side effects of Oxaliplatin, Leucovorin and 5-FU

christinecarl said:

The first two weeks were
The first two weeks were rough for me too, but then it got better. I did tell my Onc and they gave me a different anti nausea med (Emend) I also got fluids on the day they removed the pump along with more IV anti nausea meds on that day. I hope you and your Dr can find away to make this more manageable for you. Hang in there!

Hang in there. It will get better.
Hang in there. It will get better! Keep thinking of the light at the end of the tunnel. I had the same treatment (FolFox). I took Ativan which was very helpful. It helped me rest and relax. For nausea, try Ginger tablets. I take them everyday and believe they help. The lemon citrus candy also helps nausea. I ate soup, saltines, fruit cocktail, applesauce, popsicles, pudding, chocolate, etc. Drink lots of fluids - grape juice, apple juice, etc. Hope these suggestions help you.

butterfly23 said:

Hi
Hi, I'm going through just what you are! I am on my 3rd treatment of xeloda avastin, oxyaplatin and I am having a hard time with nausea and neauropathy of my hands. I am taking anti-nausea pills and am trying the ginger candies, I have not tried the lemon drop candies, I do not like sour candy, but I heard they do take away the nausea! I am going to my onc. next week and I will let him know, maybe he can adjust the dose!! Good luck!
Hugs
Karyn

nausea and vomiting
I had nausea and lack of appetite from oxalyplatin, and during another chemo course I had nausea and vomiting from Irenotecan. The qualities of sickness for each drug were different and I found different remedies. For oxalyplatin, I tried several antiemetics prescribed by my onc, but marijuana worked best. It immediately relieved the nausea and the disgust I felt for food and gave me an appetite. I also took some ginger candies, and they relieved the nausea during the day. My sister-in-law was pregnant at the same time I was doing chemo, she had morning sickness and recommended the candies, called "Preggie-Pops" -- love that!

For the nausea and vomiting caused by Irenotecan, I found a combination of Atavan (lorazepam) and Promethezan worked well. (Marijuana made it worse, in part because I was also having severe pain from cancer at the sacrum, and the pot made me hyper-aware of the pain.) Side effect of premethezan and lorazepam, though, is extreme sleepiness. Even so, that was better than the feeling the side-effects of the chemo.

My doc also reduced dosage when other symptoms (neuropathy) became too severe.

Best wishes,

John

Treatments
My post disappeared, however, I would talk to your doctor as others have said. I had side effects, but they were never that severe. I do remember that my second treatment hit me hard though. I hope that your future treatments go better for you.

Kim

daydreamer110761 said:

try
room temp ginger ale? I did that a few times, wasn't bad. Always carried lemon drops with me, and they weren't the sour kind, but they seemed to work.

You're just starting and winter is almost here - get really warm gloves and socks, they will be a great help.

I lived off of warm tea, room temp orange sunkist (that was a buzzard suggestion). Soups, some spicy foods were really good. Donna had a great recipe last winter for a spicy dip, and fightformy love has some awesome chinese recipes that taste good, are easy to make, and healthy.

through all of it the most important thing is to stay hydrated, and eat what and when you can, and of course - attitude - keep your head up, you will get through this!

Best of luck - Sherrie
(freezing in Minnesota)

I hate this cancer
Someone else from Minnesota? I thought I was the only one. My doctor dosen't know what to do. I am her only patient. I have nausea also and dosen't look like I am a candidate for radiation as I have extensive Bowens disease and whole canal is diseased. I also have multi-focal hpv. Any suggestions would help. I am new to this site and this is my first reply. Thank you.

Hi Robert,my husband is
Hi Robert,my husband is going to have the round 2 of 12 Folfox next week.At first round he lost appetite for a couple of days and he got heart burn for a couple of days(solved by Pepcid that members suggested here).I understand this cocktail chemo is tough and knocks you down pretty quickly.But like everybody says you got to stay hydrated and try to eat as much as you can and as often as you can.When my husband really doesn't want to eat,I will make sure that he at least stays hydrated and drink Ensure plus(it's a nutrition drink full of protein and other vitamins,you can find them in grocery store and pharmacy).Protein is the best way to help with fatigue.I also make some chinese soup for my husband when he doesn't like to eat.Here is the recipe:Tomato Egg drop soup

Chop tomato to small pieces,then put canola oil in wok,then then put some Chinese shallot in the oil,when you can smell the smell of the shallot,put the tomato in and stir.When you can see the tomato is well cooked,(This means you can see tomato pieces are soft and juicy),then put water in,wait until the water is boiled,then put salt,white pepper,put the scrambled egg in the soup,then use a big spoon to push the egg a little bit,this way the soup will get even.When the soup is boiled again,it is done.(don't overly boil the soup,because the egg drop will get hard)

PS:If you don't like vege in the soup,you can just make plain egg drop soup.You can just put oil and Chinese shallot in the wok first,then put water in,wait the water boiled,then put scrambled egg in,salt and white pepper in.Mix them until the soup is even.Before you serve it to family,if you and your family like sesame seed oil and cilantro,put them in the soup,it is very tasty.

Hopefully this recipe is going to be helpful.Good luck to you with the rest of the treatment.

Fight for my love said:

Hi Robert,my husband is
Hi Robert,my husband is going to have the round 2 of 12 Folfox next week.At first round he lost appetite for a couple of days and he got heart burn for a couple of days(solved by Pepcid that members suggested here).I understand this cocktail chemo is tough and knocks you down pretty quickly.But like everybody says you got to stay hydrated and try to eat as much as you can and as often as you can.When my husband really doesn't want to eat,I will make sure that he at least stays hydrated and drink Ensure plus(it's a nutrition drink full of protein and other vitamins,you can find them in grocery store and pharmacy).Protein is the best way to help with fatigue.I also make some chinese soup for my husband when he doesn't like to eat.Here is the recipe:Tomato Egg drop soup

Chop tomato to small pieces,then put canola oil in wok,then then put some Chinese shallot in the oil,when you can smell the smell of the shallot,put the tomato in and stir.When you can see the tomato is well cooked,(This means you can see tomato pieces are soft and juicy),then put water in,wait until the water is boiled,then put salt,white pepper,put the scrambled egg in the soup,then use a big spoon to push the egg a little bit,this way the soup will get even.When the soup is boiled again,it is done.(don't overly boil the soup,because the egg drop will get hard)

PS:If you don't like vege in the soup,you can just make plain egg drop soup.You can just put oil and Chinese shallot in the wok first,then put water in,wait the water boiled,then put scrambled egg in,salt and white pepper in.Mix them until the soup is even.Before you serve it to family,if you and your family like sesame seed oil and cilantro,put them in the soup,it is very tasty.

Hopefully this recipe is going to be helpful.Good luck to you with the rest of the treatment.

To the both of you Robert and bunny62
Robert, there is only one thing worse than doing Oxal/Leuc/5fu....thats not doing it. It is the most sickening cocktail I have ever had and I have had a few. It will make you gag,puke,spit,choke,shake,freeze,cry,vent,cuss,stomp,pee in your pants, poop in your drawers, well you get the message, but it will save your life...cut and dry it will save your life, and it doesn't matter the quality of life you have after chemo, at least there is a life, and its quality let me tell ya. I did the same chemo as you are and I stayed sick with nausea and neuropathy till the end. but it saved my life. Just keep the onc up to date with every abnormal ache and pain and above all don't suffer, they have meds to take care of everything.Use them......

Now, bunny62, if your Dr has only 1 patient and its you, theres a great big fat reason for that.....She hasn't a clue what in the crap shes doing......RUN, don't walk, RUN as fast as you can to the nearest cancer facility and get some real help before you end up a statistic and the Dr ends up batting 0%. I wouldn't care if it was my sis or my mom if she didn't know what she was doing then she wouldn't be using me as a guinea pig...If you have to fly to get somewhere do it......and please keep us informed of your journey, we care about your care....{{{{{{hugs to you both Robert and bunny62}}}}}}}.....Buzzard