Diagnosed at 40
Comments
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Radiotherapy Clinics of GeorgiaOlee said:Great Appointment
Well my appointment went great! The staff at Dr. Scott Miller's office greeted us kindly and welcomed us in as if we were guest. Dr. Miller invited us into his office and we sat for a good hour and discussed things. He gave us a new perspective on robotic surgery with a few creative analogies as well as his extensive background using the technique. He was the first urologic laparoscopist in the state of Georgia. He performed the first laparoscopic kidney removal for cancer in the state of Georgia and later the first to do the procedure for prostate cancer. He also performed Georgia's first robotic prostate removal in 2003 and performs about 300 of these surgeries annually. We enjoyed his discussion because he gave no promises and sales pitches, just his experience and knowledge. We felt very comfortable speaking to him, he was not condescending or "God-Like" in his approach and listened very well. My wife and I knew it was getting late, but he encouraged us to ask more questions. It was interesting to hear the difference of opinion between two surgeons, which will actually change my treatment. After shaking his hand and thanking him for his time, we met with his surgical coordinator who was very friendly. My wife and I knew minutes into the meeting that this was the surgeon so when we were asked if we wanted to set a date we responded with a quick YES. I have robotic surgery set for February 19th with Dr. Miller. I can't tell you guys how scared I am, but how relieved I am to have a resolution to this surgery ordeal. Not to mention to finally have found a doctor that listens and informs, and communicates! After the two surgical consults I completed, I have to say they were like night and day. The one at Emory lasted about 10 minutes tops and the doctor did about 95% of the talking. It took place in a patient exam room and seemed like just another appointment to the doctor. I had two questions to ask him over the phone mind you,almost a month ago, and I have yet to receive that return call. The consult with Dr. Miller at North Side Hospital lasted a total of 1 1/2 hours and was conducted in the relaxed setting of his office. There was a mutual discussion between two parties and we felt as though we took part. My wife and I just wish we could have found the better of the two in the beginning. Thank you all for the concern and I will continue to update everyone. I also read your entries as I want to know how you guys are doing as well.
Olee, did you ever consult with a physician at Radiotherapy Clinics of Georgia?0 -
Pre-Op Appointmenttrain-nut said:Thank You
My friend will be in touch with you shortly. Dr. Miller has been recommended to him. Your assistance is very much appreciated. Please keep posting, you're probably helping more people than you know. My best to you.
I went for my pre-op appointment with Dr. Miller on Tuesday. It was an eye waking experience to sign the papers and recieve instructions. Dr. Miller brought me into his office where he talked to me some more about the procedure and answered more questions. He has been great through this process. I had the x-rays,ekg,blood work and answered question upon question, so now it's sit and wait. I feel like I just went through testing for a scheduled space shuttle lift off. I'm scheduled for robotic surgery on Thursday Feb 19th, I'm putting all my energy and hope into that day.0 -
Good luck on Thursday
Olee, good luck on Thursday! I had my robotic surgery on December 8th and Im doing great. My 30 day PSA test was 0.02, which is the standard for zero post op, and tomorrow my wife and I will be traveling through Atlanta on our way to Jacksonville for a Cruise to the Bahamas! (just 2 months post Op!) Im 42, so us young guys can recover quick and get on with life! I have no doubt you will do the same! Keep encouraging everyone as you are, this is your calling! I am getting knee deep in the local ACS "Man to Man" program to help those that I can. We all have a choice, "cancer can have us or we can have cancer!" You will be in my prayers on Thursday and I look forward to reading a good report on Saturday when I get back in port. God bless you and your family!
Bobby0 -
Surgery Up-Datemanybless said:Good luck on Thursday
Olee, good luck on Thursday! I had my robotic surgery on December 8th and Im doing great. My 30 day PSA test was 0.02, which is the standard for zero post op, and tomorrow my wife and I will be traveling through Atlanta on our way to Jacksonville for a Cruise to the Bahamas! (just 2 months post Op!) Im 42, so us young guys can recover quick and get on with life! I have no doubt you will do the same! Keep encouraging everyone as you are, this is your calling! I am getting knee deep in the local ACS "Man to Man" program to help those that I can. We all have a choice, "cancer can have us or we can have cancer!" You will be in my prayers on Thursday and I look forward to reading a good report on Saturday when I get back in port. God bless you and your family!
Bobby
Well everything went great last Thursday, it was a "text-book" surgery according to my surgeon. He said I bled very little and the tissues around the prostate looked good. It was a reality check when they rolled me into the ER and I saw the Da Vinci robot, it was like seeing your favorite movie star,athlete or comic book hero in person! I recognized it right away and it just raised my BP even more. Of course 5 mins later when I said my prayers and the nurse told me to breathe in deep and breath out slowly,I was out like a light. I awoke in recovery to the worst pain which was explained to me were bladder spasms. The nurse taking care of me quickly dispensed meds which eased it down. By the time I made it to my room I was awake but not coherent enough to even operate a remote control. I did recognize my wife right away as she walked into the room minutes after I was settled, although I couldn't say much I was smiling and jumping for joy deep inside. I was expecting to have the gas pains in the shoulders but that never materialized. I just experienced the uncomfortable sensation of the catheter and the continued bladder spasms. They gave the drug that I have heard many on here speak of that calms the bladder, the name escapes me at this moment, but for some reason it had a minimal effect on me. My stomach looks like I played dirty poker in the wrong saloon and someone went to work on me with a 6 shooter, mainly sore. I was amazed with the new procedure of "gluing"
the incisions closed. By Thursday night the nurse came around to take me for a walk down the hallway. I went all the way to the end and back, felt like I had run around the parking lot a few times, but I was proud. My doctor came in to see me Thursday and Friday morning, at which time he held an in depth conversation with instructions, answered all questions and told me I could go home. I've been home since and feel stronger everyday. The pain has graduated to mere tylenol and now I'm just dealing with the catheter and soreness from the incisions. My eyes are bigger than my feet if that makes sense, I feel as though I could walk around the block no problem but a short excursion tires me out easy right now. I feel much better than I ever thought I would after a surgery like this. Now comes the post-op visit on Friday, geez I can't wait to get the catheter out, and the follow up psa test. This has been a rough road with PC, one I will be on forever, but hopefully the roughest spots in the road are behind me.0 -
One day at a timeOlee said:Surgery Up-Date
Well everything went great last Thursday, it was a "text-book" surgery according to my surgeon. He said I bled very little and the tissues around the prostate looked good. It was a reality check when they rolled me into the ER and I saw the Da Vinci robot, it was like seeing your favorite movie star,athlete or comic book hero in person! I recognized it right away and it just raised my BP even more. Of course 5 mins later when I said my prayers and the nurse told me to breathe in deep and breath out slowly,I was out like a light. I awoke in recovery to the worst pain which was explained to me were bladder spasms. The nurse taking care of me quickly dispensed meds which eased it down. By the time I made it to my room I was awake but not coherent enough to even operate a remote control. I did recognize my wife right away as she walked into the room minutes after I was settled, although I couldn't say much I was smiling and jumping for joy deep inside. I was expecting to have the gas pains in the shoulders but that never materialized. I just experienced the uncomfortable sensation of the catheter and the continued bladder spasms. They gave the drug that I have heard many on here speak of that calms the bladder, the name escapes me at this moment, but for some reason it had a minimal effect on me. My stomach looks like I played dirty poker in the wrong saloon and someone went to work on me with a 6 shooter, mainly sore. I was amazed with the new procedure of "gluing"
the incisions closed. By Thursday night the nurse came around to take me for a walk down the hallway. I went all the way to the end and back, felt like I had run around the parking lot a few times, but I was proud. My doctor came in to see me Thursday and Friday morning, at which time he held an in depth conversation with instructions, answered all questions and told me I could go home. I've been home since and feel stronger everyday. The pain has graduated to mere tylenol and now I'm just dealing with the catheter and soreness from the incisions. My eyes are bigger than my feet if that makes sense, I feel as though I could walk around the block no problem but a short excursion tires me out easy right now. I feel much better than I ever thought I would after a surgery like this. Now comes the post-op visit on Friday, geez I can't wait to get the catheter out, and the follow up psa test. This has been a rough road with PC, one I will be on forever, but hopefully the roughest spots in the road are behind me.
Olee,
your day sounds exactly like mine a couple months ago. I was amazed at how tired I was after the surgery. I had to take a nap after I took a shower for the first week....Friday will be here before you know it and you will be back to the "new" normal soon. I watched lots of movies to keep my mind moving and off of the obvious. I saw your post about taking depends with you Friday, its probably a good idea until you get complete control again. I only wore mine for a three days. The keegle exercises definitely work so do them, it will speed your recovery and get the muscles developed and get you back in control. Good luck and I'll be praying for you! Pastor Bobby0 -
Congratulations!Olee said:Surgery Up-Date
Well everything went great last Thursday, it was a "text-book" surgery according to my surgeon. He said I bled very little and the tissues around the prostate looked good. It was a reality check when they rolled me into the ER and I saw the Da Vinci robot, it was like seeing your favorite movie star,athlete or comic book hero in person! I recognized it right away and it just raised my BP even more. Of course 5 mins later when I said my prayers and the nurse told me to breathe in deep and breath out slowly,I was out like a light. I awoke in recovery to the worst pain which was explained to me were bladder spasms. The nurse taking care of me quickly dispensed meds which eased it down. By the time I made it to my room I was awake but not coherent enough to even operate a remote control. I did recognize my wife right away as she walked into the room minutes after I was settled, although I couldn't say much I was smiling and jumping for joy deep inside. I was expecting to have the gas pains in the shoulders but that never materialized. I just experienced the uncomfortable sensation of the catheter and the continued bladder spasms. They gave the drug that I have heard many on here speak of that calms the bladder, the name escapes me at this moment, but for some reason it had a minimal effect on me. My stomach looks like I played dirty poker in the wrong saloon and someone went to work on me with a 6 shooter, mainly sore. I was amazed with the new procedure of "gluing"
the incisions closed. By Thursday night the nurse came around to take me for a walk down the hallway. I went all the way to the end and back, felt like I had run around the parking lot a few times, but I was proud. My doctor came in to see me Thursday and Friday morning, at which time he held an in depth conversation with instructions, answered all questions and told me I could go home. I've been home since and feel stronger everyday. The pain has graduated to mere tylenol and now I'm just dealing with the catheter and soreness from the incisions. My eyes are bigger than my feet if that makes sense, I feel as though I could walk around the block no problem but a short excursion tires me out easy right now. I feel much better than I ever thought I would after a surgery like this. Now comes the post-op visit on Friday, geez I can't wait to get the catheter out, and the follow up psa test. This has been a rough road with PC, one I will be on forever, but hopefully the roughest spots in the road are behind me.
So glad to hear the news of your 'textbook' surgery. Awesome news!
Definitely bring the depends pads with you when you have the catheter removed.
Leakage the first day can be heavy. But no worries.
I've been told and read about, not to do kegel's for 48 hrs after removal.
Then do them as often as you can.
I hope your news Friday is equally as good as the outcome so far.
Take care!
Feel free to email me with any other questions you might have.0 -
Olee,Olee said:Surgery Up-Date
Well everything went great last Thursday, it was a "text-book" surgery according to my surgeon. He said I bled very little and the tissues around the prostate looked good. It was a reality check when they rolled me into the ER and I saw the Da Vinci robot, it was like seeing your favorite movie star,athlete or comic book hero in person! I recognized it right away and it just raised my BP even more. Of course 5 mins later when I said my prayers and the nurse told me to breathe in deep and breath out slowly,I was out like a light. I awoke in recovery to the worst pain which was explained to me were bladder spasms. The nurse taking care of me quickly dispensed meds which eased it down. By the time I made it to my room I was awake but not coherent enough to even operate a remote control. I did recognize my wife right away as she walked into the room minutes after I was settled, although I couldn't say much I was smiling and jumping for joy deep inside. I was expecting to have the gas pains in the shoulders but that never materialized. I just experienced the uncomfortable sensation of the catheter and the continued bladder spasms. They gave the drug that I have heard many on here speak of that calms the bladder, the name escapes me at this moment, but for some reason it had a minimal effect on me. My stomach looks like I played dirty poker in the wrong saloon and someone went to work on me with a 6 shooter, mainly sore. I was amazed with the new procedure of "gluing"
the incisions closed. By Thursday night the nurse came around to take me for a walk down the hallway. I went all the way to the end and back, felt like I had run around the parking lot a few times, but I was proud. My doctor came in to see me Thursday and Friday morning, at which time he held an in depth conversation with instructions, answered all questions and told me I could go home. I've been home since and feel stronger everyday. The pain has graduated to mere tylenol and now I'm just dealing with the catheter and soreness from the incisions. My eyes are bigger than my feet if that makes sense, I feel as though I could walk around the block no problem but a short excursion tires me out easy right now. I feel much better than I ever thought I would after a surgery like this. Now comes the post-op visit on Friday, geez I can't wait to get the catheter out, and the follow up psa test. This has been a rough road with PC, one I will be on forever, but hopefully the roughest spots in the road are behind me.
CONGRATULATIONS on you successful surgery!!!! I am so glad to hear your ordeal is over, and the Surgeon indicated it was a textbook example.
I know you and your wife are tremendously relieved the first step of this journey is over.
Please keep us posted on your successful recovery.
God speed and best wishes,
Roger0 -
Post-Op Visit
Thank you guys so much for your support, it goes a long way believe me! My post-op visit went great. Dr. Miller said the pathology report did not disclose anything new and that we'll wait for the results of the psa test on April 4th to judge our results. I was so relieved to have the catheter out. The nurse said most men call it liberation day. Now I just have to come to terms with the incontinence and have faith that it will work out. My wife stopped me in the middle of my complaining of the side affects and looked me in the eyes and said, "But you are alive, celebrate it." My doctor started me on ED meds which have already worked to a degree the first time they were used, this was a victory and a bright spot. My plan now is start walking more and more, further and further, hopefully back on my mountain bike by April. Also to work on this incontinence issue or hope it works itself out. My sights are set on April 4th as my next big day, psa test, and then of course the sit and wait for the results.0 -
Post op visit.Olee said:Post-Op Visit
Thank you guys so much for your support, it goes a long way believe me! My post-op visit went great. Dr. Miller said the pathology report did not disclose anything new and that we'll wait for the results of the psa test on April 4th to judge our results. I was so relieved to have the catheter out. The nurse said most men call it liberation day. Now I just have to come to terms with the incontinence and have faith that it will work out. My wife stopped me in the middle of my complaining of the side affects and looked me in the eyes and said, "But you are alive, celebrate it." My doctor started me on ED meds which have already worked to a degree the first time they were used, this was a victory and a bright spot. My plan now is start walking more and more, further and further, hopefully back on my mountain bike by April. Also to work on this incontinence issue or hope it works itself out. My sights are set on April 4th as my next big day, psa test, and then of course the sit and wait for the results.
Glad to see you are doing so well, Olee. Just wanted to comment on what your wife said, and she is right. We are above ground, as I like to say, and we have another day. I do not know about you, but this experience has opened my eyes, and now I view each day as a gift, and am thankful for the blessings that have allowed me to still be here. The incontinence will pass, as it looks like the rest of your recovery is going well. It does not seem like it the first few days after the cath is out, but mine improved greatly over a couple of weeks time. Just kegel, kegel, kegel.There is a book out called beyond kegels, that adds a few more exercises. It helped alot. I found out about it on another site, and maybe it will help speed the control. The author is Janet A. Hulme. I am five weeks out now, going on six, and just use a small mens pad for piece of mind. A hard sneeze or cough still causes a few drips, but not bad. Be patient, control comes quicker than you would think. It sounds like you have a very supportive wife, and that is the biggest blessing you can have, in my opinion. I could not have made it thru this if not for mine. She propped me up when I needed it most. Good luck, and keep on smiling if you can, because we are still above ground.0 -
post-op visitOlee said:Post-Op Visit
Thank you guys so much for your support, it goes a long way believe me! My post-op visit went great. Dr. Miller said the pathology report did not disclose anything new and that we'll wait for the results of the psa test on April 4th to judge our results. I was so relieved to have the catheter out. The nurse said most men call it liberation day. Now I just have to come to terms with the incontinence and have faith that it will work out. My wife stopped me in the middle of my complaining of the side affects and looked me in the eyes and said, "But you are alive, celebrate it." My doctor started me on ED meds which have already worked to a degree the first time they were used, this was a victory and a bright spot. My plan now is start walking more and more, further and further, hopefully back on my mountain bike by April. Also to work on this incontinence issue or hope it works itself out. My sights are set on April 4th as my next big day, psa test, and then of course the sit and wait for the results.
I was glad to read that you came out of surgery so well. I have another visit with my urologist on Monday to further discuss options. I will most likely go the path you choose also. But active survellance has such an appeal. I read all of your posts, your frustrations, and your success. I only pray I can make the right one when the time comes.I know taking it out is the way to go, but I think I am more scared of that right now. Gongratulations on so much success and pray for continued speedy recovery.0 -
Post-Op VisitRRMCJIM said:post-op visit
I was glad to read that you came out of surgery so well. I have another visit with my urologist on Monday to further discuss options. I will most likely go the path you choose also. But active survellance has such an appeal. I read all of your posts, your frustrations, and your success. I only pray I can make the right one when the time comes.I know taking it out is the way to go, but I think I am more scared of that right now. Gongratulations on so much success and pray for continued speedy recovery.
Went to post-op appointment on Friday. I can't tell you how much hope and energy was focused on the blood that I watched flow into the collection tube. I'll get my answer as to my post-op PSA level by next Friday. My doctor says he has alot of confidence, judging from what he saw during surgery, that I will be ok, but I will be on pins and needles for the next week. We discussed the incontinence and he says it's going to take more time, that there is more healing to take place. He thinks that I should definitely see an improvement over the next 3 months. I still have my good days and bad days. Erectile function is returning, even without the drugs, which is great. He said that was very good news and a sign for me that nerve function was there and would only improve. I just have to keep doing the things I've been doing, exercise,the meds,the pump and stay positive. I'm back at work and am loving my job more than ever. One of my co-workers greeted me yesterday upon my arrival back and asked how I felt to be back. I responded with "It's awesome!" He looked at me confused and said "Well good for you, never thought I would hear anyone loving this madhouse business this much." I answered him with this view on things. The fact that in this economy, with jobless rates soaring,and most importantly that I just survived cancer and am able to return and do my job just as I did before and that I have a job, is absolutely incredible to me. He said that was hard to argue with.0 -
Couldn't agree with you moreOlee said:Post-Op Visit
Went to post-op appointment on Friday. I can't tell you how much hope and energy was focused on the blood that I watched flow into the collection tube. I'll get my answer as to my post-op PSA level by next Friday. My doctor says he has alot of confidence, judging from what he saw during surgery, that I will be ok, but I will be on pins and needles for the next week. We discussed the incontinence and he says it's going to take more time, that there is more healing to take place. He thinks that I should definitely see an improvement over the next 3 months. I still have my good days and bad days. Erectile function is returning, even without the drugs, which is great. He said that was very good news and a sign for me that nerve function was there and would only improve. I just have to keep doing the things I've been doing, exercise,the meds,the pump and stay positive. I'm back at work and am loving my job more than ever. One of my co-workers greeted me yesterday upon my arrival back and asked how I felt to be back. I responded with "It's awesome!" He looked at me confused and said "Well good for you, never thought I would hear anyone loving this madhouse business this much." I answered him with this view on things. The fact that in this economy, with jobless rates soaring,and most importantly that I just survived cancer and am able to return and do my job just as I did before and that I have a job, is absolutely incredible to me. He said that was hard to argue with.
I am just happy to have a job and I WILL make it work, especially with a daughter in college and a 7 yo boy coming up the ranks. I get my first post-op PSA look next Friday also. Wish me luck and let us know how your's goes Olee.0 -
PSA=0kreinholt said:Couldn't agree with you more
I am just happy to have a job and I WILL make it work, especially with a daughter in college and a 7 yo boy coming up the ranks. I get my first post-op PSA look next Friday also. Wish me luck and let us know how your's goes Olee.
I got the best news I've received during this entire journey, the phone call from the doctor's office this morning to tell me my post-op PSA test came back 0. Now I go forth and reap the lessons learned,appreciate life and this world around me. I'll never forget to keep my foot down on cancer, holding it steadfast and firm to the ground, using all my strength to keep it from rising ever again. I'll make sure to tell my family who supported me through this long journey, that I love them deeply and appreciate them with all my heart, tell them I will, everyday. My wife,her caring heart, just as beautiful as her face, who held my hand everyday, supporting me and loving me as my best friend and bride. My kids, who inspired me with their energy and the thoughts of possible time to spend with them. My parents,brother and sister, who showed me there is always strength in the family. My fellow survivors who illuminated my way down the path of prostate cancer. I wish the best for future survivors and pledge to lend support in this ongoing battle. Now it's time to see the world with my eyes wide open, breathe it in, taste it, smell it, appreciate.0 -
GREAT NEWS!!!!!!Olee said:PSA=0
I got the best news I've received during this entire journey, the phone call from the doctor's office this morning to tell me my post-op PSA test came back 0. Now I go forth and reap the lessons learned,appreciate life and this world around me. I'll never forget to keep my foot down on cancer, holding it steadfast and firm to the ground, using all my strength to keep it from rising ever again. I'll make sure to tell my family who supported me through this long journey, that I love them deeply and appreciate them with all my heart, tell them I will, everyday. My wife,her caring heart, just as beautiful as her face, who held my hand everyday, supporting me and loving me as my best friend and bride. My kids, who inspired me with their energy and the thoughts of possible time to spend with them. My parents,brother and sister, who showed me there is always strength in the family. My fellow survivors who illuminated my way down the path of prostate cancer. I wish the best for future survivors and pledge to lend support in this ongoing battle. Now it's time to see the world with my eyes wide open, breathe it in, taste it, smell it, appreciate.
Excellent Olee, We are so glad to hear your news....couldn't be happier for you and yours. I can only hope and pray that my results continue to follow yours, Wubbs, Ismetals, and so many others on this site. I just can't thank you all for posting your stories and being here for me when I needed it most. Congratulations again0 -
Good for you!!!Olee said:PSA=0
I got the best news I've received during this entire journey, the phone call from the doctor's office this morning to tell me my post-op PSA test came back 0. Now I go forth and reap the lessons learned,appreciate life and this world around me. I'll never forget to keep my foot down on cancer, holding it steadfast and firm to the ground, using all my strength to keep it from rising ever again. I'll make sure to tell my family who supported me through this long journey, that I love them deeply and appreciate them with all my heart, tell them I will, everyday. My wife,her caring heart, just as beautiful as her face, who held my hand everyday, supporting me and loving me as my best friend and bride. My kids, who inspired me with their energy and the thoughts of possible time to spend with them. My parents,brother and sister, who showed me there is always strength in the family. My fellow survivors who illuminated my way down the path of prostate cancer. I wish the best for future survivors and pledge to lend support in this ongoing battle. Now it's time to see the world with my eyes wide open, breathe it in, taste it, smell it, appreciate.
Olee, I had my PSA read last Friday also. Mine was .068. So, so far so good. Next one in three months. I don't let the incontenance stop me from doing anything these days. I'm back to work and dealing with it, I've been snowboarding twice since the operation and I even started back at Karate in the quest to earn my black belt with my 7 yo son. Life goes on.0 -
Great News kreinholtkreinholt said:Good for you!!!
Olee, I had my PSA read last Friday also. Mine was .068. So, so far so good. Next one in three months. I don't let the incontenance stop me from doing anything these days. I'm back to work and dealing with it, I've been snowboarding twice since the operation and I even started back at Karate in the quest to earn my black belt with my 7 yo son. Life goes on.
That's great to hear! Like you I am learning to deal with the incontinence, just have to plan accordingly. Life goes on is true.0 -
Thank YouRRMCJIM said:GREAT NEWS!!!!!!
Excellent Olee, We are so glad to hear your news....couldn't be happier for you and yours. I can only hope and pray that my results continue to follow yours, Wubbs, Ismetals, and so many others on this site. I just can't thank you all for posting your stories and being here for me when I needed it most. Congratulations again
We'll be right here as you go through your surgery as well.0
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