One of those bad days

zigswife
zigswife Member Posts: 61
edited March 2014 in Colorectal Cancer #1
So, in order to cope with my 34 yo husband's stage IV dx (with a 2 1/2 year old and baby twins), I often enter into denial mode with the assumption that the only option is for this to all work out and for him to see our girls grow up. Several times over the last week, my defense has faltered and I find myself hit with the waves of grief that were almost constant at the beginning when we found out a couple of months ago about his diagnosis. This is probably partly due to the fact that he was back in the hospital this weekend for an ongoing abscess from his colon surgery that may not be an abscess but that they can't really determine yet what it is. So I'm at work today (working hard, can't you tell?!?) and I just spoke with a woman about her daughter who is still grieving the loss of her dad (the husband of the woman I met with). He died of cancer after fighting for about four years and as she's telling me this, her little boy was running around my office, too young to be able to remember his father for very long.

This is my greatest fear- that if my husband dies, it's before the girls are old enough to remember him. On most days my denial works and then there are days like today when I have to shut my office door repeatedly because I keep getting teary. I didn't want to talk to my husband about it because he needs to only be hearing positive news right now so here I am. It feels better to "say" it to someone- thanks.

Comments

  • krystle singer
    krystle singer Member Posts: 108
    Being teary is...
    Being teary is normal. I have the utmost faith that if the worst happens and your beloved does not beat the cancer that you will be strong enough and wise enough to keep him alive for your girls. It is a long and hard task to do this, but just reading your post, I can feel that you have those reserves within you.

    My heart is with you and your children. I do not know your pain and cannot say I know how you feel because I don't. But I can feel for you and care for you and pray for you. Keep posting here and you will receive so much help. You need not be 'brave' and hide your tears. Too many others are in your same agonizing place. Ask for help and understanding. Support and love are yours for the taking.

    With much care, love and prayer,
    Sandi
  • Janet3
    Janet3 Member Posts: 59
    Sorry
    Oh my goodness, I'm so sorry for your pain. What a terrible situation. Remember crying is normal. Denial is not going to help in the long run. I hope you are going to a support group. I have found that tremendously helpful. The support you get from others is uplifting. My mom was diagnosed Stage IV on 30 June 09 and I attend a group support with her. It has done wonders for her and me. Last week my brother went as well. You learn so much and it's great to hear others stories and see how they cope with this impossible situation. You will hear stories about miracles that happen every day! You can read some of those stories here on this site. I just read one myself. You will remain in my thoughts and prayers. Try to live each day the best you can. Enjoy and treasure every moment. Make the best of what you have. I know this may sound crazy and impossible but it really does help to focus on the positive.
  • GOOFYLADIE
    GOOFYLADIE Member Posts: 232 Member
    You have the right to be teary
    Hi and good morning, because it is always good when we are able to say I love you to the ones we love. I am an 11 year stageIV colon cancer survivor. My 3 boys were 4, 7, and 10 when I was diagnosed. I had a right hemi-colectomy with a grapefruit sized mass, cancerous and 19 of the 32 lymphnodes were positive. I want you to try to live for today, just as your husband because we can fill our lives with what ifs forever, and get no where except, upset, lost and angry. I had my husband use the video camera for everything even the boys playing on the living room floor. The days I felt like it, I layed in the floor too, because that is all I could handle for that day. But it's on film and it makes memories with my children. My father passed away at an early age with a heart attack. But my boys to this day play family videos and laugh and love everything there Papa did. You can keep a journal for your husband or offer him a pen and notebook just for thoughts. Sometimes jotting them down, reading them and tossing them in the trash helps clear your head. You have the right, as your spouse to be angry, confused, sad, mad, anxious everything that comes with this hideous disease. But only you have control, to not let it control you. Make the best of everyday, and quit saying I should have, could have or I am going to miss. Because its not over tell its over and there is plenty of time to Party when the outcome is good and plenty of time to grieve, if your higher power chooses. I know its hard to be upright all the time. I chose my shower or bath time to lose it, and it felt great I didn't have to hold strong in front of anyone, it was fantastic release. My thoughts and prayers are with you, those babies need you, as does your spouse, your friends and family. Use them to help carry you thru this ordeal. Goofyladie (Cass)
  • usakat
    usakat Member Posts: 610 Member
    Hello Zig's Wife...
    I'm so sorry you're going through this....so sorry any of us has to. Gives me reason to keep up the hope for greater treatments and hopeful for a cure someday.

    While I can't know exactly what you're feeling since I don't have children (cancer took that option from me), I can relate to how dang scary the cancer experience is. You wouldn't be human if you were not scared and not working through the never ending "what if" thoughts that are running around your brain and your heart. It's okay to let yourself move through the tough emotions and it's okay to cry.

    Having been on both sides of the cancer battle - a caregiver and a survivor - I can tell you this, your husband knows you're scared and knows you're hurting for him. He knows.... It's okay to let your defenses down, but be mindful that he can't just fix this, and neither can you. So best bet is to let each other be there for the other while you go through all the ups and downs of life with cancer. I like that idea of going to support groups together...would be good for both of you.

    And most of all remember this:
    Yesterday is history, the future is a mystery, and today is the present - a gift. Each and everyday is a gift - LIVE for today, not in fear of tomorrow.

    I will keep your husband, YOU and your family in my thoughts and prayers....

    Katie
  • Hatshepsut
    Hatshepsut Member Posts: 336 Member
    usakat said:

    Hello Zig's Wife...
    I'm so sorry you're going through this....so sorry any of us has to. Gives me reason to keep up the hope for greater treatments and hopeful for a cure someday.

    While I can't know exactly what you're feeling since I don't have children (cancer took that option from me), I can relate to how dang scary the cancer experience is. You wouldn't be human if you were not scared and not working through the never ending "what if" thoughts that are running around your brain and your heart. It's okay to let yourself move through the tough emotions and it's okay to cry.

    Having been on both sides of the cancer battle - a caregiver and a survivor - I can tell you this, your husband knows you're scared and knows you're hurting for him. He knows.... It's okay to let your defenses down, but be mindful that he can't just fix this, and neither can you. So best bet is to let each other be there for the other while you go through all the ups and downs of life with cancer. I like that idea of going to support groups together...would be good for both of you.

    And most of all remember this:
    Yesterday is history, the future is a mystery, and today is the present - a gift. Each and everyday is a gift - LIVE for today, not in fear of tomorrow.

    I will keep your husband, YOU and your family in my thoughts and prayers....

    Katie

    Staying positive...
    Hello:

    I confess that I've been a basket case from time to time since my husband was diagnosed with colon cancer in 2006. Lots of tears. Lots of anxiety. Lots of fears. Lots of baggage. It seems to go with the territory. You are not alone in your emotional meltdown.

    Like your husband, my husband was plagued with abscesses after his initial surgery. Abscesses can be the result of a complication from the original surgery and, as such, may not be the result of a cancer recurrence. I certainly hope that is the case for your husband. As it turned out for my husband, however, it was indeed a tumor (we think it was part of the original tumor that was not removed by his less-than-ept original surgeon).

    That was the bad news.

    The good news is that my husband had a subsequent surgery and his most recent CT scan showed no evidence of disease. He looks good. He feels good. He is happy. Life is good.

    I'm writing you this note to let you know that many people survive this disease, make tremendous progress after treatment, and go on to enjoy their lives and embrace their children. It is certainly my wish that that will be the case for you, your husband and your children.

    Hatshepsut
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    Pain
    I too am sorry that you are going through this at such a young age and with small children. My husband is a 6 year caner survivor, but our children are grown with children of their own. We all develop defense systems to help us get through the bad days. On days when I am really down I remember the footprints in the sand story and say, "OK, Jesus today you get to carry my burdens. Tomorrow I'll be able to cope, but today I can't deal with everything." That helps me. Just remember, we don't know what's in the pipeline or the future of cancer care. It has come a long way in just the 6 years we have been in this fight. We want to buy as much time as possible but enjoy the time you have. I also think it is important to share your feelings with your husband. He's scared,too. We all are, but we need to keep making memories. In the last 6 years we have had a new granddaughter born, saw both of our sons move up in their careers, taken our two older granddaughters on three great vacations, been to Hawaii, bought a moterhome, vacationed with the whole family in Disneyland, and countless other things.
  • just4Brooks
    just4Brooks Member Posts: 980 Member

    Pain
    I too am sorry that you are going through this at such a young age and with small children. My husband is a 6 year caner survivor, but our children are grown with children of their own. We all develop defense systems to help us get through the bad days. On days when I am really down I remember the footprints in the sand story and say, "OK, Jesus today you get to carry my burdens. Tomorrow I'll be able to cope, but today I can't deal with everything." That helps me. Just remember, we don't know what's in the pipeline or the future of cancer care. It has come a long way in just the 6 years we have been in this fight. We want to buy as much time as possible but enjoy the time you have. I also think it is important to share your feelings with your husband. He's scared,too. We all are, but we need to keep making memories. In the last 6 years we have had a new granddaughter born, saw both of our sons move up in their careers, taken our two older granddaughters on three great vacations, been to Hawaii, bought a moterhome, vacationed with the whole family in Disneyland, and countless other things.

    Message to zigswife
    What I have started to do is put every event down on a DVD for my kids. Cody 15, Alexandria 12 and Hunter 3. I went down and bought a chep DYD recorder and started to tape messages to my kids then burn them onto a DVD. I do this when they are at school. I working on of for every event for each child. Things like... First date, High school grad. Prom, First real boyfriend, Brithdays, Marrage... EVERYTHING at EVERY moment that a daughter or son needs their dads advice. This lets me be there as part as their life FOREVER even though I might be gone. It's kinda a gift from me to them. Then if I make it I might just hang on the DVDs and give them to the kids when they grow up or something.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    memories
    I totally agree with the people who have already mentioned the use of video (dvd). Recording events that can be fondly watched over and over will be nice for everyone, hopefully including your husband. I'm sure it's so hard to keep going and be positive, but try to enjoy each moment with your husband and kids, and they will remember being part of a loving family, even if they may not remember specific events. Take lots of pictures and make scrapbooks. Those are so nice to go through. If you don't scrapbook or just don't have the motivation right now (understandable with all you have going on), you can at least put the pictures in a nice photo album and write a little note about the day.

    I pray your husband will have a long, long time with his family.

    *hugs*
    Gail
  • zigswife
    zigswife Member Posts: 61
    Thank you everyone.
    Thank you everyone. Yesterday hit me out of nowhere after meeting with the young widow and knowing her children are too young to have a lot of memories of their father. My good ol' defenses are gearing back up again today and I'm ready to start taking everything back on again!
  • zigswife
    zigswife Member Posts: 61

    Staying positive...
    Hello:

    I confess that I've been a basket case from time to time since my husband was diagnosed with colon cancer in 2006. Lots of tears. Lots of anxiety. Lots of fears. Lots of baggage. It seems to go with the territory. You are not alone in your emotional meltdown.

    Like your husband, my husband was plagued with abscesses after his initial surgery. Abscesses can be the result of a complication from the original surgery and, as such, may not be the result of a cancer recurrence. I certainly hope that is the case for your husband. As it turned out for my husband, however, it was indeed a tumor (we think it was part of the original tumor that was not removed by his less-than-ept original surgeon).

    That was the bad news.

    The good news is that my husband had a subsequent surgery and his most recent CT scan showed no evidence of disease. He looks good. He feels good. He is happy. Life is good.

    I'm writing you this note to let you know that many people survive this disease, make tremendous progress after treatment, and go on to enjoy their lives and embrace their children. It is certainly my wish that that will be the case for you, your husband and your children.

    Hatshepsut

    Thank you so much for your
    Thank you so much for your post- it helps to hear about people who make it through after hearing about someone who didn't. The abscess has been around since his emergency surgery but now it's not acting like an abscess (even though it's where the abscess was) so we're waiting to find out what their best guess is about it so we know what to do. This is the second time it has pushed back his chemo so I'm starting to get anxious about it interupting everything. Once again, my preference to be in control of everything is not in the grand plans!
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    zigswife said:

    Thank you everyone.
    Thank you everyone. Yesterday hit me out of nowhere after meeting with the young widow and knowing her children are too young to have a lot of memories of their father. My good ol' defenses are gearing back up again today and I'm ready to start taking everything back on again!

    You GO, Zig :)
    The Ups and

    You GO, Zig :)

    The Ups and Downs of the Journey, huh?

    Continued best to you!

    -Craig
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    Sundanceh said:

    You GO, Zig :)
    The Ups and

    You GO, Zig :)

    The Ups and Downs of the Journey, huh?

    Continued best to you!

    -Craig

    Yo ZIG
    I have them days too.... Remember to keep up the fight