my PET scan results

lisa42
lisa42 Member Posts: 3,625 Member
edited March 2014 in Colorectal Cancer #1
Well, my PET scan results are kind of what I was expecting- not great, but could have been worse, I guess.
My "multiple pulmonary nodules" are stable in size, but their uptake (metabolic activity) has become more intense in all nodules. I also now have a new liver tumor along the edge of where my liver resection was. Nothing popped anywhere else, though.
So, to hear I had disease progression while on Folfiri and Avastin says that I've apparently become resistant to the chemo and Avastin. So, the timing of me going to try Dr. Cantrell's treatment of Lovastatin and interferon is well timed.
I've still got to pack tonight, but I've got all my paperwork ready in a binder.
Wish me luck and I'll definitely take your prayers!

Take care-
Lisa
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Comments

  • coloCan
    coloCan Member Posts: 1,944 Member
    #2
    Wishing you good luck on the next step in your war, Lisa
    finish packing, relax a little and try to get some sleep. I'm sure your next treatment will be successful....Steve
  • dmdwins
    dmdwins Member Posts: 454 Member
    #3
    Many prayers
    I will be sending up many prayers for you and hopes that this is the perfect treatment for you.

    Dawn
  • AceSFO
    AceSFO Member Posts: 229
    #4
    sorry to hear it
    but at least you've got a backup plan with Dr. Cantrell. We'll all be eager to hear how it goes out there. I'll be praying for you and holding you and Cantrell in the light. Keep us posted -
    and best wishes for a safe journey -
    Adrian
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #5
    Will continue to pray
    Certainly, I will continue to pray for you.

    Diane
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #6
    Lisa, thanks for sharing
    Lisa, thanks for sharing your update with us. Goodluck with Dr. Cantrell, & have a safe trip!
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #7
    dmdwins said:

    Many prayers
    I will be sending up many prayers for you and hopes that this is the perfect treatment for you.

    Dawn

    Lisa
    You know I cannot wait to see those results. Let me know how it's going. You are ALWAYS in my prayers... take care

    jennie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #8
    Praying for You
    I'm sorry you didn't get better news that you were hoping for but like you said, you now have another option to move forward with. You are in my prayers and I pray that this new treatment will be just what is needed for the reduction of your tumors and to a complete recovery. I'm thinking of you and wishing you only the best. Be careful on your trip and keep us informed as to what is happening if you are able.

    Kim
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #9
    Hi Lisa
    Hi Lisa,
    I was thinking about you and praying for you on my way to work today. You are right that your timing is good to go see Dr. Cantrell. You are a brave and strong woman and I am praying that you will have success with this new treatment.

    Aloha,
    Kathleen
  • maglets
    maglets Member Posts: 2,576 Member
    #10
    Kathleen808 said:

    Hi Lisa
    Hi Lisa,
    I was thinking about you and praying for you on my way to work today. You are right that your timing is good to go see Dr. Cantrell. You are a brave and strong woman and I am praying that you will have success with this new treatment.

    Aloha,
    Kathleen

    Hi Lisa
    Lisa that is a disappointment for sure. Gosh I'm glad you have a fresh new start to explore with Dr. C. All the best of luck and wishes.

    mags
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #11
    A Plan of Attack
    Dear Lisa

    Your strength and resolve has always been apparent - the way you phrase bad news is a unique gift and reminds of myself in many ways - but alot about you does.

    Even though you are strong, I know you must be disappointed still; that would be only human. On the other hand, you felt that Folfiri might fail you and you had already been pro-active with Dr. Cantrell, in anticipation.

    This has served you well, as you can now roll seamlessly into this new treatmnet plan with faith and confidence in your new onc's abilities.

    I join the others in praying for a good outcome and hoping things go well for a person like you - you deserve all the good things that Life can bring you.

    You're still my California Sunshine :)

    -Craig
  • geotina
    geotina Member Posts: 2,111 Member
    #12
    Pet Scan
    I am sorry you didn't have a better PET scan result. Good luck with the new treatment you are exploring with Dr. C. Have a safe trip and keep us informed - Tina
  • ittapp
    ittapp Member Posts: 383 Member
    #13
    Hey lisa, I am praying for
    Hey lisa, I am praying for you and your journey.....have a safe trip and keep us posted! Patti
  • Muzzy
    Muzzy Member Posts: 175 Member
    #14
    prayers on the way
    Lisa my prayer will be with you.
    HUGS
    jeff
    happy to be here!!
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #15
    Bravery
    Lisa,

    You have certainly shown us all what bravery looks like. Good for you on seeking out a new treatment and being proactive.

    I am thinking of you tonight as you get ready for your trip. I wish for you safe travels and good news from your trip.

    Amy
  • cyndi2324
    cyndi2324 Member Posts: 72
    #16
    I am praying for you Lisa. I
    I am praying for you Lisa. I think you are smart and brave. I hope Dr. Cantrell has the cure for you. I will continue to post how my phase 1 trail in San Antonio is going on ARRY-438162.
    Still Fighting!
    Cyndi
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #17
    Timing
    I'm sorry to hear the chemo hasn't been working to stop progression. It is good you had already looked into alternatives, and have a different path to try.

    Praying that Dr Cantrell's treatment works for you!
  • CanadaSue
    CanadaSue Member Posts: 339 Member
    #18
    So sorry
    Lisa,

    So sorry to hear the treatments didn't work.

    I am praying that Dr. Cantrell's treatment is the answer for you!

    Keeping you in my prayers.


    Hugs,

    Sue
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #19
    We're here for you
    Lisa,

    I do wish there had been a happy surprise in there for you. We'll be praying for excellent results in the new treatment. Keep us posted on how it goes. We're here for you.

    *hugs*
    Gail
  • grammadebbie
    grammadebbie Member Posts: 464
    #20
    Praying
    Dear Lisa,

    I'm so sorry that you didn't get better news today. You are an amazing woman. You already had a plan in case you got this kind of news. I'm glad that you have done all your research and are ready to go.. Please know that I am praying for you always. You are such an inspiration. Hope you have a stress free trip and all things are in order for you. Know that we're all here for you, in our thoughts and prayers.

    God Bless You,

    Debbie (gramma)
  • dorookie
    dorookie Member Posts: 1,731 Member
    #21
    I am sorry
    that your results are not what you wanted to hear, I think you had a feeling with your CEA level going up a bit, didnt ya? I agree that it is good timing for you to go and see Dr Cantrell, I am so keeping my fingers crossed that you will be a good match for his treatment and that it works wonders for you. Please keep us informed, I know you are probably sleeping now and traveling tomorrow, but just wanted to let you know that I am thinking of you and praying real hard that things come together for you.

    God Bless
    Beth

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