DFSP

kmw1115
kmw1115 Member Posts: 2
edited March 2014 in Sarcoma #1
I've just been diagnosed with DFSP through a resection of a tumor located on my right hip. I'm 19 years old and a cancer survivor of a rare brain tumor which is now in remission. My next step is to have the MOHS surgery in about 1-2 months to let the initial surgery heal. Can anyone give me any information about their treatment and what questions I should ask my doctor.

Christofer

Comments

  • diosel
    diosel Member Posts: 2
    #2
    WELL I HAD THE SAME THING
    WELL I HAD THE SAME THING DFSP BUT WE WENT WITH SURGICAL SURGERY AFTER THE THIRD SURGERY WE GOT NEGATIVE MARGINS AND THEN I HAD A SKIN GRAPH DONE THE SKIN GRAPH IS THE MOST PAINFUL THING IN THE WORLD THERE IS ALSO MEDICINE CALLED GLEEVEC I WAS TOLD IF YOU HAVE ANY OTHER QUESTIONS EMAIL ME AT DIOSELRODRIGUEZ@GMAIL.COM ALSO THEY HAVE TO SEE IF IT HAS NOT SPREAD CT SCAN, BONE SCAN AND A PET SCAN GOOD LUCK
  • she150
    she150 Member Posts: 3
    #3
    Dermatofibrosarcoma
    I have just been diagnosed with this growth on my shoulder. I go on 06/02 for mohs surgery. This growth was biopsied in 2000 and was listed as a dermafibroma but changed to cancer and I do not know for how long.

    It appears from some other posts that I will need to get a oncologist. I currently have a dermatologist who is very experienced in mohs.

    Please let me know your experiences and anything that I should ask or be aware of.

    Thank you for your time.

    Sheila

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