follicular lymphoma treated with zevalin

donald51
donald51 Member Posts: 62
edited March 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1
Hi everyone,
I was treated for my lymphoma with six sessions of RITUXIN iv's and one with ZEVALIN from may 5th to June 10 2008. Went for a ct scan yesterday(8-26-08)and as expected,the Dr gave me a clean bill of health. PRAISE GOD!

best of health to all!
«1

Comments

  • paulenarae
    paulenarae Member Posts: 3
    #2
    Treated with Zevalin
    Maybe you have already shared elsewhere on this forum...but I was wondering the specifics of your Follicular Lymphoma. I don't ask to pry but to become more knowledgeable. I was dx with fNHL stage IV B; grade 2 with bone marrow involvement. Did you have different options given to you regarding treatment from your Oncologist? Was this a clinical trial?

    Thanks and God Bless
    Paulena
  • donald51
    donald51 Member Posts: 62
    #3
    paulenarae said:

    Treated with Zevalin
    Maybe you have already shared elsewhere on this forum...but I was wondering the specifics of your Follicular Lymphoma. I don't ask to pry but to become more knowledgeable. I was dx with fNHL stage IV B; grade 2 with bone marrow involvement. Did you have different options given to you regarding treatment from your Oncologist? Was this a clinical trial?

    Thanks and God Bless
    Paulena

    Treated with Zevalin
    Hi Paulena,
    I did have other options! Watchful waiting and conventional treatment. My treatment was not a trial. I am currently in the process of putting my experience in writing and you can view it in my blog at my "About Me" page here at CSN.

    Don
  • Phil F
    Phil F Member Posts: 8
    #4
    Congratulations
    Hi Don:

    Great news with your Zevalin results. My wife has NHL and was in remission for 3.5 years. Her latest scans have revealed a relapse and we are in the process of deciding on her next line of defense.

    Her first line of treatment was CVP with retuxin, 4 infusions followed by Retuxinf maintenance at 6 month intervals for two years.

    We are considering Zevalin and found you through our research process. Obviously she is apprehensive and does not know what to expect. We would like to hear from you, if you would like to share your experience.

    Best regards,

    Phil
  • danalea
    danalea Member Posts: 2
    #5
    Phil F said:

    Congratulations
    Hi Don:

    Great news with your Zevalin results. My wife has NHL and was in remission for 3.5 years. Her latest scans have revealed a relapse and we are in the process of deciding on her next line of defense.

    Her first line of treatment was CVP with retuxin, 4 infusions followed by Retuxinf maintenance at 6 month intervals for two years.

    We are considering Zevalin and found you through our research process. Obviously she is apprehensive and does not know what to expect. We would like to hear from you, if you would like to share your experience.

    Best regards,

    Phil

    new lymphoma (follicular)
    I just found out this past wed that i have follicular lymphoma. can anyone direct me in the right direction with treatment. Can radiation alone do the trick?? was hoping so. In OKlahoma they have a tomo radiation treaTMENT that sounds very effective. have any ever heard of it? its suppose to one of a kind in OK--its a deaconess hospital in OKC. thanks for any suggestions.
  • Jane M
    Jane M Member Posts: 2
    #6
    Hi Don
    I have recentyly bee
    Hi Don
    I have recentyly bee told of this same cancer two days ago. Gosh, I feel so afraid...I had a bone marrow biopsy yesterday and we are awaiting the results. Last week they removed a tumor near my ear. This is how they found this cancer.
    I pray you or anyone reading this will respond . I can not sleep, eat or think, which I'm sure has been the same for many of the survivors I have been reading about.
  • Jane M
    Jane M Member Posts: 2
    #7
    danalea said:

    new lymphoma (follicular)
    I just found out this past wed that i have follicular lymphoma. can anyone direct me in the right direction with treatment. Can radiation alone do the trick?? was hoping so. In OKlahoma they have a tomo radiation treaTMENT that sounds very effective. have any ever heard of it? its suppose to one of a kind in OK--its a deaconess hospital in OKC. thanks for any suggestions.

    Lymphoma ( Folliular)
    Hello and I guess we are in the same Place. I need info , and a friend who is going through this also.People keep telling me that they are sorry... Why can't they just say I'm sorry for what you are going through instead? I feel so afraid.
    I had a bone biosy yesterday. I'm 49 and I have been really struggling with this news. I pray for all of you, And I pray for some support from others like me. Jane
  • donald51
    donald51 Member Posts: 62
    #8
    Phil F said:

    Congratulations
    Hi Don:

    Great news with your Zevalin results. My wife has NHL and was in remission for 3.5 years. Her latest scans have revealed a relapse and we are in the process of deciding on her next line of defense.

    Her first line of treatment was CVP with retuxin, 4 infusions followed by Retuxinf maintenance at 6 month intervals for two years.

    We are considering Zevalin and found you through our research process. Obviously she is apprehensive and does not know what to expect. We would like to hear from you, if you would like to share your experience.

    Best regards,

    Phil

    treatment with zevalin
    Hi Phil, Sorry to hear about your wifes relapse. I haven't been here at this site for a while due to LIFE's daily routines. Living, working, paying and playing. I thank God every day for the blessing of LIFE that he has givin me and the opportunity to express it.I am feeling great! It is my opinion that zevalin is a treatment option that will provide many with renewed hope and dreams. I am still cancer free and going through rituxin maintenance every 2 months.If you haven't made a decission as to your next coarse of treatment yet you can read my story in my profile>blog. It is not yet up to date but, hey....who has time to worry about what was? Live for now!
    My prayers and blessings to all.
  • donald51
    donald51 Member Posts: 62
    #9
    Jane M said:

    Hi Don
    I have recentyly bee
    Hi Don
    I have recentyly bee told of this same cancer two days ago. Gosh, I feel so afraid...I had a bone marrow biopsy yesterday and we are awaiting the results. Last week they removed a tumor near my ear. This is how they found this cancer.
    I pray you or anyone reading this will respond . I can not sleep, eat or think, which I'm sure has been the same for many of the survivors I have been reading about.

    recently been...
    Hi Jane,

    I’m sorry to hear about your recent diagnosis. Do you know exactly what you have and what stage you’re in yet? The important thing is to stay strong and positive in attitude end belief, ask questions to your doctors. Any questions! There’s no such thing as a stupid question when your life is involved. Having cancer these days is not an automatic death sentence. There are many new and promising treatment options available to us now and more to come. Research and learn all you can to help you make your decision for treatment if possible. For me, I new that I didn’t want to go through conventional chemo and radiation right away and felt as though my coarse of treatment was shown to me almost immediately upon my search for information about Non Hodgkin’s follicular lymphoma. Everything fell into place and worked out just as though it was all planned ahead of time. I hope that your journey into your new life will be as fulfilling. Remember! Life is what you make of it. So make the most of all you can. You’re in control. It’s your life, your cancer and your decision what happens from now on. I will look forward to hearing from you soon. I hope that I can be of some comfort and support for you.
  • elizabeth c
    elizabeth c Member Posts: 2
    #10
    Jane M said:

    Lymphoma ( Folliular)
    Hello and I guess we are in the same Place. I need info , and a friend who is going through this also.People keep telling me that they are sorry... Why can't they just say I'm sorry for what you are going through instead? I feel so afraid.
    I had a bone biosy yesterday. I'm 49 and I have been really struggling with this news. I pray for all of you, And I pray for some support from others like me. Jane

    Hi Jane....I was diagnosed
    Hi Jane....I was diagnosed with folicular lymphoma last March......it will be ok...you will go through a process and be back to normal....I would be happy to answer any questions you might have.

    Elizabeth
  • Phil F
    Phil F Member Posts: 8
    #11
    donald51 said:

    treatment with zevalin
    Hi Phil, Sorry to hear about your wifes relapse. I haven't been here at this site for a while due to LIFE's daily routines. Living, working, paying and playing. I thank God every day for the blessing of LIFE that he has givin me and the opportunity to express it.I am feeling great! It is my opinion that zevalin is a treatment option that will provide many with renewed hope and dreams. I am still cancer free and going through rituxin maintenance every 2 months.If you haven't made a decission as to your next coarse of treatment yet you can read my story in my profile>blog. It is not yet up to date but, hey....who has time to worry about what was? Live for now!
    My prayers and blessings to all.

    Zevalin
    Hi Donald:

    Thanks for your reply. Jeri did proceed with the Zevalin treatment and tolerated the procedure very well. She had the injection on March 12th and since then her bone marrow has been affected resulting in very low counts. White, Red and Platelet counts have required transfusions and daily injections of Nueprogen and weekly injection of Procrit. Her counts have been low since the beginning of April.

    Were your counts low? If so, for how long and what did you do to boost your counts?

    Hope you're still well and enjoying life.

    Best regards,

    Phil
  • donald51
    donald51 Member Posts: 62
    #12
    Phil F said:

    Zevalin
    Hi Donald:

    Thanks for your reply. Jeri did proceed with the Zevalin treatment and tolerated the procedure very well. She had the injection on March 12th and since then her bone marrow has been affected resulting in very low counts. White, Red and Platelet counts have required transfusions and daily injections of Nueprogen and weekly injection of Procrit. Her counts have been low since the beginning of April.

    Were your counts low? If so, for how long and what did you do to boost your counts?

    Hope you're still well and enjoying life.

    Best regards,

    Phil

    Zevalin / low counts
    Hi Phil,
    I'm glad your wife was able to tolerate the zevalin. I am sorry to hear that her counts are low but that is to be expected. I am sure that they will all correct themselves in due time. I thought that when my counts dropped they would recover really fast because of my seemingly good health and positive outlook on the whole ordeal. However, when I found myself going in for my weekly checks it seemed as though it was taking too long making me think something wasn't right. Turns out things were as they should be. I was just too impatient. My counts started dropping off to the point of having to take normal precautions about 5 weeks from infusion and returned to acceptable levels about 4 weeks later. I did not require any medical attention during this time or any other, praise God! As for what I did for my counts was this. From the time I new to expect the drop I pretty much confined myself to the house. Avoided things such as people, plants, flowers, animals, berries, grapes, sugar and coffee. For helping boost my counts I just tried to eat all organic and took a product called IP6. I started taking this as soon as I found out about the cancer. I also took a wide array of vitamins and supplements. What worked and what didn't? I couldn't say. It is very important to change your diet to one that makes your body more alkalined and less acidic.
    As for me I am doing great still. I go on the 6th of May for my next ct scan and will find out that I am still free of any cancer one year from starting treatment.
    I will pray for you and your wife and I am sure all will be fine for you. Please keep in touch.
  • Phil F
    Phil F Member Posts: 8
    #13
    donald51 said:

    Zevalin / low counts
    Hi Phil,
    I'm glad your wife was able to tolerate the zevalin. I am sorry to hear that her counts are low but that is to be expected. I am sure that they will all correct themselves in due time. I thought that when my counts dropped they would recover really fast because of my seemingly good health and positive outlook on the whole ordeal. However, when I found myself going in for my weekly checks it seemed as though it was taking too long making me think something wasn't right. Turns out things were as they should be. I was just too impatient. My counts started dropping off to the point of having to take normal precautions about 5 weeks from infusion and returned to acceptable levels about 4 weeks later. I did not require any medical attention during this time or any other, praise God! As for what I did for my counts was this. From the time I new to expect the drop I pretty much confined myself to the house. Avoided things such as people, plants, flowers, animals, berries, grapes, sugar and coffee. For helping boost my counts I just tried to eat all organic and took a product called IP6. I started taking this as soon as I found out about the cancer. I also took a wide array of vitamins and supplements. What worked and what didn't? I couldn't say. It is very important to change your diet to one that makes your body more alkalined and less acidic.
    As for me I am doing great still. I go on the 6th of May for my next ct scan and will find out that I am still free of any cancer one year from starting treatment.
    I will pray for you and your wife and I am sure all will be fine for you. Please keep in touch.

    Low counts
    Hi Don:

    Hope your results were NED! Jeri's counts are still very low which has resulted in transfusions of Platelets and Blood. She also has been receiving daily shots of Neuprogen for the White counts and once weekly shots of Procrit to boost the red counts.

    Her most recent transfusion(May 4) generated a reaction which landed her in the ER and then admitted for observation and more tests. Test results were good with no signs of disease. As you know, waiting for results is trying. They did find that she has Gasteritis which has generated alot of discomfort. She's tough and is willing to do whatever it takes while maintaining a positive attitude. She was released on May 6.

    As a result of the transfusion reaction her White blood counts jumped to elevated levels and then settled back to the normal range....first time in a month! Maybe thats good news, the bone marrow is reacting! She'll have a CBC again tomorrow and we'll see how the counts are then.

    We're looking forward to the 27th for a CT Scan to see how the Zevalin performed.

    Again, hope your results were super. You are in our prayers as well.

    Keep smelling the ROSES!

    Phil
  • Phil F
    Phil F Member Posts: 8
    #14
    Jane M said:

    Hi Don
    I have recentyly bee
    Hi Don
    I have recentyly bee told of this same cancer two days ago. Gosh, I feel so afraid...I had a bone marrow biopsy yesterday and we are awaiting the results. Last week they removed a tumor near my ear. This is how they found this cancer.
    I pray you or anyone reading this will respond . I can not sleep, eat or think, which I'm sure has been the same for many of the survivors I have been reading about.

    Your prayer
    Hi Jane:

    My wife was diagnosed with stage 4 Non Hodgkins Lymphoma in May of 2005 and just as you, we were initially shocked and petrified. She had a grapefruit size tumor between her lower back and stomach and her bone marrow was involved as well. As Don said, it's not a death sentence. Just like being in the water when someone shouts, "Shark", you're immediate reaction is, I'm doomed. Not so, it happens all the time just like a cancer diagnosis. There are treatments available. One thing for sure, you will become proficient in research.

    My wife, Jeri, received four treatments of Chemo with Retuxin and was in remission after 3 months. She then had Retuxin at 6 month intervals for two years and remained in remission until January of this year(Another shock and one year after last Retuxin). Her Dr. didn't want to continue the Retuxin because there wasn't enough clinical data to support prolonged use. Her Dr. recommended Moffitt Cancer Center in Tampa for a second opinion and treatment. They recommended Zevalin, which she received on March 12.

    You will probably receive a lot of recommendations from friends, family etc. They all mean well and love you. Your course of action and treatment is up to you. Their support and a Very Positive Attitude on your part as well as everyones is a BIG part of your treatment.

    Make the best of each day, and before you know it, you'll see the light at the end of tunnel and move on with your life.

    Phil
  • Ckaisor
    Ckaisor Member Posts: 2
    #15
    Phil F said:

    Your prayer
    Hi Jane:

    My wife was diagnosed with stage 4 Non Hodgkins Lymphoma in May of 2005 and just as you, we were initially shocked and petrified. She had a grapefruit size tumor between her lower back and stomach and her bone marrow was involved as well. As Don said, it's not a death sentence. Just like being in the water when someone shouts, "Shark", you're immediate reaction is, I'm doomed. Not so, it happens all the time just like a cancer diagnosis. There are treatments available. One thing for sure, you will become proficient in research.

    My wife, Jeri, received four treatments of Chemo with Retuxin and was in remission after 3 months. She then had Retuxin at 6 month intervals for two years and remained in remission until January of this year(Another shock and one year after last Retuxin). Her Dr. didn't want to continue the Retuxin because there wasn't enough clinical data to support prolonged use. Her Dr. recommended Moffitt Cancer Center in Tampa for a second opinion and treatment. They recommended Zevalin, which she received on March 12.

    You will probably receive a lot of recommendations from friends, family etc. They all mean well and love you. Your course of action and treatment is up to you. Their support and a Very Positive Attitude on your part as well as everyones is a BIG part of your treatment.

    Make the best of each day, and before you know it, you'll see the light at the end of tunnel and move on with your life.

    Phil

    Zevalin Treatment
    Phil,

    Hi, I was wondering how your wife is doing now since the Zevalin treatment? My mom just had a bone marrow biopsy to see how much involvement is in her bone marrow. She was diagnosed with a type of Malt lymphoma. The doctor is thinking about giving her Zevalin treatment since the Rituxan and CVP-R failed for her.

    I am just looking for people that have been treated with Zevalin and wondering how it is given and how they are doing. My mom is going to be 74 in two months and has other medical problems also.

    Thanks.

    Cindy
  • Phil F
    Phil F Member Posts: 8
    #16
    Ckaisor said:

    Zevalin Treatment
    Phil,

    Hi, I was wondering how your wife is doing now since the Zevalin treatment? My mom just had a bone marrow biopsy to see how much involvement is in her bone marrow. She was diagnosed with a type of Malt lymphoma. The doctor is thinking about giving her Zevalin treatment since the Rituxan and CVP-R failed for her.

    I am just looking for people that have been treated with Zevalin and wondering how it is given and how they are doing. My mom is going to be 74 in two months and has other medical problems also.

    Thanks.

    Cindy

    Zevalin Treatment
    Hi Cindy:

    She's doing very well! Her last CT Scan showed no evidence of disease...the Zevalin worked for her. Her blood counts dropped really low about 4 weeks after the treatment, which resulted in transfusions of blood and platelets as well as daily shots of Nueprogen to boost white blood and a shot of Procrit to boost red. It was touch and go to keep her from catching anything or getting cut, bruised etc.

    Her blood is close to normal now and is getting better. The Zevalin will continue to work for another 3 months and hopefully a long remission will follow.

    The Zevalin treatment is relatively easy compared to Chemo. The treatment requires two low doses of Retuxin which is infused(3 hours each, a test dose of Zevalin to determine if the body will process the radiation properly and if it does a week later the second dose of Retuxin is infused followed by Zevalin. It is administered by an injection(less than 10 minutes). Total treatment including Retuxin is about two weeks.

    If your Mom has bone marrow involvement greater than 25%, Zevalin cannot be administered.

    Good luck with your Mom's treatment and progress.

    Phil
  • donald51
    donald51 Member Posts: 62
    #17
    Phil F said:

    Zevalin Treatment
    Hi Cindy:

    She's doing very well! Her last CT Scan showed no evidence of disease...the Zevalin worked for her. Her blood counts dropped really low about 4 weeks after the treatment, which resulted in transfusions of blood and platelets as well as daily shots of Nueprogen to boost white blood and a shot of Procrit to boost red. It was touch and go to keep her from catching anything or getting cut, bruised etc.

    Her blood is close to normal now and is getting better. The Zevalin will continue to work for another 3 months and hopefully a long remission will follow.

    The Zevalin treatment is relatively easy compared to Chemo. The treatment requires two low doses of Retuxin which is infused(3 hours each, a test dose of Zevalin to determine if the body will process the radiation properly and if it does a week later the second dose of Retuxin is infused followed by Zevalin. It is administered by an injection(less than 10 minutes). Total treatment including Retuxin is about two weeks.

    If your Mom has bone marrow involvement greater than 25%, Zevalin cannot be administered.

    Good luck with your Mom's treatment and progress.

    Phil

    Zevalin Treatment
    Phil and Wife congrats! I am glad to hear of her progression and that zevalin is working for her too. Big Cheer!

    Don
  • Mary Nace
    Mary Nace Member Posts: 1
    #18
    donald51 said:

    Zevalin Treatment
    Phil and Wife congrats! I am glad to hear of her progression and that zevalin is working for her too. Big Cheer!

    Don

    my daughter Rachael
    Hi Don: I am Mary and our daughter Rachael is fighting the fNHL also. Rachael was 32 win she was diagnosed and of course we were all very scared and upset for Rachael's well being. we never had any cancer in the family before so we were totally unprepared for this challenge in life.. but we soon became very good at searching for answers. I found a site called lymphomaservival.com run by Robert Miller who lives in the western part of Canada and is a 23 yr survivor of this type of cancer. My question for you Don is about organic foods and supplements. Rachael started on this life style change after much research.. We have learned all about the organic foods and of many supplements. also organic soaps and deoderants etc.
    Rachael also has been going to a homepathic clinic in New Enterprise PA. She and I have learned so much about this new life style change she must do... Rachael was at stage 3A when diagnosed. When Rachael was at Hershey Med last March the oncologist could not believe how the tumors in her arm pits and her groin had disappeared. there was one tumor on the side of her neck that was still palpable but had shrunk a lot. he was very pleased. Rachael goes between Hershey Med Center at Hershey PA and the homeopathic clinic in New Enterprise PA
    The thing that concerns me is that Rachael refuses to let them do anymore PETscans because the homeopathic clinic says she should not do that... and they advice her to have tomography. well her insurance will not cover anything to do with the natural way of treating this cancer.
    I was wondering if you had tried this method of treating the cancer for a while before you took the zevalin treatment. I have a nursing background and while I respect my daughter's decision to go all natural to I think she should combind the natural with the scientific method of treating this disease. Rachael takes a lot of herbal supplements and ionizes her drinking water. She is not to go swimming at the Y anymore because of the chlorine. there is much more that she has changed in her life style.. Rachael is married and the mother of two beautiful little girls. She has Alivya who is 5 and Elliannah Rose who is 2. I would appreciate your thoughts on what I have told you. I pray you stay healthy and positive in your life challenge. Blessings to you and your family.. Mary
  • KYPam
    KYPam Member Posts: 6
    #19
    Mary Nace said:

    my daughter Rachael
    Hi Don: I am Mary and our daughter Rachael is fighting the fNHL also. Rachael was 32 win she was diagnosed and of course we were all very scared and upset for Rachael's well being. we never had any cancer in the family before so we were totally unprepared for this challenge in life.. but we soon became very good at searching for answers. I found a site called lymphomaservival.com run by Robert Miller who lives in the western part of Canada and is a 23 yr survivor of this type of cancer. My question for you Don is about organic foods and supplements. Rachael started on this life style change after much research.. We have learned all about the organic foods and of many supplements. also organic soaps and deoderants etc.
    Rachael also has been going to a homepathic clinic in New Enterprise PA. She and I have learned so much about this new life style change she must do... Rachael was at stage 3A when diagnosed. When Rachael was at Hershey Med last March the oncologist could not believe how the tumors in her arm pits and her groin had disappeared. there was one tumor on the side of her neck that was still palpable but had shrunk a lot. he was very pleased. Rachael goes between Hershey Med Center at Hershey PA and the homeopathic clinic in New Enterprise PA
    The thing that concerns me is that Rachael refuses to let them do anymore PETscans because the homeopathic clinic says she should not do that... and they advice her to have tomography. well her insurance will not cover anything to do with the natural way of treating this cancer.
    I was wondering if you had tried this method of treating the cancer for a while before you took the zevalin treatment. I have a nursing background and while I respect my daughter's decision to go all natural to I think she should combind the natural with the scientific method of treating this disease. Rachael takes a lot of herbal supplements and ionizes her drinking water. She is not to go swimming at the Y anymore because of the chlorine. there is much more that she has changed in her life style.. Rachael is married and the mother of two beautiful little girls. She has Alivya who is 5 and Elliannah Rose who is 2. I would appreciate your thoughts on what I have told you. I pray you stay healthy and positive in your life challenge. Blessings to you and your family.. Mary

    fNHL
    Hi, Mary

    My name is Pam. I was diagnosed 05-01-08 at age 41 with Stage 3B fNHL. I had 3 rounds of fludara, novantrone, decadron, and Rituxan followed by Bexxar. Bexxar and Zevalin are the only radioimmunotherapies approved by the FDA.I am in remission now, but still have PET scans every 3 months. I don't know any other way to keep a watch on the cancer besides PET scans. I have stayed away from natural treatments and supplements. My onc wants me to check with him before I take any medications, period. I want to keep a close watch on the cancer, because fNHL is very unpredictable and erratic. My onc states over and over that it will come back. It is just a matter of when and how bad. I feel lucky to be a survivor and pray for a long remission. Each onc visit every 6 weeks brings stress and anxiety because you just never know. It has been a long, exhausting year, but I have made it.

    Best wishes to you and your daughter, Rachael.

    Pam
  • hilde451
    hilde451 Member Posts: 229 Member
    #20
    Zevalin
    Hello : my name is Hilde, I have relapsed in April and was first diagnosed in O4,
    So now I did 8 treatments of Chemo , Rituxin and other things.
    Now I did a scan and a bone marrow and came back clean. Because my bone marrow was involved. I was diagnosed as stage 4.
    I am to start Rituxin and Zevalin on Wednesday. I am a bit anxious about it. I wish I would not be. I guess it is like everything else you cant always worry about the side effects. I wish to have a piece of mind.
    Thankyou for listening to me.
    I wish you all a Merry Christmas too.
    Hilde
  • donald51
    donald51 Member Posts: 62
    #21
    hilde451 said:

    Zevalin
    Hello : my name is Hilde, I have relapsed in April and was first diagnosed in O4,
    So now I did 8 treatments of Chemo , Rituxin and other things.
    Now I did a scan and a bone marrow and came back clean. Because my bone marrow was involved. I was diagnosed as stage 4.
    I am to start Rituxin and Zevalin on Wednesday. I am a bit anxious about it. I wish I would not be. I guess it is like everything else you cant always worry about the side effects. I wish to have a piece of mind.
    Thankyou for listening to me.
    I wish you all a Merry Christmas too.
    Hilde

    Zevalin
    Hi Hilde,
    How are you? So sorry to hear about your relapse. I can relate to your anxieties too. I was anxious but by the time I arrived for the procedure those feelings had gone. I had a good positive outlook for the positive effects I was going to get from this treatment. I could actually feel the zevalin working as I walked from the nuclear medicine building. I could feel it burning in the enlarged nodes. There were no bad side effects for me at all from this tx.. All went very well for me as it will for you too, I’m sure. The most important thing to keep in mind is precautions. When the time nears for your white blood count to start dropping be sure to protect your self from all possible factors. You can ask me anytime for help if you don’t get info from your doctor that administers the zevalin dose. I pretty much confined myself to three rooms in the house and no company. Just me and the wife! The pet birds were placed in a room of their own and the door kept shut. All plants were moved to a separate closed room or out of the house if flowering. You can read my story if you think it might help. Go to my profile and click the blog tab. I am a big advocate of zevalin! It works! However, not everyone is the same so not all reactions will be the same but it does have good responses from it’s recipients. I hope you find comfort and peace of mind and know that it will work. Keep in touch and let us know how it goes tomorrow. Good luck!
    Stay strong and positive

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