bringing in hospice

pattynonews
pattynonews Member Posts: 176
edited March 2014 in Caregivers #1
Well after we were sent home from the er we went to the cancer center and they sent us back to the ER due to the swelling, They kept him there for 2 days, and said there is not much more we can do for Jack and sent us home, they really have not told us why he is swelling, he is now on 2 times the steriods, his eyes is almost shut, they have not told us is it the cancer tumor growning, They did tell us the adema is filling up becasuse the tumor is blocking it from draining, We have not seen out regular oncologist, just the one at the hospital and he was pretty cold, he just said we are sending him home, he might have a few months and hospice will come talk to us tomorrow, It took all I had not to tell him exactly what I thought of his bedside matter, So I guess we have to wait to talk to his oncologist next week I was hoping to get an appoitment tomorrow, but we have to wait, Thank god the mucos from hisnose has stop, and the cough has eased up, but I dont know if this is the last stage or just a set back, or do I need to prepare my self for the worst, I wish I knew a straigt answer. Im trying to stay strong, reality really slapped me in the face today, I was hoping the swelling would just go away like aways, Not sure what to expect when hospice come tomorrow,

Comments

  • sue Siwek
    sue Siwek Member Posts: 279
    #2
    why can't you ask for the
    why can't you ask for the doctor to call you? i think it is time to demand that his doctor, the one who diagnosed him to call and give you a little personal time. he can trouble himself to explain what is happening to your husband. in fact, assertively let his office know that you expect a call from him! hospice will offer comfort to you as well as your husband. they can guide you if this jerk of a doctor doesn't get in contact with you. you are in charge!
  • slickwilly
    slickwilly Member Posts: 334 Member
    #3
    sue Siwek said:

    why can't you ask for the
    why can't you ask for the doctor to call you? i think it is time to demand that his doctor, the one who diagnosed him to call and give you a little personal time. he can trouble himself to explain what is happening to your husband. in fact, assertively let his office know that you expect a call from him! hospice will offer comfort to you as well as your husband. they can guide you if this jerk of a doctor doesn't get in contact with you. you are in charge!

    I agree with sue
    I agree with sue. If hospice has been contacted you should at least know the reasons why from your regular Oncologist. There is no reason to leave you without answers at this point. If it takes getting someone mad then that is the way it is. But you and jack deserve better treatment. Blessings to both of you Slickwilly
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    #4
    Hospice, etc.
    First, I want to assure you that Hospice does help. In fact, I just got off the phone with our Hospice nurse concerning my husband's increased pain. They are always available to talk to you by phone, and our nurse comes regularly. We also have a Hospice social worker who helps you get the things you need.

    Now, about the onc. I agree. Call him and make a pest of yourself if needed. I know our onc. had to be prodded to be as I put it "brutally honest" with us. I think it can be hard for them, too, but they chose this profession and honesty goes with the territory. Hang in there. I know you are doing everything you can to help Jack. He knows that, too. Like my husband says, "Today's a good day. I woke up." Prayers and hugs. Fay

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