Semi-Colon Roll Call

Round Rock!!
Kay, here, from Round Rock, Texas....outside of Austin. A huge round rock resides in a small creek in the center of town...thus...Round Rock!

Diagnosed in 2003 with stage 3 sigmoid colon cancer. Given Folfox before it was even approved for stage 3...135mg! NED since completing chemo in the summer of 2004.

Hugs to all,

Kay

impactzone said:

Stage 4 here dx 9/06. Liver
Stage 4 here dx 9/06. Liver surgery, 2 lung surgeries, Folfox, I am now suffering emmmm... "recovering" at home from the second lung surgery. Over all things went OK. Surgery Monday and a tough first day... a horrible experience Tuesday with a couple collapsed lungs and real struggles. I actually had the Code "You are going to die" team come in to fix me up..(It actually looks more dramatic on TV and not from a patients viewpoint.) Of course then, because it’s a teaching hospital, all day people came in and poked and proded and bleed me when their class was out to add to their resume of experiences as a Stanford med student. Seriously, I kid around, but this time I was scared to death that morning... I wish I was smart and witty but all I could focus on was a poster made by the science dept right in front of me and just the good memories there saved me as much as the ventilators and drugs given. It truly is amazing how a little kindness shown can really matter. Right now I just hurt... lungs, breathing, back, side... but it will get better. I can not wait to get back to work.



On the good news side, there was only one met that he could find by palpating the lung. He did have to do the open procedure which was OK with me. Next big question coming up the 30th is follow up chemo. I have faced this before and was told that with lung mets, there really isn't data out there and I still have a below 1 CEA and NED. I will ask more later about this.

Thanks all

Chip

thinking of you
Wow Chip! I will keep you in my prayers. So sorry you are hurting.
Aloha,
Kathleen

DX 7/29/03 StageIV,
DX 7/29/03 StageIV, colectomy, radiation, chemo 5FU, oxillaplatin, leucovorin, colostomy reversal, port removed... NED since 2004!

Gail

Im Here
Live in a small town about an hour outside of Phoenix called Coolidge.

May 07 DX at age 38, had some bleeding, did a colonoscopy and the doc called me the next day to tell me I had cancer, within two weeks I had seen a colon doc and a ONC and has surgery to remove part of colon, found out it was stage 3 with some lymph nodes involved. Started chemo in July 07 for 3 months, then 6 weeks of radiation and oral chemo (xeloda) then 3 more months of Chemo. Finished in late Feb 08, PET scan revealed no cancer anywher so I was considered NED. Had my 3 month check up in June, cat scan found somethingin lung, did a PET scan it didnt lite up so was again cleared. Next 3 month (Oct 08) check up again cat scan found something in lung, this time the PET scan lite up. Had a biopsy to see if it was colon cancer or another primary cancer, Nov 12 08 was told it was colon cancer, Nov 18 had surgery to remove it, got great margins and the path report said the margins were clear no cancer. Dec 08, started Xeloda and I am starting my 6th round today, two more to go after this one.

I have to be honest, I am totally scared to death about it coming back. But I pray and try to stay positive. I love reading so many good stories were people are NED and staying that way. I pray that this time I will stay NED as well. I also always include everyone here in my prayers, this board has been a godsend to me and I thank everyone of you from my heart for being there for me on so many occasions.

God Bless
Beth

dorookie said:

Im Here
Live in a small town about an hour outside of Phoenix called Coolidge.

May 07 DX at age 38, had some bleeding, did a colonoscopy and the doc called me the next day to tell me I had cancer, within two weeks I had seen a colon doc and a ONC and has surgery to remove part of colon, found out it was stage 3 with some lymph nodes involved. Started chemo in July 07 for 3 months, then 6 weeks of radiation and oral chemo (xeloda) then 3 more months of Chemo. Finished in late Feb 08, PET scan revealed no cancer anywher so I was considered NED. Had my 3 month check up in June, cat scan found somethingin lung, did a PET scan it didnt lite up so was again cleared. Next 3 month (Oct 08) check up again cat scan found something in lung, this time the PET scan lite up. Had a biopsy to see if it was colon cancer or another primary cancer, Nov 12 08 was told it was colon cancer, Nov 18 had surgery to remove it, got great margins and the path report said the margins were clear no cancer. Dec 08, started Xeloda and I am starting my 6th round today, two more to go after this one.

I have to be honest, I am totally scared to death about it coming back. But I pray and try to stay positive. I love reading so many good stories were people are NED and staying that way. I pray that this time I will stay NED as well. I also always include everyone here in my prayers, this board has been a godsend to me and I thank everyone of you from my heart for being there for me on so many occasions.

God Bless
Beth

Diagnosed...
Stage 3 in May 2008 at the age of 32, 2 feet of colon removed, 9 lymph nodes, 1 positive

Underwent 12 rounds of FOLFOX and found out cancer had spread despite that.

Now: Stage 4 as of January 2009, 1 liver met, 2 intra-abdominal mets, all surgically resectable

Currently undergoing FOLFIRI+Avastin, will have reconnection/resection surgery in June 2009 after my 6th treatment

CT/PET showed all stable after my 3rd FOLFIRI treatment with some very slight shrinkage of liver met.

I live in New Hampton, NH and go to Mass General for my treatment.

Hugs and Prayers to all,
Elizabeth

Long Island, New York
Hi all. Wow, it's been a long time. This site is like an old friend, always there when you need them.

Stage 3 Rectal CA.
Diagnosed March 04
6 weeks Chemoradiation ( 5Fu )
Surgery - 15 inches of colon, 95% of rectum
Follow up Chemo - Oxy until I decided the chemo would kill me.( 3 out of 12 treatments) Switched back to 5FU to finish.
Getting ready to do the Happy Naked Dance for the 5th time in June ( NED 4.10years )

Barb

KathiM said:

I got the 2-fer....
I live in Southern California. Dx stage III rectal ca 12/2004. PET scan found unrelated breast cancer...could someone PLEASE remove me from the list I managed to get on twice!!!!!

Last treatment was rads for breast cancer 7/2006. NED on both ever since. Actually, NERD on rectal (after removal of rectum and sig colon, J-pouch fashioned from descending colon) 5/2005.

Hugs, Kathi

P.S. Hans drove today (without my knowlege...sigh...scared the PEE out of me...demanded the car keys, felt like I was talking to a kid!!!!). But, he is doing better...must be all those grand thoughts from you all!!!

Kathi
I am on that list also. Back in 1994 I was DX'd stage 1 cervical cancer, and when they were doing the surgical work-up, discovered uterine cancer, also stage 1. I was told they were two primaries, coincidence on showing up at the same time. Surgery for both, no rads or chemo. Fine after about 6 weeks.

When the colon cancer showed up now, the first thought was it somehow stemmed from the uterine cancer. Nope - my 3rd primary. I want off the list also!

Vicki

tkd3g said:

Long Island, New York
Hi all. Wow, it's been a long time. This site is like an old friend, always there when you need them.

Stage 3 Rectal CA.
Diagnosed March 04
6 weeks Chemoradiation ( 5Fu )
Surgery - 15 inches of colon, 95% of rectum
Follow up Chemo - Oxy until I decided the chemo would kill me.( 3 out of 12 treatments) Switched back to 5FU to finish.
Getting ready to do the Happy Naked Dance for the 5th time in June ( NED 4.10years )

Barb

SHRINKAGE!
Hey there! How the heck are you, Elaine?

Too long!