anaplastic astrocytoma gr 3

my husband had a grade 3
my husband had a grade 3 inoperable astrocytoma, had radiation, stereotactic radiation and chemo. he became very tired, you may have read that there is danger of blood clotting, if he experiences shortness of breath,or swelling get him to emergency. my husband eventually improved enough to go to florida for the winters, walk, and play golf. he has survived nearly 10 years not without some problems, because of where his tumor was located near the thalmus he has double vision. i believe he would still be active except a few months after he was diagnosed with the tumor he was also diagnosed with parkinson's. the two are not related to one another he was just unlucky. given the age of your brother his prognosis is probably very good. i would also add that going to a teaching hospital in your area is the best place to go. by that i mean for instance, i live in michigan and we have henry ford and u of m hospital. both work with other teaching and research hospitals and have the latest treatments. we chose henry ford a l and 1/2 hour drive each way but it was worth all those hours on the road. keep this site posted.

Hi
Well I am so sorry to hear about your brother. I have lived with a recexed gr 3 for 7 yrs now and know where ou are comming from. Firstly the most common after effect from Rad in most people is just tirdness. And lots of it too. Where abouts in your brothers brain is the tumour located?????????? . Also what medication is he taking presently. There is always hope. Tell your brother that. We must NEVER give in to these monsters. Please feel free to contact me at any time my private e mail is,


gerkath@iinet.net.au Please feel free to contat us and any help we can give you we will. In the meantime God bless you all, we will be praying for your brother.

Ger

PBJ Austin said:

My sister is also AA 3
Earlier this year my sister who was then 25 years old went through radiation. She said she felt tired all the time and it put a bad taste in her mouth. She also lost a lot of hair. She is now in chemo and she says that's not too bad in terms of tiredness. Her doctors say she will be here for 3 to 7 years but she refuses to believe that prognosis and she is determined to beat this. I told her as long as she doesn't believe that prognosis then neither do I. She's very optimistic and she's a fighter, so I think she will prove the doctors wrong.

Tell you brother to keep a positive attitude and to remember that new treatments are coming out all the time. Doctors have been wrong before and there is ALWAYS hope.

I pray for you all.

AA3
Hi,
My 17 year old daughter has AA3, diagnosed at 16. She had the tumor removed, only a sliver was left behind. She had radiation and was really tired. She lost some hair but it has grown back. Chemo gives her s stomach ache, but Zofran helps. Also, the radiation I think affected her memory and gives her headaches. It may be the results of radiation or just the whole experience of having brain surgery. She is doing well. Good MRI's 6 months later and the sliver is shrinking!! Hugs and kisses to all of you fighting this awful tumor. Only God knows what the prognosis is......live your life.