Fired my Dr today

grandma2selena
grandma2selena Member Posts: 199
edited March 2014 in Colorectal Cancer #1
As you all know I was referred to my Onocologist about my hip pain. They did some blood work and my liver count was up, how high I don't know they never would tell me. The Dr wanted a scan ugently, like right now of my liver. His nurse refused to schedule the scan as I don't have my new insurance card in my hand, (will have it next week). I was not a happy camper, so today I called and demanded some answers to just how urgent this really was with my liver, still never was told the liver count, but was told my CEA was only .71 still on the low side and in a safe zone.

I called my primary Dr. and asked if he could please refer me to a new Onocologist, explained what was going on, and a few other things that had gone on with this office during my treatments that had bugged me. Anyway as of now my primary Dr will monitor my liver and even order a scan if needed until the new Onocologist can get me in.

Believe me at times I liked my Onocologist and the staff but at times I felt like a cow being herded in and herded out.

I still think the liver thing is just from all the medication they have to pump into me during my colonoscopy, I had a high liver count after my colonoscopies when this was all discovered, while my blood work just 3 weeks early my levels were fine. I just had a colonoscopy what 3 weeks ago and again my liver counts went back up...all rocket scientists here put two and two together.

Debbie

Comments

  • kristasplace
    kristasplace Member Posts: 957 Member
    #2
    Good!
    Good for you, Debbie! I think a good, honest relationship is important when dealing with the person who's supposed to save your life! I had the same problem with information being kept from me. I think they were actually babying me! Like i couldn't handle the truth. My onc's nurse was the absolute worst! She had downplayed everything so much that i was unprepared for much of what happened to me in the beginning. Thank God she was gone a few weeks later. I've noticed that many people would treat me carefully upon learning I had cancer. It's either the look of, "oh my God, you're going to die, poor thing", or they treat you like you'll crumble if they say the wrong thing.

    I hope you really like your new onc. If not, there are many others! I also hope that your liver elavations are what you think they are.

    Many hugs,
    Krista
  • grandma2selena
    grandma2selena Member Posts: 199
    #3
    kristasplace said:

    Good!
    Good for you, Debbie! I think a good, honest relationship is important when dealing with the person who's supposed to save your life! I had the same problem with information being kept from me. I think they were actually babying me! Like i couldn't handle the truth. My onc's nurse was the absolute worst! She had downplayed everything so much that i was unprepared for much of what happened to me in the beginning. Thank God she was gone a few weeks later. I've noticed that many people would treat me carefully upon learning I had cancer. It's either the look of, "oh my God, you're going to die, poor thing", or they treat you like you'll crumble if they say the wrong thing.

    I hope you really like your new onc. If not, there are many others! I also hope that your liver elavations are what you think they are.

    Many hugs,
    Krista

    Liver
    Yes, don't get me wrong I know my liver can go either way...but there is a pattern here that I think needs to be addressed after we make sure it isn't a cancer or something else. My liver count looked great 2 weeks before dx. I my colonoscopy, which I do not respond to the medications for that test so they pump me full with massive drugs...right after that my liver count went up.

    My liver count looked great again at my three month appt. two weeks after that blood draw I had another colonoscopy...yes again massive drugs. Right after that my liver count went up. Seems like a common denominator there to me. I also have 2 brother's who have had high liver counts for no apparent reasons for years, no cancer or any other disease that would cause their high liver counts.

    Debbie
  • kimby
    kimby Member Posts: 797
    #4
    Good For You!
    Debbie,

    You SO did the right thing. Now you can concentrate on finding the right doctor for you and getting healthy. Keep us up to date on your progress.

    kimby
  • lesvanb
    lesvanb Member Posts: 905
    #5
    Go you advocate you
    Great job making you sure you get the care you need. I hope all goes well with your new oncologist. I fired my medical oncologist after I ended up in the hospital with an opportunistic bowl infection during radiation/chemo. The doc was very blasé (he saw me the day I got admitted but just patted my hand. Hubby took me to the hospital later when I couldn't get off the toilet. He also said stage 4 that I had was incurable when the Huntsman docs were all going for a cure. Out with his ****! or, better his **** than my ****! :-)

    Leslie
  • grandma2selena
    grandma2selena Member Posts: 199
    #6
    lesvanb said:

    Go you advocate you
    Great job making you sure you get the care you need. I hope all goes well with your new oncologist. I fired my medical oncologist after I ended up in the hospital with an opportunistic bowl infection during radiation/chemo. The doc was very blasé (he saw me the day I got admitted but just patted my hand. Hubby took me to the hospital later when I couldn't get off the toilet. He also said stage 4 that I had was incurable when the Huntsman docs were all going for a cure. Out with his ****! or, better his **** than my ****! :-)

    Leslie

    Sooner
    I would have done this from the get go, but I was scared as you can all relate to, as I couldn't get my onocologist to quit telling me I was lying about never dieting, I am just a small petite person always have been, and also he accused me of lying about my alcohol intake...I have never been much of a drinker and for the past 15 years maybe average one drink a year if even that. I just don't care about drinking. There were so many other things I put up with, but I just wanted to get through my treatments and get rid of this cancer. Well I am on the move now.

    Debbie
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #7
    grandma2selena said:

    Sooner
    I would have done this from the get go, but I was scared as you can all relate to, as I couldn't get my onocologist to quit telling me I was lying about never dieting, I am just a small petite person always have been, and also he accused me of lying about my alcohol intake...I have never been much of a drinker and for the past 15 years maybe average one drink a year if even that. I just don't care about drinking. There were so many other things I put up with, but I just wanted to get through my treatments and get rid of this cancer. Well I am on the move now.

    Debbie

    Unbeliveable
    Debbie

    That is so terrible that you had to put up with that kind of abuse from somone who is supposed to be there to help guide you.

    I've never been accused by my oncologist of lying, but that one would do it for me as well...

    Good for you that you left his "practice." I hope you find someone else who is more understanding to your needs.

    -Craig

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