UPDATE ON Lower back pain, then kidney stone attack no stone found, now lesion on ovary - anyone exp

carol2dogs said:

Agreed
Blueroses,
I so agree with Cindy - keep on pushing and asking questions. There are so many different things that could go wrong in this area, and obviously something is going on. My hope for you is that you will get an accurate diagnosis, and that a good treatment will be available for you. By the way, I just love your picture - so beautiful! Love and hugs, Carol

Hi Carol
Thank you for your words of support and encouragement. Don't worry they haven't heard the last from me, they are going to diagnose and cure me just to GET RID OF ME. lol.

Thanks for the compliment about the pic of a bluerose. I got to love the idea of blueroses from a Tennessee Williams play called The Glass Menagerie. Blueroses can not grom naturally in nature because of the color but recently one was supposed to have been grown by someone in the Orient somewhere. I saw a picture of it, it was called the I believe but I think it looks more mauve than true blue. I have bought blueroses for myself sometimes and they dye them by having white roses suck up blue tinted water. They can be quite pretty if done right.

Here is a link to all things Blueroses, apparently a poem by Rudyard Kipling was written about the Bluerose, never knew that. Here is the link and you can see the new rose grown in Japan http://www.squidoo.com/BlueRoses

Take care, Blueroses

kayandok said:

CA125?
Hi Blue, you don't mention a CA125 being taken. If there is a any ovca it would be above normal range.
Sounds like you are a fighter and will get to the bottom of this. Go girl!
kathleen:)

Hi Kathleen
Yes my gyno, soon to be ex gyno for not mentioning she is going on holidays for over a month and not passing me on to someone who could look after me right away - grrrrr, mentioned 125. However she talked about how you can't always be sure of the results and sometimes false positives come up so I don't want to worry about it coming up yes then no after but if I have to wait much longer I will get that for some reference.

After being a survivor for 20 years you learn to fight or you don't last and we are all fighters somewhere along the line, we have to be. Being our own advocate is so important and I can't tell you how many times I feel I saved my own life by speaking up. I'm not that popular amongst docs but who cares - many of them hate patients who ask more than one question and God forbid question their theories yet. Too bad. Don't get me wrong I do it in a polite way but you have to cover your own butt sometimes, that's for sure.

The big worry for me is that it was missed on a previous CT scan and that was several months ago and the lesion was there then. I have read up a bit on ovarian and man you have to get that one early, as you undoubtedly know big time and to think it was out of my grasp through misdiagnosis just tears me up. I have had so many CT's of my lower back and that would have caught the ovaries for sure and no one caught it.

Well I am trying not to get too worked up about this, ya right, as I don't know the results yet but this aching pain in the bottom of my back is totally new - has been there about 2 months - kind of like a pre period pain would be. So it's a constant reminder that something is wrong.

I am hoping it's a benign fibroid pressing on something, hoping and praying.

Thanks for your response. Hope today is a good day for you and yours. Blessings always, Blueroses.

saundra said:

CT Scan
I would think a CT scan would be the next step if you have an elevated CA-125. The omentum is a fatty lining of the abdomen and if cancer spreads to it there are lots of tumors usually. Ovarian spreads rapidly to all over the abdomen. Mine was in both ovaries, all over omentum, spleen, liver and colon by the time I was diagnosed. There are also numerous lymph glands in the abdomen. A biopsy of the ovary node is the only sure test. Saundra

Hey Saundra
Yup I agree from what I was told that a biopsy of the ovary node is the only sure test. I didn't have the CA125 as my Gyno said that it can be misleading so right now I don't need misleading I need for sure. Can you get a laproscopic ovary node biopsy though? Blessings, Blueroses

Cindy54 said:

You Post
Blue, I agree, that pelvic ultrasound is an experience to forget! I had a new person doing mine and you would have thought she was trying to find gold in there.At least she was thorough.I am with Saundra....a CT scan would be the next thing to do.

If you do decide to do surgery, areyou going to have the "cut" surgery or laprascopy? And do you feel you need a second opinion? Have they done a CA125 blood test yet? Given your history of cancer, and if the ca125 test numbers were a little suspicious, they might opt for the cutting surgery. If they did this, they could not only take the ovary, but they could take some lymph nodes, any or all of the omentum, and any other areas that are not looking right. They could do more biopsies. They would also take you appendix as that is one of the first places ovarian goes. Now all of this is if they suspect a hint of ovarian.

I hope all goes well for you. Ask lots of questions. And if you don't want to take the wait and see approach..I know I wouldn't, because the waiting to know whould be too hard.....ask about the type of surgery and what all they plan to do. Please let us know.Hugs, Cindy

I did have a CT
A CT scan was what found the node first then I had the pelvic ultrasound. Funny you should talk about a new person doing your pelvic ultrasound. When I went into the room to have it started the girl, who looked about 15, said her name and that she was a 'student'. YIKES. She said 'is that alright that I do the ultrasound?' I didn't want to hurt her feelings but worse was hurting me big time so I told her that I don't want her to take it the wrong way but I am EXTREMELY sensitive to any invasive testing like this, because of all my treatments over 20 years, and I would probably do better with a supervisor or someone who is more experienced. She said that that was fine and went to get her supervisor who proceeded to do my ultrasound. I was afraid the student because she was inexperienced 'root around in there' and man I really can't handle that. I really am very sensitive due to all the treatments I have been through.

Interesting you should mention the appendix. I still have mine and a cousin of mine just asked me if they were looking into the appendix because I have this back pain that no one can figure out. My GP said it isn't coming from the node in the ovary. It's coming from somewhere, that's for sure. Did you have back pain with your situation? I realize everyone is different and I am only looking at a whole picture here, I learned long ago not to think that every symptom one person has you have as well.

I certainly will ask about the type of surgery but of course would prefer laproscopic first but not at the risk of it not being thorough enough. Other biopsies sound like the only way to go for sure. I think before I went through anything too invasive in surgery though I would get a second opinion first. The ca 125 was something I turned down because when the new Gyno mentioned it she talked about the fact that it wasnt conclusive and I don't want to have that factored in too, might be wrong. However before I get cut open, if that does happen, I am sure the gyno would want to run the ca 125 test as added info before a final decision for surgery is made.

Thanks for your help. Blessings, Blueroses.