Pain management

janet45
janet45 Member Posts: 9
edited March 2014 in Caregivers #1
My husband has been diagnosed with metastisized kidney cancer 3.5 months ago and we have been struggling with pain management ever since. I am looking for any advice on how you judge how much pain medication to take. Right now he has a fentanyl patch and is taking hydromorphine for pain and baclofen to ease the muscle spasms. He is resistant to taking the medication because they make him very sleepy. Any advice you can give would be greatly appreciated.

Janet

Comments

  • sue Siwek
    sue Siwek Member Posts: 279
    call your doctor and discuss
    call your doctor and discuss with him what is happening and your concerns. it is their job to help you but you must ask them for what you need. be assertive it is the only way to get help.
  • zahalene
    zahalene Member Posts: 670
    sue Siwek said:

    call your doctor and discuss
    call your doctor and discuss with him what is happening and your concerns. it is their job to help you but you must ask them for what you need. be assertive it is the only way to get help.

    Also,
    ask his medical team to talk with him (if they have not already done so) about the importance of taking medication as prescribed, even if he doesn't 'feel' he needs it. Preventing pain before it starts is more productive than trying to combat it after it takes hold.
    Also remind him that battling against pain depletes valuable energy resources which his body could be using to better purpose in fighting the disease.
    And then remember that pain tolerance is not a level playing field. Tolerance levels can be quite different in each of us, and we can all have peaks and lows of tolerance from one day to the next, depending on various factors. That is another reason it is smart to 'follow the directions on the label'.
    God bless.
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    pain mgmt
    Janet:

    I have also had the fentanyl patch, along with any number of other medications designed to relieve me of pain. As a tough guy and someone who never even took so much as an aspirin if I could avoid it, I also thought to either refuse or to remove myself from pain meds as quickly as possible.

    My reasons were two-fold. I was concerned about their immediate effect on me, as your husband seems to be, but, further, I was concerned about the possibility of addiction.

    I got some great advice from some wonderful folks, which boils down to just a couple of facts:

    1. In general, doctors who prescribe pain meds do so with little worry about patients becoming addicted. In general, those who become addicted are those who do not need the pain meds to begin with.

    2. Pain management is pivotal to survival. In my own experience, the only time over the course of my surgeries and treatments that I ever thought that buying the farm was superior to what I was going through was when I was in the most excruciating pain.

    If we are not in great pain, we are most apt to keep fighting, Janet, and this is the very best reason to take the medications as prescribed. They are not prescribed on a whim, but a very good reason, after all, and they are, especially the heavy duty fellows like fentanyl, monitored to the nth degree.

    If hub prefers pain to sleep, that is a personal choice, I would advise. As a survivor myself, I would advise that you allow him to dictate when he is willing or urging to take pain meds. It's his party, after all, and he can cry if he wants to.

    My best wishes to you, Janet. You have a very difficult job and I salute you for taking on this difficult task.

    Best wishes to hub, as well. I hope that if he is refusing pain meds, his reasons do not ignore the points expressed above.

    Take care,

    Joe
  • pattynonews
    pattynonews Member Posts: 176
    My husband is also on the
    My husband is also on the same patch and the same medication this was after tries of everything else, and we are finding that you have to stay on top of the pain to be functional, yea there are times I think he might take to much, but we don't know what pain he is feeling, So if he gets sleepy I just let him sleep his body is fighting to survive so I think he might need the rest, since we did switch him to the patch and hydromorphone we got his pain level down to a 4, which it was a 7 and 8, We just learn to work around his energy times I call them , when his body has lots of energy, and another issue we have is keeping weight on him, since he is peg fed, so it is a challenge, But it is so true if your body is some what free of pain, you want to fight, and keep going, and I tell Jack I know you are in pain some days but you still need to get up and move around, it makes your body feel better, Im Jack primary caretaker, I have learn there is so much more to cancer than just the cancer , it is the pain, the nutrients, the emotional all a balled in to one big mess, but we learn to fight this together and be strong,
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member

    My husband is also on the
    My husband is also on the same patch and the same medication this was after tries of everything else, and we are finding that you have to stay on top of the pain to be functional, yea there are times I think he might take to much, but we don't know what pain he is feeling, So if he gets sleepy I just let him sleep his body is fighting to survive so I think he might need the rest, since we did switch him to the patch and hydromorphone we got his pain level down to a 4, which it was a 7 and 8, We just learn to work around his energy times I call them , when his body has lots of energy, and another issue we have is keeping weight on him, since he is peg fed, so it is a challenge, But it is so true if your body is some what free of pain, you want to fight, and keep going, and I tell Jack I know you are in pain some days but you still need to get up and move around, it makes your body feel better, Im Jack primary caretaker, I have learn there is so much more to cancer than just the cancer , it is the pain, the nutrients, the emotional all a balled in to one big mess, but we learn to fight this together and be strong,

    Hi!
    Welcome aboard, pattynonews! If you have not discovered so already, this is a crummy club to be in, due to the stringent membership requirements :), but the members are among the most caring, giving, people I have ever had the good fortune to meet.

    Best wishes to Jack and to you.

    Take care,

    Joe
  • janet45
    janet45 Member Posts: 9
    sue Siwek said:

    call your doctor and discuss
    call your doctor and discuss with him what is happening and your concerns. it is their job to help you but you must ask them for what you need. be assertive it is the only way to get help.

    Pain management
    Thank you all for your comments. I am sorry that I have not replied earlier but it has been a difficult month. We have a meeting with pain management specialists next week through Sloan Kettering. Paul is taking much more pain medication but it still is a challenge to get the pain under control. We are also hoping that the radiation that he will be starting next friday will be helpful to reduce the tumors which are causing the pain. Thanks again for your response. Best wishes to you in your battle.

    Janet