still looking for same type cancer with success story, none to be found :(

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Comments

  • Reddie
    Reddie Member Posts: 72
    #22
    unknown said:

    This comment has been removed by the Moderator

    Downsizing
    Hi Patricia,

    It's good to see you again and I love your picture at the ocean. It makes me feel peaceful really! Can u tell me what do you mean by downsizing? I'm 5th/6th grade teacher and I wear a wig or sometimes a scarf on my head to school. The kids are very very curious about my hair growth. I show them how much my hair have grown. It's good to show them that I can be survived through this disease. They can't see my emotions but sometimes I can get frustrating with them when they're not paying attention!! LOL!!
    take care,
    Reddie
  • deanna14
    deanna14 Member Posts: 732
    #23
    cherylduvall said:

    Stage IV Uterine Cancer
    Hi, my mom was diagnosed with stage IV pappilary serous Uterine cancer a few weeks ago. They did a debulking surgery and gave her a poor prognosis. Her CA-125 was 1470 befor surgery and 914 after. My sisters and I knew we had to do more and began to research. We are doing a regime of natural treatments that include B17, Essiac tea and Agaricus mushroom as well as taking suppliments and eating whole foods and taking Cell Food. So far, she has had positive results. She starts chemo this week but is staying very positive. Her swelling has completely gone away as well as constipation. I would love to stay in touch. She is 63 and has been very active and healthy until this.

    Natural Treatments
    Where did you find your recommendations for natural treatment? I am interested, but seem to be blown off when I ask about getting into a CAM program at my hospital.
  • Linnie
    Linnie Member Posts: 4
    #24
    Port for IV and Stage 4 Uterine Cancer
    Hi Cathy!

    I was stage IV with Uterine Cancer and after 6 Chemo's my CA 125 blood test went from 825 before surgery to 7 (the average person without cancer is about 30)!

    Their are 3 kinds of ports: the one outside your arm, the one surgically placed in your chest, and one easily surgically placed in your arm (called a "passport"). The last two allow you to take showers easily and let you swim. Also, the last two only need to be flushed out every 4 weeks (if you don't have chemo within that period). I had the passport inserted and it was painless. You lay on a surgical bed and the doctor gives you some small needle shots of novicane (tiny prick - much less than what is felt at the destist office). After that you don't feel a thing! The doctor makes 3/4's of an inch slice in your upper arm and insterts the passport and a small tube that goes from your arm to your chest (which you don't even feel) and then tapes you up - no stiches. It took about an hour with all the sterile prepreations. The doctor has two like x-ray machines that he can see where the tube is going and where the insertion is. It was then so easy getting my 16 hours of chemo and whenever they needed to draw blood.

    - Linnie
  • Unknown
    Unknown
    #25
    california_artist said:

    Wonderfully hopeful news
    Cathy,

    Makes me smile when I hear that you have finally found some peace so you can deal with what's going on without the added stress of fighting you doctors for reasonable treatment.
    The thread I just posted, on New York Times talks very much about how a patient can get their best treatment. Although you now know that sometimes what it really takes is a caring team, which you have.

    Happy heart for you,

    Love,

    claudia

    This comment has been removed by the Moderator
  • Unknown
    Unknown
    #26
    Reddie said:

    Downsizing
    Hi Patricia,

    It's good to see you again and I love your picture at the ocean. It makes me feel peaceful really! Can u tell me what do you mean by downsizing? I'm 5th/6th grade teacher and I wear a wig or sometimes a scarf on my head to school. The kids are very very curious about my hair growth. I show them how much my hair have grown. It's good to show them that I can be survived through this disease. They can't see my emotions but sometimes I can get frustrating with them when they're not paying attention!! LOL!!
    take care,
    Reddie

    This comment has been removed by the Moderator
  • Unknown
    Unknown
    #27
    Linnie said:

    Port for IV and Stage 4 Uterine Cancer
    Hi Cathy!

    I was stage IV with Uterine Cancer and after 6 Chemo's my CA 125 blood test went from 825 before surgery to 7 (the average person without cancer is about 30)!

    Their are 3 kinds of ports: the one outside your arm, the one surgically placed in your chest, and one easily surgically placed in your arm (called a "passport"). The last two allow you to take showers easily and let you swim. Also, the last two only need to be flushed out every 4 weeks (if you don't have chemo within that period). I had the passport inserted and it was painless. You lay on a surgical bed and the doctor gives you some small needle shots of novicane (tiny prick - much less than what is felt at the destist office). After that you don't feel a thing! The doctor makes 3/4's of an inch slice in your upper arm and insterts the passport and a small tube that goes from your arm to your chest (which you don't even feel) and then tapes you up - no stiches. It took about an hour with all the sterile prepreations. The doctor has two like x-ray machines that he can see where the tube is going and where the insertion is. It was then so easy getting my 16 hours of chemo and whenever they needed to draw blood.

    - Linnie

    This comment has been removed by the Moderator

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