Finally My Turn
Comments
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NEAD!
Kimby,
Thanks for sharing the great news! Enjoy, enjoy! 5 will get you 10...10 will get you 20...I keep humming those words.
Aloha,
Kathleen0 -
soo happy
i didn't even feel like signing on tonight..but im glad i did..im very happy to hear your good news..and that gives me hope also for whatever else im going to be facing with this disease..i wish you all the best...
shannon0 -
Kimby,kimby said:Welcome
Brenda,
I'm so glad you found us. I know the fear all too well. It does get better with time. You learn to live with canzer: waiting, worrying, getting ready... And yet LIVING is the answer. I worked for 18 mos after dx but tx became daily and I'm 75 miles from my canzer center. Work is not an option right now. I'm doing some volunteer work now and have done many speeches for local organizations. I guess my plans are to turn that into a career. Laughter Therapy maybe? LOL
Normal will be great for your daughter. It will give her comfort. Normal is hard to do on chemo, though. Remember to be kind to yourself. Let people help. Now is the time to accept every single offer of help, no matter how small. It not only helps you and your daughter, but it is a gift to the person helping.
Thank you for your kind words and all your prayers. Now isn't the time to stop praying...I'm not cured yet!
Kimby
What does dx and tx
Kimby,
What does dx and tx stand for ? The volunteer work sounds very rewarding. I have had lots of offers for help. I still feel really good and accepting the help is not easy all the time. I had not thought of it being a gift to the person helping.
Where do you get your treatments ? I am getting chemo at a local Dr who I really like , and also seeing Doctors at Sloan Kettering in NYC which is very overwhelming. Have you ever heard anything about the Cancer Treatment Centers of America ? I really like the look of their website and read the book by their Chaplin. My two local Doctors think that Sloan is the place for me even though the Doctors are not very warm people.
Brenda0 -
BrendaBrenda3.16 said:Kimby,
What does dx and tx
Kimby,
What does dx and tx stand for ? The volunteer work sounds very rewarding. I have had lots of offers for help. I still feel really good and accepting the help is not easy all the time. I had not thought of it being a gift to the person helping.
Where do you get your treatments ? I am getting chemo at a local Dr who I really like , and also seeing Doctors at Sloan Kettering in NYC which is very overwhelming. Have you ever heard anything about the Cancer Treatment Centers of America ? I really like the look of their website and read the book by their Chaplin. My two local Doctors think that Sloan is the place for me even though the Doctors are not very warm people.
Brenda
Dx = diagnosis
TX = treatment
Sorry about the shorthand there. Bad habit. I get my treatments at University of Michigan. My oncologist team all are in the GI canzer unit and specialize in liver tumors. It is a very specialized group. You need to know that I don't pick doctors like a normal person. Bedside manner is ok but it makes me nervous. I like the geeky science guys that spend more time in research than with patients. I never ask patients for recommendations for docs because most people (in my experience) like the warm and fuzzy. I really like the old guys that have 'gotten over themselves' and are past the god complex. The geeky guy with a Nurse Practitioner that translates into human.
I have heard conflicting things about CTCA. I'm just not sure. I tend to stick to the NCI Comprehensive canzer Center list. That doesn't mean they can't be a good option, just my opinion. (My opinion is usually worth what you've just paid for it :P) My center (and many others I suspect) is starting to acknowledge the mind/body/spirit connection. At U of M there is a baby grand piano in the lab. Several times I've sat right beside or behind the harpist in the infusion room. They have snacks available for survivors/lovegivers: bagels, ice cream, sherbet, Popsicles, soda, coffee, juices, water, tea, hot chocolate, hot apple cider. They have a masseuse for foot, hand and shoulder massages during infusion.
Like I said, I think I have the best doctors available, but they are probably not what most patients would choose. I consider one of them the equivalent to Dr. House without the drug addiction. You may be looking for Dr. Welby.
Hugs,
Kimby0 -
Fantastic News
kimby
It is so great to hear your fabulous news. You are an inspiration to everyone. You are always there for others..to lift up and support. Enjoy the moment...have a great BBQ..we are so thankful for the great news...Will keep you in my thoughts and prayers.
Hugs.
Anna0
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