anal cancer

2»

Comments

  • kams
    kams Member Posts: 2
    #22
    lacer00 said:

    hi nigella
    It is amazing there is a shortage of mitomycin. The hospital here had enough to do my treatment also. What stage is yours? Mine is IIIB. the tumor is more then 5cm and the left lynmph node is involved. There are other small areas in the lungs but they don't think they are involved. I have read the other post and some have really concerned me. I was given a dilator and told to use it 2x a week. I have finished my fist week of chemo and 1/2 through my second week of radiation. I have a PICC line and will keep it in till the end. Sometimes my arm huts. I am already blistering and sore. I am working one job. I had two but I did let the other go for now. I am an accountant in a one person office so I need to work as much as possible. I am also going through a divorce so I need the money. with in a 3 week period my whole life feel apart. Lets keep in touch. Partners through this. you can e-mail me at lacer00@msn if you would like.

    Take care and my prayers are with you.

    I can do all things through Christ who strengthens me Phil 4:13

    to lacer00
    My cancer was stage 2B, the tumor was 5cm and had penetrated the wall but hadn't quite reached the lymph nodes. My PICC caused blood clots, so if you have pain be sure to check that out. As for the dilator... use it. The radiation is tough on some very tender parts of your body and will hurt for a long time. Try using ice (not directly but wrapped in a towel). I think it took two years until I was actually comfortable. But it is like any sore, it gets better with time. Altho sex is still uncomfortable. It's been three years since my treatment. You have a lot to handle right now. Being sick, worried, fried, and having to work is a lot. My prayers are with you.
  • nigella
    nigella Member Posts: 10
    #23
    kams said:

    I wish you well
    I didn't lose my hair, but my doctors used Xeloda and Cysplatin. A friend gave me a German shampoo called Thymuskin that also helps protect against hair loss. (At least I believed that bc I didn't lose mine) By now you are familiar with how your body is reacting to the treatments. The Chemo makes you sick but can be managed with meds. The radiation is a cure that keeps on giving even after the actual treatments stop. It will hurt like crazy for a long time. It builds up and will take time to feel better, but you will feel better. I hope you are doing okay.

    July 16
    Hi All,
    My anal cancer is Stage III with a 5.5 cm tumor. The pet scan shows it is likely attached to the vaginal wall.
    Kams did you have surgery? or did your wall hold up? I'm not having any blistering yet but can feel the beginnings of a burn.
    Lacer00, yes, we will keep in touch through our treatment. My prayers are with you. I'm so sorry you have so much going on in your life. I've been off work since mid-June because the boss won't let me work with a PICC line, probably afraid of liability.
  • lacer00
    lacer00 Member Posts: 11
    #24
    nigella said:

    July 16
    Hi All,
    My anal cancer is Stage III with a 5.5 cm tumor. The pet scan shows it is likely attached to the vaginal wall.
    Kams did you have surgery? or did your wall hold up? I'm not having any blistering yet but can feel the beginnings of a burn.
    Lacer00, yes, we will keep in touch through our treatment. My prayers are with you. I'm so sorry you have so much going on in your life. I've been off work since mid-June because the boss won't let me work with a PICC line, probably afraid of liability.

    Hi
    I am very fortunate both of my bosses are very understanding. i worked at a local grocery store as a cashier. been there one year befor this happened. I call it my theropy. There is still good in this world and I saw it everyday I worked. Any way I couldn't stand for long periods any more so I had to quit that job for the time being but they have told me if I feel up to it I can work and when then is all over my job will be there. I have made some really good friend through the store I miss it alot. my other boss is great except he keep letting me know that the next two weeks are the most important part of my job. I hope I can make it. I am fine in the morning but by mid afternoon I am tired and by thursday I am really tired. Friday it is all I can do to get up and go. some one in one of the post talked about ensure. I drink boost and the chocolate is not bad. Sometimes i freeze it and then let it thaw for a while and it is a slush. My mouth sores are bad on one side only right now.
  • nigella
    nigella Member Posts: 10
    #25
    lacer00 said:

    Hi
    I am very fortunate both of my bosses are very understanding. i worked at a local grocery store as a cashier. been there one year befor this happened. I call it my theropy. There is still good in this world and I saw it everyday I worked. Any way I couldn't stand for long periods any more so I had to quit that job for the time being but they have told me if I feel up to it I can work and when then is all over my job will be there. I have made some really good friend through the store I miss it alot. my other boss is great except he keep letting me know that the next two weeks are the most important part of my job. I hope I can make it. I am fine in the morning but by mid afternoon I am tired and by thursday I am really tired. Friday it is all I can do to get up and go. some one in one of the post talked about ensure. I drink boost and the chocolate is not bad. Sometimes i freeze it and then let it thaw for a while and it is a slush. My mouth sores are bad on one side only right now.

    Hello!
    Lacer I would send you an energy pill if I had one. I can't imagine the energy it takes to work every day. I miss seeing my coworkers too. Beginning of Week 3 and meeting with doctor. Saw pictures of my body and pathways of radiation. Very fascinating to see my own interior!!! Are you using the "bubbles" prescription for your mouth sores? How are you sleeping at night? Nighttime sleep is sporadic with me because of all the pit stops! I meet with a dietician every week as part of my treatment plan and am taking Whey your Way in a smoothie. Yum! She also recommends Boost or Ensure.

    Do you know of any way to have all Anal Cancer posts in one location on the discussion boards?
  • Unknown
    Unknown
    #26
    This comment has been removed by the Moderator
  • lizdeli
    lizdeli Member Posts: 569 Member
    #27
    nigella said:

    July 16
    Hi All,
    My anal cancer is Stage III with a 5.5 cm tumor. The pet scan shows it is likely attached to the vaginal wall.
    Kams did you have surgery? or did your wall hold up? I'm not having any blistering yet but can feel the beginnings of a burn.
    Lacer00, yes, we will keep in touch through our treatment. My prayers are with you. I'm so sorry you have so much going on in your life. I've been off work since mid-June because the boss won't let me work with a PICC line, probably afraid of liability.

    Similar diagonosis
    Hi Nigella
    I was reading through the posts and noticed that your tumor was likely attached the vaginal wall. I was told the same thing. Were you able to avoid surgery? How were your follow ups? I don't go for my follow up until one month from today, but I'm worried becasue of the position of the tumor. My tumor is around 2.6 cm.

    Thanks,
    Liz

Discussion Boards