Silly question on radiation

Katz77
Katz77 Member Posts: 598
edited March 2014 in Breast Cancer #1
Hi to everyone and Happy Thanksgiving. Hope everybody enjoyed time w family, friends and good appeitites.
I start radiation on Monday. My rad doc said some of this will hit the upper part of my R lung. Has anyone else been told this and do I need to watch for anything. He didn't really elborate on the matter, and I wasn't feeling well. Siatic nerve pain!

Comments

  • Tux
    Tux Member Posts: 544
    Possible damage to the lung
    Possible damage to the lung was listed as a side effect before I began rads. About 1 week after finishing rads (33 treatments) I had to be hospitalized for excruciating pain in my side (same side as rads). A battery of tests showed absolutely nothing. I missed a week of work & went through a lot of pain meds. The radiation onc. finally said that the pain might have been "soft tissue damage" from the rads. It has eased up considerably since that time.
    Hope you (and no one else) has to go through this.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    No! My rads were the newest
    No! My rads were the newest treatment out and they do them concave, so that they don't hit any of your major organs. I hope you will be ok. Good luck!
  • lynn1950
    lynn1950 Member Posts: 2,570
    Hi Katz, I finished rads a
    Hi Katz, I finished rads a year ago last month. I learned about different kinds of radiation before treatment. I ended up with standard radiation (EBRT), because it did not affect my heart and affected only a teeny, tiny section of lung. There's a certain percentage of lung area that it is permissible for the radiation to reach. But, if the radiation would have affected more of my heart or lung, then I would have had IMRT. Xrays of my lungs after radiation was finished didn't show any damage at all.

    Here's what the ACS says about IMRT (it talks about prostate cancer, but it is the same thing for breast cancer):

    "Intensity modulated radiation therapy (IMRT): IMRT is an advanced form of 3D therapy. It uses a computer-driven machine that actually moves around the patient as it delivers radiation. In addition to shaping the beams and aiming them at the prostate from several angles, the intensity (strength) of the beams can be adjusted to minimize the dose reaching the most sensitive normal tissues. This allows doctors to deliver an even higher dose to the cancer areas. Many major hospitals and cancer centers are now able to provide IMRT. The RapidArc™ is a form of IMRT that allows each treatment to be given over just a few minutes. It is more convenient for the patient, but is similar to regular IMRT in terms of effectiveness."

    Do you know if you are getting external beam radiation therapy (EBRT) or IMRT?

    Don't be afraid to question your oncologists! They can show you a map of exactly what is going to be radiated and why.

    xoxoxoxo Lynn
  • jnl
    jnl Member Posts: 3,869 Member
    lynn1950 said:

    Hi Katz, I finished rads a
    Hi Katz, I finished rads a year ago last month. I learned about different kinds of radiation before treatment. I ended up with standard radiation (EBRT), because it did not affect my heart and affected only a teeny, tiny section of lung. There's a certain percentage of lung area that it is permissible for the radiation to reach. But, if the radiation would have affected more of my heart or lung, then I would have had IMRT. Xrays of my lungs after radiation was finished didn't show any damage at all.

    Here's what the ACS says about IMRT (it talks about prostate cancer, but it is the same thing for breast cancer):

    "Intensity modulated radiation therapy (IMRT): IMRT is an advanced form of 3D therapy. It uses a computer-driven machine that actually moves around the patient as it delivers radiation. In addition to shaping the beams and aiming them at the prostate from several angles, the intensity (strength) of the beams can be adjusted to minimize the dose reaching the most sensitive normal tissues. This allows doctors to deliver an even higher dose to the cancer areas. Many major hospitals and cancer centers are now able to provide IMRT. The RapidArc™ is a form of IMRT that allows each treatment to be given over just a few minutes. It is more convenient for the patient, but is similar to regular IMRT in terms of effectiveness."

    Do you know if you are getting external beam radiation therapy (EBRT) or IMRT?

    Don't be afraid to question your oncologists! They can show you a map of exactly what is going to be radiated and why.

    xoxoxoxo Lynn

    My cancer center had a very
    My cancer center had a very new machine and it was computer generated inre to how it gave me radiation. It didn't hit any organs. It was like a carved out watermelon or something like that if that makes sense.

    Leeza
  • Katz77
    Katz77 Member Posts: 598
    lynn1950 said:

    Hi Katz, I finished rads a
    Hi Katz, I finished rads a year ago last month. I learned about different kinds of radiation before treatment. I ended up with standard radiation (EBRT), because it did not affect my heart and affected only a teeny, tiny section of lung. There's a certain percentage of lung area that it is permissible for the radiation to reach. But, if the radiation would have affected more of my heart or lung, then I would have had IMRT. Xrays of my lungs after radiation was finished didn't show any damage at all.

    Here's what the ACS says about IMRT (it talks about prostate cancer, but it is the same thing for breast cancer):

    "Intensity modulated radiation therapy (IMRT): IMRT is an advanced form of 3D therapy. It uses a computer-driven machine that actually moves around the patient as it delivers radiation. In addition to shaping the beams and aiming them at the prostate from several angles, the intensity (strength) of the beams can be adjusted to minimize the dose reaching the most sensitive normal tissues. This allows doctors to deliver an even higher dose to the cancer areas. Many major hospitals and cancer centers are now able to provide IMRT. The RapidArc™ is a form of IMRT that allows each treatment to be given over just a few minutes. It is more convenient for the patient, but is similar to regular IMRT in terms of effectiveness."

    Do you know if you are getting external beam radiation therapy (EBRT) or IMRT?

    Don't be afraid to question your oncologists! They can show you a map of exactly what is going to be radiated and why.

    xoxoxoxo Lynn

    I didn't know to ask.
    I didn't know to ask. Thought radition was radiation. Little late to ask, since I go on Monday. I will ask then I guess. Thank you for the info. Katz
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Katz77 said:

    I didn't know to ask.
    I didn't know to ask. Thought radition was radiation. Little late to ask, since I go on Monday. I will ask then I guess. Thank you for the info. Katz

    Your rads oncologist should
    Your rads oncologist should have told you what type of machine and even showed it to you and explained it then. Or, maybe I was just lucky. Mine gave me informational pamphlets about the type of rads I was having, showed my husband and I the actual room and the machine and showed and explained the treatment to us on the computer. It really helped because it made me feel safer and not so unsure of what would happen. Did you have your simulation yet? Maybe, he will explain it then.
  • lynn1950
    lynn1950 Member Posts: 2,570
    Katz77 said:

    I didn't know to ask.
    I didn't know to ask. Thought radition was radiation. Little late to ask, since I go on Monday. I will ask then I guess. Thank you for the info. Katz

    It is never too late! You
    It is never too late! You haven't had radiation yet. You have a right to insist on more information before the treatment begins. You can call today and talk to someone. If you don't live too far away from your center, maybe you could even go in today.

    Sorry, this is long. I copied this from ASTRO, which is the society for radiation therapists. This is the link: http://www.rtanswers.org/treatmentinformation/questions/beforetreatment.aspx There are also lists of questions for during treatment and after treatment that link from this page.


    What Questions Should I Ask My Doctor?
    Quick Links

    * What Questions should I ask my doctor
    * Questions to ask before treatment
    * Questions to ask during treatment
    * Questions to ask after treatment ends




    Questions to ask before treatment

    * What type and stage of cancer do I have?
    * What are my treatment options?
    * What is the purpose of radiation treatment for my type of cancer?
    * How will the radiation therapy be given? Will it be external beam or brachytherapy? What do the treatments feel like?
    * How long will I receive radiation? How many treatments will I receive per week?
    * What are the chances that radiation therapy will work?
    * What is the chance that the cancer will spread or come back if I do not have radiation therapy?
    * Will I need chemotherapy, surgery, hormone therapy or other treatments? If so, in what order will I receive these treatments? How soon after radiation therapy can I start them?
    * Is there a clinical trial for which I might be eligible? Should I participate in a clinical trial? What are my benefits and risks?
    * How should I prepare for this financially?
    * What are some of the support groups I can turn to during treatment?
    * Will radiation therapy affect my ability to have children?
    * If I have questions after I leave here, who can I call?
    * Do you take my insurance? Is there a co-pay?

    Hope this helps. xoxoxoxox Lynn
  • Katz77
    Katz77 Member Posts: 598
    lynn1950 said:

    It is never too late! You
    It is never too late! You haven't had radiation yet. You have a right to insist on more information before the treatment begins. You can call today and talk to someone. If you don't live too far away from your center, maybe you could even go in today.

    Sorry, this is long. I copied this from ASTRO, which is the society for radiation therapists. This is the link: http://www.rtanswers.org/treatmentinformation/questions/beforetreatment.aspx There are also lists of questions for during treatment and after treatment that link from this page.


    What Questions Should I Ask My Doctor?
    Quick Links

    * What Questions should I ask my doctor
    * Questions to ask before treatment
    * Questions to ask during treatment
    * Questions to ask after treatment ends




    Questions to ask before treatment

    * What type and stage of cancer do I have?
    * What are my treatment options?
    * What is the purpose of radiation treatment for my type of cancer?
    * How will the radiation therapy be given? Will it be external beam or brachytherapy? What do the treatments feel like?
    * How long will I receive radiation? How many treatments will I receive per week?
    * What are the chances that radiation therapy will work?
    * What is the chance that the cancer will spread or come back if I do not have radiation therapy?
    * Will I need chemotherapy, surgery, hormone therapy or other treatments? If so, in what order will I receive these treatments? How soon after radiation therapy can I start them?
    * Is there a clinical trial for which I might be eligible? Should I participate in a clinical trial? What are my benefits and risks?
    * How should I prepare for this financially?
    * What are some of the support groups I can turn to during treatment?
    * Will radiation therapy affect my ability to have children?
    * If I have questions after I leave here, who can I call?
    * Do you take my insurance? Is there a co-pay?

    Hope this helps. xoxoxoxox Lynn

    Questions...
    There was only two or three on that list I asked! Wow what a wealth of info. Thank you. Our cancer center is closed for the holidays. They just have our "on call" Nurse practioner on duty for emergencies. Guess I'll wait for the day or rads to ask a few questions. My fault. I live in a small town in NM and we are lucky to have a cancer center. They fly our docs in from Albuequrque. We only started doing rads about two months bf I recieved my "welcome to the club" dianosis. Used to have to drive two hrs to the nearest center. Guess their still working on infomation to the patients. Thanks again for the info. Katz
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Katz77 said:

    Questions...
    There was only two or three on that list I asked! Wow what a wealth of info. Thank you. Our cancer center is closed for the holidays. They just have our "on call" Nurse practioner on duty for emergencies. Guess I'll wait for the day or rads to ask a few questions. My fault. I live in a small town in NM and we are lucky to have a cancer center. They fly our docs in from Albuequrque. We only started doing rads about two months bf I recieved my "welcome to the club" dianosis. Used to have to drive two hrs to the nearest center. Guess their still working on infomation to the patients. Thanks again for the info. Katz

    Hi Katz...
    Just catching up on the boards after the holidays. Wanted to let you know, even though I had the bent beams, due to the position of my tumor, 5% of both my lung and my heart were in the field. For the lung, I was told to watch for shortness of breath as scar tissue can build up in the radiated area. This was the same side effect if I developed heart trouble. I was petrified because my heart only runs on three valves as it is. I'm here to tell you that nothing happened and I am fine. It is very rare if this should occur as they are very careful. I hope this should help to ease your anxiety a little! Pammy