Brainstem Glioma

no, but do not give up. i
no, but do not give up. i cannot urge you enough that you must go to a teaching hospital where they will have the latest treatments.

taz2138 said:

hospital
can you give me a name.

depends on where you live.
depends on where you live. the best place in my opinion is duke. but, i will say that we went to henry ford in detroit, michigan and my husband has survived nearl 10 years. google best place for brain tumor care in your state. good luck.

DebbieI said:

Brainstem glioma
We ended up seeing Dr Blakely at John Hopkins. Treatment is being done in our home town under they supervison. Very impressed!!

good going. best wishes .

good going. best wishes .

DebbieI said:

Brainstem glioma
We ended up seeing Dr Blakely at John Hopkins. Treatment is being done in our home town under they supervison. Very impressed!!

Brainstem Glioma
My grand baby (6yrs.) was diagnosed with brainstem glioma. She did her radiation treatments,it shrunk by 40% but her last MRI shows it's starting to get active again.Could you tell me what are yall doing?

sue Siwek said:

where are you going for
where are you going for treatment? go to the best teaching hospital in your area. good luck!

They are bringing her to the
They are bringing her to the Burzynski Clinic...but looking for other options

same with my dad
I am sorry to hear about all of these cases, wanted to share my story. As it commonly being said that brain steam glioma is a children's cancer. However my father at age 49 was diagnosed with this type of cancer, and since than every doctor that had seen him always tels u how rare it is. It have been 1 year 8 month since he was diagnosed, after he suffered a stroke. He was treated in Mass General (only radiation) and for now the tumor is stable.
I wish best of luck to all of you. Don';t give up.

diet change
On 11/03/09 my 26 year old husband was diagnosed with a grade 4 GBM tumor that is growing into his brain stem. A week later they operated and were only able to remove less then half of the tumor (which was the size of a golf ball) because it was a higher risk surgery due to its location in the brain. After the surgery my husband was experiencing fatigue, some loss in his vision, hearing and short term memory. He had his surgery done in Toledo, OH but is now receiving his treatments from the Cleveland Clinic. He is currently taking Keppra, Pepcid, and Dexamethasone while under going radiation and chemo (Temodar).

The BEST thing that I have found in regards to my husbands well being was changing is diet. As I'm sure you know from doing your own research, we all have cancer cells within us but what makes a difference is whether our bodies are able to seek and 'destory' the cancer cells effectively. And the best way to do this is by changing their diets in order to build up a healthy immune system. What this means is no more meats and very little dairy products. Make sure that they are eating high amounts of vegetables, fruits, nuts, leafy greens, and whole wheat grains.
We recently bought a juicer which has made such a difference in my husbands energy levels and alertness. We juice carrots, apples, celery, and wheat grass every morning. He drinks 500 ml.

Please read and do research on this subject. I don't want to write too much but like I said, it has made all the difference in my husbands health. The oncologist are now so surprised at how well he is doing.
Best of luck to you!
Ali

Hello Debbie can you tell me
Hello Debbie can you tell me a little bit about they type of brain cancer your son has?

agariepy said:

diet change
On 11/03/09 my 26 year old husband was diagnosed with a grade 4 GBM tumor that is growing into his brain stem. A week later they operated and were only able to remove less then half of the tumor (which was the size of a golf ball) because it was a higher risk surgery due to its location in the brain. After the surgery my husband was experiencing fatigue, some loss in his vision, hearing and short term memory. He had his surgery done in Toledo, OH but is now receiving his treatments from the Cleveland Clinic. He is currently taking Keppra, Pepcid, and Dexamethasone while under going radiation and chemo (Temodar).

The BEST thing that I have found in regards to my husbands well being was changing is diet. As I'm sure you know from doing your own research, we all have cancer cells within us but what makes a difference is whether our bodies are able to seek and 'destory' the cancer cells effectively. And the best way to do this is by changing their diets in order to build up a healthy immune system. What this means is no more meats and very little dairy products. Make sure that they are eating high amounts of vegetables, fruits, nuts, leafy greens, and whole wheat grains.
We recently bought a juicer which has made such a difference in my husbands energy levels and alertness. We juice carrots, apples, celery, and wheat grass every morning. He drinks 500 ml.

Please read and do research on this subject. I don't want to write too much but like I said, it has made all the difference in my husbands health. The oncologist are now so surprised at how well he is doing.
Best of luck to you!
Ali

You can also add to if you
You can also add to if you haven't already is to add brocilli to his diet and Noni juice the Tahitian Noni drink that is real good and will make a huge difference.

helpfindacure said:

Hello Debbie, My name is
Hello Debbie, My name is Melonie and yes I have been through what you are going through so I can relate. I will not say that I have all the answers but will try to provide hope or will help you find it.

My name is Khristina
We found out my sister Keylee had a brain stem Glioma in April 2008. She went threw radiation soon after we found out. We just recently found out that the tumor may be coming back or that it could be radiation necrosis. Which ever it is the Drs. say that there is nothing they can do to cure her it is eventually going to take her life. I don't know how true that is Because they also told us when they diagnosed her that she only had a 20% chance at making it 2yrs after diagnosis. It has been 3yrs and 3months. I have been trying to find a place that can give us any hope. But so far everybody says the same thing about her. My sister is a very strong person she has been fighting so hard for so long and never once has she wanted to give up. I pray for all the families on here that a cure for this is found. They want to try some other medications on her to try and give her more time. But they say that it may not work. I am so glad I found this site. Maybe somebody could help us. Thank you for reading this may God bless you all.