to be MY last christmas.
    What year is it now?
    oh yeah,two thousand and NINE!!
  • KATE58
    KATE58 Member Posts: 299
    #25
    KATE58 said:

    Christmas of 2005 was
    Christmas of 2005 was supposed to be MY last christmas.
    What year is it now?
    oh yeah,two thousand and NINE!!

    Sorry, that was supposed to
    Sorry, that was supposed to be encouragement,
    but after I read my post,I thought it sounded sarcastic.
    THERE IS ALWAYS HOPE!!
    no one knows when any of us will die.
    as long as you are breathing ,there is hope.
    good luck
    God bless
    kATE
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #26
    Karyn
    Hope you had a wonderful Christmas, filled with laughter, smiles, good food and lots of love!

    Diane
  • snommintj
    snommintj Member Posts: 601
    #27
    dianetavegia said:

    Karyn
    Hope you had a wonderful Christmas, filled with laughter, smiles, good food and lots of love!

    Diane

    2nd last christmas
    Yeah, this was my second last christmas. I had a blast!
  • heatherstar70
    heatherstar70 Member Posts: 39
    #28
    butterfly
    please never give up hope you do not have an expiration date stamped on you.. always keep fighting and never give up hope... god chooses when to take us not a dr.. i do believe we should all live our lives to the fullest and be happy with each day god gives us and not put things off.. i hope you can take what the nurse or dr said and put it in the back of you mind... i know it is hard but you have to keep moving forward.. you are in my thoughts and prayers and i hope you feel better soon in body mind and soul..

    wishing you a merry christmas and a very happy new year

    lots of love
    Heather
  • phoebe1017
    phoebe1017 Member Posts: 37
    #29
    heatherstar70 said:

    butterfly
    please never give up hope you do not have an expiration date stamped on you.. always keep fighting and never give up hope... god chooses when to take us not a dr.. i do believe we should all live our lives to the fullest and be happy with each day god gives us and not put things off.. i hope you can take what the nurse or dr said and put it in the back of you mind... i know it is hard but you have to keep moving forward.. you are in my thoughts and prayers and i hope you feel better soon in body mind and soul..

    wishing you a merry christmas and a very happy new year

    lots of love
    Heather

    Stay strong!
    I haven't been on this site very long but it is obvious to me that the doctors are just guessing when they try and give a time frame. They are just going by statistics. So please, stay focused and just move on to the next course of treatment. Keep your mind focused on staying strong! Good luck...my thoughts and prayers are with you!!!
  • lcarper2
    lcarper2 Member Posts: 635 Member
    #30
    last christmas
    Well I told everyone that they didn't need to tell me how long they thought I would be around because they have no idea what God's plan is and I have claimed his healing and you should too. If someone said that to me I would look down and say my my you aren't wearing sandels so how do you know what the future holds for me. Please don't let this bring you down we are fighting every day for another day and this can really set you back in you recovery process. My pray is that God will give you a sign that he has healed you.
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #31
    Last Christmas
    A gal pal 2 years older than me and no health issues went to bed on Christmas Eve ready for a big family Christmas. Her husband woke to her seizing a few hours later. They disconnected her from life support this afternoon. So far, they don't know if it was a stroke, brain bleed or clot but last year was her last Christmas and she had no idea, no warning, nothing. Her children and grandchildren spent Christmas Day in the ICU waiting room.... Like Phil said, we have no guarantee.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #32
    dianetavegia said:

    Last Christmas
    A gal pal 2 years older than me and no health issues went to bed on Christmas Eve ready for a big family Christmas. Her husband woke to her seizing a few hours later. They disconnected her from life support this afternoon. So far, they don't know if it was a stroke, brain bleed or clot but last year was her last Christmas and she had no idea, no warning, nothing. Her children and grandchildren spent Christmas Day in the ICU waiting room.... Like Phil said, we have no guarantee.

    Diane,
    I am very sorry to
    Diane,

    I am very sorry to hear of your loss. My thoughts are with you and your friend's family.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #33
    Karyn,
    I am really sorry to
    Karyn,

    I am really sorry to read the words you heard & for the insensitivity with which you heard this. Try to focus on taking good care of yourself and staying as well a you can. I would mark on my calendar to make sure I stopped by to wish this nurse/doctor a Merry Christmas & do it every year after that.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #34
    Karyn
    Hi Karyn,

    I'm sorry that I'm one of the last ones to reply to your post- been busy and kind of out of it over Christmas and hadn't read many posts. Anyhow, I just wanted to say that I feel for you having been told this "news" by a nurse. I'm glad your doctors haven't ever told you "how long you have" before- they fortunately knew better than to make such a proclamation. This nurse was WAY out of line to say such a thing to you!!! I hope you realize that just because she said such a thing doesn't mean that it's going to be true! No one knows the "when" or the "how long" for sure!

    So many others have given you wise advice already. God does hold all of our lives in His hands, is what I believe. Like others said, any of us could die tomorrow from another cause, or we could surprise our doctors and live for quite a long time yet to come.

    I wish I knew more how this treatment I'm on from Dr. Cantrell in Tennessee was working so I could recommend it or not to you. It's really worth checking out, though- he's had good success for several people and that's why I went to see him and why I started on the treatment! I'm just into it three weeks and have several weeks to go still before I get a scan to see how it's working. I get a CEA tested tomorrow, but it's still pretty early to tell with that & I've been warned that the CEA will go up before it starts to come down, so to not be alarmed if it's high. Some amazing stories have come out of that office though- people who were doing poorly on other chemo treatments who did really well on this treatment of lovastatin and interferon. So far, I'm faring pretty well on it. I've had some days of feeling achy and sluggish, but definitely have done better than on the chemo. No diarhhea or nausea, which is a good thing.
    If you're interested in checking out Dr. Cantrell's website, it's: www.neoplas.org
    You take care and remember that an insensitive nurse does not control your future! I know the news of now having "hundreds" of lung nodes isn't good news to hear, but there still may be a treatment that can work on them- you've just got to find it! I also have "innumerable pulmonary nodules", as my one scan report stated, so we may have similar situations in that, and I don't plan on giving up finding a treatment that will get rid of them!

    I hope you've started to feel a little bit better over the past couple of days.
    Do take care!

    Lisa

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