Off remission

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  • daisy366
    daisy366 Member Posts: 1,458 Member
    #42
    unknown said:

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    Patricia
    I think tears can be very therapeutic. It is good that you are FEELING - covering it up only delays the emotion. And that you have a therapist to work with - is the best of all worlds.

    I remember having many months of tearful times. I hope they are over but I never say never now - if you know what I mean.

    Love and healing thoughts to you. Mary Ann
  • california_artist
    california_artist Member Posts: 816 Member
    #43
    daisy366 said:

    Deanna,
    Super - a breath of fresh air for awhile :)

    I get tests TODAY and see the doc next week. Fingers crossed!!

    Take care. Mary Ann

    Mary Ann
    I don't know how you can wait the week. I always get in my little pickup and go over to the hospital's medical records office and pick things up as soon as they're ready. This way while the doctor is there reading the report, sometimes for the first time, I've had a chance to look things over and make a list of the questions I have for him.

    The last oncologist kept on insisting that there was only one lymph node the report was referring to, that had grown, when I knew from prior reading of the PET/CT report that there were in fact two, just right on top of one another. Kinda lost faith in his treatment and protocol advice if he couldn't ever read the report properly and hadn't taken the time to look at it prior to my visit. But that is neither here nor there. Nor did he notice that the surgeon and the last doctor reading the report had suggested the chest be included in the PET as there was a small node there in the lung. He kept on insisting on only an abdominal ct. See ya!!!! is what my response was to his level of care.

    With no other choices around, I am using the Chinese Menu approach. I manage to get a PET/CT once a year, a CT every six months, a what I call a look see, where my regular gyno just shines a very bright light up there and I think you know where there is, and looks for signs of cancer's return along with a pap. I have also had a CA-125 done in and around the six month area.

    My regular gyno is a marvey pooh guy who did his residency at the Mayo Clinic. I do trust his judgement and his advice. So, I am getting the regular checkups and such, and simply reading the report myself as I seem to read more carefully than the oncologist. He wanted to have me have a CT every two months while watching the nodes grow. Both myself and my gyno guy thought that was simply too much radiation exposure. It simply never made any sense to me to have a CT for a growing node, when the CT would not show metastatic activity. But my gyno did not feel comfortable going against the oncologist's recommendation. He would not order the PEt/CT. My family doctor saw the logic in my view and ordered the PET/CT after I took two weeks of antibiotic to knock out any infection that could be causing the growth of the two nodes. Also a reasonable idea I had. You'll be thrilled to know, as I was that the PET/CT showed no further overall growth over the year period and there was no metastatic activity even though the nodes were 1.5 and 1.2 cm's. A size where a PET is very reliable. It is true that size does not always correlate with cancer presence. A smaller node can be cancerous. A larger node not.

    So, until this area joins the 21st Century, I'll be having Chinese.

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