struggling

coloCan said:

Are you able to drink and hold down nutrition drinks
like Boost Plus, Ensure Plus,etc? Might want to try these, if you can get it down. I use "Plus" as it has more calories than regular for same amount of liquid. For a time, these were my primary food/calories/nutrition sources til I could begin to eat food again. Hope you feel better soon.....Steve

I felt better after I ate a little...
I tried pudding, applesauce, clear soup, toast. I felt much better if I ate just a little.

Hang in there
I feel awful for you. I completely understand this, as I am going through it too.

Make sure to speak up about all of this, and make your medical team keep tweaking things till you find what works. If you haven't tried Emend for nausea yet, insist on it. MIRACLE drug for me the first few days.

We added a day 4 & 5 pill for me as well this cycle, because I am very sick for 5 straight days (or longer). It didn't seem to help as much on day 5. But that might just be that I was getting so sick with the thrush. I just don't know. Here I am a full week out and having a lot of trouble today. But I have had some Gatorade, some Greek yogurt, and of all weird things - grapefruit sections. Every now and then something sounds ok so I try it, even if it doesn't make sense.

Keep trying things (that don't have much smell) till you find what you can eat. You have to FORCE yourself to eat and drink.

Here is what has worked best for me:
Cream of Wheat (also counts as liquid for hydration)
Oatmeal
Gatorade
Herbal or green tea (none of the ones that have herbs that are controversial)
Crackers
Potatoes
Organic Greek yogurt (on day 1 and 2, then I can't do it for a few days)
Isagenix shake with banana (can't do this on all days - but I do it when I can for more protein)

There are other things I can eat one day of one cycle, and then just can't do it again. I never know till I try. Pears seem to be on my good list most of the time. Once I get a little better sometimes I can eat peanut butter on graham crackers or a sandwich for more protein. Yesterday I ate an egg and cheese on muffin. I wasn't sure till I tried if I could get it down, but it worked! You just have to keep trying. Try a bite - if it doesn't cause gagging - get it down, even though it isn't enjoyable and you aren't hungry. If it just doesn't settle with you, stop and try something else. Keep trying until you find something to put nutrition in you.

I am normally a foodie. I eat pretty healthy and really enjoy food. Right now I do not enjoy it. Not even my favorite foods - I can't tolerate them. But I actually enjoyed the yogurt, granola, fresh strawberry parfaits that my husband got me from the hospital cafeteria last weekend. It was so exciting to enjoy eating something instead of just forcing it in! And yesteray my egg and cheese muffin was pretty good too. But today I'm back to forcing it in.

Push yourself to find what you can keep down. Stay away from strong smells. If possible have someone else make your food, and don't eat it in the kitchen. On my worst days if I go near the kitchen I cannot eat. Just seeing or smelling some things there set me off. It can make a big difference if someone will cook you a bowl of Cream of Wheat and you don't have to go near the kitchen. Or mashed potatoes. Or whatever works for you.

Check your tongue - if it is coated with white and you have an awful taste in your mouth, thrush could be adding to your problem and you need an anti-fungal. I get full upper and lower GI thrush each time. My mouth thrush isn't fun, but it isn't the worst of it - the GI tract is. I think it is one of my biggest problems with nausea. (If your body odor is "off" and you can't stand to smell yourself, and/or you get projectile green foamy off-smelling diarrhea, that can be another sign of thrush - in your GI tract and the rest of your body - not just your mouth.) Magic Mouthwash can be a help if you have mouth thrush - but if you are getting the full body, you need an antifungal like fluconazole.

I didn't think I could continue after my first tx. The second was slightly better. The third was even better - enough that I felt confident that I could get through 12. That is the only time I've felt that way - the rest of the time everything has been too awful for me. I've had a lot of trouble again with 4. But I am determined to keep tweaking to get through it. Speak up for yourself with your medical team.

Keep fighting. I'm rooting for you.

Kathryn_in_MN said:

Hang in there
I feel awful for you. I completely understand this, as I am going through it too.

Make sure to speak up about all of this, and make your medical team keep tweaking things till you find what works. If you haven't tried Emend for nausea yet, insist on it. MIRACLE drug for me the first few days.

We added a day 4 & 5 pill for me as well this cycle, because I am very sick for 5 straight days (or longer). It didn't seem to help as much on day 5. But that might just be that I was getting so sick with the thrush. I just don't know. Here I am a full week out and having a lot of trouble today. But I have had some Gatorade, some Greek yogurt, and of all weird things - grapefruit sections. Every now and then something sounds ok so I try it, even if it doesn't make sense.

Keep trying things (that don't have much smell) till you find what you can eat. You have to FORCE yourself to eat and drink.

Here is what has worked best for me:
Cream of Wheat (also counts as liquid for hydration)
Oatmeal
Gatorade
Herbal or green tea (none of the ones that have herbs that are controversial)
Crackers
Potatoes
Organic Greek yogurt (on day 1 and 2, then I can't do it for a few days)
Isagenix shake with banana (can't do this on all days - but I do it when I can for more protein)

There are other things I can eat one day of one cycle, and then just can't do it again. I never know till I try. Pears seem to be on my good list most of the time. Once I get a little better sometimes I can eat peanut butter on graham crackers or a sandwich for more protein. Yesterday I ate an egg and cheese on muffin. I wasn't sure till I tried if I could get it down, but it worked! You just have to keep trying. Try a bite - if it doesn't cause gagging - get it down, even though it isn't enjoyable and you aren't hungry. If it just doesn't settle with you, stop and try something else. Keep trying until you find something to put nutrition in you.

I am normally a foodie. I eat pretty healthy and really enjoy food. Right now I do not enjoy it. Not even my favorite foods - I can't tolerate them. But I actually enjoyed the yogurt, granola, fresh strawberry parfaits that my husband got me from the hospital cafeteria last weekend. It was so exciting to enjoy eating something instead of just forcing it in! And yesteray my egg and cheese muffin was pretty good too. But today I'm back to forcing it in.

Push yourself to find what you can keep down. Stay away from strong smells. If possible have someone else make your food, and don't eat it in the kitchen. On my worst days if I go near the kitchen I cannot eat. Just seeing or smelling some things there set me off. It can make a big difference if someone will cook you a bowl of Cream of Wheat and you don't have to go near the kitchen. Or mashed potatoes. Or whatever works for you.

Check your tongue - if it is coated with white and you have an awful taste in your mouth, thrush could be adding to your problem and you need an anti-fungal. I get full upper and lower GI thrush each time. My mouth thrush isn't fun, but it isn't the worst of it - the GI tract is. I think it is one of my biggest problems with nausea. (If your body odor is "off" and you can't stand to smell yourself, and/or you get projectile green foamy off-smelling diarrhea, that can be another sign of thrush - in your GI tract and the rest of your body - not just your mouth.) Magic Mouthwash can be a help if you have mouth thrush - but if you are getting the full body, you need an antifungal like fluconazole.

I didn't think I could continue after my first tx. The second was slightly better. The third was even better - enough that I felt confident that I could get through 12. That is the only time I've felt that way - the rest of the time everything has been too awful for me. I've had a lot of trouble again with 4. But I am determined to keep tweaking to get through it. Speak up for yourself with your medical team.

Keep fighting. I'm rooting for you.

So Sorry
So Sorry, I was on pretty much the same meds as Donna. The Emend really helped but pot was the most effective and fast working. I had nausea the whole time but when a bad wave would come over me I would take a couple puffs and it would instantly subside. Hopefully you won't have any trouble getting it. I actually got a prescription from my doctor and was able to get it legally, California. One of the reasons it is so effective is because you don't have to wait to digest it. The smoke gets in your system immediatly so even the pill form isn't as effective. Hope this helps some.

Blessings to all,


Debbie, (gramma)

Shayenne said:

Agreed!
MJ is the schnizz. I can't get it legally here in my state, but I can get it through other people. It helped me sleep as well, try it, not to get stoned with, just a couple hits is needed. But, if you want to get stoned with it, go ahead, have fun, just make sure you're home and safe

Hugsss!
~Donna

You go sissy girl.........LOL
You wit and down to earth jargan simply makes my day...You are a very funny lady......I giggle everytime I read most anything you write. I think it is the subtle nonchalant grace you try to show then the gal comes out....I dunno how to explain it, but it sure makes me smile......Buzz.......Ok...carry on

grammadebbie said:

Different Kinds
Iam in California and was able to get MJ legally. One of the nice things about that is the supplier has many many different types. I ended up with 3 different kinds and they all worked in different ways. I was able to choose which worked the best. Maybe next time you can get something different. It was a life saver for me.

God Bless You,

Debbie (gramma)

Legalize already
I just don't understand why all states dont have it legalized for medical use, they know it works! I just make sure I don't have more that what is considered just a "ticket" in Ohio. I am the same person who obeys the speed limits, won't drive even after one drink, and pays my taxes, a law abiding citizen, but I have to sneak around cause there is not a medication to help my neuropathy! how pathetic!
Kathy