cysplatin vs erbutux

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Comments

  • lamata
    lamata Member Posts: 4
    #22
    Bonj said:

    I don't know how I forgot about the hearing loss!
    Alex,

    Yes, Cisplatin definitely causes hearing loss. My husband had some hearing problems before, and they are definitely worse, but still manageable.

    Best of luck to you with the Erbitux!

    hearing loss,
    Lori here. I had no hearing loss, did lose all of my body hair, it is all back now. No other side effcts other than the nausa.
  • lamata
    lamata Member Posts: 4
    #23
    Tanager75 said:

    G tube reply
    I had what they call a PEG tube or feeding tube. I got it at the start of treatment and lots of problems with it. They say my case is not the rule. My first one was to tight and the second burst so it fell out, my third was a temp and my fourth is still in place. I use it still 95 percent of the time as food and water does not taste good. I drink as much as I can and experiment with food but rely on the feeding tube. I don't like it but it has been a life saver. I have lost a lot of weight and due to the rad and chemo which left me sick and unable to do much, a lot of the weight was muscle. I trying to walk now and get back into some kind of shape and looking foreward to going back t work. I was able to swallow all the way through and took all meds this way. Hope the game was fun. Take care.

    Peace,

    mark

    feeding tube
    I had a feeding tube but never did use it. I lived on Ensure and Carnation instant Breakfast for nearly months. Right at the end of Rad, my PEG got infected and had to be removed. Swallo as much as you can to keep those muscles active and strong. Good advise given to me by one of my many doctors.
  • diane l w
    diane l w Member Posts: 5
    #24
    lyolan1 said:

    Amiphostine
    Hi Joe, Thanks for getting back to me, I am glad you are done and feeling better. I spoke with the head medical oncologist at Mass General regarding the Amiphostine. He said that there is no evidence that the drug works or is beneficial in any way. He was fairly negative on the use of it. I have heard from alot of people on the subject. Some seem to be okay after the rads, others not as much. At the end of the day, I have to beat the cancer first, then hope for the best on the long term affects. I have reached the point where I have to accept whatever comes my way. I am not in control of what happens from 9/2-10/22. All my energy has to be focused on taking care of myself and getting through the ordeal. I hope that I will be feeling better by /thanksgiving. Alex.

    starting my chemo and radiation monday
    I am new on your message board and have stage 4 tonsil cancer had the tonsil removed and 26 lymph nodes of which two were cancer now start my chemo -erbitux on monday for 6 weeks
    and radiation every day for 7 weeks sound familar to everyone? i have been so nervous that i have been talking to the nurse who handles people like me that cant take this in my mind
    so i have started lexapro.. i am such a wimp that i could never even get my ears pierced and i am wondering how i can get thru this with all the horror storys i am ready
    please keep me in your prayers and help me get thru this
    diane w from wisconsin
    at rlwcpa@execpc.com
  • diane l w
    diane l w Member Posts: 5
    #25
    lamata said:

    feeding tube
    I had a feeding tube but never did use it. I lived on Ensure and Carnation instant Breakfast for nearly months. Right at the end of Rad, my PEG got infected and had to be removed. Swallo as much as you can to keep those muscles active and strong. Good advise given to me by one of my many doctors.

    chemo
    please see my new posting, i start chemo on monday the 23rd erbitux.. how has that been for everyone? i am a nervous wreck and think of nothing else but this treatment of
    chemo and radiation.. any advise anyone can give me tonsil cancer and 2 lymph nodes
    had cancer.. had pet and ct scan and the cancer did not spread and did not go on the other side.. any advise
    diane w at rlwcpa@execpc.com
  • pk
    pk Member Posts: 192
    #26
    diane l w said:

    chemo
    please see my new posting, i start chemo on monday the 23rd erbitux.. how has that been for everyone? i am a nervous wreck and think of nothing else but this treatment of
    chemo and radiation.. any advise anyone can give me tonsil cancer and 2 lymph nodes
    had cancer.. had pet and ct scan and the cancer did not spread and did not go on the other side.. any advise
    diane w at rlwcpa@execpc.com

    diane
    My husband went thru the same treatment you are about to undergo. He 35 rads with Erbitux once a week during radiation. He is now 7 weeks post rads and doing quite well. Erbitux caused a rash, radiation caused pain, dry mouth, neck sunburn. 2 weeks post rads was almost more difficult than the actual 7 weeks of rad. He had a feeding tube placed prior to starting treatment. This was the best thing ever. Once you get going you will need this ad eating just becomes toooooo painful. He used his after week 2 of rads and 2 weeks post rads. He no longer has the tube and is eating again. Not that it tastes so great and sometimes it is a bit painful. This is a tough treatment, but you can do it. Ask tons of questions. The people on this board are awesome and knowlegeable. PK
  • Scambuster
    Scambuster Member Posts: 973
    #27
    Tanager75 said:

    G tube reply
    I had what they call a PEG tube or feeding tube. I got it at the start of treatment and lots of problems with it. They say my case is not the rule. My first one was to tight and the second burst so it fell out, my third was a temp and my fourth is still in place. I use it still 95 percent of the time as food and water does not taste good. I drink as much as I can and experiment with food but rely on the feeding tube. I don't like it but it has been a life saver. I have lost a lot of weight and due to the rad and chemo which left me sick and unable to do much, a lot of the weight was muscle. I trying to walk now and get back into some kind of shape and looking foreward to going back t work. I was able to swallow all the way through and took all meds this way. Hope the game was fun. Take care.

    Peace,

    mark

    Glutamine Powder
    HI Mark (TANAGER),

    Can't recall if you were part of other posts re Glutamine powder but it is worth looking into. I actually couldn't drink water because it hurt too much but with a teaspoon of Glutamine powder added, I could drink the water. No taste at all. It is also good to help save muscle tissue from wasting away and has a catabolic effect.

    Best you google it and read some of the hundreds of hits you will get but go well down the list as most earlier hits are paid sales pitches but all you will read is GOOD ! I was put on it by my Naturopath to help my mouth heal (Mucositis) but it has many other benefits and no negatives.

    Sorry if this is a repeat of an earlier post but your note caught my attention. I also didn't realize you had so much trouble with your PEG. just the kind of complication you DON'T need when you going through enough already.

    Hope all is well now.

    REgds
    Scambuster

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