Nasopharyngeal cancer

Mr Taipei said:

End of treatment
Thanks Ron, we appreciate your support.

Well, the treatment is finished, and in the end my wife's white blood count held up, so she had 35 radiotherapies and 7 chemos. She got quite a bit more mucositis in the last couple of weeks and has been vomiting in the last couple of days (which the doctor says is a bit odd - could be a bug rather than reaction to the treatment), but she's managed to eat food all the way through the seven weeks, and even ate some KFC a couple of days ago! She's been supplementing her food with some Ensure drinks for the last few days, although she's found it difficult because of the vomiting. She's lost about 4 kilos through the treatment, which is really good I think. Now we look forward to the recovery.

We'll be back into the hospital at the start of November, and the dreaded MRI will take place shortly after then, although I'll have gone back to England before that time. The CT scan she had for reprecisioning a few weeks ago still showed some cancer cells in the primary site and neck nodes (as expected - it was only half way through the treatment), so I'm just hoping that she's responded well enough to the final half of the treatment to get rid of whatever was left. She's also just been given a blood test for EBV levels and antibodies, which I think can be predictive of recurrence... scary stuff, I don't really like thinking about it to be honest.

P.S. I'll tell her she won't have to shave her neck any more!!!

sfsquared said:

hi hondo,

just came across your post. I'm thirty six years old male.
nov o6 was diagnosed with npc stage4. did 36 rounds of irmt radio with chemo(cisplatin,5-fu). finally I was starting to live with the new me. just had a recent ct scan and
something suspect showed up. went in for a tissue biopsy came back positive. few
days ago did pet scan and again something suspect in left lower lung. wont find
out results until mom or tues. I'm already freaked out about the treatments. my
radiologist said basical more of the same treatment followed with boost cybernife radio.
chemo doc says different drugs will be used because the other drugs did not work. I
just wanted to know more about your 2nd treatment. what they told you and what you
chose. how you handled the second time around. I guess any information would be of
great help. it was so tough the first round i'm so scared to step back into the ring.

steven

Hondo said:

Hang in there
Steven

The 2nd round is not easy like the first was. And the affects from the radiation & chemo stay with you longer after treatment stops. But the fact is I made it and I am doing well despite that it has moved to the other side of the Nasal passageway.

If you go for the 2nd treatment you can make it, but it will take a lot of prayer. My faith and my wife by my side was all I had to hold onto at times. Keeping a positive motive is the driving force that will give you the edge to a full recovery.

Also I never stop working while in treatment, it kept my mind off my problems during the day, I thank God that I work for a group of people who understood what I was going through and let me come in late and leave early.

I have a lot of problems with memory and my jaw can’t open more then ½ inch but I can eat just as much as anyone else just slower.

There are a lot of things you can do to help your body fight the cancer. Build up your bodies immune system, keep your alkaline level above 7.2 and stay away from ALL sugar product. Remember Sugar is Cancers main food source, doctors will not tell you this but when you do a PET scan the radiation they give you is mixed with sugar water. The sugar water attaches its self to the Cancer and the machine can then see the radiation in the group of cells.

Eat as many fresh fruit as you can the body will turn the acid in the fruit to an Alkaline and the natural sugar in the fruit will reinforce the good cells not to turn to cancer.

I will be praying for you and if you need to contact me you can do so anytime day or night.

timhonmc@aol.com

antmeme17 said:

NPC/HELP PLEASE
TIM
I HAVE JUST BEEN TOLD I HAVE THIS NASO CANCER , I START 1 CHEMO TREATMENT NEXT WEEK on THURS, JUNE 11 AND I BELIEVE THE RADIATION MAY START MONDAY WITH 6 WEEKS 5 DAYS A WEEK . I AM ABSOLUTELY MORTIFIED AT ALL OF THIS BAD NEWS I HAVE BEEN GIVEN . I HAD TO HAVE MY TEETH PULLED OUT AND OH HOW HORRENDOUS THAT WAS SINCE I DIDNT OR ANYONE ELSE I KNOW DIDNT EVER HEAR OF THIS ! THEN HE SAID THEY WERE GOING TO BURN MY NECK FROM THE INSIDE OUT LIKE A MICROWAVE !!!!!!!! THE DR. SAID YOU WILL HATE MY GUTS AND FEEL LIKE YOU ARE BREATHING FIRE AND I WONT BE ABLE TO SWALLOW , MAYBE NOT BE ABLE TO DRINK BUT HAVE TO EAT AND DRING ALL THESE LIQUIDS A DAY ! I HAVE NEVER BEEN A WATER DRINKER EVER AND HE SAID I WILL LEARN BUT THEY WONT PUT A FEEDING TUBE IN MY STOMACH ? THE CHEMO DR.SAID THEY WOULD BUT RAD DR. SAID NO PROBABLY CUZ I AM SO FAT ALREADY LOL ! ?? THE MASK WaS HORRIBLE AND I PRAYED AND PRAYED THAT IT WOULD GET BETTER BECAUSE I COULDNT BREATHE UNDER IT ! SOME ONE SAID TO TAKE A VALIUM OR ZANAX? THEY GAVE ME ZANAX WHEN I FIRST LEARNED OF ALL THIS BECAUSE I JUST WANTED TO END MY LIFE RIGHT THEN ! IT WAS THAT OLD DEVIL MAKING THE FEAR WORSE AND IT TOOK A LOT OF PRAYERS TO GET ME THRU THE FIRST PHASE. I JUST FEEL SO ALONE AND NO ONE UNDERSTANDS WHAT I AM GOING THRU , THEY DO , BUT THEY DONT ! AND I JUST KEEP SCREAMING AT THEM ! AND THEN I CRY ! DID THE MASK MAKE YOU FEEL AFRAID? I SURE HOPE YOU CAN TELL ME ABOUT THESE RADIATION TREATMENTS ! I KNOW ABOUT THE CHEMO , SICK, TIRED, NO HAIR AND I THOUGHT THAT WOULD BE HORRIBLE BUT THIS RADIATION SOUNDS LIKE SOME HORRIBLE STUFF AND I DONT KNOW IF I AM STRONG E- NUFF TO GET THRU IT ?? I ASKED THE DR. WHAT WOULD HAPPEN IF I DIDNT GO THRU THIS AND HE SAID I WOULD DIE A HORRIBLE DEATH BY STRANGULATION IN ABOUT ??? 2 YEARS I THINK HE SAID ? SO I HAVE OPTED TO TRY THIS ?? PLEASE HELP ME IF YOU CAN ! I JUST WANT THE TRUTH TO WHAT I AM HONESTLY FACING AND HOW LONG AND WHEN WILL I FEEL GOOD AGAIN ????
THANK YOU , GOD BLESS YOU MY BROTHER IN CHRIST
MARY{A CHRISTIAN FEELING VERY SCARED ! antmeme17@yahoo.com

diamond-n-the-rough said:

AGRESSIVE
susanne hoping for the best for you, your husband & your family. I am a eight year survior of Nasopharyngeal carcinoma. this is one of the more agressive form of cancer, because it is so rare. After visting a doctor for 8 months for a sinus infection, i was, diagnosed week later with cancer, in the last stage (4) MY doctor told me that, in 8 mon. times cancer had already eaten a large hole through the base of my skull. but i make it, so will your husband. " please listen ! we get angry, mad, and upset. but prepare yourself for this, someday we want to be left alone, someday we want to be babied. I couldnt eat or drink for nine months ,but the lord held me in his arms and feed me with love, mercy grace and with his strength ! what ever happen, dont give up, or forget to pray . prayer can make a big different. remember somedays are going to be harder than other. so if you need to cry just let go.head up he might hate you , but that's just the drugs talking.

Purplemountain said:

NPC treatment side effects concern

Hello.  I am currently receiving treatments (chemo and radiation) for NPC "early" stage as I was told.  I am into my first week of treatment.  Today I have an oral yeast infection in the back of my throat.  It causes difficulty swallowing.  I am going to have radiation done tomorrow and will see the doctor as well.  Can anyone tell me more about this from their experience? Thanks.

This thread is pretty old.  You'll want start a new thread.  Go back to Head and Neck Cancer discussusion board, and find the link to start a new forum/discussion.  I need to start getting ready for work, but I'll check back later.