neurologist???

johnnybegood
johnnybegood Member Posts: 1,117 Member
edited March 2014 in Colorectal Cancer #1
hello cyber family im still lurking around but my hands hurt so bad i just dont feel like typing.i went to my onc for a 3 month check up,it has been 3 months since my last chemo treatment.i told her how bad my neuropathy is and she is sending me to a neurologist on nov.11.has anyone here delt with a neurologist for their neuropathy?i am just wondering what to expect i hope they dont want to fill me full of pills.just want to say hello to all the newbies and even when you think you are done cancer still sucks!!!everyone take care and just keep hangin on.....Godbless....johnnybegood

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Neuropathy
    I'm so glad you posted as I tried to send you a PM yesterday but it won't go through. We have all been wondering where you have been. I can understand about your not wanting to type because of the neuropathy however mine isn't that bad. My feet are worse than my hands. I'm glad they are sending you to a specialist, maybe they can figure out what is going on. I was hoping that by now you would be getting better. I hope you let us know what the other doctor says. I'll be thinking and praying for you.

    Hugs! Kim
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #3
    Well THERE you are! We've
    Well THERE you are!

    We've been 'looking' for you. :o) JBG, it's been a year since your surgery, right? Sounds like your follow up visit went well??? Congrats!

    Well, a cc friend went to the neurologist just last week. She only got through 4 tx's on Oxi before they had to stop it. She said the neurologist did some tests with needles/ electrical current and confirmed she has neuropathy but gave her no help. Just a 'yep'. She also said the tests he did hurt VERY badly.

    My neuropathy got much worse about 2 weeks after chemo ended. It worsened steadily for a few weeks and then leveled off. I have some numbness that creeps up the back of my legs. I can still deal with it, tho.

    Hope you can find some relief soon! Don't be a stranger. We cannot contact you to check on you and get worried!

    Diane
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #4
    dianetavegia said:

    Well THERE you are! We've
    Well THERE you are!

    We've been 'looking' for you. :o) JBG, it's been a year since your surgery, right? Sounds like your follow up visit went well??? Congrats!

    Well, a cc friend went to the neurologist just last week. She only got through 4 tx's on Oxi before they had to stop it. She said the neurologist did some tests with needles/ electrical current and confirmed she has neuropathy but gave her no help. Just a 'yep'. She also said the tests he did hurt VERY badly.

    My neuropathy got much worse about 2 weeks after chemo ended. It worsened steadily for a few weeks and then leveled off. I have some numbness that creeps up the back of my legs. I can still deal with it, tho.

    Hope you can find some relief soon! Don't be a stranger. We cannot contact you to check on you and get worried!

    Diane

    thanks
    so much for your support.i guess that darn oxy just did a number on me.people keep telling me it just takes time but i feel this is controling my life and i just want to be like i was.take care and i will try to post more often.....Godbless,,,,johnnybegood
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #5
    johnnybegood said:

    thanks
    so much for your support.i guess that darn oxy just did a number on me.people keep telling me it just takes time but i feel this is controling my life and i just want to be like i was.take care and i will try to post more often.....Godbless,,,,johnnybegood

    Oxal did 2 numbers on me Johnnybegood....
    It gave me neuropathy in my hands and feet which are slowly going away, and it saved my life, I'll trade like that anyday....Hope your doing great, seems like only a few hurdles and you'll be good as new.......{{{hugs}}} to you and yours....Clift
  • kristasplace
    kristasplace Member Posts: 957 Member
    #6
    Neurologist
    I saw a neurologist who did those tests Diane mentioned. It's called an EEG, i think. It was horrible! Very painful, and all it did was confirm neuropathy in my left leg. I have it in more places than that, especially in my mouth. I wasn't even going to ask about that for fear they would test me there! They also set up another test where electodes were put on my fingers and toes, and i had to push a button if i felt a buzzing. The doctor did suggest pills to take, but he said, "only if you REALLY want to." That didn't sound good to me. I don't know why they feel they have to prove we have neuropathy with painful tests after we've been on oxaliplatin. 95% of the people who do it get neuropathy.

    Good luck at the neurologists. Maybe he will actually help you!

    So glad to see you posting again!

    Hugs,
    Krista
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #7
    kristasplace said:

    Neurologist
    I saw a neurologist who did those tests Diane mentioned. It's called an EEG, i think. It was horrible! Very painful, and all it did was confirm neuropathy in my left leg. I have it in more places than that, especially in my mouth. I wasn't even going to ask about that for fear they would test me there! They also set up another test where electodes were put on my fingers and toes, and i had to push a button if i felt a buzzing. The doctor did suggest pills to take, but he said, "only if you REALLY want to." That didn't sound good to me. I don't know why they feel they have to prove we have neuropathy with painful tests after we've been on oxaliplatin. 95% of the people who do it get neuropathy.

    Good luck at the neurologists. Maybe he will actually help you!

    So glad to see you posting again!

    Hugs,
    Krista

    Ouch
    Oh I had one of those tests done years ago after I was in a car accident and it did hurt real bad. I can't understand why a doctor would make you go through that either if they are just confirming it. Good luck though, I hope you feel better soon.

    Kim

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