IT'S BACK

amcp
amcp Member Posts: 251 Member
edited March 2014 in Colorectal Cancer #1
I HAVE POSTED SEVERAL TIMES WITH THE WONDERFUL NEWS AFTER LEARNING OF IT. JUST A REMINDER HUSBAND DX IN 8/06 STAGE 4 COLORECTAL CANCER WITH MULTI METS TO LIVER. HAD SURGERY 9/06 AND A PERMANENT COLOSTOMY WAS DONE. IN 11/06 STARTED CHEMO. IN 7/07 HAD STOMA REPAIR AND HERNIA REPAIR. CONTINUED ON CHEMO TO 12/08 WHEN TOLD NOTHING WAS HELPING SO SENT TO VANDERBILT FOR POSSIBLE CLINIC TRIAL. GIVEN HOPE THERE...HAD 4% OF RIGHT LUNG REMOVED BECAUSE OF A SINGLE METASTASE IN 2/09 THEN IN 4/09 HAD 75 % OF RIGHT LOBE OF LIVER REMOVED. TOLD NED. WENT BACK FOR RECK IN JUNE, JULY TOLD EVERYTHING LOOKING GREAT. WENT BACK FOR RECK ON 9/09 TOLD HAD SOME SPOTS IN LUNG BUT TOO SMALL TO TELL WHAT IT WAS ...JUST GO HOME AND WORK HARD AT GETTING STRENGTH UP. GIVEN STRONGER PAIN MEDICATION. I GOT THE CT SCAN OFF THE COMPUTER...RADIOLOGIST SAYS THERE ARE TWO NODULES IN THE RIGHT LUNG WHICH MOST LIKELY ARE METASTASES...THERE ARE A GROUP OF NODULES IN THE LEFT LUNG THAT HAVE INCREASED IN NUMBER AND SIZE WHICH ARE METASTASES, THERE IS A 9MM METASTASIC NODULE IN THE UPPER LEFT LUNG AND HAS GROWN, ANOTHER METASTIC NODULE IN THE MIDDLE OF THE LEFT LUNG WHICH HAS GROWN BUT STILL MM SIZE, ANOTHER METASTIC NODULE IN THE LOWER LEFT LUNG WHICH HAS GROWN, ALSO THERE ARE TWO SPOTS IN THE ABDOMEN PELVIS AREA WHICH MIGHT BE METASTASES. THE DOCTOR TOLD US THEY WERE TOO SMALL TO TELL WHAT THEY WERE BUT THE RADIOLOGIST PLAINLY STATES THERE ARE METASTASES. WHY WILL DOCTORS NOT BE UP FRONT WITH PATIENTS AND FAMILY. IT IS ROUGH ENOUGH DEALING WITH REOCCURANCE OF THE DISEASE WITHOUT BEING TOLD ONE THING AND FINDING OUT BY A REPORT. I GUESS THERE IS ALWAYS THE CHANCE OF IT COMING BACK. AT LEAST WE HAD A LITTLE OVER THREE MONTHS OF NED. PLEASE PRAY FOR MY HUSBAND AND SEND POSITIVE THOUGHTS. WE NEED ALL WE CAN GET. PRAYING FOR EACH AND EVERYONE OF YOU AND YOUR FAMILIES.
HUGS,
ANNA

Comments

  • sharpy102
    sharpy102 Member Posts: 368 Member
    #2
    I'll pray
    @Anna: I will definitely pray for your husband...he is a strong man! He has to overcome this. I wish the best to you and to him!
    Please take care, and update us!
    Hugs,
    Sophie
  • butterfly23
    butterfly23 Member Posts: 256
    #3
    Hi
    Hi Anna,
    I'm sorry to hear the news. I also just had a reaccurance, I did enjoy NED for a few months, but I now have it in lungs and spine. It is a bummer to hear it has spread again. Tell your husband to put his boxing gloves back on! Time to fight again!

    You are both in my thoughts and prayers!
    Karyn
  • maglets
    maglets Member Posts: 2,576 Member
    #4
    butterfly23 said:

    Hi
    Hi Anna,
    I'm sorry to hear the news. I also just had a reaccurance, I did enjoy NED for a few months, but I now have it in lungs and spine. It is a bummer to hear it has spread again. Tell your husband to put his boxing gloves back on! Time to fight again!

    You are both in my thoughts and prayers!
    Karyn

    so sorry
    Hi Anna....so so sorry to hear this news. there have been so many NED's here this week. The other side of the coin is always so close. I guess we all live with each day in this rotten cancer game.

    I am sending all best wishes and thoughts to the both of you
    ~mags~
  • abmb
    abmb Member Posts: 311
    #5
    thoughts & Prayers
    You and your husband will be in my thoughts and prayers. It must be hard for the people dealing with this terrible disease, but when I read these posts, I see hope and caring thoughts from others. I am a caregiver to my husband, and I come here for venting and kind words. The only thing I can offer is Prayer to everyone.
    Take care and God Bless your husband and you.
    Margaret
  • Paula G.
    Paula G. Member Posts: 596
    #6
    So Sorry
    So sorry to hear this news. You will be in my thoughts and prayers and I'll send good vibes your way too. Keep us informed. Best to you Paula
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    #7
    Prayer
    My husband has been fighting cancer for 6 yrs. and has had several recurrences. He say it's PPMM (Power of Prayer and Modern Medicine) that has brought him this far. We have felt the prayers of others and I hope you do too My prayers will be coming your way for you and your husband, Fay
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #8
    Hi dear Anna,I have read
    Hi dear Anna,I have read your husband's story.You guys have made miracles before,I believe this time you guys can make the same miracle.It's not going to be easy,but I know you will make it.You and your husband are in my thoughts and my prayers.Best luck and best wishes to you with everything.Take care.
  • robinvan
    robinvan Member Posts: 1,012
    #9
    Hi Anna
    Sorry to hear about your husbands recurrence. It truly sucks! I'm just coming to grips with a recurrence myself. After 2-years NED!!

    You are definitely in my thoughts and prayers.

    Rob; in Van

    Reflections on a journey of life and healing.
    "A Cancer Journal" http://rob-pollock.blogspot.com/
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #10
    Sorry
    Anna,

    I'm sorry to read your news. I'll be praying for you and your husband. Don't give up the fight!

    *hugs*
    Gail
  • pf78248
    pf78248 Member Posts: 209
    #11
    So sorry about the recurrence
    I will have you and your husband in my prayers. My husband David is also dealing with stage 4 crc. Please remember that there are new drugs and trials on the horizon, so hang in there, do what you can and we will all pray for a cure for this lousy disease. My very best wishes to you and your family. I know how rough it is.

    Hugs and prayers,
    Priscilla
  • sfmarie
    sfmarie Member Posts: 602
    #12
    pf78248 said:

    So sorry about the recurrence
    I will have you and your husband in my prayers. My husband David is also dealing with stage 4 crc. Please remember that there are new drugs and trials on the horizon, so hang in there, do what you can and we will all pray for a cure for this lousy disease. My very best wishes to you and your family. I know how rough it is.

    Hugs and prayers,
    Priscilla

    Darn
    Sorry to hear about the recurrence especially after the news of NED! You will be in my prayers. Your husband has been through so much! Don't give up, you can dance with NED once again.
  • pokismom
    pokismom Member Posts: 153
    #13
    sorry to hear
    Hi Anna,
    Sorry to hear about your husbands reoccurance, it's a bummer, I too have the bad news. I know what you mean about the drs not telling you everything, my dr is like that also. It's like they want to keep you guessing, or the way my onc said is it's hard for them to tell you that it's back. but that's what we want to know right? Anyhow, I will pray for you hubby as I pray for everyone with this disease, and will send you all the positive vibes I can......
    Much Love to you,
    Donna
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #14
    pokismom said:

    sorry to hear
    Hi Anna,
    Sorry to hear about your husbands reoccurance, it's a bummer, I too have the bad news. I know what you mean about the drs not telling you everything, my dr is like that also. It's like they want to keep you guessing, or the way my onc said is it's hard for them to tell you that it's back. but that's what we want to know right? Anyhow, I will pray for you hubby as I pray for everyone with this disease, and will send you all the positive vibes I can......
    Much Love to you,
    Donna

    Prayers
    frank and anna.................... I will be praying for you as you always do for me. I do not know why the doctors say and do like they do but i agree with you... they need to be on the same track so we can make up our minds what we need to do. Please vent as much as you need to. You are ALWAYS there for me

    Love and Peace
    Jennie
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #15
    pokismom said:

    sorry to hear
    Hi Anna,
    Sorry to hear about your husbands reoccurance, it's a bummer, I too have the bad news. I know what you mean about the drs not telling you everything, my dr is like that also. It's like they want to keep you guessing, or the way my onc said is it's hard for them to tell you that it's back. but that's what we want to know right? Anyhow, I will pray for you hubby as I pray for everyone with this disease, and will send you all the positive vibes I can......
    Much Love to you,
    Donna

    Prayers
    frank and anna.................... I will be praying for you as you always do for me. I do not know why the doctors say and do like they do but i agree with you... they need to be on the same track so we can make up our minds what we need to do. Please vent as much as you need to. You are ALWAYS there for me

    Love and Peace
    Jennie
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #16
    pokismom said:

    sorry to hear
    Hi Anna,
    Sorry to hear about your husbands reoccurance, it's a bummer, I too have the bad news. I know what you mean about the drs not telling you everything, my dr is like that also. It's like they want to keep you guessing, or the way my onc said is it's hard for them to tell you that it's back. but that's what we want to know right? Anyhow, I will pray for you hubby as I pray for everyone with this disease, and will send you all the positive vibes I can......
    Much Love to you,
    Donna

    Prayers
    frank and anna.................... I will be praying for you as you always do for me. I do not know why the doctors say and do like they do but i agree with you... they need to be on the same track so we can make up our minds what we need to do. Please vent as much as you need to. You are ALWAYS there for me

    Love and Peace
    Jennie
  • amcp
    amcp Member Posts: 251 Member
    #17
    idlehunters said:

    Prayers
    frank and anna.................... I will be praying for you as you always do for me. I do not know why the doctors say and do like they do but i agree with you... they need to be on the same track so we can make up our minds what we need to do. Please vent as much as you need to. You are ALWAYS there for me

    Love and Peace
    Jennie

    Thank you All
    Words can not express what is in my heart. Each of you that have responded to my post have lifted my load and helped in more ways than you will ever know. This is a difficult battle and only those that have or are fighting this disease knows how difficult it really is. I pray for each of you and your families. Again thanks for being there for us and listening to my venting. We will march on into battle once again.
    Hugs to each of you,
    Anna
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #18
    So sorry to hear that the
    So sorry to hear that the battle resumes. I hope the 3 months NED gave you both a bit of a rest to get ready for the next battle.

    I do know that what a radiologist says about a test is not necessarily correct though. Take for instance my CT - the radiologist said probable mild sigmoid colitis with reactive lymph nodes. Oops - that wasn't colitis, it was stage III or IV colon cancer, with positive nodes. Also if you don't inform them of recent surgeries and they see areas of elevated activity, they will say that is consistent with metastatic disease. But if they know there was just surgery in that area, they will say it is inconclusive. So a lot goes into reading these scans - this is why the doctor's input is needed as well as the radiologist's.

    It does sound like in your case, the doctor didn't give you the full info from the radiologist as he should of. Sorry to hear that. You are both in my prayers.

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