Doxil seems to be working for me

kayandok
kayandok Member Posts: 1,202 Member
edited March 2014 in Ovarian Cancer #1
Hi everyone, haven't updated in a while so thought I would check in.

I just received my third doxil infusion last week, and also had a CA125 taken. Yesterday I went in to get some more cream for my mild rash, and the results of my CA125. It was down again. So, it is too soon to celebrate, but doctor says it seems to be working for me.
I have mild skin itch on my lower legs that goes away with mild steroid cream, and hands and feet get red if I do too much. My problem is that I feel so good, that I tend to overdue.

So thankful today for life and energy to live!!

Hugs all around,
Kathleen:)

Comments

  • ladyjogger31
    ladyjogger31 Member Posts: 289
    Chemo
    So glad the Doxil is working for you and your Ca 125 is comming down. I'm praying you have great results with Doxil, it seems to work for alot of women.. Try ice packs during infusion on your hands and feet. It helped me.
    Hugs and Prayers,
    Terry
  • Deb2009
    Deb2009 Member Posts: 14
    So Happy for You!!!!
    Kathleen,

    That's great news. I am on Doxil and Avastin and got my first CT Scan results and the tumors have decreased overall by 19%....this must be the magic chemo. My hands are red also. Sort of feels like I rubbed my palms with sandpaper. I'm going to put an icepack in a sock and place in my palms that next treatment. Do you have a runny nose? Thought it was allegies, but my dr. said that it's a side effect.

    Hang in there....it's working.

    Holding you up in my prayers.

    Debbie
  • bonnie thomas
    bonnie thomas Member Posts: 36
    glad for you .
    kathleen,
    i got my first doxil and avaston today did great.no side affects.
    i was on the researen for 9 months topkin. then the scan showed a little bigger where it has always been so we went to thei i had cabo and taxol 12 of them did good. tired and so you know how it is. they did tell me not to get up set if ca125 went up spme that is one thing it may do but will go down, so i am ready for all it brings i will be strong i an so happy for you .
    i meed to get the cream for the itch ha.i feel good and life is good god is at out side . 'my parys are with you.
    god bless bonnie thomas. where you from i am in miss
  • kayandok
    kayandok Member Posts: 1,202 Member

    Chemo
    So glad the Doxil is working for you and your Ca 125 is comming down. I'm praying you have great results with Doxil, it seems to work for alot of women.. Try ice packs during infusion on your hands and feet. It helped me.
    Hugs and Prayers,
    Terry

    Yes,
    I have ice packs wrapped around ankles, wrists, on neck and also hand onto some gel packs. I also use them for the first few days when I get red hands or feet. This last cycle was actually the first tim a got a bit of a rash. I'm hoping and praying it won't get any worse and I can tolerate it for a few more cycles.
    How are you doing, Terry?
    Kathleen
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    Praise the Lord
    Dearest Kathleen, I have tears in my eyes, tears of joy and answered prayers. What awesome news and already working by only the 3rd dosage. Usually doxil takes a bit longer before you see results. ♥prayers♥hugs♥joy♥

    Bonnie
  • saundra
    saundra Member Posts: 1,370 Member
    Doxil
    Kathleen, I am so amazed at your response to the doxil. That really adds to my hope on more stuff in the medicine chest for the future. And to feel good is an added blessing!!! I am feeling good to on just the carbo. I think the doxil + carbo was what gave the trouble. Maybe I will just stick to one at a time for awhile. We'll just keep on keeping on as long as the CA125 is responding, won't we?
    In Christ, Saundra
  • Lisa13Q
    Lisa13Q Member Posts: 677
    YEAH!!!!!!!!!!!
    So glad to hear!!! I can't wait to meet you in Japan this summer!!!!!!!
  • bonnie thomas
    bonnie thomas Member Posts: 36
    doxil
    hi girl just wanted to ask did your ca125 go up while gettinh thje doxil my friends is up to 900. they told her it will not go down till she stops the doxil i have only had 1 8 days ago am feel great. will see my dr tomorrow i am also talking avaston once every other week, doxil once a month . hope you are doing good please let me know ok praying for you god bless.
    bonnie thomas
  • kayandok
    kayandok Member Posts: 1,202 Member

    doxil
    hi girl just wanted to ask did your ca125 go up while gettinh thje doxil my friends is up to 900. they told her it will not go down till she stops the doxil i have only had 1 8 days ago am feel great. will see my dr tomorrow i am also talking avaston once every other week, doxil once a month . hope you are doing good please let me know ok praying for you god bless.
    bonnie thomas

    CA125
    Thanks for all the encouragement girls!

    Bonnie, my CA125 has gone down by almost 100 points. It never went up, although going up and finally coming down seems to be a doxil trait. I will get my 4th doxil on December 3rd.

    Hope the avastin/doxil combo is good for you. I wish I could get the avastin here in Japan. I hasn't been approved for OVCA yet. Still keeping my fingers crossed.

    hugs,
    Kathleen:)
  • bonnie thomas
    bonnie thomas Member Posts: 36
    kayandok said:

    CA125
    Thanks for all the encouragement girls!

    Bonnie, my CA125 has gone down by almost 100 points. It never went up, although going up and finally coming down seems to be a doxil trait. I will get my 4th doxil on December 3rd.

    Hope the avastin/doxil combo is good for you. I wish I could get the avastin here in Japan. I hasn't been approved for OVCA yet. Still keeping my fingers crossed.

    hugs,
    Kathleen:)

    hi girl
    Hi thank you for writing me so good to hear from you , thanks for the input, i pray you will get the avaston my sis n law and i are doing great on it so far. the inc aproved me for it . the dr said it is not approved here yet but some ins are allowning it. thank god i hope the ca125 goes down but like you say the doxil is know for that to be one of the side affets. japan ha i bet you love it there , dec 3 you go girl are you just getting 4 doxil . then what or do you know yet.god bless you stay strong and keep busy and just be your self take it all one day at a time , i have already got my christmas tree up ha , just in case i got sick went ahead and did it. going to dr tomorrow to talk have not seen my head dr been seening the research dr for 9 months. mow going back to her they are all in the same place, great drs. i will let ya know how it went. have a great night
    bonnie
  • bonnie thomas
    bonnie thomas Member Posts: 36
    doxil
    hi there kayandok,
    how are you not been on in a while i am doing great!!!!!!!!!!!!!on thw avastion and doxil got two and ca125 went down to 42 from 213 great.just had number 3 and doing great. do get the rash and itch and fingers ars so tender sometimes but ok . all blood work so far good. nothing droping much. just wanted to ck in hope all is well with you have a great christmas ok praying for you be strong.
    bonnie thomas
  • bonnie thomas
    bonnie thomas Member Posts: 36
    BonnieR said:

    Praise the Lord
    Dearest Kathleen, I have tears in my eyes, tears of joy and answered prayers. What awesome news and already working by only the 3rd dosage. Usually doxil takes a bit longer before you see results. ♥prayers♥hugs♥joy♥

    Bonnie

    hi there
    hi bonnie bonnie here hope all is well with you merry christmas to you and your family. i am doing great on the doxil and avastion ca125 was 213 went down down to 42 great!!!!!!!!!!!!got a rash and itch but can deal with that i think . god bless you and have a happy new year.
    bonnie
  • kayandok
    kayandok Member Posts: 1,202 Member

    doxil
    hi there kayandok,
    how are you not been on in a while i am doing great!!!!!!!!!!!!!on thw avastion and doxil got two and ca125 went down to 42 from 213 great.just had number 3 and doing great. do get the rash and itch and fingers ars so tender sometimes but ok . all blood work so far good. nothing droping much. just wanted to ck in hope all is well with you have a great christmas ok praying for you be strong.
    bonnie thomas

    doxil
    Hi Bonnie, thanks for your update and checking in. Glad that the doxil is working for you. Awesome drop in CA125!

    I just got my CA125 from December 4th which would have been after a full 3 cycles. It dropped the first two cycles and then stayed the same for cycle three. I was disappointed but am always hearing how doxil is slow to work. Just wondering if anyone has experienced this kind of pattern.

    kathleen:)
  • nancy591
    nancy591 Member Posts: 1,027 Member
    kayandok said:

    doxil
    Hi Bonnie, thanks for your update and checking in. Glad that the doxil is working for you. Awesome drop in CA125!

    I just got my CA125 from December 4th which would have been after a full 3 cycles. It dropped the first two cycles and then stayed the same for cycle three. I was disappointed but am always hearing how doxil is slow to work. Just wondering if anyone has experienced this kind of pattern.

    kathleen:)

    how long
    How long are they projecting you will be on Doxil? If you mentioned it in a previous post I apologize for missing it.
  • kayandok
    kayandok Member Posts: 1,202 Member
    nancy591 said:

    how long
    How long are they projecting you will be on Doxil? If you mentioned it in a previous post I apologize for missing it.

    As long
    as a year, providing it is working and I don't have any severe side effects.
    k:)