~~~~~~THIS IS NUTTS~~~~ AND I MEAN THE CRAZY KIND~~~

taleena
taleena Member Posts: 1,612 Member
edited March 2014 in Breast Cancer #1
You all will undoubtedly take a vote to kick me off this site... because if I was reading this story from beginning to current... well I would be calling BS... Just got a call from Dr. Khan's office... Stephanie she's a sweetie... and unfortunately for her the front line girl... Well seems that the panel met last night... the two radiologist who were sooo very confident that the results would be positive, both presented my (are they films??) to the panel, and showed them an area deep within the tissue where a large mass was that the machine that they used was unable to get to.... They are getting a new machine next week that will allow them to get deeper into the tissue.... so guess what.... they have cancelled my moving forward... cancelled my appointment with Dr. Townsend (Radiology Oncologist)... next week I will be taking those two Adavan again... and going through this once more I just love it when they cut into me for biopsies... this will make 3.... What I don't understand is why when Dr. Khan called them why they didn't say "it came back negative .. BUT..." Why let me walk out of there thinking I wouldn't be back until after RADS??

I think I am going to start writing a book.... I don't believe this... am I in shock.. angry... mad... frustrated... confused... this seems like someones idea of a bad joke... I feel like it's been a train wreck since the beginning...don't feel bad for me... I hate pity... and I'm not having a pity party!!! I'm just plain pissed off!

So, I guess last night was just a test~~!!! It was so wonderful.... I am just sorry it was so short lived...

color me very, very red~~

~T

Comments

  • rjjj
    rjjj Member Posts: 1,822 Member
    GEESH TALEENA!!!
    I know you must feel in a tail-spin right now! I don't know what to say on one hand I would be full of anxiety and angry, but on the other happy that they are going to check more throughly to rule out any chance that it is positive. Maybe you should get a second opinion if you can?

    I am sorry you have to go through more waiting. and NO we would never kick you off the boards we love you way to much for that.
    jackie
  • Marcia527
    Marcia527 Member Posts: 2,729
    That stinks. I was mad too
    That stinks. I was mad too when I was told I'd need 4 more cycles of chemo after surgery before rads. First I was just told 4 cycles before surgery. After surgery they gave me the bad news about more chemo. So I was spitting. I know how you feel. I went and completed tho and lived to tell the tale.
  • taleena
    taleena Member Posts: 1,612 Member
    Marcia527 said:

    That stinks. I was mad too
    That stinks. I was mad too when I was told I'd need 4 more cycles of chemo after surgery before rads. First I was just told 4 cycles before surgery. After surgery they gave me the bad news about more chemo. So I was spitting. I know how you feel. I went and completed tho and lived to tell the tale.

    I know I will live to tell
    I know I will live to tell the tale... but geez will anyone ever believe it... oh well.. I guess I have all of you to vouch for me...
  • taleena
    taleena Member Posts: 1,612 Member
    rjjj said:

    GEESH TALEENA!!!
    I know you must feel in a tail-spin right now! I don't know what to say on one hand I would be full of anxiety and angry, but on the other happy that they are going to check more throughly to rule out any chance that it is positive. Maybe you should get a second opinion if you can?

    I am sorry you have to go through more waiting. and NO we would never kick you off the boards we love you way to much for that.
    jackie

    Thanks Jackie... I'm so glad
    Thanks Jackie... I'm so glad I have you guys...it keeps me from hunting something down and hurting it...
  • tgf
    tgf Member Posts: 950 Member
    Marcia527 said:

    That stinks. I was mad too
    That stinks. I was mad too when I was told I'd need 4 more cycles of chemo after surgery before rads. First I was just told 4 cycles before surgery. After surgery they gave me the bad news about more chemo. So I was spitting. I know how you feel. I went and completed tho and lived to tell the tale.

    Taleena
    I'm so sorry. It's just not fair to tell us we have BC then give us one diagnosis/treatment plan ... then ... oooops ... "we've changed our mind." It's NOT fair. The roller-coaster of diagnosis/treatment is bad enough without the medical community not deciding what's what. As you know many of us have been on that roller-coaster and didn't think it would ever slow down long enough for us to catch our breath. It's very, very frustrating. After my lumpectomy the surgeon told I would NOT need chemo that I might need radiation and then pills for 5 years. Needless to say I was shocked when I went to the medical oncologist and he told me I DID need chemo and radiation.

    I just wish they had all gotten together ... the surgeon, medical oncologist, radiation oncologist ... and figured out between them what my diagnosis was and what the treatment would be ... and THEN tell me ... instead of having me think one thing ... and then have it turn into something else. I really think the emotionally journey of BC is as difficult as the physical part.

    hugs.
    teena
  • sausageroll
    sausageroll Member Posts: 415
    tgf said:

    Taleena
    I'm so sorry. It's just not fair to tell us we have BC then give us one diagnosis/treatment plan ... then ... oooops ... "we've changed our mind." It's NOT fair. The roller-coaster of diagnosis/treatment is bad enough without the medical community not deciding what's what. As you know many of us have been on that roller-coaster and didn't think it would ever slow down long enough for us to catch our breath. It's very, very frustrating. After my lumpectomy the surgeon told I would NOT need chemo that I might need radiation and then pills for 5 years. Needless to say I was shocked when I went to the medical oncologist and he told me I DID need chemo and radiation.

    I just wish they had all gotten together ... the surgeon, medical oncologist, radiation oncologist ... and figured out between them what my diagnosis was and what the treatment would be ... and THEN tell me ... instead of having me think one thing ... and then have it turn into something else. I really think the emotionally journey of BC is as difficult as the physical part.

    hugs.
    teena

    It stinks!
    You have every right to be p*ssed. However, with more chemo, you are less likely to get a recurrence and it will be over and done with before you know it...don't hit me please!!!
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    Gosh...
    I'm kinda knocked "speechless"...

    Well, T - all I can say is... Take a few REALLY deep breaths, in and out.

    And - sometimes we travel the journey as if it's a game board.
    Pick a card: move 2 steps backward.
    Next turn, roll the dice: move 5 steps forward.
    Net gain: 3 steps forward.

    Eventually, you'll pass "Go"...

    Kind regards, Susan
  • CR1954
    CR1954 Member Posts: 1,390 Member
    T........
    Unbelievable! And I am SO SORRY that you are having to go through all of this!!

    I would be angry and upset too....

    Big hugs, friend...

    CR
  • Kat11
    Kat11 Member Posts: 1,931 Member
    CR1954 said:

    T........
    Unbelievable! And I am SO SORRY that you are having to go through all of this!!

    I would be angry and upset too....

    Big hugs, friend...

    CR

    I would be feeling the same
    I would be feeling the same way you are. This is crazy already. However, you will at some point get through this. Hang in there.
  • aurora2009
    aurora2009 Member Posts: 544 Member
    Wow Taleana
    I just don't know what to say. I'm really sorry that this is turning out this way. I think I would of gone stark raving mad by now if I were you.

    But to be honest, I was kind of worried when they didn't recommend chemo after all. I mean I thought that was the big debate and then all this other stuff happened with the Oncotype dx and the new biopsies. I just glad that they are really looking in to your case and making sure you get the treatment you need.

    You wouldn't want to regret anything in the long run. Hang in there you'll get through this too.

    You're in my prayers

    Aurora ♥
  • taleena
    taleena Member Posts: 1,612 Member
    Got the call this morning.
    Got the call this morning. Spoke to the nurse and Dr. Khan... the new table (don't know what that has to do with it) comes in on Tues the 18th, MRI guided needle biopsy is scheduled for Thursday the 20th 2 o'clock... two adavan ordered for proceedure day... Dr. Khan said that he told the radiologists that he didn't want to subject me to this based on a hunch... and said he has to trust their expertise on the matter... Okay... now I don't know what to think... I am really praying it is just a hunch that proves to be wrong even though I have to do this again...

    This is worse than a rollercoaster ride... I hate... and I mean HATE MRI's.... can someone tell me what to expect with this proceedure...?? I'll look it up.. but I prefere hearing about it from someone who has had a biopsy this way...

    Well... I continue to celebrate all the good news of the week even if mine has been revoked... wishing everyone a wonderful weekend filled with laughter, joy, and unexpected wonderful surprises... or even quite rest!

    Hugs

    ~T
  • padee6339
    padee6339 Member Posts: 763
    taleena said:

    Got the call this morning.
    Got the call this morning. Spoke to the nurse and Dr. Khan... the new table (don't know what that has to do with it) comes in on Tues the 18th, MRI guided needle biopsy is scheduled for Thursday the 20th 2 o'clock... two adavan ordered for proceedure day... Dr. Khan said that he told the radiologists that he didn't want to subject me to this based on a hunch... and said he has to trust their expertise on the matter... Okay... now I don't know what to think... I am really praying it is just a hunch that proves to be wrong even though I have to do this again...

    This is worse than a rollercoaster ride... I hate... and I mean HATE MRI's.... can someone tell me what to expect with this proceedure...?? I'll look it up.. but I prefere hearing about it from someone who has had a biopsy this way...

    Well... I continue to celebrate all the good news of the week even if mine has been revoked... wishing everyone a wonderful weekend filled with laughter, joy, and unexpected wonderful surprises... or even quite rest!

    Hugs

    ~T

    BUMMER
    Geez Taleena - tell them to get their acts together! Enjoy your weekend and try to put it out of your thoughts (yeah right). BTW - My surgeon's name is Dr. Khan. He did my biopsy.
    I'll be thinking of you this weekend and keeping you in my prayers.
    Pat