I am so upset , im just sitting here crying

pattynonews said:

Not walking away
I was going to walk away from this site because of some guy , but you know I have been fighting cancer with Jack for the last year, and I will be dam if I let some guy bring me down, you can not take my fighting spirit, Cancer might make me cry and upset me but oh hell no this Joe will not do this to me, Karma will take care of you , when you bad talk a caretaker it will come back to bite you in the butt!!


Before everyone response they should read all the facts, Yes jack has a feeding tube he is not on jevity, because it has too much fiber and all he did was loose weight, Hei is on isosource which is a medical nutrient drink that has 375 calories per can the nutrient advised us to add honey or his protein powder and we put it in a blender and thin it out, So no one is putting straight honey in his tube, it just give Jack some extra carbs that your body needs and we buy him super organic vegtables, your body needs all that , and the nutrient cans don't give him that, and the first year jack had his feeding tube, he did not loose one pound, never got it clog never got it infected, he did not loose the weight until some stupid nurse in the hospital said oh he should be on jevity it is so much better, well with a month on that he lost 15 pounds, he was doing great, before everyone got in to being the King Nutrientist, I only listen to his license dietician, Now , we had to learn the hard way, and now it is a stuggle to get him to gain the weight back, Think about it jevity is very high in fiber what do people do when they are on a diet they take more fiber to fill them up so they eat less, And I don;t need to be told what to do when I go to a doctors appointment especially in a mean way, I have worked in doctors offices for 15 years, especially with elderly , So Im very capable of asking what I need to know, it is just so upsetting that this guy is just rude to caretakers, This guy Joe should try be a care taker for someone 24/7 and then tell us caretakers we don;t knowwhat we are doing, but Trust me Karma will find him and he should just hope he will have a caretaker who is to doing there best to take care of him, but with Karma you always loose in the end,

trish07 said:

Good for You!
Glad to see you are back! We caretakers are strong, and when we are kicked, we manage to get right back up.
I relate to the high calorie intake. In a matter of 4.5 months my husband had 3 surgerys. He went from being a strong 200lbs. down to 132 lbs., he was simply nothing more than skin and bones. He also had an ileostomy which made it impossible to get weight back on him due to the large amount of output. The visiting nurse [ once a week ] kept saying "oh, just supplement him with some ensure,he'll do just fine". Well, he didn't do "just fine". I started supplementing his meals with a high calorie super protein powder that I bought at a store for weight lifters called True Mass which I mixed with milk.
He now weighs 180 lbs. [ no longer on the protein drink ] he went from not being able to walk without my help from shear weakness of wasting away to old self of "What's to eat?" and "can I have some more?".
I told the Onco. what I was giving him, his mother seemed a bit questionably concerned when she was bringing cottage cheese and Flaxseed oil {sure to cure his rare cancer!}
I knew others meant well, but when you are someones sole,round the clock caregiver,you know best.


Trish

ruthelizabeth said:

Oh, yes, those miracle cures
My husband's oldest is a vegetarian and gave us a recipe for the miracle cure. Don refused to have anything to do with it. I told her it was his choice. I've also been told about a homeopathic dr. who'd never lost a patient. But if you make the wrong choice, you lose time and can never get it back. If you trust your oncologist and he's connected to a good cancer center, you have to be careful about what miracle cure you hear about.

pattynonews said:

where did you buy the protein drink
where do you get that True Mass, GNC ? I go there to get jack weigh gain , He did gain a pound since Monday, so my method of madness must not be to bad, I just heard on the news that they are making fried butter in Texas and the dietician said if you eat just 4 of teaspoons of butter ( real butter ) you will gain so much weigh, So hell maybe I will add a teaspoon of butter in the blender when I make his shakes, actually Jack said he use to do that, But that isosource is great, it has 375 calories per can, and then the dietician gave us jeven which is like a supplement you add to his water ( and it can be but through the tube ) and it builds his muscle mass, and helps the immune system you can also drink it, It comes in orange and grape flavor, The chemo did a number on his muscles tone, Jack energy level is low, right now, and moves slow, which is hard to see, this is a guy who has played drums professional for 30 years, and playing the drums takes alot of upper body work and he would play for hours, now he attends to his lettle garden , muffles around the house and he is tired, He played the drums last week for about 30 minutes and he was toast after that, I feel bad for him the drums is his life and he can't do it, We have the drums set up and he will go play here and there, We are waiting for the appointments for his pik line to be put in , do you know anything about them we decided to go with the pik line, because Jack has alot of concerns about a new port being put in and it getting infected, And I have to make some calls tomorrow, we have been waiting for his insurance company to approve his wheelchair, I guess I am going to have to call them directly, his dme company keeps telling oh, its not approved yet, and Jack would like to go with me around the neighborhood to walk the dog,

pattynonews said:

In regards to everyone
In regards to everyone telling me that this guy soccerfreak was being supported then you need to actually read everything, his sacrism is totally unnecessaty

These are the comments I did not like that he posted
My feeling, based on a comparison of your posts here and especially between here and elsewhere in the boards, where the facts change at least marginally, is that things are not adding up.
(It is also time to make sure your posts compare favorably from one board to another.)

The idea that you would be trying to negotiate someone's pain medications (a previous post) while apparently incorrectly recalling these other very important details is straight out of a Stephen King novel, if such is the case.

And third he was wrong I do not give Jack 5000 calories of straight protin all the calories added some days come up to 5000 calories some day they don't.

And my understanding this is not the first time he has been rude to a caretaker on this site, and some people might think it is acceptable for him to speak to me this way , but it is not with me,

And if he is such a caring supportive perosn not once has he apologize, I don;t call that caring or supporting,