Pain when urinating and in the rectal/perineal area. Your experience please.

lion1 said:

Pain
I had 3 months of perineal pain when I sat down. Pain at the tip of the penis for two months. I was told it was normal. My doctor predicted this to a tee.

Lion1

Hi Lion1
Did the pain happen when you went pee also? That is what I don't understand?
Thanks,
Keven

lion1 said:

Pain
Yes, right at the tip. It was extremely annoying and I wondered when it would go away. Then as I approached the end of the two months, it seemed like it just disappeared.


That's what amazes me. When your in pain it like a heavy weight on your back, then once the pain goes away it's like it was never there and you feel soo good.

I'll share one of my recent experiences with you,about when something is present and then it leaves and comes back. Please bear with me and I think you'll understand. I have been incontinent for over 3 yrs and continue to search for my cure.

When I was at Walter Reed in Jun for another URO AND cystscopy for the next 4 or 5 hours after the procedure I FELT LIKE I HAD TO PEE AN I WAS EXTREMELY SORE AT THE TIP OF MY PENIS. It was terrible, but strangely after that on my way to the airport and flying home, I was dry!!!! Yes I was dry!!! I thought to myself, what if by the grace of God I just stopped leaking for good. I mean for the 4 or 5 hours after that I didn't leak.

But later that day it's like my body said --okay--back to leaking--and it came back to leaking all over again.

But, I have to tell you for that short period of time after the pain of the procedures earlier---I was dry and it seemed wonderful.

I am sure you could understand where I am coming from----I just wish that brief miracle had continued---that's why I posted about the Advance Sling this week----that's what's probably next for me.

I hope your pain subsides soon.


Thanks for listening---all our experiences are different.

Lion1

Hello Lion1
Lion1.
I am sorry your dryness only lasted 4-5 hours. Thanks for sharing your story. There are so many sad and happy stories on this board.
I am ready for the pain to just be gone.
I feel very lucky for all I have had in recovery so far though.
Like you said "all our experiences are different."
Be blessed. I will pray for you.
Thanks,
Keven

beenthere01 said:

perineal pain
Yeah, I had those phantom pains for a few months. They should clear up though.
As for your "hose" problem. I think that may be related to the fact that your urethra is anchored at the tip of your penis and...think of it like a pajama string...it ain't as long as it used to be, but the rest of the equipment is. So, there's a little tension there. Unfortunately, none of my medical contacts, nor support sites has a solution to offer. You'd think it would be quick and easy to insert a few inches of "pig urethra" to solve the problem, but the experts' training stops as soon as the hospital door hits you in the fanny on the way out. My "kink" doesn't present until I achieve an assisted erection (drugs), and then it goes down; blast, why couldn't it go UP! Keep your eye on the goal.

Thanks,
Thanks for your input beenthere01, never really though about the shortening of the tube.
I guess they at least took a walnut sized piece out.

Update on pain when urinating.
Thank you JR for your post.
My pain when urinating is the same till Saturday night. Starting late Sat night (Aug 1) my flow went down to dribbles, and frequency increased, had to go about every 10 minutes. I had been seeing a lot of pieces of blood and tissue in my urine Thurs and Fri, once my flow just stopped, then I pushed and a large piece came out and I continued going... I was going a little better and could finish within a few minutes too. Used to take about 5 minutes or more to go pee, still sitting since I don't know which way the stream will go when it does start.
I was getting excited thinking maybe all the irritation and it's effects were getting better, and clearing out.
Man it's a few steps forward then 1 back.
I called the Doctor Monday morning and got in at 3:30pm. They had me empty my bladder and then did an ultrasound to see if I emptied all the way, it showed I had. The nurse gave me a sad strange look and told me the Doctor might need to take a look. I was kind of prepared for the scope check all day, waiting for the appt. From reading the posts here it seemed like they would need to look inside.
Wow that hurt, the male nurse came in first and covered my genital area with iodine and betadine. then he told me it would sting when he put in the numbing agent in my urethra tube. He couldn't get it in all the way because the blockage was about 1/2 inch from the tip of the penis, he did try,ouch. The stuff did burn, worse than I thought it would.
OK now it's the doctors turn, he took a look with the scope first and found the blockage about 1/2 inch from the tip. Now he brought out the dialation tools. He inserted about 5 different tools moving up in size with each one. Did some twisting and turning with each, clearing out the scar tissue which blocked my urine flow, and opening the tube a little more. The pain was mostly when he would put in a larger one, wow it did hurt. He looked all the way to the bladder after done reaming the tube and said it all looked great, That was a relief.
When he was done he filled my bladder with saline solution, using the scope tool that was still in, told me to hold my water when he pulled the scope out, right like I had any control after the invasion, it was very uncomfortable with the water in, felt like I had to go pee real bad.
I did hold it, or so I thought. Then he said to go pee, it didn't start, after pushing I did start to pee. I have not had a stream that good since before the operation. The Doctor told me they usually re-catheter now but because that is what started the irritation and scar tissue in the first place he was not going to do it. He sent me home with a tube of lubricant and a tool for self dilation. I have to insert a tapered plastic tool 1-1.5 inches into my urethra tube 2 times a day for 2 weeks then 1 time a day for 2 weeks, then 1 every other day and taper off like that till done. It will keep the urethea tube from developing scar tissue again.
It no longer hurts that bad when I urinate, that is a relief. Hopefully my problems with urination are almost finished.
It was a painful procedure but well worth it. I haven't done the self dilation yet but will later this morning.

Long story but here is something to stress to your medical team when going in for the operation.
I am a little latex sensitive and it was on my chart, which the staff did very well with (bandages etc.). The catheter was latex which is maybe why I have had so much irritation and pain in the urination part of recovery.
Let them know to only use non-latex tubing, I guess they have it in all the hospitals.
They missed it on me but that's fine. On my way to recovery and back to work soon.