My Husband has stage 4 colon cancer

Paula G.
Paula G. Member Posts: 596
edited March 2014 in Colorectal Cancer #1
Hey everyone my husband has now joined the group. I think it will help him see that he is not alone. If you see JR that's him. I check it out almost everyday. Best to all of you Paula G.

Comments

  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #2
    JR.......get your butt in here
    Hi....names Buzzard....nice to meet ya....hello...anyone home ???....come on in and sit a spell, as much as we are sorry for the reason your here we are happy you came.....?
  • Paula G.
    Paula G. Member Posts: 596
    #3
    Buzzard said:

    JR.......get your butt in here
    Hi....names Buzzard....nice to meet ya....hello...anyone home ???....come on in and sit a spell, as much as we are sorry for the reason your here we are happy you came.....?

    HI
    I am trying to get him going. I just joined a couple of weeks ago and was telling him about it. I have found a lot of hope ( which I needed badly) So much great information as well. I don't know why you were gone and hope it wasn't illness but love the picture and your sign name Buzzard. My husband JR is doing well on Chemo 5th tratment. We know it is working because his liver has gone down in size and it isn't sore anymore. I added you to my friends list I hope that's okay with you. See you around for a very long time. Paula G.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #4
    Paula G. said:

    HI
    I am trying to get him going. I just joined a couple of weeks ago and was telling him about it. I have found a lot of hope ( which I needed badly) So much great information as well. I don't know why you were gone and hope it wasn't illness but love the picture and your sign name Buzzard. My husband JR is doing well on Chemo 5th tratment. We know it is working because his liver has gone down in size and it isn't sore anymore. I added you to my friends list I hope that's okay with you. See you around for a very long time. Paula G.

    Back at ya......
    Adding me is fine ...I added you back...I was gone for stupid reasons and no need to go into it....Im glad your here and Im glad im back and that's all there is....This is the best place you could possibly be for everything from a shoulder to a thorough exam...Here you can get it all....and we don't charge anything....Just open up, be yourself, and Welcome Home........your in good hands with all these people in here......
  • Shayenne
    Shayenne Member Posts: 2,342
    #5
    Buzzard said:

    Back at ya......
    Adding me is fine ...I added you back...I was gone for stupid reasons and no need to go into it....Im glad your here and Im glad im back and that's all there is....This is the best place you could possibly be for everything from a shoulder to a thorough exam...Here you can get it all....and we don't charge anything....Just open up, be yourself, and Welcome Home........your in good hands with all these people in here......

    Welcome!
    We love meeting new people here.. HI there JR as well! This is where I came when I was in a dark place, and was immediately helped, and have been feeling better since! Yes, the reason he was gone is just better to forget, and not brought up anymore, we are all connected in this disease, and all we want to do is see what everyone is going through, and giving people more hope and all.

    Now, to get Diane back here....
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #6
    That's good
    I'm glad you got JR to join, too. Tell him to post any questions or feelings that come up!

    *hugs*
    Gail
  • kmygil
    kmygil Member Posts: 876 Member
    #7
    Yoo Hoo! JR!!!
    Hey JR! Come 'n' set a spell...

    Kirsten
  • Paula G.
    Paula G. Member Posts: 596
    #8
    Thanks everyone
    Thanks everyone I don't know everyone yet but I'm trying. This crap is so scary and it has helped reading peoples stories. I don't know what I am doing yet on the board. Is there anyway I can look up people's DX to compare treatments and stuff??? Let me no Paula G
  • Shayenne
    Shayenne Member Posts: 2,342
    #9
    Paula G. said:

    Thanks everyone
    Thanks everyone I don't know everyone yet but I'm trying. This crap is so scary and it has helped reading peoples stories. I don't know what I am doing yet on the board. Is there anyway I can look up people's DX to compare treatments and stuff??? Let me no Paula G

    Click.....
    ...on our nicknames and that should bring you to our profile where our stories are :)
  • ldot123
    ldot123 Member Posts: 272
    #10
    Shayenne said:

    Click.....
    ...on our nicknames and that should bring you to our profile where our stories are :)

    Hey JR
    Come on in a chat. You will not find a more positive group of people. I have been on other cancer support sites and this in my view is the best.

    Cheers, Lance
  • bdee
    bdee Member Posts: 304
    #11
    Me too, Stage IV colon cancer
    I, too, was diagnosed with Stage IV Colon Cancer after having surgery on January 23, 2009, for a tumor 30 cm x 36 cm. The doctor told my family after surgery that it was pseudomyoma peritoneil and was benign. It was heart breaking to learn six days later that it was mucinous adenocarcinoma of the colon or stage IV colon cancer. A rare but deadly kind of cancer that is hard to fight because the mucous can come back. The mucous carries the cancer cells all over my insides.

    After surgery I had seven tumors that were unseen by the surgeon because of the mucous. They weren't big, but I was still scared. The doctor started me on 8 treatments of Oxaliplatin, 5fu, Avastan and Leucovorin. After the fifth treatment, I had lost 61 pounds, could barely walk, and had no memory of my day to day activities. The doctor decided after the eighth treatment to stop the Oxaliplatin because my CEA was 2.7 after being 13.8 before surgery and because he knew I was one of the few people on the planet who was being this adversely affected by Oxaliplatin.

    I don't want to scare you, I just wanted you to know that there are more people out there with Stage IV and my doctor said out of 70 he had on the above treatment, only two couldn't take it. Me and a 70 year old man with Parkinsons. I'm only 54 and was in good health before the tumor started growing. It took 6 weeks from the start of the tumor until I had it removed, so you can see mine was a fast growing tumor.

    Good luck, JR, and ask any questions you want to. I'll be glad to answer them as best as I can. I was scared to death from the time I left the hospital until 4 weeks later when I started chemo.

    Debbie

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