Newly Diagnosed.. Looking for Words of Wisdom

TwoDaughters
I don't know about wisdom but I do have a few words. I also have tonsil cancer. We discovered mine in December and confirmed in January. I don't want to tell anyone how to proceed or really what to do but rather tell you what we did and what some of the results were. At the request of our ENT we did get a second opinion on treatment options. It can't hurt to get other ideas. You will find that no two cancers are the same. Even a cancer in the same area of the body will be different. There are also dozens of ways to do the treatments and every doctor has their own program. You must have faith in your treatment team, your moms life is in their hands so make sure you are comfortable with them.
Ask questions, if you can be there for your mom take a notebook and write things down. Find out what the plan is and what the whole schedule is.
The schedule you posted seems strange, the radiation is not like mine and it accutually seems short. Mine was at the end of treatment and was everyday, once a day, for seven weeks. I didn't even feel the burning for three weeks so I hope your mom will not be feeling pain right away. I didn't have surgery so i don't have any input for that. I do know there are some major surgeries that can be pretty rough but talk to the doctors and get all the information you can.
The chemo was the hardest for me, you must get in fluids. I used Gatoraide because it is cheap and can help boost electrolytes. Nutrition is next and it is hard to keep eating when you don't feel like it.
One of the biggest helps to me was getting as much information as possible and asking questions. Write the questions down for the doctors and use this web site. There are dozens of really good people on this network who have gone through the fire. As I said no two are alike but sometimes it will give you an idea on what to expect. Good luck and may God bless you and your mom.
Tim

TwoDaughters said:

effects on talking
Has your husband been able to talk still? I read that this can be dramatically affected and I'm wondering how this wil effect her ability to work.

newly
he has no problems as of yet but like I said we have 17 more raditation and 3 chemo to go
and hope for the best and I pray alot

heschie said:

two daughters
we also are still learing it scares me when I look at all the bloggs but I guess every one is different my husband has head and neck, primary not found he gets radiated from just below his eye and just above his heart and from ear to ear and its because they didnt find the primary
he is getting a feeding tube on thursday his choice I think its to early but I support what he does. Just be there to listen ,but I do think its a good idea if someone goes to her appointments with her. At first our daughter went with us just in case one of us missed something that the doctor was telling us I tried writing every thing down but I just couldnt listen and still write everything. alot o take in at first
God bless and Ill be praying for your family
Linda

two daughters
sorry I didnt answer your question as of right now 13 treatments into it he still has a voice
the surgery was never offered to us. soccerfreak said they gave him some kind of shot to help with his salva glands and that also was never offered to my husband. My husband only had a few treatments and he started taking water everywhere we go. His mouth is so dry he wakes up in the middle of the night to drink water he says his lips even stick toeghter He has that surgery on thursday and I dont kn ow how he will make it until he comes out without anythng to drink in the morning and take with him. He said thy better have alarge glass of water for him when he comes out. I wish they had offered him somethig surgery shot something it breaks my heart that he has to go thru this. I wish I could take it or somhowmake t better for him
I cry alot and I m unsure if that even helps me I now have ulcers in my mouth from stress
Linda