JUST DIAGNOSED W/UTERINE CANCER...HAVE QUESTIONS, HELP?

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  • ro_NJ
    ro_NJ Member Posts: 11
    #22
    Yes, I remember
    I, too, have just been diagnosed with stage 2 uterine/cervix cancer - and yes, pain in my left hip bone for over a year - and lower back on the left side - (funny since the tumor is on the right side).

    As for diet - I think you need to eat what works best for you... everyone is different. I'm reading a book written by a cancer survivor and diets - this one particular book sited 6 different diets that work - for different people. You need to find what YOU are comfortable with... and most of all BELIEVE it works. I'll have to get the name of the book when I'm back home.
  • colleenmarlboro
    colleenmarlboro Member Posts: 7
    #23
    npl8261 said:

    Just diagnosed
    I am 43 and got diagnosed in Feb. with Stage 3C Uterine Cancer. It is rare for someone our age to get Uterine Cancer and because of this my doctor had me get Genetic Testing. This testing revealed a Gene that most likely caused my cancer. It is called the Lynch Syndrome.
    As for books, one that I recently read that talks about cancer cells and nutrition is called ANTI CANCER- A New way of Life. I found this book very helpful and have started to incorporate some of it into my own diet.
    Also, I had a radical hysterectomy in Feb.09, right after the diagnosis came through, have had 5 rounds of chemo (with one left) and will start Radiation sometime in August. I also had leg and back pain for quite some time. I hope this info helps you in some.
    I wish you well.

    Thanks and sorry for not replying sooner!
    How are you feeling? I had the surgery mid-July. Pathology reports came back that the cancer has spread into the lymph nodes and they are going to be doing 4-6 rounds of chemo once every three weeks for 18 weeks then 30 radiation treatments both internal and external. Sounds similar to what you're doing. Its scary...I am TERRIFIED about the chemo...I NEVER ever take pills of any sort...and am super sensitive if I do.

    I'm more afraid of the treatments...than the cancer itself...does that sound weird? I have my first chemo treatment Sept 2nd.

    How do you feel on chemo? I hate not knowing what to expect.

    THANKS!
  • colleenmarlboro
    colleenmarlboro Member Posts: 7
    #24
    Deblittleton said:

    Pet Scan
    I am 56 and have Stage 3 uterine cancer diagnosed in Jan. My Ct scan showed lit up areas around the uterus, spot on the liver and node in the left lower lobe of the lung. I was feaking out. A doctor friend of mine ordered a pet scan to decrease my anxiety and to get the real picture. On the pet scan nothing lit up except the uterus. Hysterectomy was done, 25 lymph nodes were negative for cancer, but a lymph channel to the vagina had a couple of suspicous cells.
    So 6 treatments of chemo is done, with next to no side effects except side effects from a shot I received a day after treatment each time. Radiation has just started and so far so good.
    I highly recommend a Pet Scan before surgery and to have that genetic testing regarding Lynch syndrome. If positive, your sisters, if you have any, should also be tested. Just had my post chemo Pet Scan this week so we will see.

    Thanks Deb...
    I had the surgery and am recovering great...but the cancer HAS spread to my lymph nodes unlike yourself. So, I'll begin my 6 treatments of chemo...which I am TERRIFIED of...then 30 radiation sessions both internal and external...how did you feel on chemo? They tell me I should cut my "beautiful hair" as I don't want to see it all falling out in clumps...

    Hope you have continued success with your treatment,

    Colleen
  • cherylduvall
    cherylduvall Member Posts: 6
    #25
    Hi, my mom was diagnosed
    Hi, my mom was diagnosed with stage IV pappilary serous Uterine cancer a few weeks ago. They did a debulking surgery and gave her a poor prognosis. Her CA-125 was 1470 befor surgery and 914 after. My sisters and I knew we had to do more and began to research. We are doing a regime of natural treatments that include B17, Essiac tea and Agaricus mushroom as well as taking suppliments and eating whole foods and taking Cell Food. So far, she has had positive results. She starts chemo this week but is staying very positive. Her swelling has completely gone away as well as constipation. The pain is more manageable. I would love to stay in touch. She is 63 and has been very active and healthy until this. I will also ad that SUGAR feeds cancer cells. Caffeine is not good either and try to stay away from anything with soy which acts like estrogen. (It can be hideden in so many things!)
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #26
    cherylduvall said:

    Hi, my mom was diagnosed
    Hi, my mom was diagnosed with stage IV pappilary serous Uterine cancer a few weeks ago. They did a debulking surgery and gave her a poor prognosis. Her CA-125 was 1470 befor surgery and 914 after. My sisters and I knew we had to do more and began to research. We are doing a regime of natural treatments that include B17, Essiac tea and Agaricus mushroom as well as taking suppliments and eating whole foods and taking Cell Food. So far, she has had positive results. She starts chemo this week but is staying very positive. Her swelling has completely gone away as well as constipation. The pain is more manageable. I would love to stay in touch. She is 63 and has been very active and healthy until this. I will also ad that SUGAR feeds cancer cells. Caffeine is not good either and try to stay away from anything with soy which acts like estrogen. (It can be hideden in so many things!)

    questions
    Cheryl,

    I'm intersted in more detail about the supplements, etc. ARe you following any particular protocal. Please give some resources. Mary Ann
  • Unknown
    Unknown
    #27
    This comment has been removed by the Moderator
  • culka
    culka Member Posts: 149 Member
    #28
    california_artist said:

    I did, but as you mentioned it did sorta look like a "fat cat", didn't want to make too many social comments--ah? way too late for that now I guess--so I have changed it to the painting of the little girl and her dog,I've titled Waiting. Most of us have someone waiting for us.

    Lovely talking with you the other day, let me know how the doctor's appointment went. Glad the apple cider vinegar helped with your problem, I didn't know it would have that effect, but yippie anyway. Did you say your dog had passed on shortly after your diagnosis? He's a lovely looking friend. I hope I have remembered incorrectly. Don't overwork yourself.
    As always, love and hope for us all,


    Claudia

    The hospital diet is the worst, especially for uterine cancer. Gee, let's feed the most likely, hormone dependant cancer patient some beef. Do they even try to think these things through? If you ran a hospital, what are some of the things you would do to improve their performance???

    Claudia read this
    Claudia read this http://www.soilandhealth.org/02/0201hyglibcat/020122horne.21stcentury/020122toc.html
    I did it last weekend and already reading it second time. Hopefully it will help others as well.
    jana
  • Roxanne123
    Roxanne123 Member Posts: 2
    #29
    Lisa 00 said:

    I too was bleeding
    Hi, Colleen
    I had a similar experience as you. I had two years of heavy bleeding that I chalked up to being in my early 40's. Until one day the heavy bleeding got to be heavy hemorrhaging and I knew I needed a hysterectomy. Long story short, when I finally got the pathology report it was cancer of everything. Cervix (stage 1), uterus (stage 3), both ovaries (stage 1). My symptoms were the bleeding, fatigue, weight loss, and pain that was from cramps. Twice the bleeding got stopped up by something and I got cramps until the bleeding started again. I did have some cramps when I had a uterine fibroid that came loose and was trying to pass. (I know....yuck!)
    As someone who almost bled to death, if you are still bleeding the doc can give you progesterone to stop it. It was a Godsend for me until I could get to the hospital for my hysterectomy when they gave me 3 units of packed RBC's.
    As far as the diet goes, it seems that many of these neoplasms are estrogen dependent. I haven't totally researched it but personally I found on the internet that milk has a lot of estrogen in it as they milk pregnant cows. Unfortunately this makes diary products a bit dangerous.
    I don't want to scare you with unneccessary information right now. I remember how hard it was to wait for the surgery and then the pathology report. Hang in there. You WILL make it through this.

    I too was bleeding (Colleen & Lisa)
    I also was misdiagnosed for years while in my 40's and bleeding abnormally. Along with the abnormal bleeding I had severe cramping and the doctors never once ordered a intra-uterine ultrasound that would have found the uterine cancer at an early stage. When I was post menapausal at 51 I started bleeding heavily and went to the doctor who finally ordered the test. After a biopsy, it was determined that I had uterine cancer and a hysterectomy was recommended. I went to Sloan Kettering for the surgery where they found it had spread to my colon and was in my abdominal fluid, and lymph nodes. The diagnosis was Stage 4 and it has reoccurred 3 times. In 2005 I had a hysterectomy and 6 months of chemotherapy. When is came back I had a colon re-section and 8 weeks of radiation and hormone treatment. A few months
    after that I had to have another colon re-section because I was blocked as a result of the radiation. Presently, #3 reoccurance, I'm in my 2nd round of 6 months of chemotherapy and am responding as my CA-125 went down 73 points already.

    I am replying not to complain or scare anyone. I would like some help with resolving the anger I feel towards the doctors in my home state of NJ who ignored symptoms that I've now learned are classic for uterine cancer. I'm also very angry at myself for not going further to find out answers because I knew my body wasn't right. I'm not constantly angry but when I get scared I get extremely angry which I know is not heathy.

    I'm not a nutritionist but since the diagnosis, I eat as much organic food as possible, I eat very little processed food, and a lot of fruits and vegtables.

    Thank you so much for your comments, this is the first time I've been in the site and realize I need to talk about all of this to women who have lived it.
  • eme_lyn
    eme_lyn Member Posts: 4
    #30
    npl8261 said:

    Just diagnosed
    I am 43 and got diagnosed in Feb. with Stage 3C Uterine Cancer. It is rare for someone our age to get Uterine Cancer and because of this my doctor had me get Genetic Testing. This testing revealed a Gene that most likely caused my cancer. It is called the Lynch Syndrome.
    As for books, one that I recently read that talks about cancer cells and nutrition is called ANTI CANCER- A New way of Life. I found this book very helpful and have started to incorporate some of it into my own diet.
    Also, I had a radical hysterectomy in Feb.09, right after the diagnosis came through, have had 5 rounds of chemo (with one left) and will start Radiation sometime in August. I also had leg and back pain for quite some time. I hope this info helps you in some.
    I wish you well.

    stage 3c uterine cancer
    hi! i am new here and this is the first time i started communication because i enjoyed reading questions and comments. since i found you here wherein we have same situation, same age. my surgery was last march 2009 , chemo started April until August. pelvic radiation for 28 days. my oncologist prescribe me Megace 160 mg per day. i am now taking this medicine for almost 3 months. Does anyone who read have an idea on this medicine. was it good or have bad side effects? my first quarterly check up was last month.

    Anyway, i beleive best medicine if PRAYER. That's what i always did.
  • aprillorey
    aprillorey Member Posts: 104
    #31
    Hi Hun
    Im 29 and was told
    Hi Hun

    Im 29 and was told as of march 22nd i have the same cancer i will be having all removed from my body on april 16th its very much scary i can tell you that i have bad pains in the womb and ovry area along with bad lower back pains

    MY CT scan came out normal and chest xray so i take it maybe it hasnt spreed all through i do not no that for sure until all is removed but the pains can hurt like some one is stabing me in the womb and overys some times it hurts to bend over even ,.

    as for foods i my self am trying to find this out i do no chesse and milk can feed cancer cells but i am like you i dont want to feed the cancer cells and i dont fully no how to eat my doctor didnt take time to expilan nothing

    so i turned to research and i can tell u all i researched scard me big time

    but my husband has a aunt who is cancer free now 13 years shes given me alot of hope

    im here for ya if u need to talk
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #32
    aprillorey said:

    Hi Hun
    Im 29 and was told
    Hi Hun

    Im 29 and was told as of march 22nd i have the same cancer i will be having all removed from my body on april 16th its very much scary i can tell you that i have bad pains in the womb and ovry area along with bad lower back pains

    MY CT scan came out normal and chest xray so i take it maybe it hasnt spreed all through i do not no that for sure until all is removed but the pains can hurt like some one is stabing me in the womb and overys some times it hurts to bend over even ,.

    as for foods i my self am trying to find this out i do no chesse and milk can feed cancer cells but i am like you i dont want to feed the cancer cells and i dont fully no how to eat my doctor didnt take time to expilan nothing

    so i turned to research and i can tell u all i researched scard me big time

    but my husband has a aunt who is cancer free now 13 years shes given me alot of hope

    im here for ya if u need to talk

    Aprillorey
    So sorry you have received this diagnosis...

    I too would suffer terrible pains but only for 1-2 hrs a day (not that that was not enough!)

    Once surgery is over, you will be pain free from that....what a blessing!

    Keep us posted on your progress and we will be here with you as you go through treatment.

    Laurie
  • abxchange
    abxchange Member Posts: 1
    #33
    aprillorey said:

    Hi Hun
    Im 29 and was told
    Hi Hun

    Im 29 and was told as of march 22nd i have the same cancer i will be having all removed from my body on april 16th its very much scary i can tell you that i have bad pains in the womb and ovry area along with bad lower back pains

    MY CT scan came out normal and chest xray so i take it maybe it hasnt spreed all through i do not no that for sure until all is removed but the pains can hurt like some one is stabing me in the womb and overys some times it hurts to bend over even ,.

    as for foods i my self am trying to find this out i do no chesse and milk can feed cancer cells but i am like you i dont want to feed the cancer cells and i dont fully no how to eat my doctor didnt take time to expilan nothing

    so i turned to research and i can tell u all i researched scard me big time

    but my husband has a aunt who is cancer free now 13 years shes given me alot of hope

    im here for ya if u need to talk

    estrogen in the diet
    This holistic site tells you what foods to avoid, etc.:

    http://www.holistic-online.com/remedies/hrt/hrt_food_and_estrogen
  • culka
    culka Member Posts: 149 Member
    #34
    abxchange said:

    estrogen in the diet
    This holistic site tells you what foods to avoid, etc.:

    http://www.holistic-online.com/remedies/hrt/hrt_food_and_estrogen

    This is full link
    http://www.holistic-online.com/Remedies/hrt/hrt_estrogen.htm

    or maybe not, but first one is not working for me.

    This is the one http://www.holistic-online.com/Remedies/hrt/hrt_food_and_estrogen.htm
    I should finish reading, sorry.
  • Pamela T
    Pamela T Member Posts: 1
    #35
    Upper leg pain
    Hi Colleen,

    I haven't seen you post anything for a while and hope all is well. I am wondering if they associated your leg/groin pain with your endometrial cancer?

    I started having really painful cramps about 1 year ago and more frequent periods. Lately I started having spotting in between, cramping after sex, leg & back pain, pelvic pain, bloating and indigestion. Wondering if these were your same symptoms?

    I did have 2 ultrasounds which showed a thickened endo lining 15mm (even 2 days after just finishing my cycle). Then had a sono-hystegram and still 15mm (over the course of 4 months). Just had a biopsy and the results have not come back as yet....nervous that the biopsy will say negative but be wrong (I've seen on posts where women have said all their tests were negative but when they had a D&C or even Hysterectomy Stage 2 tumours were found). Of course, I'd rather get this out sooner than later and am frightened I have cancer but it won't be diagnosed properly. My mother had a hysterectomy at 33 yrs of age (34 yrs ago) and was told she was one step away from cancer of the womb.

    Any input would be greatly appreciated.

    All the best.
    Pamela
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #36
    Pamela T said:

    Upper leg pain
    Hi Colleen,

    I haven't seen you post anything for a while and hope all is well. I am wondering if they associated your leg/groin pain with your endometrial cancer?

    I started having really painful cramps about 1 year ago and more frequent periods. Lately I started having spotting in between, cramping after sex, leg & back pain, pelvic pain, bloating and indigestion. Wondering if these were your same symptoms?

    I did have 2 ultrasounds which showed a thickened endo lining 15mm (even 2 days after just finishing my cycle). Then had a sono-hystegram and still 15mm (over the course of 4 months). Just had a biopsy and the results have not come back as yet....nervous that the biopsy will say negative but be wrong (I've seen on posts where women have said all their tests were negative but when they had a D&C or even Hysterectomy Stage 2 tumours were found). Of course, I'd rather get this out sooner than later and am frightened I have cancer but it won't be diagnosed properly. My mother had a hysterectomy at 33 yrs of age (34 yrs ago) and was told she was one step away from cancer of the womb.

    Any input would be greatly appreciated.

    All the best.
    Pamela

    Glad you found this site as
    Glad you found this site as it has a lot of women going through Uterine Cancer at different stages. I would like to suggest that you move your comment and open a new discuss topic as this one is older starting back in 2009. Every lady on here has gone through some of the symptoms and almost all have the same fears. Good luck with your testing. I am over 1 year out from sugery and 6 rounds of chemo with no radiation for stage 3 Uterine cancer called MMMT (for short). Stay off the Internet searching for stuff as much is outdated using old data. This site is the best for up to date information from the ladies that have gone thorugh it or are going through it currently. I will add you to my prayer list. trish
  • angelwings313
    angelwings313 Member Posts: 1
    #37
    Uterine Cancer

    I was diagnosed with uterine cancer and the GYN Oncologist is doing a hysterectomy in less than 2 weeks.  My symtoms were spotting and cramping.  My cervix had closed so they had to do surgery to open my cervix and do a D&C.  They found cancer.  

  • Cucu me
    Cucu me Member Posts: 213 Member
    #38
    I did not have any pain and

    My stage is 4.

    After the surgery they will let you know what exactly you have.

    About the diet, I follow  a strict one, but Is so hard, sometimes I cheat, otherwise I won't fall asleep.

    No dairy, meat(except fresh chicken), eggs, sweets, junk, etc....

     

    Good luck to you and to all of us!

     

  • Cucu me
    Cucu me Member Posts: 213 Member
    #39
    Cucu me said:

    I did not have any pain and

    My stage is 4.

    After the surgery they will let you know what exactly you have.

    About the diet, I follow  a strict one, but Is so hard, sometimes I cheat, otherwise I won't fall asleep.

    No dairy, meat(except fresh chicken), eggs, sweets, junk, etc....

     

    Good luck to you and to all of us!

     

    I did not see

    that most of the posts are old.

  • Editgrl
    Editgrl Member Posts: 903 Member
    #40
    angelwings313 said:

    Uterine Cancer

    I was diagnosed with uterine cancer and the GYN Oncologist is doing a hysterectomy in less than 2 weeks.  My symtoms were spotting and cramping.  My cervix had closed so they had to do surgery to open my cervix and do a D&C.  They found cancer.  

    Hello, angelwings

    Welcome to this board.  I'm sorry you had to find us, but glad that you did.  There are women here who are at varying stages of treatment with their cancer and they are a great source of support, information and comfort.

    You have commented on a pretty old and fairly long post.  I might suggest that you start a new thread.  It will make it easier to find your posts and comment on them. Please feel free to ask any questions, vent, share ...  nothing is off limits here. 

    When they did the D&C, did they tell you what kind of cancer you had?  In any case, scary as it might seem, it's good that you are having your surgery so quickly.  If you have questions about what to expect, the women here can help answer them, in addition to the information your gyn oncologist will give you.

    Take a deep breath.  You can do this.

    Chris

     

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