Looking for Melanoma people

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  • jem777
    jem777 Member Posts: 2
    #22
    hollyberry said:

    Same boat
    I,too, have multiple mets to brain; WBR was recommended. I have an appointment with Cyberknife docs, and I already saw radiologist for WBR.
    Because Melanoma is one of the most aggressive cancers, I am leaning toward WBR to get rid of all of the cells and cell nests that can't be seen. I was totally against this at first, then I got more information from the radiologist and the side=effects and after-effects don't seem to be as bad as I presumed. I have to say that I made the mistake of reading too much on the internet and not getting my facts from a reliable source in the first place.
    I will be starting next week, if I do, indeed, go with WBR. I expect fatigue, nausea, sores in mouth, dry mouth and some headaches. I can live with that for a few months if I can get 3-5 years without recurrance in the brain. I hope you get as much information as you need to make this decision comfortable for you. I grilled my doc for almost an hour and she didn't mind one bit; in fact, she encouraged me to keep the appt. with the cyberknife docs and be sure of what I want before I commit to anything. That's the kind of doc I love!!
    Good luck to you and let me know what you decide; I will do the same.
    Best wishes to you,
    Hollyberry

    Good luck to your session.
    Good luck to your session. Cyberknife is one good surgery for your treatment.
  • yalleh
    yalleh Member Posts: 36
    #23
    sharmon0490 said:

    Thanks for the post
    THAT IS WHAT I NEEDED TO HEAR WE ARE GOING TO MOFFITT THIS WEEK AND WOULD LOVE TO TALK TO YOU. STAGE 4 IN LUNGS AND VERY AFRAID OF WE FACE. WE WILL BE SEEING DR WEBER.
    I HAVE NOT BEEN ABLE TO THINK MUCH OF ANYTHING POSITIVE. AGAIN THANKS FOR YOUR POST

    Think Positive
    I was diagnosed stage 4 in the lungs and lymph nodes over 2 years ago, it progressed into the brain (5 tumors in the brain, 7 in lungs including one the size of a fist and 7 more throughout the lynph nodes) and like DWEBSTER says in 40 years I will be 76 and still beating this thing.

    If it helps I wake up every morning with a smile on my face and think how beautiful it is to see the sun rise and that I'm not going to waste a minute on worrying about what I can't control. I can control enjoying every minute of everyday. I watch comedy's and I make it a goal to make my wife laugh at least once a day and I ask others to try to make me laugh once a day.

    My dog helps remind me that what happened yesterday doesn't matter and what's going to happen tomorrow you have no control of so Just Live in the Moment!
  • peggy01700
    peggy01700 Member Posts: 8
    #24
    yalleh said:

    Think Positive
    I was diagnosed stage 4 in the lungs and lymph nodes over 2 years ago, it progressed into the brain (5 tumors in the brain, 7 in lungs including one the size of a fist and 7 more throughout the lynph nodes) and like DWEBSTER says in 40 years I will be 76 and still beating this thing.

    If it helps I wake up every morning with a smile on my face and think how beautiful it is to see the sun rise and that I'm not going to waste a minute on worrying about what I can't control. I can control enjoying every minute of everyday. I watch comedy's and I make it a goal to make my wife laugh at least once a day and I ask others to try to make me laugh once a day.

    My dog helps remind me that what happened yesterday doesn't matter and what's going to happen tomorrow you have no control of so Just Live in the Moment!

    Just wanted to say I appreciate your encouraging comments. I have been battling malignant melanoma for almost 2 years now. I am in a wheelchair because of a tumor on my hip. Sometimes it is difficult to get going in the morning and to keep a happy attitude. But I am going to keep trying!

    Peggy 01700
  • yalleh
    yalleh Member Posts: 36
    #25
    SmileyJane said:

    Mt husband was dx with
    Mt husband was dx with melanoma in 2005-stage3. It has since metastasized (Sept.2008) to the liver, lung, chest, spleen, kidney and most recently the brain. Rought stuff. He has had 6 rounds of carbo taxol and has 2 left. He is currently receiving whole brain radiation.

    Familiar
    Your husbands diagnosis sounds like mine. Keep up the good fight and make sure you hug him and make him laugh (best reatment for me anyway).
  • rwagner
    rwagner Member Posts: 11
    #26
    yalleh said:

    Familiar
    Your husbands diagnosis sounds like mine. Keep up the good fight and make sure you hug him and make him laugh (best reatment for me anyway).

    my dad
    My dad is in the same boat. The mets destroyed his spleen and put pressure on nerves near his pancreas, which makes it almost impossible for him to eat. He's currently experiencing confusion from some big mets in his brain. He's getting whole brain radiation treatment.
    I wish everyone peace who is in this fight. You are all my heroes.
  • mb
    mb Member Posts: 1
    #27
    yalleh said:

    Think Positive
    I was diagnosed stage 4 in the lungs and lymph nodes over 2 years ago, it progressed into the brain (5 tumors in the brain, 7 in lungs including one the size of a fist and 7 more throughout the lynph nodes) and like DWEBSTER says in 40 years I will be 76 and still beating this thing.

    If it helps I wake up every morning with a smile on my face and think how beautiful it is to see the sun rise and that I'm not going to waste a minute on worrying about what I can't control. I can control enjoying every minute of everyday. I watch comedy's and I make it a goal to make my wife laugh at least once a day and I ask others to try to make me laugh once a day.

    My dog helps remind me that what happened yesterday doesn't matter and what's going to happen tomorrow you have no control of so Just Live in the Moment!

    Thanks for making me smile today
    Hi,
    My husband has stage 4 Melanoma, tumors in the brain and lung. He had Brain surgery done last October to remove the one tumor that showed up at that time and it went well for a while then in June two new tumors showed up, he had the gamknife done and they did another MRI to fine out that there is alot more tumors, they then did full brain radiation and now we have to wait to see did that work (lets hope and pray). He also had chemo made up off Nexavar and Temodor but that didn't seem to do anything. My husband is a young man like yourself, he is very down at the moment, this is not an easy battle. Anyway I just wanted to say Thank You for making me smile. Does anybody know what is the differents between Gam Knife and Cyber Knife???

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