oxaliplatin is one nasty, vile, disguisting drug

Patteee
Patteee Member Posts: 945
edited March 2014 in Colorectal Cancer #1
if I am allowed to HATE it, well, then I HATE it

Comments

  • pcs1453
    pcs1453 Member Posts: 75
    #2
    Your allowed
    Hang in there. I feel your pain (or should I say your cold and an assortment of other side effects). No way to get around it, oxy is nasty. You'll be done before you know it. Stay strong.
    Paula
  • Patteee
    Patteee Member Posts: 945
    #3
    pcs1453 said:

    Your allowed
    Hang in there. I feel your pain (or should I say your cold and an assortment of other side effects). No way to get around it, oxy is nasty. You'll be done before you know it. Stay strong.
    Paula

    I finished chemo last Jan.

    I finished chemo last Jan.
  • coloCan
    coloCan Member Posts: 1,944 Member
    #4
    Oxy
    I wonder if what makes it really bad is that you do it before surgery with radiation and then following surgery, where you never fully recovered from first round or operation and now you're (or I am) doing oxy, etc again.....It was nasty while combined with radiation 6 months ago and I dread it two days from now whileI'm still weak from colostomy. But whats the alternative?.....Steve
  • maglets
    maglets Member Posts: 2,576 Member
    #5
    coloCan said:

    Oxy
    I wonder if what makes it really bad is that you do it before surgery with radiation and then following surgery, where you never fully recovered from first round or operation and now you're (or I am) doing oxy, etc again.....It was nasty while combined with radiation 6 months ago and I dread it two days from now whileI'm still weak from colostomy. But whats the alternative?.....Steve

    oxy
    I finished oxy last June. Yesterday I got my journal out to have a look. Can't read it...just looking at the cover makes me sick!

    mags
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #6
    I agree
    I'm having a lot more than the "normal" issues with oxy. I'm having a lot of trouble with my face, jaw, neck, eyes and right hand. I am INSISTING that they drastically reduce the oxy or stop it all together next round.

    No pain in the hands, just very clumsy (right is way worse than left). I can't count on it to hold things and typing is hard. It locks up.

    Lots of pain and twitching in my face and head. Not fun... lips feel swollen/numb, so I'm always worried about drooling. Twitching and pain in my eyes.

    No trouble in my feet - go figure - that was my biggest worry.

    Not too bad with cold as far as hands or feet. But if wind hits my neck or face - that is really bad. And I can't drink even room temperature w/o pain - it needs to be body temp or higher.

    What a crazy drug!
  • KathiM
    KathiM Member Posts: 8,028 Member
    #7
    Sorry, I beg to differ....
    It saved my life!

    Hang in there, all, it DOES get better!

    Hugs, Kathi
  • luv3jay
    luv3jay Member Posts: 533 Member
    #8
    I agree!
    My body detested it so much that I developed a strong allergic reaction to it!
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #9
    KathiM said:

    Sorry, I beg to differ....
    It saved my life!

    Hang in there, all, it DOES get better!

    Hugs, Kathi

    Oxaliplatin...My take
    It is as Patteee says, vile, nasty, disgusting, makes ya wanna puke,freeze,walk funny, hand cramping, lip numbing, sorry tasting, libido killing,gag inducing treatment I have ever had the pleasure of being able to receive. I wouldn't have it any other way. Without wading through the suffering from the treatment, we could never appreciate the good it does for us...it is that that makes us Warriors......
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    #10
    Buzzard said:

    Oxaliplatin...My take
    It is as Patteee says, vile, nasty, disgusting, makes ya wanna puke,freeze,walk funny, hand cramping, lip numbing, sorry tasting, libido killing,gag inducing treatment I have ever had the pleasure of being able to receive. I wouldn't have it any other way. Without wading through the suffering from the treatment, we could never appreciate the good it does for us...it is that that makes us Warriors......

    Well put Buzzard
    I agree with you Buzzard. It's the worse of the worse but it is making me a stronger person. I AM A CANCER WARRIOR

    Brooks
  • Patteee
    Patteee Member Posts: 945
    #11
    KathiM said:

    Sorry, I beg to differ....
    It saved my life!

    Hang in there, all, it DOES get better!

    Hugs, Kathi

    I didn't say it wasn't a helpful drug
    I did say it is one nasty, vile, disgusting drug
  • daydreamer110761
    daydreamer110761 Member Posts: 487 Member
    #12
    luv3jay said:

    I agree!
    My body detested it so much that I developed a strong allergic reaction to it!

    yep
    it was awful, and everything else you all said about it. Kathryn - and everyone else - hang in there - it does get better.....
  • pluckey
    pluckey Member Posts: 484 Member
    #13
    I'm lucky
    I am not on this drug, but I have been reading here how awful it is.

    HUGGS to all of you dealing with the awful side effects...I pray the suffering brings you to healing that you all deserve!!!

    Peggy
  • anothersunrise
    anothersunrise Member Posts: 8
    #14
    It is all of those things
    It is all of those things and more. It was so poisonous to my system that I had an anaphylactic allergic reaction to it after my 3rd treatment and ended up in ICU! The good part is that it seems to work - they did a CT scan when I was admitted to the hospital for the allergic reaction and the tumor had shrunk by 40% - only after 3 treatments! Unfortunately for me, I had to change over to Cisplatin - which is nasty in its own right!...but my tumor is gone and I have my PET scan tomorrow - hopefully I will get remission for the holidays this year! Even though it seems like the lowest of lows sometimes, you will make it through this - like Buzzard said, it makes us warriors.

Discussion Boards