Another newbie...

team_staci
team_staci Member Posts: 2
edited March 2014 in Colorectal Cancer #1
Hey all...after weeks of lurking, I figured it's time for me to finally register, say hello and introduce my/ourselves, and give a great big "thank you" for all the great information we've found here so far.

I'm the husband of Staci, a 32-year-old who certainly doesn't look like there's anything the matter with her health-wise, who had a colonoscopy in July and came home with a dx of rectal cancer. Since then, it's been clinically dx'd at either stage II or stage III, depending on who you talk to -- the medical oncologist said that he thought it was stage II based on the handful of CTs and MRIs, but there were some "irregularities" in the lymph nodes when she got a rectal ultrasound, so the GI surgeon said he'd prefer to call it stage III. PET came back with only normal pathological uptake in the lymph nodes, so we're "on the fence," so to speak, about what stage it really is.

We live just outside Youngstown, Ohio, about halfway between Cleveland and Pittsburgh. After having the colonoscopy done locally, and meeting with a local onc and a couple other local doctors, but then heading to Cleveland for second opinions, we decided that she was going to get all of her treatment and surgery and care at the Cleveland Clinic. She's had nothing but great care so far and we have no reason to expect anything differently going forward.

She had her second-to-last radiation session today, the second of three "boost" sessions that will take her to 28 total sessions when she's done on Monday. She's had 2500 mg of Xeloda every day that she has radiation, and she's thankful that the need to take those big pills is coming to an end (for the time being).

APR surgery is scheduled for Friday, November 20...since day one they've told us that she will have an ostomy of some sort, because her tumor is so low in the rectum that there doesn't appear to be any way to save the sphincter. She's been ok with that, and has really had a great attitude the whole way through so far....her main response has been "what else would I do?" Spurring her positivity are the three little ones we have -- almost 7, 4, and almost 2 -- and as she's also said, "I don't have the luxury of taking it easy on the couch when I have the flu - why would I change now?" She's had some side effects, primarily the sunburn-like burns and the nausea and diarrhea, but for the most part has been able to get through with not changing that much from what we considered "normal" just two and a half months ago.

I will admit that we're very lucky to have her parents, sisters, and other family 10 minutes away, so they've been able to help out a lot and take some of the normal life workload off of her. My parents live 12 minutes from the Clinic, right on our route, so they've also been more than willing to watch the kids while we run downtown for a few hours.

I think that's about it for now...but if there's anything I left out, just ask and I'll certainly answer! We're pretty much open books about this...but are also cognizant of sometimes needing to just say "I don't know." I'm thankful for the help I've gotten from my readings so far, and although I wouldn't have chosen to come here willingly, this seems like a group with which we have a lot in common.

Chris

Comments

  • karguy
    karguy Member Posts: 1,020 Member
    Welcome
    Welcome to the site,I"m sorry you have to be here,but you can get alot of information,and support.You can also get alot of questions answered.I did the xeloda,and radiation at the same time before surgery,and it made a world of difference by shrinking the tumor alot before surgery.I'm glad I did it.I have a permanant colostomy and it is no big deal once you get used to it,it's just part of the daily routine.The side effects will eventualy go away.When she has the surgery she should see an ostomy nurse before she leaves the hospital if she has an ostomy.I was stage 3 beginning stage 4 when I was dx.Best of luck
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    Hi Chris,welcome to the
    Hi Chris,welcome to the board.My husband was diagnosed with rectal cancer in May,his surgery was done at the beginning of Sep,everything went very well so far.My husband was diagnosed with stage II rectal cancer,but the pathology report showed that he was at stage I after the surgery because he had excellent response to the preoperative chemo and radiation .

    You know,I am very thankful for this board too.I have learned a lot from the knowledgeable and intelligent people here.Even my husband's oncologist says you must read something on the internet,your questions are very professional.Since your wife's case is similar to my hubby's,if you have any questions,you can ask me or PM me.If I have the answers,I would like to help with your questions.Anyway hope your wife will get through the preoperative treatment soon and her surgery will be done successfully.Best luck and best wishes to you and your family with everything.Take care.
  • Muzzy
    Muzzy Member Posts: 175 Member
    welcome
    welcome to our to our little family.
    I hope we can make your fight alittle easier.
    They has made mine alot easier.
    Jeff stage 4 dx last nov. surgery then 12 chemo treatment over 6 months
    happy to be here!!!
  • sfmarie
    sfmarie Member Posts: 602
    Muzzy said:

    welcome
    welcome to our to our little family.
    I hope we can make your fight alittle easier.
    They has made mine alot easier.
    Jeff stage 4 dx last nov. surgery then 12 chemo treatment over 6 months
    happy to be here!!!

    Welcome
    And remember there are alot of people here that have beat this. Don't take no for an answer, and keep Hope Alive!
  • robinvan
    robinvan Member Posts: 1,012
    Hi Staci and Chris
    Let me join my friends in welcoming you to this site. As others have said, you will find this a place of caring companionship, helpful advice, and thoughtful discussion.

    From your post Chris it sounds like you guys are on the right track with a great medical team, strong family support, a good attitude, deep motivation, and hope. Most of us here would advocate a proactive, patient empowered approach to facing colorectal cancer. Sounds like you've got all the bases covered well. As your wife says... "What else would we do!"

    It sounds like there will be a nice break between chemo/radiation and surgery. I hope it is a time of rest and recovery for you all.

    Wishing you all good things... Rob; in Vancouver

    "Life is not a matter of holding good cards,
    but rather, of playing a bad hand well!"
    Robert Louis Stevenson
  • butterfly23
    butterfly23 Member Posts: 256
    Welcome!
    Well, you came to the right site! I don't know what I would do without all the support here. I am so glad to hear how positive Staci is! I, also am very positive and truly believe is what gets me through, I also am VERY fortunate to have my family close by. I am 39, married, no children, I was diagnosed with stage 4 colon cancer, I just found out it is in the lungs and spine. I am very treatable. There are soooo many positive stories on this site. Soooo many people that beat this nasty disease. We are all here for support, questions, and friendship. Best of luck to both of you! You are in my prayers!
    Karyn
  • Shayenne
    Shayenne Member Posts: 2,342
    Welcome!!!
    Hi Chris and Staci!welcome to our little home away from home, we're all family here, no matter what the cancer is! I'm glad to meet you both!Hopefully you'll stick around and have fun posting with us :)

    I am stage 4 cc with mets to the liver, just doing chemo so far (Folfiri w/avastin, and the CT scans are showing a great improvement in how well my body is responding to the chemo, and how small my liver tumors have gotten on this regimen)

    But, pull up a chair, and sending you hope along the way :)

    Huggss!
    ~Dnna
  • dmdwins
    dmdwins Member Posts: 454 Member

    Welcome!
    Well, you came to the right site! I don't know what I would do without all the support here. I am so glad to hear how positive Staci is! I, also am very positive and truly believe is what gets me through, I also am VERY fortunate to have my family close by. I am 39, married, no children, I was diagnosed with stage 4 colon cancer, I just found out it is in the lungs and spine. I am very treatable. There are soooo many positive stories on this site. Soooo many people that beat this nasty disease. We are all here for support, questions, and friendship. Best of luck to both of you! You are in my prayers!
    Karyn

    Grew up there
    Hi Chris and Stacey,
    I grew up in the Younstown area (struthers). I have lived in Pittsbugh for 23 years but come to Ohio often. My dad still lives there and many friends we still see in Poland Canfield and Columbiana. We were just in Boardman last week for a cross country meet for my daughter.

    I am sorry to hear of your diagnosis. Mine was colon(stage IV) not rectal but many things will be similar. Please ask questionas and comr for support. I am really close if there is anything I can do for you.

    Dawn