newly diagnosed

peb
peb Member Posts: 23 Member
edited March 2014 in Breast Cancer #1
well I am new here and just found out that I have cancer! I am going for consultation mon. The radiologist said that he was surprised that the pathlogist found it . He said it is .5 mm. The procedure is going fast with an appointment Mon with oncologist. I don't know if I should stay here or get a second opinion if both places say surgery is only option. Is it? Has anyone had experiences with AAMC and or John Hopkins? thanks
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Comments

  • aurora2009
    aurora2009 Member Posts: 544 Member
    #2
    Hi Peb and welcome to the site
    My name is Aurora and I am new to the site as well. I was DX's last Friday. So I don't have much experience with how the process works yet( or the places you mentioned). The surgeon told me the same thing yesterday, that a lumpectomy, and chemo along with radiation was the treatment plan for me. I found the lump myself and was lucky when the doctor recommended a mammo and an ultra sound. The surgeon said that a mammno would not have detected the lump, because it's only 1.5 cm or 9mm at most. I still don't know much about my cancer except that it is "invasice ductual carcinoma". As you read the posts here you'll see there's so much more to know like whether or not it ER/PR positive or negetive and that there's another component called HER2. MY surgoen said she would call me in the next few days with that infornmation.

    All I can tell you is to hang in there, and if you feel that you need a second opinion then you should get one. It's your health, and you need to take charge of it the way you feel best. I for one am feeling really luck right now. It's still cancer but it could be so much worse. My surgeon spent 3 hours with me yesterday and answered all my questions and made me feel good about how she wanted to proceed. The only advice I can give you is what was given to me here (BTW thank's to everyone who did) !!!!!!! is take a tablet and paper with you, along with all you questions and a second pair of ears. That really helped me.

    On a happier note WELCOME, I'm sure there are other's who will respond and have more experience than I. This is an absolutely wonderful place to come for support. Please post as often as you like, and keep us all informed on what you decide to do.

    Much love
    Aurora
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #3
    aurora2009 said:

    Hi Peb and welcome to the site
    My name is Aurora and I am new to the site as well. I was DX's last Friday. So I don't have much experience with how the process works yet( or the places you mentioned). The surgeon told me the same thing yesterday, that a lumpectomy, and chemo along with radiation was the treatment plan for me. I found the lump myself and was lucky when the doctor recommended a mammo and an ultra sound. The surgeon said that a mammno would not have detected the lump, because it's only 1.5 cm or 9mm at most. I still don't know much about my cancer except that it is "invasice ductual carcinoma". As you read the posts here you'll see there's so much more to know like whether or not it ER/PR positive or negetive and that there's another component called HER2. MY surgoen said she would call me in the next few days with that infornmation.

    All I can tell you is to hang in there, and if you feel that you need a second opinion then you should get one. It's your health, and you need to take charge of it the way you feel best. I for one am feeling really luck right now. It's still cancer but it could be so much worse. My surgeon spent 3 hours with me yesterday and answered all my questions and made me feel good about how she wanted to proceed. The only advice I can give you is what was given to me here (BTW thank's to everyone who did) !!!!!!! is take a tablet and paper with you, along with all you questions and a second pair of ears. That really helped me.

    On a happier note WELCOME, I'm sure there are other's who will respond and have more experience than I. This is an absolutely wonderful place to come for support. Please post as often as you like, and keep us all informed on what you decide to do.

    Much love
    Aurora

    Welcome Peb...
    Aurora said it quite well. I'm fairly new as well. You will seem very overwhelmed in the beginning but the more knowledge you gain the more in control you will feel. Always remember, you make the finale decision on EVERYTHING!! Glad you found us and please come back often. :) Pammy
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #4
    aurora2009 said:

    Hi Peb and welcome to the site
    My name is Aurora and I am new to the site as well. I was DX's last Friday. So I don't have much experience with how the process works yet( or the places you mentioned). The surgeon told me the same thing yesterday, that a lumpectomy, and chemo along with radiation was the treatment plan for me. I found the lump myself and was lucky when the doctor recommended a mammo and an ultra sound. The surgeon said that a mammno would not have detected the lump, because it's only 1.5 cm or 9mm at most. I still don't know much about my cancer except that it is "invasice ductual carcinoma". As you read the posts here you'll see there's so much more to know like whether or not it ER/PR positive or negetive and that there's another component called HER2. MY surgoen said she would call me in the next few days with that infornmation.

    All I can tell you is to hang in there, and if you feel that you need a second opinion then you should get one. It's your health, and you need to take charge of it the way you feel best. I for one am feeling really luck right now. It's still cancer but it could be so much worse. My surgeon spent 3 hours with me yesterday and answered all my questions and made me feel good about how she wanted to proceed. The only advice I can give you is what was given to me here (BTW thank's to everyone who did) !!!!!!! is take a tablet and paper with you, along with all you questions and a second pair of ears. That really helped me.

    On a happier note WELCOME, I'm sure there are other's who will respond and have more experience than I. This is an absolutely wonderful place to come for support. Please post as often as you like, and keep us all informed on what you decide to do.

    Much love
    Aurora

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #5
    aurora2009 said:

    Hi Peb and welcome to the site
    My name is Aurora and I am new to the site as well. I was DX's last Friday. So I don't have much experience with how the process works yet( or the places you mentioned). The surgeon told me the same thing yesterday, that a lumpectomy, and chemo along with radiation was the treatment plan for me. I found the lump myself and was lucky when the doctor recommended a mammo and an ultra sound. The surgeon said that a mammno would not have detected the lump, because it's only 1.5 cm or 9mm at most. I still don't know much about my cancer except that it is "invasice ductual carcinoma". As you read the posts here you'll see there's so much more to know like whether or not it ER/PR positive or negetive and that there's another component called HER2. MY surgoen said she would call me in the next few days with that infornmation.

    All I can tell you is to hang in there, and if you feel that you need a second opinion then you should get one. It's your health, and you need to take charge of it the way you feel best. I for one am feeling really luck right now. It's still cancer but it could be so much worse. My surgeon spent 3 hours with me yesterday and answered all my questions and made me feel good about how she wanted to proceed. The only advice I can give you is what was given to me here (BTW thank's to everyone who did) !!!!!!! is take a tablet and paper with you, along with all you questions and a second pair of ears. That really helped me.

    On a happier note WELCOME, I'm sure there are other's who will respond and have more experience than I. This is an absolutely wonderful place to come for support. Please post as often as you like, and keep us all informed on what you decide to do.

    Much love
    Aurora

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #6
    aurora2009 said:

    Hi Peb and welcome to the site
    My name is Aurora and I am new to the site as well. I was DX's last Friday. So I don't have much experience with how the process works yet( or the places you mentioned). The surgeon told me the same thing yesterday, that a lumpectomy, and chemo along with radiation was the treatment plan for me. I found the lump myself and was lucky when the doctor recommended a mammo and an ultra sound. The surgeon said that a mammno would not have detected the lump, because it's only 1.5 cm or 9mm at most. I still don't know much about my cancer except that it is "invasice ductual carcinoma". As you read the posts here you'll see there's so much more to know like whether or not it ER/PR positive or negetive and that there's another component called HER2. MY surgoen said she would call me in the next few days with that infornmation.

    All I can tell you is to hang in there, and if you feel that you need a second opinion then you should get one. It's your health, and you need to take charge of it the way you feel best. I for one am feeling really luck right now. It's still cancer but it could be so much worse. My surgeon spent 3 hours with me yesterday and answered all my questions and made me feel good about how she wanted to proceed. The only advice I can give you is what was given to me here (BTW thank's to everyone who did) !!!!!!! is take a tablet and paper with you, along with all you questions and a second pair of ears. That really helped me.

    On a happier note WELCOME, I'm sure there are other's who will respond and have more experience than I. This is an absolutely wonderful place to come for support. Please post as often as you like, and keep us all informed on what you decide to do.

    Much love
    Aurora

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #7
    Kat11 said:

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless

    What the heck just happened
    What the heck just happened here, I did not write this 3 times. Sorry
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #8
    Kat11 said:

    What the heck just happened
    What the heck just happened here, I did not write this 3 times. Sorry

    Sure...(wink, wink)
    However, on the up side, you did get your point across!! (ha,ha) :) Pammy
  • jnl
    jnl Member Posts: 3,869 Member
    #9
    Hi Peb and welcome to the
    Hi Peb and welcome to the site. If you have cancer, I would imagine they will do some kind of surgery. But, these are questions for your oncologist. You can always get a second opinion, but, I would stick with the appt. on Monday first, to see what he says. Good luck!
  • bfbear
    bfbear Member Posts: 380
    #10
    jnl said:

    Hi Peb and welcome to the
    Hi Peb and welcome to the site. If you have cancer, I would imagine they will do some kind of surgery. But, these are questions for your oncologist. You can always get a second opinion, but, I would stick with the appt. on Monday first, to see what he says. Good luck!

    Welcome
    Hi Peb,

    Definitely keep your appointment with the oncologist. Once you get some options from him/her re: surgery and other treatment if needed, then you can decide whether or not you need a second opinion.

    I do know that Johns Hopkins is one of the best treatment facilities in the country (maybe in the world) for ANYTHING, including cancer. If you are there, I wouldn't worry about your doctors at all (unless there's a personality problem! haha).

    And hang in there. Like everyone else here, I'm glad you found us.

    With love,
    Debi (hi-grade DCIS; dbl. mastectomy w/reconstruction 5/6/09)
  • peb
    peb Member Posts: 23 Member
    #11
    bfbear said:

    Welcome
    Hi Peb,

    Definitely keep your appointment with the oncologist. Once you get some options from him/her re: surgery and other treatment if needed, then you can decide whether or not you need a second opinion.

    I do know that Johns Hopkins is one of the best treatment facilities in the country (maybe in the world) for ANYTHING, including cancer. If you are there, I wouldn't worry about your doctors at all (unless there's a personality problem! haha).

    And hang in there. Like everyone else here, I'm glad you found us.

    With love,
    Debi (hi-grade DCIS; dbl. mastectomy w/reconstruction 5/6/09)

    2 appointments
    well was able to get another appointment with john hopkins mon afternoon and keep the other one mon morning. After both of them I will be able to see where I feel the most comfortable. Thanks for support..
  • Noel
    Noel Member Posts: 3,095 Member
    #12
    peb said:

    2 appointments
    well was able to get another appointment with john hopkins mon afternoon and keep the other one mon morning. After both of them I will be able to see where I feel the most comfortable. Thanks for support..

    Good for you Peb! You need
    Good for you Peb! You need to feel comfortable with your caregivers and with your decisions. Keep us updated!
  • Jeanne D
    Jeanne D Member Posts: 1,867
    #13
    peb said:

    2 appointments
    well was able to get another appointment with john hopkins mon afternoon and keep the other one mon morning. After both of them I will be able to see where I feel the most comfortable. Thanks for support..

    Just want to say welcome
    Just want to say welcome Peb! And, I think that is great that you are getting a second opinion. Good luck!
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #14
    Just wanted......
    Just wanted to say hello and welcome. Very glad that you found us.

    Hugs,

    CR
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #15
    Kat11 said:

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless

    Kat, did you....
    Stutter?? LOL!

    CR
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #16
    CR1954 said:

    Kat, did you....
    Stutter?? LOL!

    CR

    I think i did stutter !

    I think i did stutter !
  • dmc_emmy
    dmc_emmy Member Posts: 549
    #17
    peb said:

    2 appointments
    well was able to get another appointment with john hopkins mon afternoon and keep the other one mon morning. After both of them I will be able to see where I feel the most comfortable. Thanks for support..

    Good for you!
    Peb, you seem right on the ball! Second opinions are always the way to go if you feel you can buy some time. I didn't get a 2nd opinion, I knew there was something there that did not belong there, and I needed to act quickly (as per the surgeon and my med'l team). It seems that your bc was caught early and that's another plus for you!

    You sound well-informed and are great at self-advocacy. These are huge benefits in your fight with cancer, and it sounds like you have this under control. Trust you doctors, but always have confidence in yourself and feel that you can ask questions.

    Let us know what happens after your Monday appts and, whatever you decide, we will be there to help you through it.

    Welcome!
    dmc
  • peb
    peb Member Posts: 23 Member
    #18
    CR1954 said:

    Just wanted......
    Just wanted to say hello and welcome. Very glad that you found us.

    Hugs,

    CR

    thanks
    Glad I found this message board.Thanks everyone. I am a very private person so my husband(he is my best friend) and I are not telling anyone else. It is nice to be here with others who have gone through this. I know that I want to get moving on this , so I am glad I have two appts. on same day. I am just so surprise how this all happened so fast from mammo, biopsy to appts that I didn't want to just go with the center that I had the biopsy if I didn't like the surgeon or what they suggested.
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #19
    Welcome, peb
    Glad you joined us, while sorry for the reason.

    We're all here to support and encourage each other. Please keep us posted on your progress - visit whenever you like, whenever you need to. Someone's always here... :-)

    Kind regards, Susan
  • Kylez
    Kylez Member Posts: 3,761 Member
    #20
    Christmas Girl said:

    Welcome, peb
    Glad you joined us, while sorry for the reason.

    We're all here to support and encourage each other. Please keep us posted on your progress - visit whenever you like, whenever you need to. Someone's always here... :-)

    Kind regards, Susan

    Hi Peb. Just want to
    Hi Peb. Just want to welcome you and to say good luck to you!
  • Noel
    Noel Member Posts: 3,095 Member
    #21
    Kat11 said:

    Hi Pep and glad you found
    Hi Pep and glad you found this site. I was dx in april, had all the tests done, then surgery (lumpectomy) seeing Onc this friday to find out whats in store for me. All I can say is you have to be able to trust your medical team / staff / Hospital in order to get through this. Write Question down and take with you to appt, take someone with you to take notes. You won't believe the amount of information your going to get. Good luck God Bless

    Good luck to you Kat. Good
    Good luck to you Kat. Good luck to you Kat. Good luck to you Kat

    There, 3 times, just like you! lol

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