prostate cancer

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  • hopeful and optimistic
    hopeful and optimistic Member Posts: 2,342 Member
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    MIKEOSH said:

    GUYS SORRY FOR NOT GETTING BACK TO YOU. I HAD A LOT OF THINKING AND READING TO DO SINCE I SAW THE DR LAST TUESDAY
    SO HERE ARE THE RESULTS GLEASON SCORES TWO AT 3+4=7 ONE AT 3+3=6 INTERMEDIATE CANCER HE SAYS. WE TALKED AND TALKED AND I WROTE THINGS DOWN AS WELL AS MY WIFE DID. I DECIDED TO GO WITH ROBOTIC WHILE AT HIS OFFICE AND HE DID A BLADDER TEST WHILE THERE THAT WASN'T CONFROMTABLE AT ALL, BUT THE RESULTS WERE GOOD ON THE BLADDER AND ALSO GOOD AT WHAT HE SAW GOING THRU THE PROSTATE. HE APOLOGIZED FOR PUTTING ME THRU THE ANXIETY BUT HE HAD SURGERY THAT I SAID I UNDERSTAND THAT BUT AT SOME POINT A PHONE CALL SHOULD HAVE BEEN MADE, TOLD HIM I WASN'T AWARE THAT THE BONE AND CAT SCANS WERE PROTOCOL AND THAT SHOULD HAVE BEEN MENTIONED. AFTER LEAVING HIS OFFICE I DECIDED TO GET A 2ND OPINION THE NEXT DAY, THIS DR
    SAYS I HAVE HIGH GRADE PROSTATE CANCER BASED ON THE FACT THAT HE TAKES THE GLEASON SCORE OF 7 AND PUTS THAT IN THE HIGH AREA WITH 8 AND 9'S. SO CONFUSED I GO. I MENTIONED TO HIM ABOUT MY TIME IN VIETNAM AND IT RAISED HIS EYEBROWS, HE TOLD ME OF THE STORY THAT THE VA AND MEDICAL RECORDS OF ALL VIETNAM VETS WERE DESTROYED IN A FIRE SOME TIME BACK IN THE 80'S AND THAT CONGRESS WITHIN THE PAST 5 OR SO YRS SAID THEY COULDN'T DEAL WITH THE ONSLAUGHT OF CASES AND DECLAIRED THAT ALL VETS OF THE VIETNAM CONFLICT ARE ELIGABLE FOR COMPENSATION FROM THE VA. FOR PROSTATE CANCER AS WELL AS OTHER CANCERS DUE TO AGENT ORANGE. IF ANY OF YOU GUYS SERVED IN VIETNAM BELIEVE ME YOU WERE EXPOSED REGARDLESS OF WHERE YOU WERE STATIONED. I CHECKED INTO THAT AND WENT TO THE VA AND FILLED OUT THE PAPERWORK. ACCORDING TO THE WEB SITE VETS WHO REGISTER BEFORE TREATMENT LIKE ME ARE ENTITLED TO FULL 100% WITH A SMALL AMOUNT TO MY SPOUSE. THIS IS FOR SIX MONTHS ONLY TILL THE VA EXAMINES ME. AFTER THAT I BELIEVE IT DROPS TO A MINIMUM OF 30%. THE PROCESS WON'T REALLY START TILL AFTER SURGERY WHEN THE DR SENDS THE PATHOLOGY REPORT TO THEM.
    SO THE 2ND OPINION DR SEEMS THE BEST WAY FOR ME AT THIS POINT, HE ALSO SAYS THAT HE WANTS TO WAIT AT LEAST 8 WEEKS AFTER THE BIOPSY SO IT CAN HEAL. HE ALSO SAYS HE WILL TAKE THE PROSTATE OUT, THE TWO LYMPH NODES AND NERVES ON THE AFFECTED SIDE. ALSO SAID I WILL BE DRY BUT THAT OPEN SURGERY TAKES TWO WEEKS LONGER THAT ROBOTIC TO HEAL. I AM TO SEE MY FAMILY DR TOMORROW TO DISCUSS ALL OF THE ABOVE AND THE TWO DR'S. AND GET PRE TESTS SCHEDULED FOR LATER IN SEPT.
    I HAVE AN APPOINTMENT SCHEDULED AGAIN FOR THE 2ND OPINION DR ON WED TO FINALIZE EVERYTHING.
    SO IF YOU ANY OF YOU GUYS OUT THERE HAVE ANYTHING TO ADD ABOUT THE TWO SURGERIES OPEN OR ROBOTIC I WILL WELCOME YOUR THOUGHTS.

    SO ITS BEEN A LONG WEEK TO SETTLE THINGS IN MY MIND, I DIDN'T MENTION ABOVE THAT THE BONE AND BLOOD AND CAT SCANS CAME BACK OK. NEITHER DR HAS MENTIONED A SURVIVAL TIME FRAME BUT BOTH SAID THEY THINK I GOT IT AT A GOOD TIME.

    I WILL UPDATE AFTER WEDNESDAYS MEETING, TAKE CARE GUYS AND THANK YOU, THANK YOU FOR ALL YOUR GREAT SUPPORT

    STILL WORRIED YOUR FRIEND MIKE

    Don't forget to get a second opinion on the pathology
    so that you are not under or over treated. Dr. Epstein , Johns Hopkins is an excellent choice.

    Also , its hard to read Kaps, so please use small letters.///thanks

    ira
  • saoco
    saoco Member Posts: 43
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    MIKEOSH said:

    GUYS SORRY FOR NOT GETTING BACK TO YOU. I HAD A LOT OF THINKING AND READING TO DO SINCE I SAW THE DR LAST TUESDAY
    SO HERE ARE THE RESULTS GLEASON SCORES TWO AT 3+4=7 ONE AT 3+3=6 INTERMEDIATE CANCER HE SAYS. WE TALKED AND TALKED AND I WROTE THINGS DOWN AS WELL AS MY WIFE DID. I DECIDED TO GO WITH ROBOTIC WHILE AT HIS OFFICE AND HE DID A BLADDER TEST WHILE THERE THAT WASN'T CONFROMTABLE AT ALL, BUT THE RESULTS WERE GOOD ON THE BLADDER AND ALSO GOOD AT WHAT HE SAW GOING THRU THE PROSTATE. HE APOLOGIZED FOR PUTTING ME THRU THE ANXIETY BUT HE HAD SURGERY THAT I SAID I UNDERSTAND THAT BUT AT SOME POINT A PHONE CALL SHOULD HAVE BEEN MADE, TOLD HIM I WASN'T AWARE THAT THE BONE AND CAT SCANS WERE PROTOCOL AND THAT SHOULD HAVE BEEN MENTIONED. AFTER LEAVING HIS OFFICE I DECIDED TO GET A 2ND OPINION THE NEXT DAY, THIS DR
    SAYS I HAVE HIGH GRADE PROSTATE CANCER BASED ON THE FACT THAT HE TAKES THE GLEASON SCORE OF 7 AND PUTS THAT IN THE HIGH AREA WITH 8 AND 9'S. SO CONFUSED I GO. I MENTIONED TO HIM ABOUT MY TIME IN VIETNAM AND IT RAISED HIS EYEBROWS, HE TOLD ME OF THE STORY THAT THE VA AND MEDICAL RECORDS OF ALL VIETNAM VETS WERE DESTROYED IN A FIRE SOME TIME BACK IN THE 80'S AND THAT CONGRESS WITHIN THE PAST 5 OR SO YRS SAID THEY COULDN'T DEAL WITH THE ONSLAUGHT OF CASES AND DECLAIRED THAT ALL VETS OF THE VIETNAM CONFLICT ARE ELIGABLE FOR COMPENSATION FROM THE VA. FOR PROSTATE CANCER AS WELL AS OTHER CANCERS DUE TO AGENT ORANGE. IF ANY OF YOU GUYS SERVED IN VIETNAM BELIEVE ME YOU WERE EXPOSED REGARDLESS OF WHERE YOU WERE STATIONED. I CHECKED INTO THAT AND WENT TO THE VA AND FILLED OUT THE PAPERWORK. ACCORDING TO THE WEB SITE VETS WHO REGISTER BEFORE TREATMENT LIKE ME ARE ENTITLED TO FULL 100% WITH A SMALL AMOUNT TO MY SPOUSE. THIS IS FOR SIX MONTHS ONLY TILL THE VA EXAMINES ME. AFTER THAT I BELIEVE IT DROPS TO A MINIMUM OF 30%. THE PROCESS WON'T REALLY START TILL AFTER SURGERY WHEN THE DR SENDS THE PATHOLOGY REPORT TO THEM.
    SO THE 2ND OPINION DR SEEMS THE BEST WAY FOR ME AT THIS POINT, HE ALSO SAYS THAT HE WANTS TO WAIT AT LEAST 8 WEEKS AFTER THE BIOPSY SO IT CAN HEAL. HE ALSO SAYS HE WILL TAKE THE PROSTATE OUT, THE TWO LYMPH NODES AND NERVES ON THE AFFECTED SIDE. ALSO SAID I WILL BE DRY BUT THAT OPEN SURGERY TAKES TWO WEEKS LONGER THAT ROBOTIC TO HEAL. I AM TO SEE MY FAMILY DR TOMORROW TO DISCUSS ALL OF THE ABOVE AND THE TWO DR'S. AND GET PRE TESTS SCHEDULED FOR LATER IN SEPT.
    I HAVE AN APPOINTMENT SCHEDULED AGAIN FOR THE 2ND OPINION DR ON WED TO FINALIZE EVERYTHING.
    SO IF YOU ANY OF YOU GUYS OUT THERE HAVE ANYTHING TO ADD ABOUT THE TWO SURGERIES OPEN OR ROBOTIC I WILL WELCOME YOUR THOUGHTS.

    SO ITS BEEN A LONG WEEK TO SETTLE THINGS IN MY MIND, I DIDN'T MENTION ABOVE THAT THE BONE AND BLOOD AND CAT SCANS CAME BACK OK. NEITHER DR HAS MENTIONED A SURVIVAL TIME FRAME BUT BOTH SAID THEY THINK I GOT IT AT A GOOD TIME.

    I WILL UPDATE AFTER WEDNESDAYS MEETING, TAKE CARE GUYS AND THANK YOU, THANK YOU FOR ALL YOUR GREAT SUPPORT

    STILL WORRIED YOUR FRIEND MIKE

    Two years ago,I adviced my
    Two years ago,I adviced my friend no to do open surgury,I spoke to him yesterday and the incontinece is so bad and I feel so bad that hi did not take my advice.I will give it to you
    do noooooot do open.
  • MIKEOSH
    MIKEOSH Member Posts: 16
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    tpelle said:

    Moving Too Fast
    Friend Mike: Second Opinion doctor tells you that Gleason 7 puts you in the HIGH GRADE PROSTATE CANCER category in his mind and HE WILL TAKE THE PROSTATE OUT, THE TWO LYMPH NODES AND NERVES ON THE AFFECTED SIDE. I'd check this out even getting third and fourth opinions. He's even telling you that you WILL BE DRY. He's very good if he can make this prediction. You've lots of time to check this out.

    thanks
    thanks guys, have an appointment with the 2nd opinion dr on wed am. will update then, still up in the air, leaning 75% to robotic. thanks mike,
  • finbar
    finbar Member Posts: 26
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    Doctors
    When my biopsy was taken, results were NOT given oveer the phone, but were given
    by my doctor personally. That's as it should be.
    During my daVinci surgery, 34 nodules were removed for testing with results expected
    in a week. Afew days later, my surgeon phoned me from his vacation in the Caribbean
    to let me know the good news -all clear! What a doctor!
  • MIKEOSH said:

    prostae
    thanks for your reply, my wife was born in danville, beautiful area, great hosp geissner just outside of town. i have alot of questions for this dr hope i'll get some results. will get a 2nd opinion also. thanks mike

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  • muttsrule
    muttsrule Member Posts: 52
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    mikeosh's story
    First, my sympathies for all you've had to deal with. Hope you've lost that first doctor. Second, I'm way late on your story, but I'll nevertheless recommend a couple of resources: 100 Questions & Answers about Prostate Cancer, by Pamela Ellsworth, 2nd ed
    Dr. Patrick Walsh's Guide to surviving prostate cancer, 2nd. ed.
    My urologist gave me 100 Questions after diagnosing me (Gleason 3+3, stage T2A, PSA 4.2). Where are you as of today? My best wishes and prayers, Mike. John
  • This comment has been removed by the Moderator
  • Don't forget to get a second opinion on the pathology
    so that you are not under or over treated. Dr. Epstein , Johns Hopkins is an excellent choice.

    Also , its hard to read Kaps, so please use small letters.///thanks

    ira

    This comment has been removed by the Moderator
  • bbjr
    bbjr Member Posts: 2
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    Prostate Cancer
    Mike,
    Please go to the website for the Lance Armstrong Foundation. They have a wealth of free information available for all types of cancer. Plus, they will send you a large book for free that gives tons of good information about how to manage your care. I would have gladly paid $100 for this book. It tells you how to take charge. Right now your head is still spinning from all that has dropped in your lap suddenly. Remember, knowledge is power. Good luck, brother. You are now a member of a large fraternity. We are all pulling for you.
  • MIKEOSH
    MIKEOSH Member Posts: 16
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    bbjr said:

    Prostate Cancer
    Mike,
    Please go to the website for the Lance Armstrong Foundation. They have a wealth of free information available for all types of cancer. Plus, they will send you a large book for free that gives tons of good information about how to manage your care. I would have gladly paid $100 for this book. It tells you how to take charge. Right now your head is still spinning from all that has dropped in your lap suddenly. Remember, knowledge is power. Good luck, brother. You are now a member of a large fraternity. We are all pulling for you.

    THANK YOU
    THANK YOU FOR THE INFO. MIKE
  • The Nev
    The Nev Member Posts: 50
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    MIKEOSH said:

    THANK YOU
    THANK YOU FOR THE INFO. MIKE

    Another Member
    Hi guys looks like I'm the newest member of the club. I've been lurking and reading for a few weeks now. I was 54 yrs and turned 55 on Sept 8th. I was diagnosed on Aug 18th with a Gleason of 6 with 7 of 18 samples positive. But the bad part was the right lobe is clean and the left lobe was 7 of 9 samples. So quite a bit on the left side. I have been to M.D. Anderson in Houston TX. and was upgraded to a Gleason of 7. Dr. Matin said the cancer was also in the nerves on the left side inside of the prostate and would likely be on the outside nerve just basing it on amount in the left lobe. I will get a cat-scan scheduled soon and he wants to do a bladder check too. He's not sure yet about the nerve sparing on the left side but believes the right shouldn't be a problem. My surgery DaVinci should get scheduled with-in a month so by mid October. Now just in the wait and see mode as you've all been through. This forum has helped me a lot and I'm sure will continue to help me. Hope you all do well keep, the updates coming, knowledge is power. Oh my name sounds like Kneeve. This sure is a pricey club!
  • lewvino
    lewvino Member Posts: 1,010
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    The Nev said:

    Another Member
    Hi guys looks like I'm the newest member of the club. I've been lurking and reading for a few weeks now. I was 54 yrs and turned 55 on Sept 8th. I was diagnosed on Aug 18th with a Gleason of 6 with 7 of 18 samples positive. But the bad part was the right lobe is clean and the left lobe was 7 of 9 samples. So quite a bit on the left side. I have been to M.D. Anderson in Houston TX. and was upgraded to a Gleason of 7. Dr. Matin said the cancer was also in the nerves on the left side inside of the prostate and would likely be on the outside nerve just basing it on amount in the left lobe. I will get a cat-scan scheduled soon and he wants to do a bladder check too. He's not sure yet about the nerve sparing on the left side but believes the right shouldn't be a problem. My surgery DaVinci should get scheduled with-in a month so by mid October. Now just in the wait and see mode as you've all been through. This forum has helped me a lot and I'm sure will continue to help me. Hope you all do well keep, the updates coming, knowledge is power. Oh my name sounds like Kneeve. This sure is a pricey club!

    Sorry to hear about your
    Sorry to hear about your cancer. I am 54 and turn 55 on Sept. 17. I had my DaVainci surgery on August 12th and doing well overall post surgery. I also have a Gleason 7. My post surgery pathology report showed 20% of the prostate was invovled with cancer. I also had perinural invasion. The doctor was able to spare 100% of the nerves on the one side and in his estimate 50 - 70% on the 'bad' side.

    Hang in there.

    Larry
  • wxman
    wxman Member Posts: 19
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    lewvino said:

    Sorry to hear about your
    Sorry to hear about your cancer. I am 54 and turn 55 on Sept. 17. I had my DaVainci surgery on August 12th and doing well overall post surgery. I also have a Gleason 7. My post surgery pathology report showed 20% of the prostate was invovled with cancer. I also had perinural invasion. The doctor was able to spare 100% of the nerves on the one side and in his estimate 50 - 70% on the 'bad' side.

    Hang in there.

    Larry

    I'll be praying for you Nev.
    I'll be praying for you Nev. I had the robotic on September 3. Just got the catheter out today. Turned 48 last month. We wish you the best....one step at a time!
  • The Nev
    The Nev Member Posts: 50
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    wxman said:

    I'll be praying for you Nev.
    I'll be praying for you Nev. I had the robotic on September 3. Just got the catheter out today. Turned 48 last month. We wish you the best....one step at a time!

    Hijack
    Hi guys didn't mean to hijack the thread, just wanted you all to know that your posting helps everyone. Some of you guys are so young, shoot I'm young for this disease but of course it does not discriminate. Thanks for the prayers and I assure you we’ll be praying for you all to. Some of your stories are very encouraging and Larry looks like you and I are very similar even in name, my name is Larry Nevius friends call me Nev small world eh! For you young guys a very close friend of Mine had prostate cancer at the age of 45yrs, he is now 48yrs and says for the most part he can’t even tell. Everything works great and he so far is living a normal happy life. So as has already been said there is hope God bless.
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