stuff going on this week
Tomorrow morning (Monday), I'll be having a PET/CT scan. I usually walk out of the place w/ a CD of the scan and then I go the next day to the hospital records room and get my copy of the written report. My CEA has been rising over the past 8 weeks, which has always been a telling indicator for me of new activity. I had been off the Avastin for a while though due to my colonoscopy a few weeks back & have now had it again with my past two Folfiri treatments. It will be interesting to see if going back on the Avastin for these past two treatments will have made a difference in my CEa and/or scan results. It seems maybe more than coincidental that my CEA started to rise when I had to stop the Avastin 6 weeks before my colonoscopy (I was off it for a total of 13 weeks). Who knows though how effective the Avastin is in me, because I had my recurrence back in August when I was on Avastin and Xeloda as maintenance. We'll see what the scan shows...
Last Monday was my last Folfiri treatment before ending it at least for the trial time of 11 weeks to to go see Dr. Cantrell in Nashville this week, start the new treatment and take it for 10 weeks, then rescan again. I fly out Wednesday and will have two appointments with him on Thursday and Friday, then fly home again Saturday. If all goes as Dr. Cantrell and I spoke about on the phone, I will be starting the treatment right away. I'll take the Lovastatin for 2 weeks and build up to the desired dose for my weight, then start in with the interferon after that and take the two combined for 8 weeks.
I'm a little nervous of what will or won't be seen on my PET scan tomorrow, but glad I'm getting scanned right before starting this new treatment of Lovastatin and interferon- we'll have my most up to date info from the scan and bloodwork and we'll know exactly what is in me at the start of this new treatment.
I'll let you know what my scan results are and then report in again after returning from Tenneessee. I'm actually also looking forward to this trip as a mini getaway as well- my sister in law is going with me and we'll visit with my nephew and his wife and hopefully have a couple of nice evenings with them.
I know there are several others who are going through things this week- chemo and trying to find clinical trials that will work, looking for answers for HIPEC treatment, plus more than just that, I'm sure (edit add on: I just read about John having colostomy surgery Monday or Tuesday- prayers will be with him). As I go on down this experimental road of treatment, my prayers are also with all of you for success and healing.
Take care everyone!
Lisa
Comments
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Lisa, I will be praying hard
Lisa, I will be praying hard for you today. I really feel like you are paving the way for a new way of treatment. I am amazed at your determination and know that this is going to work for you.I will be keeping you in my heart and prayers for the trip. God bless you, Patti0 -
We'll be sending good thoughts your way
We'll be sending good thoughts your way. Do you need a ride to the airport or anything? Let me know0 -
Thank you!just4Brooks said:We'll be sending good thoughts your way
We'll be sending good thoughts your way. Do you need a ride to the airport or anything? Let me know
Thank you everyone for your well wishes and prayers! Brooks, I had actually forgotten you live so close by! That's right- we will have to get together sometime!
I'm good for going to and from the airport though, but thanks!0 -
I am so excited for you andlisa42 said:Thank you!
Thank you everyone for your well wishes and prayers! Brooks, I had actually forgotten you live so close by! That's right- we will have to get together sometime!
I'm good for going to and from the airport though, but thanks!
I am so excited for you and the Nashville trip/experience! I will put you on the "good thoughts and prayer" list of mine- and look for updates on this week!0 -
Thinking of You
You have a lot on your plate. I'm hoping that the scan comes out good and that all is successful with your new treatment. You have been down a long road and you still are on your journey. You are in my thoughts and prayers during the months ahead while you go through this. Keep us informed.
Kim0 -
LisaAnnabelle41415 said:Thinking of You
You have a lot on your plate. I'm hoping that the scan comes out good and that all is successful with your new treatment. You have been down a long road and you still are on your journey. You are in my thoughts and prayers during the months ahead while you go through this. Keep us informed.
Kim
Hey girl...... I have been almost as anxious as you to see how this new treatment works. I just have this deep down feeling that it is your calling. I just know it is what you need and I cannot wait for results. Please keep me informed. I am sending you a PM with my phone number to make sure you have it and to call me with every new thing happening.... I will keep you in my prayers every day. This is it girl!!!
Jennie0 -
Keep Us Posted
I will be traveling to Texas on the days you see Dr. Cantrell. I am so excited for you. Please keep us posted, are you taking a laptop or will you have access to a computer to keep us updated? I will have my laptop on the road and will be trying to check in. Keeping you in my prayers and my fingers crossed for a great results to your scans.
God Bless and best of luck, have safe travels.
Beth0 -
Lisa
Lisa,
You do have a lot going on this week. I am praying for you for everything you will be doing, scan, travel, time with family, time with Dr. Cantrell and your new treatment. You are a very strong lady and I am praying for good results.
I am glad that you are planning on enjoying your trip. The time without immediate family can be a time for rest and taking care of yourself.
We look forward to hearing from you.
Aloha,
Kathleen0 -
Lisa
You are a source of inspiration to me and many others. Avastin was a lifesaver for me years ago, I hope it brings your numbers down again. You certainly have a full week. I'm glad you can mix a little get-away fun time in there. Please keep us posted.
You are in my thoughts and prayers.
-phil0 -
I'm excited for you
I've been praying and awaiting this day, too. Praying for wonderful results for you and hope you have loads of fun,too.
Diane0 -
Sending my Number along.....dianetavegia said:I'm excited for you
I've been praying and awaiting this day, too. Praying for wonderful results for you and hope you have loads of fun,too.
Diane
I am 2.5 hrs away from Nashville...If you are of assistance of anything at all please call me. It would be my pleasure to help. Hopefully it will be problem free and also a blessing for you...Have a ball with you relatives and if you need anything at all simply call..... Clift0
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