Hello newbie here

Sonia32
Sonia32 Member Posts: 1,071 Member
edited March 2014 in Colorectal Cancer #1
I came across your wonderful site by accident, as I was looking for inspiring survival stories and boy have I found them on here. Firstly have to say you are all positive and inspiring folk and I think I have been brought to this site for a reason.
Firstly I'm Sonia, 32 years old, from England. I'm married to my wonderful husband Greg two years this year.
I got diagnosed with colon cancer in February 09, by March the 11th had my surgery to remove a tumour from the right side of my colon.
I have been so positive up until Tuesday when I got my results, stage 3 cancer with 10/11 lymph nodes removed infected, it hasn't spread anywhere else. Have to start chemo in a few weeks time, surgeon says they need to mop up any remaining cells with the chemo, which will be for 6 months. When I got my results on tuesday was really angry then upset. Later on that evening felt as if though I was going to pass out got lightheaded,that scared me then my heart started to race because of it. I thought hello got the news,, now I'm off? thought I was going to die. Asked my husband to call an ambulance, throw up but felt better after, went to A&E they checked me over was better, the doctor and I both came to the conclusion it was severe stress, I even think I had my first panic attack. Then on Wednesday I started to feel like I was really getting down, thinking a cough, or bad stomach from previous night, is it the cancer or just me, but apprently it's common to feel anxiety etc. I have been up and down like a yoyo, I even think my depression has returned. Just think my husband and I have been through so much (bad childhood, then mum getting ill seriously twice once in 2000, then 2007 with breast cancer, she held on until I got married in August 2007, she died 10 days after :'-( Was just getting through my depression now this, and I feel my husband does not deserve it.
I'm so sorry for going on with this post, it's the first time I've been able to post about my results since Tuesday. I am a member of Macmillan in the UK, but didn't even have the strength to post on there until I came across you wonderful angels. I know with my husband with me, my friends, my father (my brother and sister fell out with me before the surgery) and angels like yourself, I will and have to get through this
Hugs to you all
Sonia

Comments

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Greetings Sonia
    Welcome aboard, too bad this is a cancer related site and we all have had the unfortunate luck to have cancer.
  • ldot123
    ldot123 Member Posts: 272
    PhillieG said:

    Greetings Sonia
    Welcome aboard, too bad this is a cancer related site and we all have had the unfortunate luck to have cancer.

    Hang In There Sonia
    Hi Sonia,

    You will see a lot of positive stories on this site. The people here are the best for supporting each other through their fight. I had Stage 3 with 2 nodes involved 2 years ago. I had 6 months of chemo also. I just had a checkup and everything looks good. I know what you are going through. You have a range of extreme emotions that everybody experiences. You are not alone and you will beat this.

    Cheers, Lance
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    PhillieG said:

    Greetings Sonia
    Welcome aboard, too bad this is a cancer related site and we all have had the unfortunate luck to have cancer.

    Thanks for the welcome
    Sorry for smiling think its the first time I've smiled while on a site like this especially since tuesday, I'm not sorry I've come across this site and I know we are all in the same boat, you all have inspired me to join! thank you
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    ldot123 said:

    Hang In There Sonia
    Hi Sonia,

    You will see a lot of positive stories on this site. The people here are the best for supporting each other through their fight. I had Stage 3 with 2 nodes involved 2 years ago. I had 6 months of chemo also. I just had a checkup and everything looks good. I know what you are going through. You have a range of extreme emotions that everybody experiences. You are not alone and you will beat this.

    Cheers, Lance

    Thanks Lance
    As I mentioned, you are all so inspiring that since I got my results this is the first time I can really talk about it. I'm so glad you have got through your surgery and chemo etc, and two years later you are still here. lol feel like I'm wheling up inside again, just folk like you, my hubby, friends, family and god are the reasons why i get hope. Thank you
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    PhillieG said:

    Greetings Sonia
    Welcome aboard, too bad this is a cancer related site and we all have had the unfortunate luck to have cancer.

    I wanted to say more...
    Welcome aboard, too bad this is a site for cancer and not the millionaires club or something a little more fun. I think you will find this site to be very informative and at times even a slightly entertaining. We have people from all different backgrounds and who have differing opinions too so it's not just a bunch of cheerleaders nor is it gloom and doom. We do keep it supportive, but also realistic. At least that is how I approach the whole topic of cancer. Myself, I have stage IV colon cancer and have been living with cancer(pretty well I might add) for a little over 5 years. I've had a bunch of operations and very many rounds of chemo but all of that has keep me going. I am riding the top of the wave of technology it seems. I'm very lucky for someone who has cancer.

    It sounds like you had a hell of a month. Much has happened in a short amount of time for you. I think it's good to be aggressive with the treatment if you are able to withstand it. It can be rough on one's body but then again, everyone reacts differently. Remember, you are all unique, just like everyone else. It sounds like your Oncologist is handling things in a good manner. It's important to go after any stray cells that may have escaped the operation. I've heard of a few cases where the doctor doesn't feel it's necessary to follow up with chemo after an operation. Personally, I don't think that's a good idea. You need to make sure none of those cells get away.

    I have found that this is a roller coaster of emotions and feelings. It really took me a while to get angry, my first reaction was to just give it all I could and for them to hit me with everything they had. After a while I got a little angry but I am thankful that I got it and not my wife or kids. I never got into the whole "why did this happen to me?" thing or "I'm being punished for something I did". If I played that game, how would it explain the behavior of many people out there (and we know who they are...). I think one great thing I did for myself was to see a therapist to help me cope with all of the feelings I have been going through. I also took advantage of anti-depressives and anti- anxiety medication. I feel that is why they are there and if there's ever a time when one needs that "help", now is it.

    It is a yo-yo or roller coaster and there is never any need to apologize for "going on in your post", that's why this site is here. We are all here for support. I am sorry to hear about your Mum, that's rough. I do this myself at times, but try to not think about how this is affecting your husband. You didn't plan on getting sick and I'm sure he knows that. Life's funny, we really don't know why this or that happens, it certainly isn't fair and I don't think we are being "tested" by anyone. It's just rotten luck.

    You've come to a great place for support, feel free to post questions or comments on ANYTHING at all here.
    {{{Hugs to you}}}
    -phil
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    PhillieG said:

    I wanted to say more...
    Welcome aboard, too bad this is a site for cancer and not the millionaires club or something a little more fun. I think you will find this site to be very informative and at times even a slightly entertaining. We have people from all different backgrounds and who have differing opinions too so it's not just a bunch of cheerleaders nor is it gloom and doom. We do keep it supportive, but also realistic. At least that is how I approach the whole topic of cancer. Myself, I have stage IV colon cancer and have been living with cancer(pretty well I might add) for a little over 5 years. I've had a bunch of operations and very many rounds of chemo but all of that has keep me going. I am riding the top of the wave of technology it seems. I'm very lucky for someone who has cancer.

    It sounds like you had a hell of a month. Much has happened in a short amount of time for you. I think it's good to be aggressive with the treatment if you are able to withstand it. It can be rough on one's body but then again, everyone reacts differently. Remember, you are all unique, just like everyone else. It sounds like your Oncologist is handling things in a good manner. It's important to go after any stray cells that may have escaped the operation. I've heard of a few cases where the doctor doesn't feel it's necessary to follow up with chemo after an operation. Personally, I don't think that's a good idea. You need to make sure none of those cells get away.

    I have found that this is a roller coaster of emotions and feelings. It really took me a while to get angry, my first reaction was to just give it all I could and for them to hit me with everything they had. After a while I got a little angry but I am thankful that I got it and not my wife or kids. I never got into the whole "why did this happen to me?" thing or "I'm being punished for something I did". If I played that game, how would it explain the behavior of many people out there (and we know who they are...). I think one great thing I did for myself was to see a therapist to help me cope with all of the feelings I have been going through. I also took advantage of anti-depressives and anti- anxiety medication. I feel that is why they are there and if there's ever a time when one needs that "help", now is it.

    It is a yo-yo or roller coaster and there is never any need to apologize for "going on in your post", that's why this site is here. We are all here for support. I am sorry to hear about your Mum, that's rough. I do this myself at times, but try to not think about how this is affecting your husband. You didn't plan on getting sick and I'm sure he knows that. Life's funny, we really don't know why this or that happens, it certainly isn't fair and I don't think we are being "tested" by anyone. It's just rotten luck.

    You've come to a great place for support, feel free to post questions or comments on ANYTHING at all here.
    {{{Hugs to you}}}
    -phil

    Thank you Phil
    See I knew there was a reason why I accidently came across this site. Being a bit silly and getting upset again, not for a bad reason for a happy one, that there are angels out there like yourself, and your giving out such wise words of wisdom, and you've been through so much yourself. Hugs for hitting the five year mark and more. Honestly I may offend some British readers if they read this, as I am a Brit myself, but if you compare this site to the British site which is similar macmillan you are all a lot more stronger, positive and have faith, the latter which isn't mentioned much.
    Anyway I'm going to go before I get abuse from any Brits readers out there, have to add just my opinion. lol
    Will use this site a lot more, thank you again for your reply.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Sonia32 said:

    Thank you Phil
    See I knew there was a reason why I accidently came across this site. Being a bit silly and getting upset again, not for a bad reason for a happy one, that there are angels out there like yourself, and your giving out such wise words of wisdom, and you've been through so much yourself. Hugs for hitting the five year mark and more. Honestly I may offend some British readers if they read this, as I am a Brit myself, but if you compare this site to the British site which is similar macmillan you are all a lot more stronger, positive and have faith, the latter which isn't mentioned much.
    Anyway I'm going to go before I get abuse from any Brits readers out there, have to add just my opinion. lol
    Will use this site a lot more, thank you again for your reply.

    You're most welcome Sonia
    We Yanks tend to let it all hang out, well some of us do some of the time... We all have to think more globally, cancer isn't an American problem, or a British problem or even a (gulp) al-Qaeda problem. It's like AIDS or the plague. It's everyone's problem and we all need to help solve it and support each other.

    Thank you for your kind words but as you may see, I have a bit of the devil in me :-)
    Do add your opinion though Sonia and don't just follow the crowd if it isn't how you feel. That's actually another good thing about cancer, I find I speak my mind more and don't hold back. I do try to be sensitive to others and sometimes I get a rather bloody lip and tongue from bitting it.

    I will, and I'm sure others will also, try to help as best we can.
    'nite and again, welcome to America!
  • hoagiemom
    hoagiemom Member Posts: 87 Member
    PhillieG said:

    You're most welcome Sonia
    We Yanks tend to let it all hang out, well some of us do some of the time... We all have to think more globally, cancer isn't an American problem, or a British problem or even a (gulp) al-Qaeda problem. It's like AIDS or the plague. It's everyone's problem and we all need to help solve it and support each other.

    Thank you for your kind words but as you may see, I have a bit of the devil in me :-)
    Do add your opinion though Sonia and don't just follow the crowd if it isn't how you feel. That's actually another good thing about cancer, I find I speak my mind more and don't hold back. I do try to be sensitive to others and sometimes I get a rather bloody lip and tongue from bitting it.

    I will, and I'm sure others will also, try to help as best we can.
    'nite and again, welcome to America!

    2 plus years NED
    Hi Sonia, I just want to chime in and tell you that it is going to be alright. I'm stage III as of Feb 2007. I was you two years ago and now I made it and loving life. You will get through this it sounds like you have great support at home and that is a huge help. My life is now semi normal (I don't think it will ever go back to normal) but I feel great. I'm only on Vitamins (my brother who is 6 years younger and takes more medication then I do and he is consider healthy). The first 6months are the worst but then you will start to feel better. I'm exercising and feeling great. Rant,cry,scream and then pick yourself up and start the new day. Take care and use this board it was my life saver because as great as my family was during that time they just don't understand how we feel and what we are going through with this journey. People here are the most loving and caring people I've ever come across. Take care and keep us posted.. Michelle
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    Hi There!
    HI Sonia, wish you weren't here! Wish you didn't need to be here. However, welcome my new friend!

    I was dx'd on Jan. 2nd and had surgery on Jan. 7th. Stage III with five out of 17 lymph nodes showing a 'few cancer cells'. I've had 3 chemo treatments (one yesterday and still have my fanny pack a pumping).

    God is good and we're survivors! Ask questions and we'll do our best to answer. Share how you feel because most of us have felt that or ARE feeling that! Smile! Exercise! Eat Right! PRAY.... and have faith.

    Diane
    *age 58 and never been sick in my life til this!
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Welcome
    Hi, Sonia.

    Welcome to this site. I'm so glad you feel welcome and comfort here. It's been a blessing to me and to so many others, as well.

    You're in a stage right now where it seems like a truck ran over you. I remember my early days after diagnosis, where I just would be overwhelmed with emotion. I still get anxiety over testing or something like that, but I'm so much better. Beelieve me, you WILL feel stronger.

    Come back and keep us posted on your progress. There are many wonderful people here who will be able to answer questions and calm fears.

    *hugs*
    Gail
  • daydreamer110761
    daydreamer110761 Member Posts: 487 Member
    tootsie1 said:

    Welcome
    Hi, Sonia.

    Welcome to this site. I'm so glad you feel welcome and comfort here. It's been a blessing to me and to so many others, as well.

    You're in a stage right now where it seems like a truck ran over you. I remember my early days after diagnosis, where I just would be overwhelmed with emotion. I still get anxiety over testing or something like that, but I'm so much better. Beelieve me, you WILL feel stronger.

    Come back and keep us posted on your progress. There are many wonderful people here who will be able to answer questions and calm fears.

    *hugs*
    Gail

    Welcome Sonia
    Stage III with 2/17 nodes here. Welcome to the site. I was dx'd back in November, had emergency surgery on my birthday and started chemo in December. I'm about to start number 9 next week, but I'm not that far away that I don't remember exactly how I felt in November! It's not so bad, I try to think of it as a huge annoyance, then I get on with everything. Just one day at a time. Ask away and everyone will answer, this is a great crowd here, and they even worry when you don't post for a day or so.....

    Sherrie
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    welcome
    Hi Sonia,
    Welcome. This is a wonderful group of people. They have been such support for me and my husband (He has Stage IIIc, 7/17 nodes were cancerous). His surgery was on 1/27/09 and he began chemo last week. The people on this board have answered all our questions (OK there are a few for the oncologist) and have been very supportive.
    We'll be here for you.
    Aloha,
    Kathleen
  • CherylHutch
    CherylHutch Member Posts: 1,375 Member
    Welcome aboard!
    Hey Sonia... welcome to the semi-colons club! I'm glad you found us, although I'm sorry for the reason you had to find us :/

    I echo what Phil said... feel free to come in and rant and rave or share a good joke, or a story of something dumb you might have done, or something silly you might have said and no one understood... we've all been there and done silly and dumb things... as well as smart and incredibly important things :)

    Yes, we come from all walks of life and believe it or not, from all different countries even right here on this forum! I hail from the West Coast of Canada and have some fellow Canucks on board from across this rather large country of ours ;) Of course, you will find American friends from all over the USA, even way out in the Pacific Ocean on the islands of Hawaii :D We have a few Brits come by and we even have a gal from Scotland. As great as this is that it doesn't matter where one lives, there is support a plenty, it's just too darn bad we all need it.

    But hey, there's always room for more friends and it doesn't matter where you live or what your religious affiliation... there are even those of us who don't have a religious affiliation... so you are bound to find someone who has a lot of the same interests/questions/likes/dislikes as you do :)

    Pull up a stump and make yourself at home! :)

    Huggggggggs,

    Cheryl
  • lisa42
    lisa42 Member Posts: 3,625 Member
    glad you found us
    Hi Sonia,

    I'm glad you "accidentally" found this site. That's how I found it myself, several months ago. I am 42 and was diagnosed a bit over a year and a half ago. What I thought was a stage 2 quickly changed to a stage 4 when I found out not only did I have a rectal tumor that had grown through the bowel wall, but that it was also in my liver and in both lungs. I thought I was going to die, but here I am now and everything is stable and under control- not life threatening. I've undergone surgery and a lot of chemo, but I'm still kicking, and able to do most all of what I did before.
    Cling to those you love and let it all out on this site. People here are great for advice, answers to questions, and definitely for emotional and even spiritual support. This board has become part of my life. Even though I have many people around me who care and ask about me, sometimes I just need to "talk" to others who are going through the same thing and really understand how I feel.

    Sorry you have the need to be here, but glad you are. Take care, God bless, and I'll look forward to reading your posts.

    Lisa
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    lisa42 said:

    glad you found us
    Hi Sonia,

    I'm glad you "accidentally" found this site. That's how I found it myself, several months ago. I am 42 and was diagnosed a bit over a year and a half ago. What I thought was a stage 2 quickly changed to a stage 4 when I found out not only did I have a rectal tumor that had grown through the bowel wall, but that it was also in my liver and in both lungs. I thought I was going to die, but here I am now and everything is stable and under control- not life threatening. I've undergone surgery and a lot of chemo, but I'm still kicking, and able to do most all of what I did before.
    Cling to those you love and let it all out on this site. People here are great for advice, answers to questions, and definitely for emotional and even spiritual support. This board has become part of my life. Even though I have many people around me who care and ask about me, sometimes I just need to "talk" to others who are going through the same thing and really understand how I feel.

    Sorry you have the need to be here, but glad you are. Take care, God bless, and I'll look forward to reading your posts.

    Lisa

    Thank you all so much
    For making me feel so welcome. Honestly I was feeling down this morning, got online and found all your messages. I have felt a lot more stronger today because of you all firstly, secondly my faith and my husband. Getting back on the fluoxetine I would put 3rd/4th. lol
    I have also started to walk around alot more, tomorror planning to go to the post office with my husband, its a long walk, but exercise is important and I need to get myself into shape for the chemo. Also I'm not sure if any of you are doing this also, but I'm taking alot of supplements from garlic to vitamin k (I will check with my oncologist), but I believe that combining chemo and alternative treatments is good, lol hope it is anyway. But as I'm off work reading a lot, so keeps me out of trouble. I have also just texted my key worker (she's a nurse who is assigned to me as she specialises in colon cancer)to arrange my oncology appointment at least 6 weeks after my surgery (had it on the 11/3). So I'm feeling a little bit stronger today.
    Hugs to you all
    Sonia
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    Sonia32 said:

    Thank you all so much
    For making me feel so welcome. Honestly I was feeling down this morning, got online and found all your messages. I have felt a lot more stronger today because of you all firstly, secondly my faith and my husband. Getting back on the fluoxetine I would put 3rd/4th. lol
    I have also started to walk around alot more, tomorror planning to go to the post office with my husband, its a long walk, but exercise is important and I need to get myself into shape for the chemo. Also I'm not sure if any of you are doing this also, but I'm taking alot of supplements from garlic to vitamin k (I will check with my oncologist), but I believe that combining chemo and alternative treatments is good, lol hope it is anyway. But as I'm off work reading a lot, so keeps me out of trouble. I have also just texted my key worker (she's a nurse who is assigned to me as she specialises in colon cancer)to arrange my oncology appointment at least 6 weeks after my surgery (had it on the 11/3). So I'm feeling a little bit stronger today.
    Hugs to you all
    Sonia

    No herbals during chemo!
    Dr. has stressed several times that herbals or extra vitamins (not talking regular one a day type multi vitamin here) are a no no during chemo. Extra vit. C in large doses causes the cells to 'close up' and won't allow chemo to do its job. The safety of herbals during chemo is very questionable.

    Remember, walking or exercising raises survival rates! Do a search on about.com for more info!

    God Bless!
    Diane
  • sheri22
    sheri22 Member Posts: 273
    Welcome
    Sonia sorry to hear you get to be a member of our club, but it is a positive one ,I felt like you when I first found out I had stage 4 colon ca. but reading the good things that can happenn has really helped me. Maybe all of us with good news could let you know the positives, Ill start. I had my CT scan and it showed the ca is shrinking in the lungs and the pelvic area also the level went from 125 to 40 as you read the different posts you will feel more hopeful good luck God bless