calling (dr.) phil(lieg)
Serrana
Comments
-
Hi Serrana
To answer your questions:
* 3 1/2 years
* 3 years
* just CPT11
* Normal infusion
* every 2 months
* never had radiation
:-)
Serrana, I've been on the Erbitux probably 3 1/2 years like I mentioned above. I guess around the new year they cut out the CTP11 because it was getting to be too much. I get/got a lot of stomach cramping from it and I had enough so she gave me a break from it and the Erbitux alone seems to be keeping things stable. Since the get go, I've had CT scans every 2 months. That's still the case. I have never had any radiation although we did briefly talk about it as an option of things start to take off again. I really know nothing about it at all though.
I am sorry to hear about the spots, that seems to be how my journey has been too. I'm fine while on the treatment but with any break, things start to grow. You can do a search on side effects of Erbitux on here, the rash is rough at first but over time it does lessen. I'm on a very reduced treatment schedule now, one month on, one month off and the month I'm on it's every other week so I have been having 6 weeks of no treatment at a clip. It's good that you have Erbitux as an option, some folks don't. I have heard people say that the rash means it's working, which I understand is true, but also the lack of the rash does not mean it isn't working.
I hope this helps Serrana,
-p
PS: I just saw this post about radiation, it's not focused radiation I think but it still has some great info
http://csn.cancer.org/node/1741790 -
erbitux and philPhillieG said:Hi Serrana
To answer your questions:
* 3 1/2 years
* 3 years
* just CPT11
* Normal infusion
* every 2 months
* never had radiation
:-)
Serrana, I've been on the Erbitux probably 3 1/2 years like I mentioned above. I guess around the new year they cut out the CTP11 because it was getting to be too much. I get/got a lot of stomach cramping from it and I had enough so she gave me a break from it and the Erbitux alone seems to be keeping things stable. Since the get go, I've had CT scans every 2 months. That's still the case. I have never had any radiation although we did briefly talk about it as an option of things start to take off again. I really know nothing about it at all though.
I am sorry to hear about the spots, that seems to be how my journey has been too. I'm fine while on the treatment but with any break, things start to grow. You can do a search on side effects of Erbitux on here, the rash is rough at first but over time it does lessen. I'm on a very reduced treatment schedule now, one month on, one month off and the month I'm on it's every other week so I have been having 6 weeks of no treatment at a clip. It's good that you have Erbitux as an option, some folks don't. I have heard people say that the rash means it's working, which I understand is true, but also the lack of the rash does not mean it isn't working.
I hope this helps Serrana,
-p
PS: I just saw this post about radiation, it's not focused radiation I think but it still has some great info
http://csn.cancer.org/node/174179
Thanks so much Phil You are an inspiration to me
It seems that after I got the "spots" ( mets) my peers changed their attitude and even tho they know very little about chemo/cancer etc they are encouraging me not to have any more chemo. I appreciate your story so I know that there is a long but ok road ahead and not a fast track to hospice.
Bless you, you are a gem
Serrana0
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